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ecdp email bulletin 35


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ecdp email bulletin 35

  1. 1. April 2012 This update includesMonthly Bulletin 35 articles on the following topics:Dear Members,Welcome to the April edition of the ecdp monthlyemail bulletin. ecdp newsThis month we are working to understand how 1. Health and social care:the views of health and social care users can effectively capturing yourbest be captured so their experiences and views views and experiencescan be considered when decisions which will 2. Working with Skills foraffect them are made. Care to give you the information you need asWe are hoping many of our members will share an employertheir thoughts and contribute their voice to this 3. ecdp’s CEO talks aboutimportant work. You can do this in two ways: Remploy on BBC Essex 4. Fulfilling Potential:The first is to complete ecdp’s short online emerging themessurvey, which takes just five minutes to complete: published by theecdp survey – How to capture your views on Governmenthealth and social careThe second is to attend one of four focus groupsbeing held across the county. The first group isthis Thursday 5 April, from 6pm-8.30pm at ecdp’s local newsoffices in Chelmsford. 5. ECC introduces PaymentAll attendees will be paid £20 for their time and Card for Personal Budgetwe will cover reasonable travel expenses. A Usersbuffet will also be provided. 6. Leap Against Stigma conferenceFull information and a list of the other meeting 7. Fair Access to Colchesterdates are available in the article on page three. If needs you! 8. Ability Action Southend:you can’t make it to a meeting, there are otherApril 2012: Monthly Update 35 Page 1 of 19
  2. 2. Monthly Bulletin 35 – April 2012ways to share your views, too: ‘Positive about Disability  You can tweet us by sending us a message Day’ to @ecdp on Twitter  You can share your views with us on Facebook here: national news  You can share your views on our website Forum: 9. Disability Rights UK –  You are also welcome to share your views Holiday guide for disabled with us via email (send your thoughts to people or on the phone (call 10.Survey for Personal 01245 392 324). Assistants 11.Travel Support Card forIf you’d like to ensure you receive information people with hiddenabout the research work we’re doing, or if you’d impairmentslike to make sure your voice is heard, pleasecontact: Rich Watts on or01245 392 324.We very much hope you will consider taking partin this work, and hope to hear from you soon.Best wishes,Rich WattsDirector of Policy & DevelopmentApril 2012: Monthly Update 35 Page 2 of 19
  3. 3. ecdp news Health and social care: effectively capturing your views and experiences ecdp has been asked by Essex County Council to find out how to best capture your views and experiences of the health and social care systems. This is to ensure that your views and experiences are reflected in the way decisions about health and social care in Essex are taken. We hope you will take this opportunity to have your voice heard and share your lived experiences in this work. We’re very keen to ensure this work covers as many different groups of people across Essex. Over the next six weeks, we will be running meetings across different locations in Essex. This will be your chance to: Let us know why you might want to share your experiences to make the health and social care systems better Share with us the best ways for them to do this – such as meetings, surveys, online, social media, drop-in sessions, focus groups etc. 6pm-8.30pm, Thursday 5 April, ecdp (Chelmsford) 11am-2pm, Tuesday 10 April, Tendring CVS (Tendring) 11am-2pm, Tuesday 17 April, Firstsite (Colchester) 11am-2pm, Thursday 3 May, ecdp (Chelmsford) If you can attend one of these meetings, we will be able to pay you for your time (£20) and travel. If you would like to attend, please contact Faye on or 01245 214 023. There are lots of other ways to get involved, including through the online survey. For more information, please see the ecdp website: ecdp – Health and social care: effectively capturing your views and experiences. April 2012: Monthly Update 35 Page 3 of 19
  4. 4. ecdp newsWorking with Skills for Care to give youthe information you need as anemployerecdp is delighted to be working with Skills for Care to support disabledpeople in Essex and beyond who employ their own staff to accessSkills for Care’s useful and time-saving resources.Skills for Care wants to ensure that the people who work for disabledand older people in providing care – often paid for by Direct Paymentsor Personal Budgets – have the right skills and qualifications to do so.We know Direct Payments can be a very beneficial way of arrangingyour social care. But we also understand that it can sometimes taketime to get the right information to feel fully in control.This is why ecdp is working with Skills for Care to ensure their usefulinformation is made as available as possible to you. We also want tomake sure you have the opportunity to let Skills for Care know howuseful their resources are: what is good, what can be improved, andwhat new things you might like to see.How we will do thisOver the next four months, we will be telling you much more about theresources that Skills for Care have. We will be using our website(, our monthly bulletin, our quarterly magazine andour social media (Twitter, Audioboo and YouTube) to keep you up-to-date on the support available and how you can access it.We will also be holding three dedicated focus groups in April, May andJune. This means you will have the chance in person to find out fromSkills for Care about the work they do, and let them know how it couldbe improved.We are also keen to let you know about a very useful source ofinformation that Skills for Care has developed: it is called a “SocialCare Data Set”, and it can tell you the types of skills you can expect toApril 2012: Monthly Update 35 Page 4 of 19
  5. 5. ecdp newsfind for carers in Essex, what types of qualifications they might have,and all sorts of other useful information you might need to help youmake a good decision when looking for your next carer / PersonalAssistant.Keep in touchIf you would like to ensure you receive information about the work weare doing with Skills for Care, or if you would like to take part in theplanned focus groups, please contact: Rich Watts or 01245 392 324. We will be able to pay peoplefor their time and travel in being involved in this work.You can find out more about Skills for Care and what they do here:Skills for Care.About ecdp’s payroll support service – ecdp passOur payroll service – ecdp pass – supports disabled and older peoplewith employing Personal Assistants (PAs). ecdp pass provides a vitalsupport system for people who want the independence that a DirectPayment / Personal Budget / cash payment can give them, but forwhatever reason feel they need some support to do so.We have a personalised payroll service to meet user’s individualneeds through offering as much of a tailored service as possible. Thisincludes payment facilities, quarterly returns to Councils, staffrecruitment and checking, and PA training. To find out more aboutecdp pass please visit the ecdp website or contact them on 01245392 320.April 2012: Monthly Update 35 Page 5 of 19
  6. 6. ecdp news ecdp’s CEO talks about Remploy on BBC Essex Last month, ecdp’s CEO – Mike Adams – was invited onto BBC Essex to talk about the recent announcement concerning the proposed closure of Remploy. You can listen to the interview on BBC Essex here: Mike Adams on BBC Essex There were a number of key points that Mike made: We have sought to capture the views and lived experiences of disabled people locally to inform our views Older disabled people, whose experiences were in the main of segregated institutions, sometimes feel the dedicated workplaces approach was the best to take. But the next generations don’t find it acceptable that they should be treated differently or separately, and want the same access to opportunities – in employment, in education, in volunteering – as non-disabled people We are reassured by the commitment that all of the money saved by changes to Remploy is being reinvested into Access to Work – an employment support programme we know works This will ensure more disabled people get employment support: the cost to government for someone to work at Remploy is £25,000, whilst the cost of Access to Work is £2,900 per individual. Furthermore, this is good not only for the individual but good for the economy: for every £1 invested in Access to Work, it returns £1.48 in tax and National Insurance contributions We understand there is a significant package of support in place for people leaving Remploy. This will be for a transition period of 18 months and this support will be additional to existing work support programmes. Furthermore, people will be able to take this resource directly through a Direct Payment, rather than having to use pre- determined support, so it will be personalised April 2012: Monthly Update 35 Page 6 of 19
  7. 7. ecdp news We hope user-led organisations – like ecdp – up and down the country will play their part in this transition We must remember that the recommendation about Remploy is just one part of a significant number of other reforms made by the Sayce review. We strongly encourage people to look at the whole report in the round, and not focus simply on Remploy We feel it is important not to be making political points about the changes to Remploy. Governments have been looking closely at Remploy for a number of years – for example, the most recent round of Remploy closures was in 2008 when 28 factories closed. ecdp responded in full to the Sayce review in October 2011. You can read our response here: ecdp response to the Sayce review Mike Adams was a member of the scrutiny group of the Sayce review, which meant he could share ecdp members’ views in the development of the review as well as afterwards. ecdp membership Did you know that ecdp membership is free to disabled people who live or work in Essex? As well as this monthly update, you will receive a quarterly magazine and the opportunity to provide your lived experience to help shape our work. For more information, please contact using the details at the start of this bulletin. April 2012: Monthly Update 35 Page 7 of 19
  8. 8. ecdp newsFulfilling Potential: emerging themespublished by the GovernmentAt the beginning of March, ecdp submitted a response to theGovernment’s engagement exercise to inform the newdisability strategy.ecdp worked with disabled and older people from acrossEssex to produce the response, which you can read on ourwebsite in a number of formats: Fulfilling Potential - ecdpresponseThe picture to the right is a ‘graphick’, drawn during a focusgroup of young disabled people and people with learningdisabilities.The Fulfilling Potential exercise was covered by BBC radio 4, includinginterviews with ecdp members.You can watch a short video of our Chief Executive, Mike Adams,reflecting on Fulfilling Potential and the contribution of ecdp memberson our website.Over 500 responses were received by the Government. Emergingthemes have been published by the Office for Disability Issues (ODI)and were discussed at an event attended by disabled people, disabledpeople’s organisations, and officials from across Government onThursday 22 March.You can read some emerging themes from the responses on the ODIwebsite.If you would like any further information on Fulfilling Potential or youwould like to share your thoughts, please contact Faye by or phone 01245 214 023.April 2012: Monthly Update 35 Page 8 of 19
  9. 9. local newsECC introduce Payment Card forPersonal Budget UsersEssex County Council (ECC) is launching a Payment Cardas a new way for people to receive their Personal Budget.The aim of the card is to give people greater choice andcontrol over their support and can be used in a number ofways to meet the needs agreed in their support plan. Thismight include paying a care agency or personal assistant,paying for leisure activities, support services or transport.The card is a Visa card with a chip and pin, much like a bank card.This means the card can be used to make payments using the chipand pin facility, over the internet and by phone; it can be used for one-off or regular payments. However, there is no bank account and thecard is pre-loaded with the amount ECC has agreed to pay eachmonth in your Personal Budget, so you cannot spend any more thanthe agreed amount.A leaflet explaining the Payment Card and how it will work for users, isavailable to download as a PDF: Essex County Council - PaymentCards Leaflet.To share your thoughts on the payment cards, please contact ecdp’sLived Experience Officer by email: or phone:01245 214 023.April 2012: Monthly Update 35 Page 9 of 19
  10. 10. local newsLeap Against Stigma ConferenceNorth Essex Partnership Foundation Trust (NEPFT) is hosting aconference on Monday 14 May about tackling stigma related to mentalhealth issues. The conference will include guest speakers from theRoyal College of Psychiatrists.More information and a booking form are available to download fromthe ecdp website: ecdp – Leap Against Stigma: booking formIf you have any questions or require any further information, pleasecontact Luisa Hart at NEPFT by phone: 01245 546 441 or 2012: Monthly Update 35 Page 10 of 19
  11. 11. local news Fair Access to Colchester needs you! Changes are being made to Colchester Town Centre which will include removing access to the central blue badge spaces on the High Street and Head Street between 10am - 6pm, and replacing them with existing spaces in the car parks surrounding the town, a great distance away. The Road Traffic Orders to make these changes have been published and 30 March is the deadline to respond to the formal consultation. Fair Access to Colchester is putting a response together to try and explain the impact the changes will have on people with disabilities/mobility issues, older people and carers. To do this we are undertaking a one-page survey, which you can use to share your views on the proposed changes You can access the survey here: Fair Access to Colchester survey Are you a person with a disability/mobility issue, or a carer? Fair Access to Colchester is looking for people with different impairments to undertake a more in-depth interview so we can explain the impact it will have on your ability to reach the town centre. People would include: People with chronic pain People with breathing difficulties People with a long-term condition People with a visual impairment Plus any other group it will impact upon. If you are interested in taking part, please contact Fair Access to Colchester: Fair Access to Colchester April 2012: Monthly Update 35 Page 11 of 19
  12. 12. local newsRespond to the consultationYou can also respond to the consultation as individuals. The proposedRoad Traffic Orders can be found here: Engage EssexYou can respond to them here: TRO Comments, East Area HighwaysOffice, 910 The Crescent, Colchester Business Park, Colchester, CO49QQ or email them to 2012: Monthly Update 35 Page 12 of 19
  13. 13. local news Ability Action Southend: ‘Positive about Disability Day’ The event is between 10am-4pm on Friday 13 April in the Outpatients Area of Southend General Hospital. The day will include the following: Free information, advice and guidance Meet local disability activists Disability benefits entitlement advice Tell us your views on Hospital Services and disability access A chance to ask questions Light refreshments available You can find out more about the day via Ability Action Southend’s Facebook page: Ability Action Southend on Facebook. Find ecdp online For up-to-date news on the work we are doing at ecdp, find us online…  Our website:  Our Facebook page:  Our Twitter page: April 2012: Monthly Update 35 Page 13 of 19
  14. 14. national newsDisability Rights UK - Holiday guide fordisabled peopleDisability Rights UK have published their Holiday Guide fordisabled people looking for a break in the British Isles.Since Disability Rights UK (formerly Radar) started producing aholiday guide over 30 years ago, there have been substantialimprovements in the regulations and legislation affecting theprovision of accessible accommodation and the other servicesneeded by disabled guests. There are many people within thetourist industry who have a real interest in catering for disabledguests and this number is growing all the time.Written by and for disabled people, this is an essential read for youand the people who support you to help find out more about accessibleand inclusive holiday experiences. Whether it is a day trip out or anadventure holiday, you can use this guide as a support tool andresource to help plan your time away.Disability Rights UK compiled this Guide to help you prepare for aholiday and find the information you might need to make sure that yourdestination and accommodation is suitable. The Guide is divided intotwo parts; the first provides general and practical advice and guidanceto help you organise your trip and includes a list of organisations andresources you may find useful. The second half of the book offers youan armchair tour around the British Isles, to help you decide where youmight want to go and let you know about some of the local resourcesavailable to you in each region.Visit the Disability Rights UK website to order a copy or download aPDF version of the guide, here: Disability Rights UK - Holidays in theBritish Isles 2012.April 2012: Monthly Update 35 Page 14 of 19
  15. 15. national newsSurvey for Personal AssistantsThe size and structure of the adult social care sector andworkforce in England is a report produced by Skills forCare on an annual basis and aims to provide acomprehensive overview of the adult social care sector andworkforce.The information in this report will be of interest to a wide variety ofstakeholders, including Local Authorities, Central Government andAdult Social Care Employers.As part of this report Skills for Care require an estimate of the numberof jobs carried out by people in personal assistant roles.National Minimum Data Set for Social Care (NMDS-SC) data is usedfor the majority of the report however coverage of people who employtheir own care and support staff (through direct payment or othermeans) is still relatively low and therefore cannot be used to accuratelyproduce these estimates. Therefore, Skills for Care are running asurvey to gain an understanding of how many jobs personal assistantshave.The questionnaire is designed for personal assistants to complete andshould only take a few minutes. All responses will be completelyanonymous and we will not ask for names or contact details ofrespondents.This information will be used by Skills for Care to estimate the numberof people that have more than one job in the adult social care sector. Itwill not be used for any other purposes.The survey is available here: Personal Assistants - Multiple JobSurvey. The survey should be completed by 5pm on Friday 4 May2012.April 2012: Monthly Update 35 Page 15 of 19
  16. 16. national newsTravel Support Card for people withhidden impairmentsTransport for London (TfL) have launched a travel supportcard, designed to make it easier to get help from staff onbuses, the DLR, London Overground and the Tube.You can show the card to staff when you ask them for helpor if you have a problem while you are travelling. It is foranybody who has a hidden impairment, but may beparticularly helpful for people with learning difficulties.There is a blank space inside the card where you can writedown information about your journey and the type of helpyou may need.You can download a printable version of the travel supportcard or you can order the card by contacting London TravelInformation on 0843 222 1234.A short guide to using your Travel Support Card isavailable here: How to use your travel support card. London Transport Accessibility Transport for London (TfL) has produced a report providing details on how the Mayor’s Transport Strategy (MTS) Accessibility Plan will be taken forward. Publication of the report follows a four month period of public consultation in summer/autumn 2011. The report is available in a number of formats on the TfL website: TfL – Transport System AccessibilityApril 2012: Monthly Update 35 Page 16 of 19
  17. 17. national news Hate crime action plan: Challenge it, Report it, Stop it The Home Office has published ‘Challenge it, Report it, Stop it’, the government’s blueprint to tackle hate crime. It aims to bring together activity by a wide range of government departments - working with local agencies, voluntary organisations and our independent advisory group - to meet three key objectives: preventing hate crime happening by challenging the attitudes and behaviours that foster hatred, and encouraging early intervention to reduce the risk of incidents escalating increasing the reporting of hate crime that occurs by building victims’ confidence to come forward and seek justice, and working with partners at national and local level to ensure the right support is available when they do working with the agencies that make up the Criminal Justice System to improve the operational response to hate crime. We want a more effective end-to-end process, with agencies identifying hate crimes early, managing cases jointly and dealing with offenders robustly In the Ministerial Foreword of the report, Lynne Featherstone, Minister for Equality states: All crime is wrong, but that which is motivated by a particular characteristic of the victim - whether it’s their race, faith, sexual orientation, gender identity, perceived disability or anything else - is particularly corrosive. Tackling hate crime matters, not just because of the devastating consequences it can have for victims and their families, but also because it can divide communities. You can read Lynne Featherstone’s full speech from the launch of ‘Challenge it, report it, stop it’ on the Home Office website: Lynne Featherstone speech on hate crime. April 2012: Monthly Update 35 Page 17 of 19
  18. 18. national news Our members will be aware of ecdp’s work with members, examining disability hate crime in Essex. This work found that there were four key areas to address in order to tackle disability hate crime, forming the USER model: Understanding – there needs to be a greater understanding of disability hate crime Signposting and Support – services which signpost and support disabled people when they are victims of hate crime should be widely available and well coordinated Education – to ensure wider change for disabled people, we believe education work should be focused on three particular groups of stakeholders: disabled people themselves, professionals and wider society. Reporting– we believe stronger processes for reporting will increase the number of investigated and prosecuted cases. ecdp’s welcomes many aspects of the Government’s approach outlined in the blueprint, broadly reflecting many of the changes ecdp called for within this model: We agree that a local approach to tackling hate crime in communities, based on the lived experience of those within in them, is the right one. Indeed as Disabled People’s User-Led Organisation (DPULO), ecdp believe we are well placed to work with our members to understand and utilise their lived experience to address disability hate crime, working with key partners including the Police and Crown Prosecution Service (CPS). It is good to see the report reference the important role DPULOs have in addressing disability hate crime. Many of the professionals with responsibility for dealing with hate crime told ecdp that there was not an adequate understanding of disability hate crime. The first action in the blueprint aims to increase understanding of hate crime through analysis of existing data, such as that collected by the British Crime Survey. Our members strongly called for an approach which prevents hate crime by challenging negative attitudes about disabled people through April 2012: Monthly Update 35 Page 18 of 19
  19. 19. national newseducation.During the Fulfilling Potential discussion our members also told us theyhoped to see the Paralympics used to improve attitudes towardsdisabled people longer term. This is also recognised in the action plan.Given the constructive and varied suggestions for improving the livesof disabled people - including through changing attitudes andbehaviours - our members and many other disabled people across thecountry made during the Government’s Fulfilling Potential discussion,it is good to see that the resulting Disability Strategy and actions to betaken, will also inform work around disability hate crime.The report recognises disabled people as one of the groups who areleast likely to report hate crime when it affects them and aims toimprove reporting for all victims through better partnership working(joining up signposting and support) and building confidence.April 2012: Monthly Update 35 Page 19 of 19