Jane Gray - Data protection issues for organizations

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Short presentation of the issues under discussion in Session 2 of the workshop "Data Protection Issues for Trusted Digital Repositories: Challenges and Solutions", which primarily examined the challenges facing data repositories in meeting ethical and legal requirements of archiving research data. This was presented on the 16th of January, 2014 at the "Data Protection Issues for Trusted Digital Repositories: Challenges and Solutions" at the Royal Irish Academy.

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  • Not data in computer science sense only, but data as in informationKilkenny design archivesStained glass windows archivesIQDA data
  • Not data in computer science sense only, but data as in informationKilkenny design archivesStained glass windows archivesIQDA data
  • Levels of accessSecurityCopyrightIdentifying personal details (IQDA)Central – all archives stored in one placeTools – not just text to screen
  • Jane Gray - Data protection issues for organizations

    1. 1. Data protection issues for organizations Jane Gray Principal Investigator (Social Sciences) Digital Repository of Ireland National University of Ireland Maynooth
    2. 2. Data protection issues for data repositories Three challenges: • Different ethical values and standards across disciplines and data communities • Changing European environment for data protection, research infrastructures and data repositories • Limitations on capacity of data repositories to vindicate agreements with depositors and ethical obligations to research participants DRI Presentation
    3. 3. Different ethical and value standards Challenge for federated infrastructure such as DRI: • Different understandings of what constitutes personal or sensitive data • Different expectations about appropriate audiences • Different approaches to meeting conflicting demands of openness and personal privacy • Will be addressed within policy development cycle of DRI - we welcome your comments and suggestions! DRI Presentation
    4. 4. Changing European environment for data protection Impetus towards a unified data protection framework in Europe: • Context of uneven implementation of existing guidelines • Proposed “General Data Protection Regulation” would be binding and applicable to all member states • Anticipated to take effect in 2016 • Ongoing controversy and debate regarding extent to which derogations for historical, statistical and scientific research will be retained DRI Presentation
    5. 5. Vindicating depositor agreements Ethical and legal obligations may come into conflict, for example when guarantees of confidentiality and anonymity cannot be met • Potential for „chilling effect‟ on research and mistrust of data repositories • Requirement for repositories to have clear guidelines • Advocacy role for repositories and research infrastructures? DRI Presentation
    6. 6. Further reading DASISH report on legal and ethical issues • http://dasish.eu/publications/projectreports/D6.1_final.pdf/ DRI Presentation

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