HxD 2013: Understanding Networks of Diabetes Care

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This presentation was created by Helle Rohde Andersen and Eilidh Dickson while working for CIID Consulting.

Understanding Networks of Diabetes Care: A Research Framework for the Healthcare Innovation of Tomorrow

Living with type 2 diabetes is a multifaceted condition and a long-term commitment. Patients don’t experience their care or participate in their treatment in isolation, they are surrounded by a network of people - family, friends, peers and care providers. This network of care affects how patients experience their condition, and their ability to manage it both physically, cognitively and emotionally.

Traditional design research methods focus on individuals and personal modes of behaviour change. Innovating in the diabetes care space requires going beyond the individual.

Working with Novo Nordisk, CIID Consulting assembled a 360º view into the networks of care, that support diabetes patients. By approaching the research from a systemic level and studying a patient’s network of support rather than individuals in isolation, the result was a rich and emotional view into the complex interactions and relationships encompassing a patient’s journey with the condition.

By creating a research framework that looked beyond traditional modes of health care delivery, systemic gaps were identified and opportunities for community driven care models were uncovered.

This talk will demonstrate how a new research framework and information visualization methods can inspire you to tackle challenging healthcare issues in ways that will provoke new understanding and build user empathy.

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HxD 2013: Understanding Networks of Diabetes Care

  1. 1. UNDERSTANDINGNETWORKS OFDIABETES CAREqHxD 2013NETWORKS OF DIABETES CAREA research framework forhealthcare innovation tomorrowConsulting
  2. 2. EILIDHNETWORKS OF DIABETES CAREHELLEInteraction & servicedesigner, & moonlightillustratorDesign lead,wannabe film maker& running addict(DK)(UK)HxD 2013 Consulting
  3. 3. CIID CONSULTINGWe design beautiful experiences,which are people-centred andbusiness-focusedNETWORKS OF DIABETES CARE HxD 2013 Consulting
  4. 4. NOVO NORDISKA global healthcare company with 89years of innovation and leadership indiabetes careNETWORKS OF DIABETES CARE HxD 2013 Consulting
  5. 5. THE OBJECTIVENETWORKS OF DIABETES CARE HxD 2013 Consulting
  6. 6. VISUALIZE THE CURRENT DIABETESCARE MODEL IN THE US.THE OBJECTIVENETWORKS OF DIABETES CARE HxD 2013 Consulting
  7. 7. VISUALIZE THE CURRENT DIABETESCARE MODEL IN THE US.DEFINE NEW OPPORTUNITIES FORHOLISTIC CARE.THE OBJECTIVENETWORKS OF DIABETES CARE HxD 2013 Consulting
  8. 8. ‘C’ IS FOR COPENHAGENNETWORKS OF DIABETES CARE“Knowing I can call the doctor for asame-day appointment givesincredible peace of mind”www.guardian.co.ukHxD 2013 Consulting
  9. 9. FRAMEWORK INSIGHTS IMPACT4 building blocks forpeople-centred researchwithin healthcareChange making outcomesfor Novo Nordisk &people with type 2 diabetes4 systemic opportunitiesfor a holistic approach totype 2 diabetes careqNETWORKS OF DIABETES CARE HxD 2013 Consulting
  10. 10. NETWORKS OF DIABETES CAREFRAMEWORK4 building blocks for people-centredresearch within healthcareHxD 2013 Consulting
  11. 11. STUDY NETWORKS VS.INDIVIDUALS TO IDENTIFYSYSTEMIC GAPS1/4NETWORKS OF DIABETES CARE HxD 2013 Consulting
  12. 12. GPCommunityOrg.Nurse/CDEPharmacyPatientFriends &FamilySupportGroupsNETWORKS OF DIABETES CARE1/4HxD 2013 Consulting
  13. 13. GPCommunityOrg.Nurse/CDEPharmacyPatientFriends &FamilySupportGroupsNETWORKS OF DIABETES CARE1/4HxD 2013 Consulting
  14. 14. GPCommunityOrg.Nurse/CDEPharmacyPatientFriends &FamilySupportGroupsGPNurse/CDEPharmacyPatientSupportGroupsGPCommunityOrg.ntFriends &FamilyortpsNETWORKS OF DIABETES CARE1/4HxD 2013 Consulting
  15. 15. NETWORKS OF DIABETES CAREDESIGN RESEARCH TOOLSTHAT SCALE ACROSSSTAKEHOLDERS TO UNCOVERDIFFERENT PERSPECTIVESNETWORKS OF DIABETES CARE2/4HxD 2013 Consulting
  16. 16. 2/4NETWORKS OF DIABETES CARE HxD 2013 Consulting
  17. 17. 2/4NETWORKS OF DIABETES CARE HxD 2013 ConsultingOnce they’ve experienced asetback, they become betterequipped to handle the nextsetback. We help themgradually build confidence inmanaging their condition(Helen, CDE & nurse)“
  18. 18. 2/4NETWORKS OF DIABETES CAREBeing diagnosed was such abig thing to deal with on myown. I was given no toolsexcept for what I came upwith on my own(Susan, T2 diabetes patient)“HxD 2013 ConsultingOnce they’ve experienced asetback, they become betterequipped to handle the nextsetback. We help themgradually build confidence inmanaging their condition(Helen, CDE & nurse)“
  19. 19. EMPOWER PEOPLE TOCURATE THEIR STORYTHROUGH CREATIVECONVERSATION STARTERSNETWORKS OF DIABETES CARE3/4HxD 2013 Consulting
  20. 20. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CARE HxD 2013 Consulting
  21. 21. NETWORKS OF DIABETES CARE3/4I don’t want people to talkabout it, I don’t want myfamily to do anything specialfor me. I just want everythingto be normal(Susan, T2 diabetes patient)“HxD 2013 Consulting
  22. 22. NETWORKS OF DIABETES CARECREATE OPPORTUNITIES TO‘LIVE THE STORY’. EXPERIENCEBEHAVIORS FIRST HANDNETWORKS OF DIABETES CARE4/4HxD 2013 Consulting
  23. 23. NETWORKS OF DIABETES CAREMy daughter suggested that Ineeded to get back intosome kind of exercise andthat she should as well, sowe go mall walking together.I don’t go without Lauren, Ineed her. There’s no reasonwhy I couldn’t, but I’m muchmore motivated whensomeone else is involved(Ruth, T2 diabetes patient)“4/4HxD 2013 Consulting
  24. 24. NETWORKS OF DIABETES CAREINSIGHTS4 systemic opportunities for a holisticapproach to type 2 diabetes careHxD 2013 Consulting
  25. 25. HxD 2013NETWORKS OF DIABETES CARE1/4THERE IS A DISPLACED FOCUS INDIABETES TREATMENT IN THEHEALTHCARE SYSTEMNETWORKS OF DIABETES CARE HxD 2013 Consulting
  26. 26. 1/4NETWORKS OF DIABETES CAREMEDICATIONEXERCISEDIETHxD 2013 ConsultingThe facets of diabetes treatment
  27. 27. 1/4NETWORKS OF DIABETES CAREMEDICATIONGreatest emphasison medicationtreatment planEXERCISEStrategies forphysical activity notunified or presentDIETRecommendations made, butnot strongly emphasizedHxD 2013 ConsultingHealthcare system perspective
  28. 28. 1/4NETWORKS OF DIABETES CAREMEDICATIONAbility to integrateinto daily routinesEXERCISEMost overwhelmingand difficult aspectof treatmentDIETExisting strategies tomake small changesHxD 2013 ConsultingPatient perspective
  29. 29. 1/4NETWORKS OF DIABETES CAREMEDICATIONAbility to integrateinto daily routinesEXERCISEMost overwhelmingand difficult aspectof treatmentDIETExisting strategies tomake small changesHxD 2013 ConsultingPatient perspectiveI haven’t started a majorexercise programme yet.There is part of me that isstopping me from going there.It’s the last thing I need towork on and if it doesn’t helpme, it will be such a crash,I’m afraid to find that out(Grace, T2 diabetes patient)“
  30. 30. HxD 2013NETWORKS OF DIABETES CARE2/4THE ‘FIX-IT MENTALITY’ IS DEEPLYROOTED IN OUR SOCIETY. THISPRESENTS A DISCREPANCY FORPATIENTS AS LIVING WITH DIABETESIS A LIFETIME OF ADJUSTMENTS.THERE IS NO QUICK FIXNETWORKS OF DIABETES CARE HxD 2013 Consulting
  31. 31. HxD 2013NETWORKS OF DIABETES CARE2/4NETWORKS OF DIABETES CARE HxD 2013 Consulting
  32. 32. HxD 2013NETWORKS OF DIABETES CARE2/4NETWORKS OF DIABETES CAREIt was not good to get diagnosed. Itwould have been better if they said,‘There is this problem, you take thispill, we do this, and you’ll be fine.’ It’shard for me to deal with the fact thatthere is no fix(Susan, T2 diabetes patient)“HxD 2013 Consulting
  33. 33. HxD 2013NETWORKS OF DIABETES CARE3/4THERE IS A MISMATCH BETWEEN THEASSUMED AND ACTUAL ACTIVITIESTHAT A PATIENT’S NETWORK OFCARE PROVIDES, CREATING A GAP INTHE DELIVERY OF EMOTIONALSUPPORTNETWORKS OF DIABETES CARE HxD 2013 Consulting
  34. 34. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CAREPHYSICAL COGNITIVE EMOTIONALDoctorPharmacistSocialCommunityFriends &FamilyNurseSupportProgramfitness, diet, medication Knowledge, training stability, relationships, motivationAssumed ActivityActual ActivityHxD 2013 Consulting
  35. 35. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CAREPHYSICAL COGNITIVE EMOTIONALDoctorPharmacistSocialCommunityFriends &FamilyNurseSupportProgramfitness, diet, medication Knowledge, trainingAssumed ActivityActual Activitystability, relationships, motivationHxD 2013 Consulting
  36. 36. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CAREPHYSICAL COGNITIVE EMOTIONALDoctorPharmacistSocialCommunityFriends &FamilyNurseSupportProgramfitness, diet, medication Knowledge, trainingAssumed ActivityActual Activitystability, relationships, motivationHxD 2013 Consulting
  37. 37. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CAREPHYSICAL COGNITIVE EMOTIONALDoctorPharmacistSocialCommunityFriends &FamilyNurseSupportProgramfitness, diet, medication Knowledge, trainingAssumed ActivityActual Activitystability, relationships, motivationHxD 2013 Consulting
  38. 38. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CAREPHYSICAL COGNITIVE EMOTIONALDoctorPharmacistSocialCommunityFriends &FamilyNurseSupportProgramfitness, diet, medication Knowledge, trainingAssumed ActivityActual Activitystability, relationships, motivationHxD 2013 Consulting
  39. 39. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CAREPHYSICAL COGNITIVE EMOTIONALDoctorPharmacistSocialCommunityFriends &FamilyNurseSupportProgramfitness, diet, medication Knowledge, trainingAssumed ActivityActual Activitystability, relationships, motivationHxD 2013 Consulting
  40. 40. HxD 2013NETWORKS OF DIABETES CARE3/4NETWORKS OF DIABETES CAREUnless the patient has been diagnosedwith a mental condition, it’s unlikelythey are getting the emotional supportthey need from the healthcare system(Helen, CDE & nurse)“Consulting
  41. 41. HxD 2013NETWORKS OF DIABETES CARE4/4COMMUNITY INITIATIVES THATCO-EXIST ALONG SIDE THEESTABLISHED HEALTHCARE SYSTEMARE A POWERFUL RESOURCE TOREACH PEOPLE AND SUPPORTPATIENT CARENETWORKS OF DIABETES CARE HxD 2013 Consulting
  42. 42. 4/4NETWORKS OF DIABETES CAREWhen we started the diabetes supportgroup, we saw that there was a needfor health education in thecommunity. We then learned that theemotional aspect of living withdiabetes was not being addressed byanyone, so the meetings are a lotabout peer-to-peer support andencouragement(Diabetes support group doctor)“HxD 2013 Consulting
  43. 43. NETWORKS OF DIABETES CAREIMPACTChange making outcomes for NovoNordisk & people with type 2 diabetesqHxD 2013 Consulting
  44. 44. NETWORKS OF DIABETES CAREBy approaching the research from asystemic level, the result is a rich andemotional view into the complexinteractions and relationshipsencompassing a patient’s journey withthe condition.HxD 2013 Consulting
  45. 45. PresentationIntroduction Research Framework Findings OpportunitiesExecutive summaryBookInteractive platformNETWORKS OF DIABETES CARE HxD 2013 Consulting
  46. 46. Keeping the richness of the research findingsalive within the organizationProvide an immersive experienceOffer different layers of depth for the reader tonavigate through the contentLong lasting and updatableNETWORKS OF DIABETES CARE HxD 2013 Consulting
  47. 47. Keeping the richness of the research findingsalive within the organizationProvide an immersive experienceOffer different layers of depth for the reader tonavigate through the contentLong lasting and updatableNETWORKS OF DIABETES CARE HxD 2013 Consulting
  48. 48. NETWORKS OF DIABETES CARE HxD 2013 Consulting
  49. 49. NETWORKS OF DIABETES CAREWHAT DID WE ACHIEVE?HxD 2013 Consulting
  50. 50. NETWORKS OF DIABETES CAREA knowledge platform that inspired Novo Nordisk toamplify their role beyond the medical aspect of diabetescareWHAT DID WE ACHIEVE?HxD 2013 Consulting
  51. 51. NETWORKS OF DIABETES CAREA knowledge platform that inspired Novo Nordisk toamplify their role beyond the medical aspect of diabetescareA communication tool to restore user presence inexecutive thinkingWHAT DID WE ACHIEVE?HxD 2013 Consulting
  52. 52. NETWORKS OF DIABETES CAREA knowledge platform that inspired Novo Nordisk toamplify their role beyond the medical aspect of diabetescareA communication tool to restore user presence inexecutive thinkingA people-centred on-boarding tool for new employeesWHAT DID WE ACHIEVE?HxD 2013 Consulting
  53. 53. FINAL COMMENTSNETWORKS OF DIABETES CARE HxD 2013 Consulting
  54. 54. FINAL COMMENTSNETWORKS OF DIABETES CAREGo beyond existing modes of problem solvingHxD 2013 Consulting
  55. 55. FINAL COMMENTSNETWORKS OF DIABETES CAREGo beyond existing modes of problem solvingDesign compelling storytelling to frame actionableopportunities (and convince big corporations)HxD 2013 Consulting
  56. 56. FINAL COMMENTSNETWORKS OF DIABETES CAREGo beyond existing modes of problem solvingDesign compelling storytelling to frame actionableopportunities (and convince big corporations)Address the individual and their network of care to ignitesustainable healthcare changeHxD 2013 Consulting
  57. 57. FINAL COMMENTSNETWORKS OF DIABETES CAREGo beyond existing modes of problem solvingDesign compelling storytelling to frame actionableopportunities (and convince big corporations)Address the individual and their network of care to ignitesustainable healthcare changeHxD 2013 Consulting
  58. 58. THANK YOU!TUSIND TAK!NETWORKS OF DIABETES CAREE.dickson@ciid.dk@eilidhdicksonH.rohde@ciid.dk@hellerohdeawww.ciid.dk@CIIDnewsHxD 2013 Consulting

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