This session explores the concept of identity in today's digital era and what that means to an individual's health, as well as to society's treatment of the individual, including genetic discrimination and universal access to and affordability of medical technology advancements.
Identity & Health in a DigitalWorldDeborah Gonzalez, Esq.Global Health & Humanitarian SummitEmory, April, 2013
Welcome & Overview • Digital Identity • Digital Health • Digital Global Health Concerns • Solutions & Lessons Learned
Digital Identity Excerpt from the report: Digital Identity Matters (2010) “Our relationship with the Internet is changing. Mobile devices, wireless connectivity, and our increasing virtual presence across multiple social media services have all but collapsed the boundary between being online or offline.”
The Context “Together the virtual and the real form the seamless space in which many of us live out our daily lives. We fashion the self through social interaction, community and network affiliations, and here come to construct our identities as well as interpret the identity of others.” http://www.pontydysgu.org/2010/06/digital-identity- matters/
Digital Identity Beyond the Physical, But based on the Physical.
Defining Identity: Digital A set of data that uniquely describes a person or thing and contains information about the subject’s relationships to other entities. http://en.wikipedia.org/wiki/Digital_identity
Defining Identity: Digital Digital Identity Elements: 1. Authentication Elements ID #, IP address, email address, user name, password, etc. 2. Data 3. Identifiers Photographs, avatars, logo, images, etc. 4. Digital Traces Contributions to blogs, links, etc. Source: CRIM & Quebec Government
Digital Health • Health 2.0 • E-Health • Wireless Wellness • Digital Diagnosis • Tele-health
Digital Health v Health Technology • Technology in terms of equipment • Information Storage (patient records) • Physical Innovations: robotic limbs
Digital Health’s 8 Convergent Elements 1. Wireless Sensors and Devices 2. Genomics (A, C, G, T = digital) 3. Social Networking 4. Mobile Connectivity and Bandwidth 5. Imaging 6. Health Information Systems 7. The Internet 8. Computing Power and the Data Universe Dr. Eric Topol, "The Creative Destruction of Medicine: How the Digital Revolution Will Create Better Health Care"
Digital Global Health Concerns • Access to – Information – Knowledge – Experts • Obstacles to Access – Cost ($$) – Technology – Communications Channels
Digital Global Health Concerns • Disease – Promote Health – Preventive Measures – Prevent International Spread • Lifestyle Conditions – Diabetes and obesity – Mental illness • Internet Addiction/Facebook Psychology – Substance abuse/use disorders, including tobacco use – Injuries
Digital Global Health Concerns • Genetic Concerns – Bio-Piracy – Clinical Trials – Genetic Discrimination • Insurance Coverage – Big Data – Privacy
Solutions & Lessons Learned • Health Technology & Digital Products – $14 Billion Market – Apps & Mobile Health Market • Wearable Sensors/Feedback Technology • Monitoring Apps for Preventive Healthcare • Gamification (Motivation, Fitness) – Virtual Treatments/Cross-cultural Medical Teams – Robots
Solutions & Lessons Learned • Health Technology & Digital Products – Patient Independence – Accessibility for the Disabled • Social as Holistic Health Helper – Communities as Resource – Communities of Support
Solutions & Lessons Learned • Health & Technology Regulation – Genetic Information Nondiscrimination Act – HITECH Act (technology breaches) – HIPPA (privacy) – Health Information Technology for Economic and Clinical Health Ac – Electronic Health Records Rule – Patient Safety Rules/Bill of Rights
Solutions & Lessons Learned • Health & Technology Regulation (Intl) – United Nations Institute for Training & Research (UNITAR) – World Health Organization – 1948 Universal Declaration of Human Rights (Right to Health) • Connection between Health & Human Rights – International & Global Health Institutes