De-flames study survey results

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De-flames study survey results

  1. 1. 1/24/2014 Edit form - [ DE-FLAMES Study ] - Google Docs This form will soon be upgraded to the new version of Google Forms. Learn more. 103 responses Summary See complete responses What type of MS do you have? CIS 3 3% 56 54% 8 8% SPMS 19 18% PPMS 10 10% PRMS 2 2% Not sure 3 3% Other 2 2% RRMS R-SPMS Do you understand the concept of combination therapy treatment? Yes Not,es 93 90% 8 8% Would you be interested in participating in a combination therapy study to address brain atrophy early in MS? Yes 81 79% Not,es 8 8% Maybe 11 11% Other 3 3% https://docs.google.com/a/giovannoni.net/spreadsheet/gform?key=0At8Wl-mnbSwhdDV6T2c3bnpBUzJVSDhBVTlyYzBwcUE&gridId=0#chart 1/3
  2. 2. 1/24/2014 Edit form - [ DE-FLAMES Study ] - Google Docs Would a study length of 24 months affect your decision to participate? Not,es 97 94% 5 5% 62 60% Not,es 13 13% Maybe 27 26% Yes Would you be prepared to have two lumbar punctures as part of this study? Yes Comments Current therapy: dimethylfumarate I would 100% participate in this study. I think combination therapy is the only way to effectively treat MS. Is it possible to conduct a trial to find something to reduce the rate of brain atrophy in SPMS? Would you please comment on the result of the MS-STAT trial and the reduction in brain atrophy that was found, and where does research go from here? Thanks would have to come off tysabri? Great work; thank you. I assume I Previous lumbar puncture left me unable to stand without being sick for ten days. I would love to know why this happened and if it is likel ... Disclaimer No personal identifiers, including your computer's IP address, will be collected as part of this survey. Please note that by completing this survey you are consenting to the data you provide being analysed by Prof. Giovannoni and his collaborators. Results of this survey will be presented on this blog and may be submitted for publication. Number of daily responses https://docs.google.com/a/giovannoni.net/spreadsheet/gform?key=0At8Wl-mnbSwhdDV6T2c3bnpBUzJVSDhBVTlyYzBwcUE&gridId=0#chart 2/3
  3. 3. 1/24/2014 Edit form - [ DE-FLAMES Study ] - Google Docs https://docs.google.com/a/giovannoni.net/spreadsheet/gform?key=0At8Wl-mnbSwhdDV6T2c3bnpBUzJVSDhBVTlyYzBwcUE&gridId=0#chart 3/3

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