Andrew Today gives us the opportunity to highlight how statutory and voluntary services can work together more closely to improve and develop neurological services
Hil The NSF clearly outlines the standards to which services should be provided The Government has also signalled in a variety of papers that the statutory services are expected to work in partnership with voluntary organisations. How can we do this in practice? Commissioners can’t be expected to know about every neurological condition and therefore know if they are commissioning appropriate services You haven’t the time to liaise individually with each other neurological organisations Similarly, there are 13 Primary Care Trusts or Care Trusts across the SHA region and we would find it difficult to work individually with commissioners. SWANO should help us all to meet our obligations.
Hil These figures just represent the neurological conditions represented by the organisations in SWANO. If we include other neurological conditions (eg. Epilepsy) the numbers increase significantly
Kathy or Ali The display stands show some of the materials which are available to you and to users/carers Our websites give a lot more information – the directory has details of the website addresses of each of the organisations, along with other contact details for help/advice
Kathy or Ali Give some specific examples! (eg. MND Association posts all the latest research from the Annual International Symposium on MND on its website)
Kathy or Ali Examples: Eg. The MND Association does regular tracking surveys of people with MND BANES PCT asked some of the neurological organisations to send out user questionnaires to help with their planning – people more likely to give accurate answers about statutory services if they know the questionnaire is going back to the Association!
Kathy or Ali Through our networks with our colleagues across the UK, we can identify good practice going on elsewhere.
Kathy or Ali There is a presentation about the Commissioning Support Service later in the day.
Kathy or Ali -this is really the ‘summing up’ slide – what we are all about – so needs to finish with a flourish.
Download Powerpoint presentation
<ul><li>The SWANO directory launch </li></ul>
<ul><li>Who are we and why are we here? </li></ul><ul><li>We are an alliance of nine neurological organisations </li></ul><ul><li>All of us have a role in influencing the commissioning and provision of care for people with neurological conditions </li></ul><ul><li>Whilst retaining our individual identities as neurological organisations, we are working together on common issues where it is effective and efficient to do so. </li></ul><ul><li>Power in numbers! </li></ul>
<ul><li>Why do we need this alliance? </li></ul><ul><li>The NSF for Long-term (neurological) conditions – a ten-year plan for improvement </li></ul><ul><li>There are clear advantages for statutory organisations to work in partnership with voluntary organisations, users and carers to meet these targets </li></ul><ul><li>… ..and yet liaising with each voluntary organisation individually would be: </li></ul><ul><li>Difficult for PCTs and Social Services Departments </li></ul><ul><li>Impossible for many voluntary organisations </li></ul>
<ul><li>Prevalence in South West </li></ul> n/k n/k 55 Young onset stroke 2500 50 n/k Muscular dystrophy 675 13.5 n/k Huntingdon’s disease 186 n/k Cerebral palsy 60000 1200 175 Traumatic brain injury leading to long-term problems 10000 200 17 Parkinson’s Disease 300 6 Progressive Supra-nuclear palsy 350 7 2 Motor Neurone Disease 5000-6000 100-120 3-7 Multiple sclerosis Approx numbers Prevalence Incidence Condition
<ul><li>Provide you with information </li></ul><ul><li>Look at the display stands today </li></ul><ul><li>Browse our websites </li></ul><ul><li>Check out the helpline/advice line services we all offer </li></ul><ul><li>www.swano.org.uk </li></ul>
<ul><li>A specialist resource </li></ul><ul><li>Access to the latest research relating to each condition </li></ul><ul><li>Knowledge about particular equipment </li></ul><ul><li>There are few problems that we haven’t come across before </li></ul>
<ul><li>Help with user and carer views </li></ul><ul><li>In touch with a large percentage of people with these conditions through: </li></ul><ul><li>Referrals from statutory services </li></ul><ul><li>Support groups </li></ul><ul><li>Tracking surveys (eg MND Association) </li></ul><ul><li>Focus groups </li></ul>
<ul><li>Sharing good practice </li></ul><ul><li>We have the overview of services not only across the South-West but also nationally for each condition </li></ul><ul><li>We can easily identify the factors which help services be provided to a high standard </li></ul><ul><li>Can put you in touch with the relevant people in other areas </li></ul>
<ul><li>Develop or refine care pathways </li></ul>Use our knowledge (latest research and best evidence) to help you look objectively at your current services and suggest improvements The Commissioning Support Service is an example of how this may develop further in the future
<ul><li>Work in partnership </li></ul>You have a statutory responsibility to provide the best possible services within your resources + We want to ensure people with neurological conditions receive the best possible care = PARTNERSHIP