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CRITICAL DIGITAL HEALTH STUDIES:
A RESEARCH AGENDA
Deborah Lupton, News & Media Research Centre,
Faculty of Arts & Design,...
Web 1.0
• one-way website use, little user content
creation, landline internet connections,
desktop and laptop computers
W...
What is digital health?
eHealth mHealth
Health 2.0 Medicine 2.0
digital
health
Digital health includes
digitised therapies, patient self-care + medical devices
public health surveillance (digital epide...
Health and medicine on Twitter
Patient support platforms
Wireless mobile health devices
Health vital monitoring patch
Sleep Shirt containing sensors to measure
movement for sleep apnoea detection
Self-tracking devices
Health and medical apps
Wearable tech
Digital epidemiology
A research agenda …
Critical digital health studies
• Challenging techno-utopia and solutionism
• Identifying the social, ...
Evolution of a field of research
health
sociology
social
aspects of
HIV/AIDS
HIV/AIDS
metaphors
computer
viruses
computers...
critical
digital
health
science and
technology
studies
social science
of
medicine/public
health
surveillance
studies
media...
Research questions
• How do the news media cover digital health topics?
• What websites, platforms, social media sites and...
Research questions
• In the face of techno-utopia, what are the lived
experiences of people using digital health technolog...
Research questions
• How are concepts of selfhood, health, illness, disease and
the body shaped through digital technology...
Research questions
• What are the political dimensions and power relations
inherent in the use of these technologies?
• Ho...
Theoretical perspectives
• Sociomaterial approach
• The cyborg body/post-human body
• Forms of veillance: panoptic, synopt...
Theoretical perspectives
• Domesticating technologies
• The medical gaze
• Prosumption
• Technology as performative (both ...
Recent + current research projects
• mapping the domain of critical digital health studies
• the commodification of patien...
Recent + current research projects
• use of digital tech by professionals in infectious disease
surveillance control (with...
An artist’s response
Critical digital health studies: a research agenda
Critical digital health studies: a research agenda
Critical digital health studies: a research agenda
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Critical digital health studies: a research agenda

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Updated slides - presents a research agenda for critical digital health studies. Defines digital health, gives theoretical perspectives, outlines research questions and lists my current and future research projects in this area. Presented at the Australian National University, 14 May 2014.

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Critical digital health studies: a research agenda

  1. 1. CRITICAL DIGITAL HEALTH STUDIES: A RESEARCH AGENDA Deborah Lupton, News & Media Research Centre, Faculty of Arts & Design, University of Canberra Twitter: @DALupton
  2. 2. Web 1.0 • one-way website use, little user content creation, landline internet connections, desktop and laptop computers Web 2.0 • user-created content or commentary, social networking sites, ubiquitous computing, mobile devices, media convergence Web 3.0 • interconnected 'smart objects' that can communicate with each other, producing a single interlinked database From Web 1.0 to Web 3.0
  3. 3. What is digital health? eHealth mHealth Health 2.0 Medicine 2.0 digital health
  4. 4. Digital health includes digitised therapies, patient self-care + medical devices public health surveillance (digital epidemiology) health informatics – online patient records, triage + booking systems diagnostic, genomic, risk assessment, decision-making tools (online + apps) health and medical platforms, blogs, websites + social media health promotion strategies voluntary self-tracking – quantified self, computer games
  5. 5. Health and medicine on Twitter
  6. 6. Patient support platforms
  7. 7. Wireless mobile health devices
  8. 8. Health vital monitoring patch
  9. 9. Sleep Shirt containing sensors to measure movement for sleep apnoea detection
  10. 10. Self-tracking devices
  11. 11. Health and medical apps
  12. 12. Wearable tech
  13. 13. Digital epidemiology
  14. 14. A research agenda … Critical digital health studies • Challenging techno-utopia and solutionism • Identifying the social, cultural, political and ethical implications of digital health technologies
  15. 15. Evolution of a field of research health sociology social aspects of HIV/AIDS HIV/AIDS metaphors computer viruses computers, selfhood & the body critical digital health studies
  16. 16. critical digital health science and technology studies social science of medicine/public health surveillance studies media, cultural and communication studies the arts and design
  17. 17. Research questions • How do the news media cover digital health topics? • What websites, platforms, social media sites and apps are valued for health-related information, medical practice or patient support? • What kinds of content are created and shared by lay people via social media platforms? • What do corporate social platforms do with this content? • Big data: privacy, web harvesting and commercialisation
  18. 18. Research questions • In the face of techno-utopia, what are the lived experiences of people using digital health technologies? • Who to trust in the digital media world?
  19. 19. Research questions • How are concepts of selfhood, health, illness, disease and the body shaped through digital technology use? • How are healthcare providers using digital technologies? • How are professionals in health promotion and public health using digital technologies?
  20. 20. Research questions • What are the political dimensions and power relations inherent in the use of these technologies? • How will privacy be defined and experienced in the context of these media? • What are the implications for how people conduct their everyday lives and social relationships?
  21. 21. Theoretical perspectives • Sociomaterial approach • The cyborg body/post-human body • Forms of veillance: panoptic, synoptic, sous, participatory, algorithmic, uber • Data doubles/metric assemblages
  22. 22. Theoretical perspectives • Domesticating technologies • The medical gaze • Prosumption • Technology as performative (both software and hardware)
  23. 23. Recent + current research projects • mapping the domain of critical digital health studies • the commodification of patient experiences on digital platforms • sexuality and reproductive health apps • medical diagnosis apps (with Annemarie Jutel) • digital surveillance of children + the unborn • experiences of self-tracking (with Glen Fuller) • digitised tech in school physical + health education (with Michael Gard)
  24. 24. Recent + current research projects • use of digital tech by professionals in infectious disease surveillance control (with Mike Michael) • public understandings of big data (with Mike Michael) • theorising the quantified self phenomenon • big data in medicine and healthcare • provocative responses to digital health technologies by artists and designers
  25. 25. An artist’s response

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