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Self Organizing Genomes with Real Time Consent - DNA Guide

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Self Organizing Genomes with Real Time Consent - DNA Guide

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Advocates for self organizing genomes with real time consent . Pattern in evolution of digital humanity is aspect of life gets digitized and once it's affordable a platform emerges that allows people to:
1. Upload their data
2. Control who they share it with.

Describes a personal biological domain model that allows for industry integration based on individual ownership of raw genetic data.

Advocates for self organizing genomes with real time consent . Pattern in evolution of digital humanity is aspect of life gets digitized and once it's affordable a platform emerges that allows people to:
1. Upload their data
2. Control who they share it with.

Describes a personal biological domain model that allows for industry integration based on individual ownership of raw genetic data.

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Self Organizing Genomes with Real Time Consent - DNA Guide

  1. 1. Self Organizing Genomes with Real Time Consent Alice Rathjen, President, Founder alice@dnaguide.com DNA Guide, Inc. All rights reserved 2012
  2. 2. Genome Digital Human Being
  3. 3. The Evolution of Digital Humanity Molecular Electronic Next Generation Social Networks Diagnostics Health Records Sequencing Pattern: Technologies People upload/create data and control who they share it with. 1992 2012
  4. 4. Imagine…. The power of Self- Organizing Genomes
  5. 5. The advantages of Real Time Consent
  6. 6. 2 Billion Genomes in Electronic 10 Years? Molecular Next Generation Social Networks Diagnostics Health Records Sequencing Technologies 2012 2022 Research Governments/Passports Electronic Health Records Patient Groups Ancestry Gaming (DNA Avatars) Biometric Access/ E-Commerce Online Identity Services Citizen Science Non-Govt Health Organizations Disaster Response / Epidemics
  7. 7. The Industries Problem... No Path to Market Genetic Data Explosion Huge investment in Personalized Medicine Sequencing Technologies and INSURANCE Molecular Diagnostics Consumers/ Pharma / Health Patients Clinical Services R&D Trials Regulation, Privacy, Ease of Use Will we see a Facebook for DNA or Biological DNS - where people choose an entity to register and host their genome?
  8. 8. Regulation www.DNAguide.com
  9. 9. Problem of Fear and Ignorance A T A T T A C G C G
  10. 10. The Patient Has Changed Doctor, it hurts Doc, I was born when I do this this way
  11. 11. New Path to Market? C T G Those A Providing Consumer/ Valuable Patient Controls Information Access To Their and Services DNA via Real Get Rewarded Time Consent
  12. 12. Genome Browsers & Non-Scientific Users (Mitochondria)
  13. 13. Solution is to Manage Interpretation and Access Down to the Base Pair Level
  14. 14. Technology can Enable Dynamic Regulation & Compliance Information Category Rating Quality of Science (Graded) A,B,C,D,F (by Scientific Community) W = Withdrawn I = Incomplete Medical Utility (Five Star Rating) (by Health Care Providers/ Payers) (Movie Rating) Viewing Risk E= (Genetic Counselors, Ethics) Everyone, PG = Physician Guidance R= Restricted
  15. 15. Building the Scaffolding for Future Personal Biological Data Grand Slam of Electronic Health Records Patient as Owner Map of Your Map of Your Security Token Genome Body DNA sample used to create “Google Maps” for your genome Medical records, images and patient centered universal with the ability to manage gene expression data to be health record based on real interpretation and access down to linked to a map of the your time consent. (Patient the DNA base pair level. Convert human body and to genomic submits DNA sample to prove $1,000 genome into 2 minute location. ownership , receives login to genome at the point of care. setup user accounts).
  16. 16. Navigating Genetic Data Privacy, Regulation and Ease of Use Alice Rathjen, President, Founder alice@dnaguide.com Method for preparing and using personal and genetic profiles DNA Guide, Inc. All rights reserved 2012

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