6/10/2014 Edit form – [ EarlyAggressive Treatment ] – Google Forms
https://docs.google.com/a/giovannoni.net/spreadsheet/gf...
6/10/2014 Edit form – [ EarlyAggressive Treatment ] – Google Forms
https://docs.google.com/a/giovannoni.net/spreadsheet/gf...
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Early aggressive treatment survey results june 2014

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Early aggressive treatment survey results june 2014

  1. 1. 6/10/2014 Edit form – [ EarlyAggressive Treatment ] – Google Forms https://docs.google.com/a/giovannoni.net/spreadsheet/gform?key=0At8Wl-mnbSwhdG9wQ1JxakI0Zm83OTJnTlNzMFBfR0E&gridId=0#chart 1/2 139responses SummarySee complete responses If you had the option for early aggressive treatment, would you choose it over safer first-line treatments? Yes 92 66% No 15 11% Maybe 31 22% Who should make the decision regarding which MS treatments are accessible to MSers with early disease? The regulators; e.g. EMA or FDA 8 6% The payers; governments or insurance companies 6 4% Neurologists 62 45% MSers 50 36% Other 13 9% What chance of a serious life threatening adverse event would you be prepared to accept as a complication of an early aggressive treatment? 1 in 10,000 or 0.01% 26 19% 1 in 1000 or 0.1% 48 35% 1 in 100 or 1% 36 26% 1 in 10 or 10% 13 9% 1 in 5 or 20% 2 1% 1 in 2 or 50% 1 1% Other 13 9% Comment Too late prob for me (find some SPMS brakes) but imagined myself 30 and first diagnosed again x If it is accepted that early treatment can delay/prevent/reduce disabling effects later in life, I believe it is morally indefensible for this not to be communicated to people who are newly diagnosed or have CIS. I've seen the success of early aggressive treatment (in my case2.5 years after diagnosis) - 6 years since my first Alemtuzumab infusion and no relapses / stability (very serious lapses in the 2 years following diagnosis. I (patient) should have the choice given what this disease does down st ...
  2. 2. 6/10/2014 Edit form – [ EarlyAggressive Treatment ] – Google Forms https://docs.google.com/a/giovannoni.net/spreadsheet/gform?key=0At8Wl-mnbSwhdG9wQ1JxakI0Zm83OTJnTlNzMFBfR0E&gridId=0#chart 2/2 2 years following diagnosis. I (patient) should have the choice given what this disease does down st ... Disclaimer No personal identifiers, including your computer's IP address, will be collected as part of this survey. Please note that by completing this survey you are consenting to the data you provide being analysed by Prof. Giovannoni and his collaborators. Results of this survey will be presented on this blog and may be submitted for publication. Number of daily responses

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