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HIFA2015: How we use Dgroups


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Presentation by Neil Pakenham-Walsh (Global Healthcare Information Network) at the Dgroups Peer Exchange - 15 July 2013

Published in: Health & Medicine, Technology
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HIFA2015: How we use Dgroups

  1. 1. 1 HIFA2015: How we use Dgroups Dr Neil Pakenham-Walsh Global Healthcare Information Network
  2. 2. 2 Outline -15 slides Why did we choose Dgroups? What do we want to achieve? How will we achieve it? How did we start? Who and where are our members? How do we add value to discussions? How do we use the discussions? How do we engage non-English speakers? How are we funded? How do we evaluate what we do? A question for discussion: How do we collaborate better?
  3. 3. 3 Why did we choose Dgroups? 1. We want to use email to reach to rural areas of low-income countries: Dgroups focuses on the Email experience 2. We want to add value to every message: Dgroups has unique functionality to do this 3. We want to collaborate with other organisations: The Dgroups Foundation has 18 Development Partners (eg DFID) 4. We want personal technical support in a non-commercial environment: WA-Research provides excellent support We (HIFA) affiliate free of charge with: Full Dgroups Partner = 4000 Euros per year
  4. 4. 4 What do we want to achieve? Godlee F et al. Can we achieve health information for all by 2015? Lancet 2004 The HIFA Vision: “A world where every health worker and every citizen has access to the information they need, when they need it, to prevent and manage disease and injury” HIFA is a Community of Purpose: working together towards a shared vision.
  5. 5. 5 How will we achieve the HIFA vision? Ref:
  6. 6. 6 How did we start and how have we grown? 2006 2013 7000 0 Launch (2006) AHILA Congress, Kenya HIFA F2F (2014) AHILA Congress, Tanzania
  7. 7. 7 Who are our members? 6,300 members >2000 organisations 50%: Health professionals 50%: Information professionals, publishers, policymakers, researchers…
  8. 8. 8 Where are our members? 170 countries
  9. 9. 9 How do we add value to the discussions? Pakenham-Walsh N. Reader-Focused Moderation. KM4Dev Journal Add value to every message: • “Subject” Line • “From” Line • “Body” - HIFA signature profile
  10. 10. 10 How do we use the discussions? 1. HIFA-Voices • A HIFA-Voice is a short, verbatim extract (eg <100 words) from a HIFA message, carefully selected according to pre- defined criteria. • Each HIFA-Voice is tagworded and added to a searchable database. • The prototype has 560 HIFA-Voices. The HIFA archive contains several thousand more HIFA-Voices which have not yet been processed. • The HIFA Voices database will drill “up” to major databases such as GRC, and “down” to the full text of the source message and discussion thread.
  11. 11. 11 How do we use the discussions? 2. Using HIFA-Voices to inform WHO Guidelines “As the HIFA Knowledge Base evolves over the coming years, it has the potential to become a leading source of practical and experiential data to help inform future international guidelines by WHO and other organisations.“ Dr Simon Lewin, WHO Guideline Development Group
  12. 12. 12 2006– 2009– 2010– 2011– 2006– How do we engage non-English speakers? • 5 Dgroups in 3 different languages, in collaboration with WHO and others • Parallel forums • Bilingual moderators
  13. 13. 13 How are we funded? Total = 25,000 Euros per year 1 fulltime staff (we need 1-2 more) 100 volunteers
  14. 14. 14 How do we evaluate what we do? Formative evaluation vs Impact evaluation Major External Evaluation (2011): “HIFA2015 achieves an extraordinary level of activity on minimal resources from which many people around the world benefit” evaluation/
  15. 15. 15 Question for discussion… There are now many forums in global health but we are each ‘doing our own thing’. So…. …Question: How can we all work more effectively with one another? Thank you Special thanks to: INASP Dgroups Partners and Board Pier (Euforic/Communications Support) Damir Simunic/WA-Research HIFA Members & Volunteers