A hands-on approach was introduced by Giovanni Nisato, founding member of the Health Hacking Lab in Basel, where a growing number of enthusiastic volunteers gather to fix real world patients’ challenges.
“What if there were a way to…”
• Connect patient experiences to light exposure?
• Measure light data relevant for EPP patients?
• Provide remote monitoring, especially for children affected?
“Yes, that would make sense because of:
• Research: we could learn more about the disease
• Monitoring: maybe of interest, especially for children”
EPP-Companion on smartphone
Objectives: App to record events,
pain levels on body locations,
calendar, overview dashboard… using
“Open software” tools.
• Done: 5x “prototypes”, co-
developed with Rocco’s feedback
• Ongoing: code and test app (iOS
+Android), data management
• Next: real-life tests, connect to
light sensors hardware/ other
Objectives: wearable, measures light quantitatively and qualitatively,
“open hardware” components
• Done: selected V1 components, first tests indoor, outdoors.
• Ongoing: data treatment, wireless connection to smartphone
• Next: connect to smartphone app; field test, integration …
400 500 600 700 800 900
We could have community-
based innovation in
learn by doing…
Patient Challenges Learning Hacks
We are :
Device engineer &
3D printing wizard
What we are working on:
• App and wearable for EPP (talk today)
• Wearable for Type 1 diabetes children monitoring (ongoing)
• App for pediatric incontinence (already there… tweaking)
• Building the patient dialogue
• New members
• “test” hackathon
Patients are People first
Think with your hands
Bring your own energy
Take care of yourself and others
Accept other people’s help
Carry your own weight, take on a load you can carry
Be respectful to others…and to yourself
Let yourself make some mistakes
Enjoy the process and … whatever works
More info and get involved at: