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Enabled magazine

  1. 1. NGOCBM, MITHRA
  2. 2. Ganda 2K4 Standup Wheelchair heelchair
  3. 3. 24 3210 6 4 March 2011 ♦ Enabled 1
  4. 4. SUCCESS STORY Mr. N. Ilango, M.A, M.Phil, PGDTE., Managing Director, ACE Panacea Soft Skills Pvt. Ltd.March 2011 ♦ Enabled
  5. 5. A Living Inspiration As a Singer As a Trainer As a Voice over ArtistToday’s Chennai is a fast growing city. Amongst the life living in chennai, a person named Mr.Ilango, who doesn•ft know how the day and night looks in chennai, training the budding students toget a job. Yes, he is a visually challenged person.He is a different person among the differently abled people. From his childhood he faced manyhurdles in life. His mother gave the vision of how to lead his life. She trained him to do his work byhimself.He is a good speaker. Many people awaits to heed his speech in many colleges, Industries. Hemade exposures in Media,News,Television.He got graduated in English Literature. The way hespeaks in English make others admire. He acts as a backbone of ACE Panacea soft skills Pvt.. ltd.,Director. He trains the budding students in 19 colleges through his company.The gift within him is “ Good Singer”, from 1995. He sings in Tamil, Malayalam, Telugu and Hindi.He mesmerized the people of Dubai, Malaysia, Singapore, Thailand through his voice. He createdalbums of “Pookalin Mozhi” , “Kasada Thabara” .In addition to this, he gives voice over toadvertisements. Through his company,15000 students,3000 Teachers and more than 2000 corporateemployee get trained in English.Differently abled people should express their talents and should grow high to reach the heights inthe world. Yes,Mr.Illango lives as an example for the differently abled people. Even though, he livesin dark,he gives light to the other people. Visually Challenged gives Vision Think twice, work hard and be the success yours. March 2011 ♦ Enabled 3
  6. 6. SUCCESS STORY Photograph by Sathasivam www.enabled.in MR. DINAKAR, IRPS., SOUTHERAN RAILWAYS, CHENNAI. “ Presently, the blind candidates can take the exam in six centres in the country. But, until 2002, blind candidates had to necessarily take their exams in New Delhi only. Shri. Dinakar, therefore, had to travel at least five times to Delhi for the exams. ” Shri. T.D. Dinakar was born on 5th February 1969 in Coimbatore. During the last semester of his graduation and immediately soon after, while he was pursuing his I.C.W.A. I course, he witnessed difficulty in reading books. It was diagnosed by doctors that he suffering from a rare eye disease called “Macular Degeneration” and there is no scope of recovery or prevention of further degeneration. From the very first year of his joining the insurance company, he competed for promotion to the post of Stenographer on equal terms with his sighted colleagues. Whereas his colleagues would take the stenography skill test in Pitman•fs shorthand, Shri. Dinakar would take the same in Braille shorthand. Though he would pass the skill test every time, he would not be able to get promotion, as he would b the junior most among the employees, who were successful in the skill test. After his fourth successful attempt in the skill test, Shri. Dinakar was promoted as Stenographer in Oct. 1999.March 2011 ♦ Enabled 4
  7. 7. Never Give up Mr. Dinakar, IRPS., Being now aware that the visually impaired can appear for the CivilServices examination, Shri. Dinakar started preparing for the exams in Aug. 1999.Since Brailling or recording of the voluminous books was impossible, all his familymembers and friends would read out the books and Shri. Dinakar would listen tothem and assimilate the subjects. He made his first Civil Services attempt in May2000, but was unsuccessful. He made his second attempt in May 2001, clearedboth the preliminary and main examinations and appeared for the Interview in May2002. Even though he was the only visually handicapped candidate among the1200 or so candidates, who appeared for the interview, Shri. Dinakar found himselfnot recommended by UPSC for posting. He represented before The Chief Commissioner for Persons withDisabilities, but in vain. He, therefore, filed a civil writ petition before the DelhiHigh Court in July 2003 and after a long drawn-out legal battle with UPSC andUnion of India, Shri. Dinakar was offered Group A posting in the Indian RailwayPersonnel Service. He joined the Railway Staff College, Vadodara in March 2007 asProbationary Officer and after successful completion of his training, he was postedin Southern Railway Headquarters, Chennai as Asst. Personnel Officer/System in-charge of computerisation of Personnel Department. Recently, he was promoted asDivisional Personnel Officer and has been posted to Chennai Division, SouthernRailway. The special mention about Shri. Dinakar Civil Service attempt lies in thefollowing three different situations faced by him and the blind of today face: 1. The blind candidates today are given a separate question paper in the preliminary without questions containing graphs or pictures. But, Shri. Dinakar had to answer the same question paper as the sighted candidates would do. 2. Unlike today, there was no reservation for the blind in Civil Services in 2001. 3. Presently, the blind candidates can take the exam in six centres in the country. But, until 2002, blind candidates had to necessarily take their exams in New Delhi only. Shri. Dinakar, therefore, had to travel at least five times to Delhi for the exams. In addition to his pursuit in academics and career, he was also passionatelyinvolved in the developmental and welfare activities for the blind in Coimbatore.He was an active member of the National Federation of the Blind for the periodfrom 1993 and 2005. He raised funds and materials for the Braille Library and Notebook unit of NFB, Coimbatore. He also personally approached the ophthalmologistsand eye hospitals in Coimbatore in a desire to rehabilitate the newly blind. Heplayed a very active role in the 18th All-India Conference of NFB, which was held inCoimbatore in Oct. 2003, where more than 1500 members participated. Until he joined Railway Staff College, Vadodara in March 2007, he was anadviser of Parasparam Public Trust, a charitable institution in Coimbatore and aTrustee of UDIS Foundation founded under the Managing Trusteeship of Dr. M.N.G.Mani, the Secretary General of International Council for Education of the VisuallyImpaired. He is presently a member of Association for the Rights of the VisuallyChallenged (ARVIC), Coimbatore. Further, he and his colleagues in the insurancecompany would collect money from their colleagues on monthly basis and carry outwelfare activities every year. March 2011 ♦ Enabled 5
  8. 8. March 2011 ♦ Enabled 4
  9. 9. How to Educate Blind and Deaf People Deaf and blind people fall into a broader category known as sensory impaired persons. Sensory impairments of this type actually fall into three different typologies, those who have blindness, those who have deafness, and those who have both blindness and deafness known as the deaf-blind. For each of these categories of visual impairment, the individuals have differing learning needs; however, some facets of educating blind and deaf people remain the same across all of these types of sensory impairment Instructions (Baseline) 1. Identify the condition of blindness, deafness, or the combination deaf-blindness early on to provide a baseline for educational opportunities that can best serve the needs of the individual who has a sensory impairment as indicated at the Division on Visual Impairments website. 2. Identify the principles of education that pertain to the form of sensory impairment of the student you plan to procure education for. Educating blind individuals, for example, under the broader category of vision-impaired persons, as well as educating deaf-blind persons both have a set of principles that places a value on professional partnerships between educators and families. Educating both blind and deaf-blind persons also operates under a set of principles that involve individual assessment and a choice of different forms of learning as mentioned both at the Division on Visual Impairments and the Ebility websites. 3. Acquire the necessary skills to enable you to communicate with the individual who has a sensory impairment. Family members as well as educators need to learn such communication techniques as finger spelling and an appropriate form of sign language in the case of deaf of deaf-blind persons because these individuals must communicate in a tactile way rather through auditory communication. Blind individuals who have no hearing impairment can, however, learn through audio communication but must use another communication method to learn from written materials such as Braille or the use of recorded reading of texts. Educate the blind, deaf, or deaf-blind person, if a child, in the home as well as through a qualified educational program (refs 1 and 2). 4. Investigate the available programs locally to the sensory impaired individual and assess which program or programs best suit the way in which the individual blind, deaf, or deaf-blind person prefers to learn. All educators working with sensory-impaired individuals must have qualifications in the kinds of communication necessary to teach sensory-impaired individuals as well as having the qualifications required for any teaching position as mentioned at the Division on Visual Impairments, the Ebility, and the Baylor university website. 5. Determine the enrollment criteria for the educational program you have identified as the best fit for the deaf-blind person you are procuring education for. Obtain any registration or application forms and provide the completed forms to the program. Also obtain from the program’s support personnel, such as registration personnel, at this same time information about any financial support programs available to assist in the payment of any tuition involved. 6. Continue to provide support of the sensory impaired individual’s education through a formal educational program by providing ongoing work in the home with educational materials. Blind individuals with no hearing impairment may also have access later in their educational progression to individuals who can read to them in person from textbooks through state-funded programs. March 2011 ♦ Enabled 7
  10. 10. ENABLED HOWHow to Use Crutches, Canes, and Walkers If you ever break a bone in your leg or foot, have a surgical procedure on your lower limb, or suffer a stroke, you may need to use crutches, a cane, or a walker. In the beginning, everything you do may seem difficult. But, with a few tips and some practice, you will gain confidence and learn to use your walking aid safely. General Guidelines : • Remove scatter rugs, electrical cords, spills, and anything else that may cause you to fall. • In the bathroom, use nonslip bath mats, grab bars, a raised toilet seat, and a shower tub seat. • Simplify your household to keep the items you need handy and everything else out of the way. • Use a backpack, fanny pack, apron, or briefcase to help you carry things around. CRUTCHES: If an injury or surgical procedure requires you to keep your weight off your leg or foot, you may have to use crutches. Proper Positioning: The top of your crutches should reach between 1 and 1.5 inches below your armpits while you stand up straight. The handgrips of the crutches should be even with the top of your hip line. Your elbows should bend a bit when you use the handgrips. Hold the top of the crutches tightly to your sides, and use your hands to absorb the weight. Don•ft let the tops of the crutches press into your armpits. Walking: Lean forward slightly and put your crutches about one foot ahead of you. Begin your step as if you were going to use the injured foot or leg, but shift your weight to the crutches instead of the injured foot. Your body swings forward between the crutches. Finish the step normally with your non-injured leg. When the non-injured leg is on the ground, move your crutches ahead in preparation for the next step. Keep focused on where you are walking, not on your feet. Sitting: Back up to a sturdy chair. Put your injured foot in front of you and both crutches in one hand. Use the other hand to feel for the seat of your chair. Slowly lower yourself into it. Lean your crutches upside down in a handy location. (Crutches tend to fall over when they are stood on their tips.) To stand up, inch yourself to the front of the chair. Hold both crutches in the hand on your good leg side. Push yourself up and stand on the good leg. Stairs :To walk up and down stairs with crutches, you need to be both strong and flexible. Facing the stairway, hold the handrail with one hand and tuck both crutches under your armpit on the other side. When you•fre going up, lead with your good foot, keeping the injured foot raised behind you. When you•fre going down, hold your injured foot up in front, and hop down each stair on your good foot. Take it one step at a time. You may want someone to help you, at least at first. If you•fre facing a stairway with no handrails, use the crutches under both arms and hop up or down each step on your good leg, using more strength. An easier way is to sit on the stairs and inch yourself up and down each step. Start by sitting on the lowest stair with your injured leg out in front. Hold both crutches flat against the stairs in your opposite hand. Scoot your bottom up to the next step, using your free hand and good leg for support. Face the same direction when you go down the stairs this way.March 2011 ♦ Enabled 8
  11. 11. CANES: You may find it helpful to use a cane if you have a small problem with balance or instability, some weakness in your leg or trunk, an injury, or pain. If you are elderly, a single point cane may also help you to keep living independently. Proper Positioning : The top of your cane should reach to the crease in your wrist when you stand up straight. Your elbow should bend a bit when you hold your cane. Hold the cane in the hand opposite the side that needs support. Walking : When you walk, the cane and your injured leg swing and strike the ground at the same time. To start, position your cane about one small stride ahead and step off on your injured leg. Finish the step with your normal leg. Stairs : To climb stairs, grasp the handrail (if possible) and step up on your good leg first, with your cane in the hand opposite the injured leg. Then step up on the injured leg. To come down stairs, put your cane on the step first, then your injured leg, and finally the good leg, which carries your body weight.WALKERS :If you have had total knee or hip joint replacement surgery, or you have another significant problem, youmay need more help with balance and walking than you can get with crutches or a cane. A pickup walkerwith four solid prongs on the bottom may give you the most stability. The walker lets you keep all orsome of your weight off of your lower body as you take your steps. You use your arms to support someof the weight. The top of your walker should match the crease in your wrist when you stand up straight.Do not hurry when you use a walker. As your strength and endurance get better, you may gradually beable to carry more weight in your legs. Walking : First, put your walker about one step ahead of you, making sure the legs of your walker are level to the ground. With both hands, grip the top of the walker for support and walk into it, stepping off on your injured leg. Touch the heel of this foot to the ground first, then flatten the foot and finally lift the toes off the ground as you complete your step with your good leg. Dont step all the way to the front bar of your walker. Take small steps when you turn. Sitting : To sit, back up until your legs touch the chair. Reach back to feel the seat before you sit. To get up from a chair, push yourself up and grasp the walkers grips. Make sure the rubber tips on your walkerfs legs stay in good shape. Stairs: Never try to climb stairs or use an escalator with your walker. March 2011 ♦ Enabled 9
  12. 12. SPORTS BLIND CRICKETThough blind people in India, just like most Indians, have been alwaysinterested in the game of cricket, it wasn•ft until a few years back that cricketfor the blind got attention, and was also documented and widely reported.Blind people were initiated to the game of cricket primarily through radiocommentaries. They soon found a way of playing the game by replacing theball with an empty tin and using a stick as a bat. Using an empty tin in placeof ball was necessary because of the need for audio clues to play the game.A usual cricket ball wouldn•ft make the amount of noise necessary for a visuallyimpaired person to make out the whereabouts of the ball and play the game.This was the beginning of the audio game of cricket in its most primitive formin India.Over the years, the empty tin was replaced by audio balls, and bats wereused in place of sticks. National Institute for the Visually Handicapped (NIVH),Dehradun, developed the audio ball that is now accepted as the internationalstandard. This ball is made of hard plastic with ball bearings inside.Some of the aspects of the game have been modified to make it suitable forthe visually impaired. The modifications are: * The ball is made of hard plastic and filled with ball bearings so that itmakes noise when it moves. * The wickets are screwed together to ensure they are aligned. * The boundaries are 45 yards from the pitch. * Bowling is underarm and the ball has to pitch once before the mid pitch. * The bowler gives an audio clue before bowling and the batsmen gives anaudio clue when he is ready.Cricket for the blind is a direct result of blind people•fs love for this game.They also play the game well, with complete devotion and sportsmanship. Itnot only helps them in their all round development, but is also a tool to remindthe society of their skills and abilities.March 2011 ♦ Enabled 10
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  14. 14. SPORTS BLIND CRICKET Tamil nadu blind cricket team - Runner South zone cricket tou held on 27th to 30th December 2010 at chennai, in collaborationwith Cheran Region Christian Society(CRCS) for the disabled and Department of Social Work,Madras Christian College,chennai. Persons with Visual impairment from Tamil Nadu, Kerala,Karnataka, Andhra Pradesh will be participated in the event. Sports and recreation has value in everyone’s life and it is even more imporatant in the lifeof persons with disablility, as sports develop confidence and independency in individuals, helps indeveloping the self-esteem and boosts up individual’s ability to overcome difficulties. Its also a place where different people come together, know each other, get accustomed todifferent situations and develop their personnality skills.A platform for development amongpersons with visual impairment is created by TCAB and getting different persons with visualimpairment from the the Southern States will be good platform for the players to exhibit theirtalents, be recognised and also be able to participate in National Level sports events.March 2011 ♦ Enabled 12
  15. 15. Photograph by Sathasivam www.enabled.inAndhra blind cricket team - Winner March 2011 ♦ Enabled 13
  16. 16. Photograph bySathasivamwww.enabled.in
  17. 17. SPORTS WHEELCHAIR TENNIS Photograph by Sathasivam www.enabled.inMarch 2011 ♦ Enabled 16
  18. 18. Wheelchair Tennis - S. Balachandar Indian Ranking in Singles : 01 Current ITF Ranking in Singles : 419 Current ITF Ranking in Doubles : 412Tournament Singles ( Main Draw) Doubles (Main Draw)RCMIC President’s Cup Winner WinnerAsian Para Games Participated Participated2nd AITA-TNTA NationalChampionship Winner Winner3rd Srilankan Open 2010 First Round Quarter Finalist1st Paralympic NationalWheelchair Tennis Tournament Winner Winner10th Malaysian Open 2009 Runner Semi Finalist (Bronze Medal)2nd Srilankan Open 2009 Quarter Finalist Semi Finalist (Bronze Medal)2nd Chennai Open WheelchairTennis Championship Winner Winner9th Malaysian Open 2008 2nd Round Semi Finalist (Bronze Medal)8th Malaysian Open 2007 2nd Round 2nd Round9th FESPIC GAMES 1st Round 1st Round March 2011 ♦ Enabled 17
  19. 19. SPORTS WHEELCHAIR TENNIS Photograph by Sathasivam www.enabled.inMarch 2011 ♦ Enabled 18
  20. 20. Wheelchair Tennis - D.Mariappan Indian Ranking in Singles : 02 Current ITF Ranking in Singles : 419 Current ITF Ranking in Doubles : 412Tournament Singles ( Main Draw) Doubles (MainDraw)Tournament Singles ( Main Draw) Doubles (MainDraw)Tournament Singles ( Main Draw) DoublesRCMIC President’s Cup Runner WinnerAsian Para Games Participated Participated2nd AITA-TNTA National Championship Runner Winner3rd Srilankan Open 2010 Participated Quarter Finalist1st Paralympic NationalWheelchair Tennis Tournament Runner Winner10th Malaysian Open 2009 Quarter Finalist Semi Finalist (Bronze Medal)2nd Srilankan Open 2009 Quarter Finalist SemiFinalist (Bronze Medal)2nd Chennai OpenWheelchair Tennis Championship Runner Winner9th Malaysian Open 2008 2nd Round Semi Finalist(Bronze Medal) Coaching Venue : SDAT Tennis Ground March 2011 ♦ Enabled 19
  21. 21. NGO CBM INTERNATIONAL CBM is an International Organisation, whose vision is “An inclusive world in which all persons with disabilities enjoy their human rights and achieve their full potential”. CBM works with partner organisations in low-income countries to ensure that persons with disabilities and their families have ready access to:Affordable and comprehensive health care and rehabilitation programmes, Quality education programs, and Livelihood opportunities. Working with persons with disabilities, CBM advocates for their inclusion in all aspects of society. CBM supports around One thousand projects in 113 countries in Africa, Asia, Latin America, and Eastern Europe. Through its partner organisations, CBM currently reaches 18 million people and aims to reach many more in the coming years. Fields of Work: CBM uses comprehensive, sustainable, and community-focused approaches, which contribute to poverty alleviation and self-reliance. CBM partners develop high-quality preventive, curative, educational, rehabilitative, livelihood, and advocacy programmes, which are designed to maximise the quality of life of persons with disabilities. Alliance Partners and Global Programmes: CBM cooperates with UN agencies, global organisations, and “disabled people organisations” to promote and develop international alliances and programmes with and for persons with disabilities. CBM is recognised as a Collaborating Organisation by the World Health Organisation and has consultative status with the United Nations Economic and Social Council (ECOSOC). In cooperation with the World Health Organisation (WHO) and as a member of the International Agency for the Prevention of Blindness (IAPB), CBM founded and launched “Vision 2020: The Right to Sight”. The goal of Vision 2020 is to eliminate avoidable blindness by the year 2020. CBM is also working with WHO and other stakeholders to create an international initiative for the provision of affordable hearing aids for hearing-impaired people in low-income countries - “WWHearing” (World-Wide Hearing Care for Developing Countries). CBM is promoting and funding “Vision 2030” Sound hearing project, aiming to eliminate avoidable hearing loss by the year 2030. CBM in India... In 1967 CBM started its work in India through its regional office. The Regional Offices support and work with local NGO associates in areas of medical, educational and vocational rehabilitation of persons with disabilities thereby improving the quality of life. Medical rehabilitation is presently focused in prevention and cure of Blindness and Deafness, whereas corrective surgeries are done and aids and appliances are provided to persons with physical disability. Integrated/inclusive education is given prominence when related to educational rehabilitation. These activities are conducted through Institution based as well as Community based rehabilitation. Currently, the South regional office is working on 113 different projects in India in Tamilnadu , Kerala, Andhra Pradesh, Karnataka, Maharashtra and 13 projects in Sri Lanka.March 2011 ♦ Enabled 20
  22. 22. CBM, together with its partners has addressed the most urgent needs and initiated new means ofservice delivery and inclusion for their target group.Mainstreaming disability:Inclusive Education ©CBM / Argum / EinbergerLow vision boy Karthik standing with girl by blackboardCBM helps mainstream disability: * By supporting, guiding, monitoring, evaluating and providing counsel to over 173 Partner NGOs.These comprise of ophthalmologists, paramedics, hospital administrators, teachers, trainers, resourcepersons, grass root level field workers and others, in the areas of medical, educational and vocationalrehabilitation of persons with disabilities thereby improving the quality of life. * By networking with other INGO and the Government policy-making bodies. * In consultation with the regional office national and international cadre of advisers/consultants/trainers who come recommended with a high sense of professional expertise in their respective fields. 1908-2008, 100 years of commitment and expertise March 2011 ♦ Enabled 21
  23. 23. NGO MITHRA FOUNDATION Madras Institute To Habilitate Retarded Afficted,MITHRA-as it is popularly know as ans referred to is celebrating its 25th year in the service to young and old citizens of Madras. MITHRA in ancient Sanskrit means friendship. MITHRA in chennai is a place of laughter and friendship-a place of devoted workers and happy children. Founded by Sr.Mary Theodore,OAM ,an Australian missionary in 1977,MITHRA has matured from humble beginnings, through the sheer determination,compassion for the unfortunate ,and able assistance of dedicated band of service -minded persons,into an institution that today has the ability to leave an indelible impression about devotion to the cause of nurturing the basic abilities of children and young peoples who are afflicted by disabilities that are not of their own making,and yet relegate them to a position in their effort to be normal. The out-patient department equipped with a lab,ECG and X-ray is open to external patients who can avail of all test and treatment facilities that are available. The team of consultant doctors that offers, to both inmates as well as external patients include specialists in psychiatry,child diseases, orthopedics, paediatrics, dentistry besides general practitioners. Simulated exercises through play methods,and various other training systems for eye-hand coordination,gait training,balance,development of delayed milestones. The physiotherapy department includes facilities fro Hydrotherapy, Short ware diathermy-heat therapy,traction, interference therapy,ultrasound,and wax bath. The school offers facilities for varied types of institution depending upon the ability of the child and absorption levels. Each child is personally attended to by a teacher and groups are kept small so that singular attention can be afforded to each child. MITHRA play library has been in operation to provide the children of MITHRA with the opportunity to play within a least restrictive environment. Mithra conducts an eighteen month multipurpose Rehabilitation Workers diploma course (MRW) in recognition with RCI Delhi. Vocational training is given to older children in the areas of carpentry,needle work,block printing, greeting card making, candle making ans envelope making. Encouragement is always at hand, each child is examined for suitability to a craft and also potential of the field to provide some income sustenance when the child moves into the outside work ambiance. The institute has an in- house manufacturing facility fro production of calipers / crutches and other aids and appliances like standing frames,walkers, wheelchairs, corner seats, tailored to suit each and every child. Inmates are provided all meals on campus. Diets are carefully worked out to ensure that balance foods aid the child both physically and mentally. All medical administration required by the children are administered by trained nurses at the prescribed times. The dormitory facilities for resident children are well-aired , maintained clean and always attended to by watchful helpers who assist the children in many ways, from daily routines to conversation and entertainment.March 2011 ♦ Enabled 22
  24. 24. Sister Mary Theodore•fs •gdream•h started 28 years ago and much has been achievedby her since. Amongst other recognitions, she was awarded, in October 1991, the Medal ofthe Order of Australia for the service to international relations, particularity to children withdisabilities in chennai. Sister Mary Theodore is ever looking for financial assistance formevery quarter that is willing to contribute its might to the cause of the needy. Today ,MITHRAcan offer medical assistance and counsel of an advanced level,be it fundamental orthodonticservices,or treatment of minor ailments, or other more serious afflictions like Polio,CerebralPalsy,Speech Deficiency,and Spastic treatment. MITHRA, is an NGO in Anna Nagar working towards the total rehabilitation ofmentally and physically challenged children for 32 years.It has recently expanded itsservices by providing “Remedial Education” to children with learning disabilities,Autism,ADHD,mental retardation in our campus from 8.00 a.m to 8.00 p.m. This programis an extension of the OCCUPATIONAL THERAPY Unit at MITHRA.The therapist use variousadvanced technique like cognitive therapy, behaviour, modification,sensory integrationapproach etc. The AIM is to maximize the abilities of these children and minimize theirdisability and also depending on the individual to make them as independent as possible. I asked God for Strength, that I might achieve I was made weak, that I might learn humbly to obey. I asked for health, that I might do greater things I was given infirmity, that 1 might do better things. I asked for riches, that I might be happy I was given poverty, that I might be wise. I asked for power, that I might have the praise of men I was given weakness, that I might feel the need of God. I asked for all things, that I might enjoy life I was given life, that I might enjoy all things, I got nothing that I asked for-but everything I had hoped for Almost despite myself, my unspoken prayers were answered. I am among all people, most richly blessed.For futher details Contact:MITHRA CHALLENGE TO CONQUER(Madras Institute to Habilitate Retarded Afflicted)D 171, R.V Nagar, Anna Nagar, Chennai - 25“0ö25“ 600 102.Phone : 2663 3967 / 2663 3708 Fax : 2663 2368 March 2011 ♦ Enabled 23
  25. 25. CENSUS 2011 9TH QUESTION
  26. 26. Photograph bySathasivamwww.enabled.in
  27. 27. CENSUS 2011 9TH QUESTIONMarch 2011 ♦ Enabled 26
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  30. 30. The Silent Speaker Abhinaya, theSilent Speaker inkollywood broke thesilence barrier throughher carrier in Nadadigal. This silent Speaker,born in Kadalur. By born,she is deaf and dumb butgods gifted gift is herinborn talent. She wasinterested in Modeling.Her parents encouragedher for modeling and thismade first stepping stoneto explore herself to theoutside world. By seeing her expressive photos, Samudrakanni made her to act as a heroine in Naadodigal. He trained her to act and made an impressive role in the film. She broke the fact that communication is not a barrier to act in the films. Yes, the proverb Where there is a way, there is a will suits Abhinaya well. She is challenging role model for the physically challenged people. Thewillpower in her will reach heights without any boundaries in her life.Yes, Where there is a wil, there is a way - Sathasivam from www.enabled.in March 2011 ♦ Enabled 29
  31. 31. RESOURCE ASSISTIVE TECHNOLOGY Information on manufactures, suppliers and distributors of aids and appliances required by persons with disabilities TextHelp The International Society for Alternative and Augmentative Communication. The worldwide leader of literacy software solutions. Develop innovative, assistive software to support individuals with their reading, writing and research skills in Education, the Workplace and at Home. The software supports struggling readers, those with literacy difficulties, dyslexia and where English is a second language. WebSite:http://www.texthelp.com/IntelliToolsIntelliTools has been a leading provider of hardwareand software giving students with special needscomprehensive access to learning. A pioneer inlearning solutions for the diverse classroom, hasbeen producing award-winning classroom tools forpreK-8 education for over 25 years. Early on,IntelliTools designed products for students who facechallenges ranging from learning disabilities tosignificant physical disabilitiesWebSite:http://intellitools.com/Closing The Gap Computers are tools that can provide solutions to many problems facing people with disabilities today. Closing The Gap, Inc. is an organization that focuses on assistive technology for people with special needs through its bimonthly magazine, annual international conference and extensive Web site. WebSite:http://www.closingthegap.com/March 2011 ♦ Enabled 30
  32. 32. Disability IndiaA great site with a centralized index (searchdatabase) of disability organizations in India. Hasa Message Board and a Discussion Thread, aforum where parents and organizations can sharetheir information and experiences WebSite:http://www.disabilityindia.org/W3C The Web Accessibility Initiative (WAI) works with organizations around the world to develop strategies, guidelines, and resources to help make the Web accessible to people with disabilities.. WebSite:http://www.w3.org/WAI Natural SoftNaturalReader is a Text to Speech software withnatural sounding voices. This easy to usesoftware can convert any written text such as MSWord, Webpage, PDF files, and Emails into spokenwords. NaturalReader can also convert anywritten text into audio files such as MP3 or WAVfor your CD player or iPod. WebSite:http://www.naturalreaders.com/ March 2011 ♦ Enabled 31
  33. 33. RIGHT TO LIVE?Photograph bySathasivamwww.enabled.in A barrier is an inaccessible or inhospitable physical or social environment which prevents full and effective participation of a person with disability in society.March 2011 ♦ Enabled 32
  34. 34. Explanatory Note to the Working Draft of the Rights of Persons with Disabilities Act In view of the fact that the legislation is too large to have a section by section commentary in this explanatory note a prose description of the legislation with some analysis is being provided in order to give a bird’s eye view of the working draft. A barrier is construed differently in different situations and by different people. A barrier is an or inhospitable physical or social environment which prevents full and effective participation of a person with disability in society. It could also be stated as those factors in the complete social and physical context or AV DO environment in which that person lives his everyday life, which restrict such person from full participation. These barriers may be in the spheres of architecture, economics, politics, culture, social norms, aesthetic values, and assumptions about ability. could be cultural attitudes and social behavior, institutionalized rules, practices, procedures of public organizations and private entities. It could be considered thepolitical, economic and material forces structured to serve an able-ist society that exclude personswith disabilities in every sphere. The barriers could be related to accessibility, attitude,transportation, support, or infrastructure. March 2011 ♦ Enabled 33
  35. 35. PRINCIPLES OF INTERPRETATION of purpose and the preamble of this essential pre-condition to enableAND IMPLEMENTATION Act express the philosophy, persons with disabilities to liveFirst part: Equality, Dignity and motivations and objects behind this independently and participate fully inLegal capacity are the fundamental Statute, it was thus considered all aspects of life. Consequentlyprinciples that anyone interpreting important that these should be borne persons with disabilities shall beany provision provided suchunder this Act accessibility on anmust be cognizant equal basis withof. The statue others to thebeing a rights- p h y s i c a lbased one, it is environment;crucial that rights transportation;must be given the information andwidest amplitude communications,and the restriction i n c l u d i n gbe construed in information andstrict terms. The communicationsbenefit of the technologies anddoubt must systems, and othertherefore operate in the favour of in mind while adjudicating to so that facilities and services open orthe person with disability. While the statute is given effect in both provided to the public, both in urbanwe are in the process of effecting a letter and spirit. and in rural areas. The chapter thendiametric change, it is prudent that mandates the Disability Rightsthe benefits of the past must be LIFTING THE BARRIERS: Authority to sets up standards andsalvaged and not abandoned. The Awareness Rising: accessibility guidelines for a range offact of new legislation must not be The Awareness Raising Chapter is premises. These premises included:understood to have eliminated or primarily speaking about why it is all buildings and facilities used by theextinguished any existing rights, required; who should be doing it; public; temporary or emergencybenefits or privilege enjoyed by the who needs it and how should it be conditions as well as permanentpersons with disability. done. conditions; all new community residential places and privateSecond Part: This idea of this part Accessibility: is amongst the longest residences; road based transport;is to elucidate the legal materials chapters of the draft it has adopted a aviation; railways; pedestrianthat the adjudicative body should use comprehensive approach. It begins infrastructure and rural publicwhile deciding upon any dispute with stating how accessibility is an transport system.under this Act. Since, the statementMarch 2011 ♦ Enabled 34
  36. 36. Women with Explanatory Note to the Woking Draft of the RP with DisabilitiesDisabilities:Like the CRPD, the persons with disabilities and then conceptualization for persons withlegislation has adopted the twin proceeds to legislate on the various disabilities must reflect upon thetrack approach to address the civil political rights guaranteed both value of a disabled life and its quality.concerns of women with disabilities. by the Indian Constitution and the It must cut across prejudicial notionsThis dedicated provision has been CRPD. What is important to note in about disabled life when viewedprovided to address the concerns of the manner in which these rights through a medicalised lens. At thedisabled women generally and to have been addressed that the State same time, any formulation must bereaffirm the guarantee of equality is not being asked to leave the in consonance with the UNCRPDand non-discrimination. person with disability alone rather mandate which obligates state various kind of positive interventions parties to ensure the actual use ofChildren with Disabilities: are being sought to render the rights this right. Thus the guarantee of rightKeeping in view the vulnerability, and real. Also a constant connection to life must operationalize the rightthe multiple forms of in fact bydiscrimination faced by helping createthe children with “EFFICIENT IMPLEMENTATION” & a ndisabilities, it is required “PROTECTION OF INTERESTS OF environmentthat a double-twin track MOST MARGINALISED” w h i c happroach be adopted in supports,the Act. This entails that protects andchildren with disabilities be included provides for a thriving disabled life. between the right to a meaningfulin general provisions throughout the For this aim, it is useful to turn to life and right to education,Act, there be a specific chapter Article 21 of the Constitution and its rehabilitation, social security hasdedicated to children with jurisprudence developed by the been made.disabilities and simultaneous Supreme Court of India. An effectiveamendments be made in legislations enunciation of right to life can be by Right to Life:which affect them. This approach not drafting or using the evocativeonly mandates provision of specific KEEPING IN MIND THE ABOVE, CLAUSE 1 HAS language that has been used by therights and programmes for CDs but BEEN DRAFTED TO CONTAIN A GENERAL Supreme Court of India and extendingalso ensures their inclusion in ENUMERATION OF THE RIGHT TO LIFE, WHEREAS it to persons with disabilities. It isgeneral implementation of rights. CLAUSE 2 DRAWS THE CONNECTION BETWEEN LIFE plausible to use the Francis Coralie AND DIGNITY AND THEREBY EXPANDING THE Mullin language since it has beenLEGAL CAPACITY AND CIVILPOLITICAL RIGHTS: MEANING OF LIFE. invoked in other disability This part begins with the judgements of the Apex Court.recognition of legal capacity of The right to life March 2011 ♦ Enabled 35
  37. 37. Right to liberty: demands: first, outlawing forced Right to Integrity: institutionalisation since thereArticle 14 of the UNCRPD mandates Although right to integrity has been cannot be any exceptions to right tothat: first, state parties shall ensure understood as one which is subsumed liberty and no deprivation of libertythat persons with disabilities enjoy within freedom against torture, is permissible on the basis ofthe right to liberty and exploitation and rightsecurity of person; to dignity, it may notsecondly, they are not fairly encompass thedeprived of their liberty entire wherewithal ofunlawfully or arbitrarily, “ integrity”. This isand that any deprivation clear from theof liberty is in conformity distinctive space andwith the law, and; lastly, formulation accordedthat the existence of a to Article 17 in thedisability shall in no case UNCRPD. Right tojustify a deprivation of integrity allowsliberty. Article 21 persons withjurisprudence on right to disabilities to live andpersonal liberty is affirm comfortablyexpansive and allows for their personala broad enunciation for identity, somethingpersons with disabilities. which does notIn this light, any right to necessarily findliberty formulation must resonance in othergrapple with two main rights and freedoms. disability; secondly, state•fsissues in relation to persons with Right to integrity means to be able to obligation to create a non-restrictive,disabilities, first, criminal justice assert or express oneself as a whole non-coercive accessiblesystem (preventive or punitive); person. The guarantee of integrity environment to guarantee the desecondly, forcaed institutionalisation undercuts notions of disabled as facto realisation of right to liberty(for providing shelter). Whilst it incomplete, abnormal, or deficient; it and security for persons withinvolves a close scrutiny of domestic commands individuality and respect disabilities. The new law has thuslegislations including inter alia, for bodies dissimilar to your own. been framed to unequivocally makeCode of Criminal Procedure and the Integrity would thus require breaking these guarantees identifiable in theMental Health Act, it is clear that the through the prismatic vision of text of right to liberty and security.prevailing UNCRPD standards as normal. To put simply, right towell as Article 21 jurisprudence integrity would mean the right to beMarch 2011 ♦ Enabled 36
  38. 38. you as you are. Explanatory Note to the Woking Draft of the RP with DisabilitiesRecognising the to ensure that right is realised. Privacy occurred and also to provide a certainbroadness and somewhat is broad based and includes within its sense of protection and relief to theabstractness of the term integrity, it ambit informational privacy, bodily PWD.has been drafted in a way so that privacy, communication privacy, Concerns for informational privacythe general provision is sexual privacy etc. can arise in various areas such ascomplemented with illustrations to Informational Privacy media, health (medical records),give an idea of the terms in which employment pre-employmentintegrity has to be understood. The The disability of the person is usually screening as well as post-illustrations are necessary and represented as the sole characteristic employment screening, websites,purposeful to create an environment of the person, whereas other courts etc.which respects the bodily and physic individual aspects such as personal,integrity of However,persons with since thedisabilities. fields are in no wayHowever, their limited,s p e c i f i c the bestenunciation approachshould be in acarefully worded legislationand cautiously would belegislated so as to statenot to repeat the the basicobjectification principleproblem as faced on privacyin the implementation of the SCST emotional, intellectual, gender,Atrocities Act. sexuality, religion, abilities, potential and mention the other sectors in and other physical features, are often illustrations under the main section. undermined if not ignored completely. Bodily Privacy/ Physical PrivacyRight to Privacy: Thus it is significant that the PWDThe section on privacy tries to It is essential to understand privacy must have the right to control theincorporate Article 22, UNCRPD which as a notion of space and physical information that is disseminatedis also the latest enumeration on integrity to an individual. This aspect about them so as to avoid any furtherprivacy in the international law arena. underplays at various levels in discrimination/ branding/Some sub-sections have been added different areas such as home, stereotyping that might have March 2011 ♦ Enabled 37
  39. 39. as a person•fs sexual life is an inherent part of a person•fs life. A mention of sexual privacy in the general provision when drafting the section achieves two things n t i o n “ f i r s t , give a person a right to relief in case there is any violation and second, a mention of it would in turn make it an element to be taken on board when constructing houses andemployment, health sector, airports, chapter for accessibility. Similarly in institutions.security checks etc. medical treatment privacy concerns An additional provision must be For instance in relation to arise at every step. These concerns made for awareness raising and sexresidential settings, it is pertinent to have been incorporated into the Act education for PWDs, care giversnote that in countries where there are in the illustrations, so that it ensures and familiesin the Awarenesslarge numbers of people in that the government can in no way Raising Chapter of the Act. Thisinstitutional care and large numbers ignore those measures to be taken. would help bring in a more rootedof individuals in wards, it is Sexual Privacy change than any other provision.necessary to move towards privacy Persons with disability have been CAPABILITY DEVELOPMENT:objectives and measure progressive generally considered asexual brings. Education:realisation of these rights. A broad Mainstream society has rarely ever The term •gneighbourhood school•hlegislation on disability might not be taken into account the sexual and has been used in the Chapter to referable to cover such a topic in detail reproductive rights of the PWD. to all schools. The term has beentherefore a plausible solution could Organisations such as WHO, ECHR defined in a broad manner to includebe to mention that the government is and many Privacy advocates all schools in a three kilometermandated to include privacy concerns recognise sexuality as a central radius which are equipped to caterin a national housing strategy which aspect of being human. However, is to CWD and also includes whichshould reflect extensive and genuine not a right which can be legislated primarily or exclusively cater toconsultation with and participation of upon. That being said, there is still a CWD. The definition has been draftedthe PWD. To give it an even stronger need to guarantee PWD space for broadly in order to give the parentsfooting in the law, a provision for expression of this aspect of privacy of the child to the choice to opt eitherprivacy can also be made in the for inclusive education in anyMarch 2011 ♦ Enabled 38
  40. 40. neighbourhood Explanatory Note to the Woking Draft of the RP with Disabilitiesschool or for aschool which caters to and disadvantage”CWDs. This element of that have resulted inchoice is aimed at barriers being placedeliminating the conflict to full enjoyment ofbetween special and human capabilities.inclusive education In such asince the child has a s i t u a t i o n , substantive equalityright be educated in would allow for botheither aspecial or an affirmative actioninclusive school, as measures that arechosen by his parents in consistent with thehis best interests. spirit of the legislation, alongIt may be assumed that with any reasonablethe parent is distinction,adequately informed exclusion orabout the child•fs preference ondisability to choose a grounds of an i n h e r e n tschool which is most requirement of theappropriate for him or job. Nationally andher. i n t e r n a t i o n a l l y,Employment Work and provisions that areOccupation made for groups requiring assistanceReservations in employment have been held not to come within ensures consistency of treatment, the ambit of “discrimination’. The firstArticle 16(1) of the Constitution of thereby ensuring that no person is section of this part of the bill thusIndia grants its citizens “equality of subject to any special disadvantage, provides for both substantive andopportunity for all citizens in matters substantive equality recognizes that formal equality. It allows for 6%relating to employment under the “disability results from interaction reservation, does away with jobState”. Such equality, needless to between persons with impairments identification and does not permit anymention, is derived from Article 14 of and attitudinal and environmental department etc to seek exemptionthe Constitution, which provides for factors.” from the purview of the section.both “formal” and “substantive Hence, substantive equality seeks toequality”. While formal equality mitigate “prejudice, discrimination March 2011 ♦ Enabled 39
  41. 41. Photograph by Smitha.S.S. Sathasivam Assistant Coordinator www.enabled.in Disability Legislation Unit South, Vidya Sagar The first draft brought out by the new law committee has a code and one parent act (PWD Act) and other acts such as National trust act, Mental health act and RCI ACT are brought under the code. 1. Now the question is is it practically possible to enact all 5 acts simultaneously and how effective it would be to operate under 5 different acts. Though the demand of the sector is one comprehensive law, on what basis did the committee come up with 5 different legislations? 2. The chapters given in the draft don’t give any direction but is yet another general document. With 4 different ACTs and a code, how much is the powers of one statute binding on the other? 3. Lots of questions like this emerge on reading the draft. It is necessary that more and more people read this draft and come up with their rights based comments - rather demands. It is our law and being the stake holders, we should not let the passage of our legislation without a proper direction given towards the realization of all human rights and wholistic development of disabled people.March 2011 ♦ Enabled 40
  42. 42. The question View of Justice Ajit Prakash Shahposed to theCommittee in the Explanatory Note tothe Working Draft of the Rights ofPersons with Disabilities Act dated20.11.2010 (the “Pending Question”)was as followsThe issue of the induction of theNational Trust and the RehabilitationCouncil as separate chapters couldnot be attempted primarily becausethere was no time left to undertake acoherent and systematic exercise. Itmay also be noted that as the lengthof the statute expanded we felt aconstraint of space in evenincorporating all the provisions ofpower and accountability in thechapter on the Disability RightsAuthority. It may also be noted thatall significant authorities in thecountry have dedicated legislationsaround them. In this view of thematter the Committee would need toconsider whether it would wish to suggest the creation of One Disability Law Code and withinwhich have legislations on: Disability Rights; the Disability Authority; the National Trust; and theRehabilitation Council. Or whether it would also wish to induct the National Trust and theRehabilitation Council into this legislation?Opinion: Inadequate time - Time this is an issue of a practical constraint and is something that hasto be worked out within the Committee. I would just state that even if the proposal for a •gCode•hwith multiple legislations is taken up by the Committee, the rights of disabled persons will not befully realized till each relevant legislation comprising the “Code” is enacted and/or amended. Timingwise, therefore, it would seem to make no difference which of the two proposals (a comprehensivestatute or a code) is adopted by the Committee. - Justice Ajit Prakash Shah March 2011 ♦ Enabled 41

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