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Presentation by Giovanni Nisato, Health Hacking Lab

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A hands-on approach was introduced by Giovanni Nisato, founding member of the Health Hacking Lab in Basel, where a growing number of enthusiastic volunteers gather to fix real world patients’ challenges.

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Presentation by Giovanni Nisato, Health Hacking Lab

  1. 1. Giovanni Nisato, PhD Co-founder Health Hacking Lab nisato.giovanni@yahoo.com hhlab.basel@gmail.com
  2. 2. DayOne 12th Dec. 2018 Rocco Falchetto, President Swiss Society for Porphyria
  3. 3. Faces of Erythropoietic protoporphyria (EPP) Swiss Society for Porphyria  http://www.porphyria.ch
  4. 4. What can I do to help?
  5. 5. “What if there were a way to…” • Connect patient experiences to light exposure? • Measure light data relevant for EPP patients? • Provide remote monitoring, especially for children affected? “Yes, that would make sense because of: • Research: we could learn more about the disease • Monitoring: maybe of interest, especially for children”
  6. 6. EPP-Companion on smartphone Objectives: App to record events, pain levels on body locations, calendar, overview dashboard… using “Open software” tools. • Done: 5x “prototypes”, co- developed with Rocco’s feedback • Ongoing: code and test app (iOS +Android), data management • Next: real-life tests, connect to light sensors hardware/ other hacks…
  7. 7. Light sensor Objectives: wearable, measures light quantitatively and qualitatively, “open hardware” components • Done: selected V1 components, first tests indoor, outdoors. • Ongoing: data treatment, wireless connection to smartphone • Next: connect to smartphone app; field test, integration … 0.001 0.01 0.1 1 10 100 1000 10000 400 500 600 700 800 900 “LightIntensity”(irradiance(A.U.) nm
  8. 8. What if… We start here… We could have community- based innovation in healthcare? …we explore and learn by doing… … towards developing solutions Patient Challenges Learning Hacks
  9. 9. We are : Physicist Innovator Pediatric Surgeon Psychologist Explorer Device engineer & 3D printing wizard Health-hacker #WeAreNotWaiting Entrepreneur Programmer Software & hardware Maestro Your skills, passion and curiosity You ? Business Technologist
  10. 10. What we are working on: • App and wearable for EPP (talk today) • Wearable for Type 1 diabetes children monitoring (ongoing) • App for pediatric incontinence (already there… tweaking) … • Building the patient dialogue • New members • “test” hackathon
  11. 11. Our values Patients are People first Think with your hands Bring your own energy Accept Curiosity Take care of yourself and others Accept other people’s help Carry your own weight, take on a load you can carry Be respectful to others…and to yourself Ask questions Let yourself make some mistakes Enjoy the process and … whatever works
  12. 12. More info and get involved at: www.healthhacklab.org

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