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Did you know newsletter suppl.1 2014

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Europa Uomo

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Did you know newsletter suppl.1 2014

  1. 1. EUROPA UOMO / Did You Know? Xmas Suppl./2014 1 As the Holiday Season is upon us, we find ourselves reflecting on the past year and on those who have helped us shape our organisation. We value our relationship with you and look forward to working with you in the year to come. Europa Uomo wishes you a Happy Christmas and a New Year filled with Peace and Prosperity __________________________________________________________________________________________________________ Contents p.1 Greetings and News from the Chairman p.2 Keep up to date on new trials, treatment and cures p.3 EMUC – EUomo’s Strategic Board meeting The Newsletter did the trick p.4 European Code Against Cancer: 12 ways to reduce your cancer risk p.5 The Europa Uomo New Year’s Resolution Greetings and News from the Chairman Ken Mastris, Chairman Europa Uomo Dear Friends and fellow Ambassadors It’s a great honour and privilege to serve you as Chairman of Europa Uomo, the voice of prostate cancer patients in Europe. It has proved a steep learning curve to fully understand the complexity of treatment in Europe. I would like to thank you, the Board, Louis Denis and Anja Vancauwenbergh for the support given to me since my election in London. I would also like to thank our partners for making me feel welcomed into the arena. I would naturally like to thank my own organisation TACKLE and my fellow Trustees and CEO for their help and support. Newsletter of the 23 European member Forums dedicated to improving knowledge of cancer of the prostate Did You Know? Xmas Supplement 2014
  2. 2. EUROPA UOMO / Did You Know? Xmas Suppl./2014 2 At our first Board meeting it was agreed that openness and transparency shall be the priorities of EUomo. It was clear to me that we needed to have a strategic seminar to review our mission, vision, objectives and to formulate our business plan to assist us in fund-raising over the next few years. We therefore agreed to cancel the masterclass event for this year and plan for a symposium and General Assembly in Poland sometime in June 2014. So watch out for further details. In November we completed the first stage of our plans and the Board and ex-officio’s agreed on the following aspects: Vision • A future where no man suffers or dies from prostate cancer Mission • To work for all prostate cancer patients in Europe, under one umbrella, for better treatment, care and quality of life. • To support national organisations to supply effective and efficient services perfectly in line with national priorities. Objectives • Ensure patients and their families get access to the best possible treatment and care • Ensure the sustainability of Europa Uomo • Improve the capacity of member organisations to deliver their services • Increase the membership of Europa Uomo • Improve the early detection of prostate cancer • Raise awareness of prostate cancer • Contribute to the decision making processes of relevant EU institutions The Board also agreed to ask Louis Denis to be our strategic consultant to develop our European network and increase our profile. Further meetings will be held in 2015 to continue the hard work. I would like to thank Malcolm Duncan for his initiative and hard work on the Newsletter which shows that the Board is transparent in its workings. This Newsletter has been well received by members and professional bodies alike. Keep the articles coming in! It is a wonderful way to exchange experiences and learn from one another in the struggle to improve prostate cancer care. With the aim of assuring a full understanding of your organisation by the Board I will shortly be asking for details in a separate communication. I therefore look forward in meeting some of you in Poland in June next year 2015. Finally, I send you and your families my most sincere greetings for the festive season and wish you all a happy and healthy NEW YEAR - Enjoy Christmas. Keep up to date on new trials, treatments and cures The 2015 issues of the Newsletter will attempt to keep its readers well informed on new treatments and cures as well as testing under way. The European clinical trials register now encompasses all clinical trials due to the EU law passing the parliament on 3rd April 2014. EUomo and its members passionately supported the petition „ALL CLINICAL TRIALS REGISTERED/RESULTS REPORTED” which was causative for the EU parliament decision. Here you find information about the concept of the community clinical trials register https://eudract.ema.europa.eu/ and there are the specific information on prostate cancer trials https://www.clinicaltrialsregister.eu/ctr- search/search?query=prostate+cancer
  3. 3. EUROPA UOMO / Did You Know? Xmas Suppl./2014 3 EMUC – EUomo’s Strategic Board meeting Lisbon, Portugal – November 13-16, 2014 Joaquim da Cruz Domingos, Portugal Following a decision of the Europa Uomo Board, the Lisbon meeting was dedicated almost exclusively to the preparation of a Strategic Plan in order to find the right directions for some of the problems and issues currently being faced by many national member associations and thus successfully achieve the chief goals and objectives of EUomo which have already been clearly defined. During two hard working days, one by one, most of the existing barriers were tackled, and we are now more able to look ahead in such a way that promises success. Next year’s activities plan was also discussed in detail and only some minor points still need to be defined. Early in 2015, the Board will announce the main activities scheduled in the Strategic Plan and the Board is sure that all associate members will assure their full and enthusiastic participation which will guarantee its success. The composition of the Board and invitees who discussed the forthcoming preparation of a medium and long term Strategic Plan. L-R: Ken Mastris (Chairman), Malcolm Duncan (Editor Newsletter & Board member), Jean Mossman (consultant/facilitator), Max Lippuner (Secretary), Louis Denis (Strategic Consultant), Tor Tausvik (Vice-Chairman), Ekke Büchler (Vice- Chairman), Erik Briers (Ex-Officio member) Günter Feick (Ex-Officio member), Joaquim Domingos (webmaster) and Christian Arnold (Treasurer). The Newsletter did the trick Malcolm Galloway Duncan The enthusiastic response of member associations to the recent launching of the Newsletter has convinced the Board that we can now aim for a regular quarterly issue plus some short monthly supplements containing communications by our chairmen, Ken Mastris, and important news like new treatments and cures approved by the Clinical Trials Register. This regular exchange of news on the activities of our 23 national member associations will surely favour closer co- operation, prove of reciprocal benefit by an exchange of knowledge on our individual initiatives, problems and success in their resolution. The French Anamacap and the Slovakian associations have already achieved official recognition in their respective countries and Denmark, already abounding in
  4. 4. EUROPA UOMO / Did You Know? Xmas Suppl./2014 4 membership vis-à-vis the modest dimensions of its population, now aims to achieve at least 25% of prostate cancer patients members of their PROPA association. The British Tackle association now tops the number of members and thanks to its sporting event “A Shining Night Walk” has already collected £13.5 million for cancer research after only three annual events. This year they plan to collect a further £4.7 million. The Newsletter enabled us to spread the news of new trials thanks to the Clinical Trials Register. This is wonderful news for both physicians and patients. Sharing ideas and experience will surely contribute to the establishment of Multi- Disciplinary Centres in which, at the moment, Germany excels with 96 such centres of excellence located throughout the country and to which prostate cancer patients are advised to refer to. The Irish MAC has done much to humanize the treatment of prostate cancer patients by accepting invitations by hospital nurses to visit and talk to the patients accommodated in their prostate cancer wards. Following the same line of thought, Finland has stressed the importance of the quality of life of prostate patients and Austria has stressed the concept that “Everyday life is precious”. A regular exchanges of ideas and experience by means of the Newsletter will surely help associations to deal with problems relating to national political and health authorities as well as potential sponsors. The Newsletter has also undoubtedly contributed to the recent decision by the Board to establish a short, medium and long term Strategic Plan with the adoption of A New Approach. This will undoubtedly assign an important role to all member associations and not just to those fortunate enough to have a member on the Board. One crucial problem which requires thought and consideration is a lack of the necessary financial funds of several national member associations in order to successfully achieve their established goals and programmes.  May all your Christmas wishes come true!  European Code Against Cancer 12 ways to reduce your cancer risk International Agency for Research on Cancer (IARC) 1. Do not smoke. Do not use any form of tobacco. 2. Make your home smoke free. Support smoke-free policies in your workplace. 3. Take action to have a healthy body weight. 4. Be physically active in everyday life. Limit the time you spend sitting. 5. Have a healthy diet: Eat plenty of whole grains, pulses, vegetables and fruits Limit high-calorie foods (foods high in sugar or fat) and avoid sugary drinks Avoid processed meat; limit red meat and foods high in salt 6. If you drink alcohol of any type, limit your intake. Not drinking alcohol is better for cancer prevention. 7. Avoid too much sun, especially for children. Use sun protection. Do not use sunbeds.
  5. 5. EUROPA UOMO / Did You Know? Xmas Suppl./2014 5 8. In the workplace, protect yourself against cancer-causing substances by following health and safety instructions. 9. Find out if you are exposed to radiation from naturally high radon levels in your home. Take action to reduce high radon levels. 10. For women: Breastfeeding reduces the mother’s cancer risk. If you can, breastfeed your baby. Hormone replacement therapy (HRT) increases the risk of certain cancers. Limit use of HRT. 11. Ensure your children take part in vaccination programmes for: Hepatitis B (for newborns) Human papillomavirus (HPV) (for girls) 12. Take part in organized cancer screening programmes for: Bowel cancer (men and women) Breast cancer (women) Cervical cancer (women) The European Code Against Cancer focuses on actions that individual citizens can take to help prevent cancer. Successful cancer prevention requires these individual actions to be supported by governmental policies and actions. Find out more about the European Code Against Cancer at: http://cancer-code- europe.iarc.fr EUROPA UOMO Secretariat Lange Gasthuisstraat 35-37 2000 Antwerp – Belgium Tel: +32 3 338 91 51 - Fax: +32 3 338 91 52 E-mail: europauomo@skynet.be Website: www.europa-uomo.org The Europa Uomo New Year’s Resolution Prof. Louis Denis, Strategic Consultant Europa Uomo In the spirit of enlightment we aim for a free democratic system of governance, equality for all European citizens and solidarity in progress. From the above figures you can see the mean (average) life expectation from the day you were born in the different countries of the European Union. The figures range from 77.4 to 82.4-83.4 years, from full red to dark green. In Flemish but easy to understand. With the difference between East and West you can understand why our strategic program 2015 sees the greening of all union countries as a priority. Our 2015 resolution aims to redress this imbalance in part by improving treatment and care of their male citizens with prostate diseases. We cannot hope to do this alone but we certainly will do our best in a broad front with our professional partners, the European health authorities and our sponsors. All our best wishes for a peaceful Xmas and a prosperous New 2015.
  6. 6. EUROPA UOMO / Did You Know? Xmas Suppl./2014 6 Half a million new cancers in 2012 due to overweight and obesity Proportion of obesity-related cancers higher in women International Agency for Research on Cancer (IARC) Lyon, France, 26 November 2014 - A new study by the International Agency for Research on Cancer (IARC), the specialized cancer agency of the World Health Organization (WHO), shows that nearly half a million new cancer cases per year can be attributed to high body mass index (BMI)1. The study, published today in The Lancet Oncology, highlights that overweight and obesity2 have become a major risk factor, responsible for an estimated 3.6% (481.000) of all new cancer cases in 2012. Striking global disparities Global analysis shows that cancer due to overweight and obesity is currently far more common in more developed countries (393.000 cases, 5.2% of all new cancer cases in these countries) than in less developed countries (88.000 cases, 1.5% of all new cancer cases in these countries). North America remains the most affected, with an estimated 111.000 obesity-related cancers in 2012, accounting for 23% of the total global cancer burden linked to high BMI. In Europe, the proportion of cancers due to overweight and obesity is also large, particularly in eastern Europe (65.000 cases, 6.5% of all new cancer cases in the region). Overall, the countries with the highest cancer burden attributable to overweight and obesity in men are the Czech Republic (5.5% of the country’s new cancer cases), Jordan (4.5%), the United Kingdom (4.4%), and Malta (4.4%). Among women, Barbados (12.7%), the Czech Republic (12.0%), and Puerto Rico (11.6%) are most affected. In the USA, one of the largest contributors of global cancers associated with high BMI, 3.5% and 9.5% of the country’s new cancer cases are linked to excess body weight in men and women, respectively. Although in most Asian countries the proportion of cancers associated with overweight and obesity is not large, it still translates into a considerable absolute number of cases, due to the large population size. For example, in China, about 50.000 cancer cases in women and men are associated with overweight and obesity, accounting for 1.6% of the country’s new cancer cases. In contrast, the contribution of overweight and obesity to cancer burden remains low in Africa (7.300 cases, 1.5% of all new cancer cases in the continent). “Overall, we see that while the number of cancer cases associated with overweight and obesity remains highest in richer countries, similar effects are already visible in parts of the developing world,” says Dr Isabelle Soerjomataram, one of the study’s leading authors and the project’s principal investigator. Women are more affected High BMI is a known risk factor for cancers of the oesophagus, colon, rectum, kidney, pancreas, gallbladder, postmenopausal breast, ovary, and endometrium, as well as for other noncommunicable diseases, notably cardiovascular disease and diabetes3. The study highlights that the proportion of cancers related to obesity is higher in women than in men, with population attributable fractions of 5.3% and 1.9%, respectively. “Women are disproportionately affected by obesity-related cancers,” says IARC’s Dr Melina Arnold, one of the study’s leading authors, “For example, for postmenopausal breast cancer, the most common cancer in women worldwide, the study suggests that 10% of these cancers could have been prevented by having a healthy body weight.”
  7. 7. EUROPA UOMO / Did You Know? Xmas Suppl./2014 7 Cancers of the endometrium, colon, and breast account for almost three quarters (73%) of all cancers linked to high BMI in women. In men, kidney and colon cancers together account for two thirds (66%) of all cancers associated with high BMI. Potential for prevention “These worrying results highlight that it’s crucial to maintain a healthy weight to prevent so many common cancers,” says Dr Kate Allen, Executive Director of Science and Public Affairs at World Cancer Research Fund International, which funded the project. “In the United Kingdom, 13.000 cases diagnosed in 2012 in women (8.2% of all cancers) could be ascribed to overweight and obesity. It’s also alarming to see that men in the UK are fourth in the world in this obesity cancer league table, with 6.000 cases (4.4% of all cancers) attributed to being overweight or obese. Cancer is an epidemic problem, and to tackle it we need to help people take measures to be a healthy weight.” Reducing overweight and obesity at the population level could have significant health benefits, including reducing the burden of cancer. The study also shows that one quarter of all cancers attributable to overweight and obesity worldwide (118.000 cases) could have been prevented if populations had simply maintained their average BMI of 30 years ago. “The number of cancers linked to obesity and overweight is expected to rise globally along with economic development,” says Dr Christopher Wild, Director of IARC. “This study stresses the importance of putting in place efficient weight control measures, to curb the high number of cancers associated with excess body weight and to avoid the problems faced by rich countries being repeated in those now undergoing rapid development.” Notes 1 BMI is a measure of body fat, calculated by dividing the weight in kilograms by the square of the height in metres. 2 WHO defines overweight as a BMI greater than or equal to 25 kg/m2 , and obesity as a BMI greater than or equal to 30 kg/m2 . 3 Global status report on noncommunicable diseases 2010. Geneva, World Health Organization, 2011. For more information, please contact Véronique Terrasse, Communications Group, at terrassev@iarc.fr or Dr Nicolas Gaudin, IARC Communications, at com@iarc.fr The International Agency for Research on Cancer (IARC) is part of the World Health Organization (WHO). Its mission is to coordinate and conduct research on the causes of human cancer and the mechanisms of carcinogenesis, and to develop scientific strategies for cancer control. The Agency is involved in both epidemiological and laboratory research and disseminates scientific information through publications, meetings, courses, and fellowships. If you wish your name to be removed from our press release emailing list, please write to com@iarc.fr. PLEASE VISIT OUR WEBSITE www.europa-uomo.org Optimal Treatment Holistic Care
  8. 8. EUROPA UOMO / Did You Know? Xmas Suppl./2014 8 Publication co-sponsored by “Did You Know?” European Newsletter contacts and email Austria: Ekkehard Büchler, efb@gmx.com; Belgium: Henk Van daele, henk.vandaele@telenet.be; Bulgaria: Alexander Marinov, alpemarinov@abv.bg; Cyprus: Andreas Moyseos, andreas.moyseos@cytanet.com.cy; Czech Republic: Dalibor Pacík, dpacik@fnbrno.cz; Denmark: K.B. Madsen, madsenkb@mail.dk; Finland: Hannu Tavio, hannu.tavio@gmail.com; France: Roland Muntz, info@anamacap.fr.; Germany: Günter Feick, g-feick@gmx.de; Hungary: Dr. Tamás Simon MD. Ph.D., simon@rakliga.hu; Ireland: John Dowling; johndeclandowling@gmail.com; Italy: Malcolm Galloway Duncan, mqi@hotmail.co.uk - europauomo.italy@virgilio.it; Lithuania: Zygimantas Kardelis, karzygis@gmail.com; Norway: Tor Tausvik, tor@tausvik.no; Poland: Tadeusz Rudzinski, stowarzyszenie.gladiator@poctza.fm; Portugal: Joaquim da Cruz Domingos, cruzdomingos@netcabo.pt; Romania: Toma Catalin Marinescu, rokapros@yahoo.com; Slovak Republic: Josef Blazek, josef.blazek@vsbm.sk – uomosk.3@gmail.com; Spain: Jordi Estapé, jestape@fefoc.org; Sweden: Calle Waller, calle.waller@partnershipforeurope.se; Switzerland: Max Lippuner, mlip@bluewin.ch; The Netherlands: Kees van den Berg, voorzitter@prostaatkankerstichting.nl; United Kingdom: Ken Mastris, ken.mastris@btinternet.com.

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