D A N I E L R Ă D U Ț Ă
R O M A N I A N A S S O C I A T I O N A G A I N S T
L E U K E M I A
Center of Excellence for treat...
Briefly
 Center of Excellence at Bucharest University
Hospital
 Treatment of hematological diseases
 One of the most re...
Summary
 Hematological diseases and their treatment in Romania
 Through the story of a leukemia patient: me
 The need f...
What is a hematological disease
 Hematological diseases affect the bone marrow and
blood
 There are chronic and acute fo...
The treatment
 Two major therapies
 Chemotherapy (full cycle)
 Bone marrow transplantation (BMT), preceded by initial c...
Bone marrow transplantation
 BMT is increasingly preferred as the best solution
 My form of leukemia required a BMT
 On...
BMT in this cases
 In another EU country at a cost of at least 120.000€
 As a Romanian, you have two choices
 Pay the m...
A few other patients who did not find cure in Romania
People you see here are some that appeared in mass-media and some we...
Situation in
Romania
European Cancer
Observatory estimated
3265 people
were diagnosed with
leukemia or lymphoma
in 2008
At...
Situation in
Europe
A study of EBMT shows
that most European
countries perform
at least 200 BMT
per 10 million inhabitants...
Comparison
Incidence of leukemia
and lymphoma does not
vary significantly from
year to year
BMT procedures in
Europe incre...
How many
would have a
better chance
If Romania reaches at
least Central Europe’s
minimum BMT rate,
260 more patients
would...
Our proposal
 Center of Excellence at Bucharest University Hospital (SUUB)
 People involved
 The team from San Raffaele...
HSR, the key partner
 Who is HSR
 Bone Marrow Transplantation Unit at San Raffale Hospital, Milano,
Italy
 Participants...
More about HSR
 BMT Unit is considered one of the best in Europe
 Recognized by the community as having very good resear...
Project goal & objectives
 The Goal
 Improve the treatment conditions in Romania and consequently save
more patients
 P...
Project activities
Management
Communication
plan
Monitoring &
controlling
Planning &
estimations
People &
Responsibilities...
Project
estimated
costs
Facility costs
Staff training
Interventions costs
Other costs
Interventions costs
would be support...
Project team
 The backbone consists of the two great medical teams
 A very promising medical team at SUUB
 One of Europ...
Thank you
Daniel Răduță
Romanian Association Against Leukemia (ARIL)
draduta@gmail.com
draduta
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Center of excellence for treatment of hematologic diseases

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Center of excellence for treatment of hematologic diseases

  1. 1. D A N I E L R Ă D U Ț Ă R O M A N I A N A S S O C I A T I O N A G A I N S T L E U K E M I A Center of Excellence for treatment of hematologic diseases
  2. 2. Briefly  Center of Excellence at Bucharest University Hospital  Treatment of hematological diseases  One of the most renowned European centers offers the know-how  San Raffaele Hospital, Milano, Italy  ARIL (Romanian Association against Leukemia) supports the project
  3. 3. Summary  Hematological diseases and their treatment in Romania  Through the story of a leukemia patient: me  The need for improving Romanian conditions  Expressed in facts and numbers  Our proposal  The project  People and expertise
  4. 4. What is a hematological disease  Hematological diseases affect the bone marrow and blood  There are chronic and acute forms  Leukemia and lymphoma account for 90%  I was diagnosed with Acute Leukemia in 2009  Left untreated, acute forms kill you in a few weeks  Some say is a death sentence  I’m the living proof of the contrary
  5. 5. The treatment  Two major therapies  Chemotherapy (full cycle)  Bone marrow transplantation (BMT), preceded by initial chemotherapy  Acute forms are the most difficult to treat  Aggressive chemotherapy that weakens the patients immunity and organism  One needs proper sterile facilities to avoid (often fatal) complication  BMT is required in many of such cases  I was treated in one of the best facilities in Romania  However, the sterile conditions are still lower than the standards  As a result, many patient suffer fatal complications  Lucky me …
  6. 6. Bone marrow transplantation  BMT is increasingly preferred as the best solution  My form of leukemia required a BMT  Only two types of transplant are performed in Romania  Autologous (using one self's healthy cells)  Matched Related Donor (MRD): uses stem cells from a fully compatible brother or sister  I needed one of the others  Partially Matched Related Donor  Matched Unrelated Donor (MUD)  With stem cells from Cord Blood
  7. 7. BMT in this cases  In another EU country at a cost of at least 120.000€  As a Romanian, you have two choices  Pay the money from your own pocket  Access special government funds  A fund raising campaign got me the money in 2 months  The government procedure can take as long as 12 months  While waiting, a patient receives further aggressive chemotherapy  Again I was lucky!
  8. 8. A few other patients who did not find cure in Romania People you see here are some that appeared in mass-media and some we had time to request their explicit agreement
  9. 9. Situation in Romania European Cancer Observatory estimated 3265 people were diagnosed with leukemia or lymphoma in 2008 At most 140 BMT were performed in 2009, according to the Romanian official press releases 1560 1705 Leukemia Lymphoma Sources: European Cancer Observatory ( http://eu-cancer.iarc.fr ) , Romanian Newspapers and Journals 4% 96% Therapy BMT Only chemotherapy
  10. 10. Situation in Europe A study of EBMT shows that most European countries perform at least 200 BMT per 10 million inhabitants with many of them performing at least 400 BMT per 10 million inhabitants EBMT (European Group for Blood and Marrow Transplantation) study can be found here HSCT stands for Hematopoietic Stem Cell Transplantation which is just another name for BMT
  11. 11. Comparison Incidence of leukemia and lymphoma does not vary significantly from year to year BMT procedures in Europe increased each year So we may perform a fairly accurate comparison between Romania and EU for 2009 0 50 100 150 200 250 300 350 400 BMT per 10 million Romania Western EU Central EU
  12. 12. How many would have a better chance If Romania reaches at least Central Europe’s minimum BMT rate, 260 more patients would be transplanted each year, thus having a much better chance for long-term survival 4% 96% Actual BMT Full chemotherapy 12% 88% Desired BMT Full Chemotherapy
  13. 13. Our proposal  Center of Excellence at Bucharest University Hospital (SUUB)  People involved  The team from San Raffaele Hospital in Milan, lead by dr. Fabio Ciceri  The team from SUUB lead by dr. Horia Bumbea and dr. Ana Vlădăreanu  Competencies  Italian team agreed to transfer the expertise and competencies the Romanian team does not yet poses  Facility  Equipping a brand-new transplant facility  Improving the existing hematological facility  Updating the diagnostic laboratory with the latest technology
  14. 14. HSR, the key partner  Who is HSR  Bone Marrow Transplantation Unit at San Raffale Hospital, Milano, Italy  Participants in this project include dr. Fabio Ciceri, dr. Jacopo Peccatori, dr. Andrea Assanelli, cs. Vincenzo Matozzo  They will offer intensive training and supervision to professionals at SUUB  They evaluated three potential partners in Romania  They chose SUUB team as the most promising one  The collaboration is ready to take off  Training plan is made, resources and costs estimated More about HSR on their website: http://www.fondazionesanraffaele.it/EN_home/index.html
  15. 15. More about HSR  BMT Unit is considered one of the best in Europe  Recognized by the community as having very good research activity  One of the few centers in Europe who successfully perform PMRD transplants on a large scale  Comparison to Romanian centers  HSR performed more transplants than all our centers  HSR performs all 5 types of transplant, compared to only 2
  16. 16. Project goal & objectives  The Goal  Improve the treatment conditions in Romania and consequently save more patients  Perform PMRD transplants in Romania  Main Objectives  30 transplants in the 2nd year of functioning  The first PMRD transplant in Romania in the 2nd year  Secondary Objectives  Build up transplant expertise at SUUB and also in the Romanian medical community  Expand the transplant center in the following years
  17. 17. Project activities Management Communication plan Monitoring & controlling Planning & estimations People & Responsibilities Medical training Facility costs Other costs Project documentation Obtaining funds Applying for Swiss funds Applying for EU programs Donations and sponsors Medical training Training at HSR Interventions at HSR Supervised activity at SUUB Assisted activity at SUUB Facility equipment Acquisition process Implementation Communication & PR Project Website & Blog Online Media Traditional Media Presentations and networking
  18. 18. Project estimated costs Facility costs Staff training Interventions costs Other costs Interventions costs would be supported by the Romanian Public Assurance For the rest, we must find solutions Facility 50% Training 4% Interventio ns 40% Other 6% 5.000.000 €
  19. 19. Project team  The backbone consists of the two great medical teams  A very promising medical team at SUUB  One of Europe’s most renowned medical teams as mentors  Supporting team  Full-time involvement of ARIL’s president, Monica Bunaciu, formerly diagnosed with leukemia  Daniel Răduță, formerly diagnosed with leukemia, Project Manager at BitDefender  Adina Ovedenie, ARIL volunteer, expert in European funds  Diana Stoleru, ARIL volunteer, Chanel Manager at BitDefender  Ruxandra Predescu, ARIL volunteer, PR specialist
  20. 20. Thank you Daniel Răduță Romanian Association Against Leukemia (ARIL) draduta@gmail.com draduta

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