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MS and Driving Survey Results


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MS and Driving Survey Results

  1. 1. 12/2/13 Edit form - [ DVLA or Driver and Vehicle Licensing Agency ] - Google Docs 109 responses Summary See complete responses Type of MS Clinically-isolated syndrome 4 Relapsing secondary progressive 4% 60 Relapsing-remitting 55% 9 8% Secondary progressive 22 20% Primary progressive 12 11% 1 1% Relapsing progressive MS Prior to reading this blog post did you know that as somebody with MS you are meant to notify the DVLA, or equivalent driving authority, in your country? Yes 67 61% No 42 Who told you that you must notify the DVLA, or equivalent driving authority, in your country? N/A - I didn't know 39% 38 36% 29 27% 2 2% Neurologist 22 21% MS nurse specialist 16 15% MS Society or other MS charity 4 4% Other 8 7% Myself from reading General Practitioner or Family Doctor People may select more than one checkbox, so percentages may add up to more than 100%. Do you drive a motor vehicle? Yes - in the past 19 17% Yes - currently 81 74% No - I have never driven a motor vehicle 2 2% No - but, I would like to drive in the future 4 4% Other 3 3% 1/2
  2. 2. 12/2/13 Edit form - [ DVLA or Driver and Vehicle Licensing Agency ] - Google Docs Has MS affected your ability to drive? Yes 50 46% No 47 43% N/A - I don't drive 4 4% Other 8 7% How has MS affected your ability to drive? N/A Reduced sensation and movement in my feet means I need an adapted car with hand controls. manual gears. the need to drive an automatic. Fatigue confidence behind a wheel. On some days I feel t What country do you live in? UK England The Netherlands Uk Australia England States USA UK U.S. England England USA UK UK England UK Eng Only in I have to concentrate very hard. My reflexes are slower. When my eyes get very tired, they slip into double vision. My arms get tired holding them up on the steering wheel. Germany I no longer can drive a car with A weakness in the legs, which have prompted me to switch to an automatic and then to a vehicle with hand controls. USA UK England England uk UK UK uk My legs are affected by spasticity and my cognition is also fallible, as is my ... US usa Uk scotland uk UK uk UK UK UK USA uk usa USA Belgium UK usa England canada United ... Comment The current system in the UK where a neurologist has to validate your application to renew a 3 year licence is not very practical - it overburdens the neurologists with admin and (in my case anyway, because the form wasn't completed by my neuro!) led to me having to spend a whole day being assessed at a mobility centre (accompanied, in case I wasn't able to drive home through losing my licence). That was 4 years ago and I am still competent to drive a manual car. However I think there are MSers who have never notified DVLA of their diagnosis, because of ignorance of the regulations. Safety on ... Disclaimer No personal identifiers, including your computer's IP address, will be collected as part of this survey. Please note that by completing this survey you are consenting to the data you provide being analysed by Prof. Giovannoni and his collaborators. Results of this survey will be presented on this blog and may be submitted for publication. Number of daily responses 2/2