1
Generating Healthcare Data for
Transformation through Crowds
Dr. Adam CHEE
Chief Advocacy Officer
9 Apr 2014
2
Selamat
Datang
ke Singapura
Welcome to欢迎来到
新加坡
Very quick Introduction
• Adam is a Health Informatician by profession and serves as the Chief
Advocacy Officer of binaryH...
Question(s)
• Who is involved in Health and/or Healthcare here?
• Do you use and/or generate data?
• What are the data use...
Basic Concept – Interoperability
• Interoperability (in this context) refers to;
Information exchange between different he...
Basic Concept – Interoperability
(cont.)
• Physical Interoperability
• Medium of connectivity or the physical connection
•...
Basic Concept – Interoperability
(cont.)
7
• To quote Charles Mead;
“syntactic interoperability guarantees the exchange of...
Real Life “Boo Boos”
• In 1999, NASA lost a $125 million Mars climate orbiter because a
Lockheed Martin engineering team u...
Mitigation
• To mitigate interoperability issues, Health IT Standards are
created
• However, there is a small problem when...
To put things into Perspective
10
But its not that simple in
Healthcare
• Many SDOs
release
multiple
standards
(sometimes
in different
domains)
• There is a...
Some Challenges
• Even after identifying and adopting the correct standard(s), there
are some industry challenges;
• Non-c...
In Addition
• (some) factors of consideration when developing your platform/
solution for crowd sourcing
• Data Granularit...
binaryHealthCare, a „purpose-driven‟ (social enterprise) boutique consulting
firm offering training, technical and marketi...
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Dr Adam Chee - Generating Healthcare Data for Transformation Through Crowds, CSWGlobal14

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Presented at Crowdsourcing Week Global 2014 by Adam Chee, Chief Advocacy Officer, BinaryHealthcare. Join us for CSW Global 2015! More Information: http://crowdsourcingweek.com/ and https://twitter.com/CrowdWeek

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Dr Adam Chee - Generating Healthcare Data for Transformation Through Crowds, CSWGlobal14

  1. 1. 1 Generating Healthcare Data for Transformation through Crowds Dr. Adam CHEE Chief Advocacy Officer 9 Apr 2014
  2. 2. 2 Selamat Datang ke Singapura Welcome to欢迎来到 新加坡
  3. 3. Very quick Introduction • Adam is a Health Informatician by profession and serves as the Chief Advocacy Officer of binaryHealthCare • binaryHealthCare is a „purpose-driven‟ (social enterprise) boutique consulting firm offering training, technical and marketing strategy solutions / advisory, specifically addressing the eHealth domains within (but not limited to) the ASEAN region while serving to “Bridge the eHealth Divide” by empowering stakeholders in both developed & LAMI counties on effective, sustainable adoption of Health IT as an enabler for “better patient care at lower cost” • For more information on Adam and binaryHealthCare, please visit our web portal @ http://www.binaryHealthCare.com 3
  4. 4. Question(s) • Who is involved in Health and/or Healthcare here? • Do you use and/or generate data? • What are the data used for? • Note: I am not going to advocate on “why Crowdsourcing for healthcare” but instead, go straight into the subject. The topic involved is a big one and I only have 20 minutes. 4
  5. 5. Basic Concept – Interoperability • Interoperability (in this context) refers to; Information exchange between different health/healthcare entities (people or organizations) 5
  6. 6. Basic Concept – Interoperability (cont.) • Physical Interoperability • Medium of connectivity or the physical connection • E.g. Ethernet cable, a Thumb Drive or Wireless network • Syntactic Interoperability • The standard formatting adopted to enable machine-to-machine exchange of data • Semantic Interoperability • The ubiquitous use of standardized vocabularies so data can be exchanged and the meaning kept intact 6
  7. 7. Basic Concept – Interoperability (cont.) 7 • To quote Charles Mead; “syntactic interoperability guarantees the exchange of the structure of the data, but carries no assurance that the meaning will be interpreted identically by all parties” Plant
  8. 8. Real Life “Boo Boos” • In 1999, NASA lost a $125 million Mars climate orbiter because a Lockheed Martin engineering team used English/Imperial units of measurement while the agency's team used the more metric system for the spacecraft operation http://edition.cnn.com/TECH/space/9909/30/mars.metric.02/index.html • Clinical Classification & Terminologies can be is pretty confusing • Problem list, Procedure List & results, Progress Notes, Diagnosis, Medication etc. 8
  9. 9. Mitigation • To mitigate interoperability issues, Health IT Standards are created • However, there is a small problem when it comes to Standards…. 9
  10. 10. To put things into Perspective 10
  11. 11. But its not that simple in Healthcare • Many SDOs release multiple standards (sometimes in different domains) • There is also harmonization & cross- referencing 11
  12. 12. Some Challenges • Even after identifying and adopting the correct standard(s), there are some industry challenges; • Non-compliance / customization of Standards • Very common for HL7 v2.x, DICOM, Snomed etc • Both intentional and non-intentional • Hence it is important for the interested audience to “get it right the first time” • Other challenges includes “Data Ownership” • Not just Personal Privacy and/or Data protection but also organizational policies (retention of external data? Period? Liability?) 12
  13. 13. In Addition • (some) factors of consideration when developing your platform/ solution for crowd sourcing • Data Granularity • Always go down to the most granular level possible • Data Fluidity • Depending on the intent of your platform/solution, it is important to ensure the data is captured at the right “stage” • E.g. Is it meant for “diagnosis”, research, analytics or even clinical decision support • Sources of Truth • Multiple sources means possible data attenuation (due to Data Fluidity”, how do you know which source is the relevant one for you? 13
  14. 14. binaryHealthCare, a „purpose-driven‟ (social enterprise) boutique consulting firm offering training, technical and marketing strategy solutions / advisory, specifically addressing the eHealth domains within (but not limited to) the ASEAN region while serving to “Bridge the eHealth Divide” by empowering stakeholders in both developed & LAMI counties on effective, sustainable adoption of Health IT as an enabler for “better patient care at lower cost” For further information, please contact; Name Dr. Adam CHEE Email adamchee@binaryhealthcare.com Thought Leadership Education Consultancy Collaboration Content, Conferences, Awareness Raising & Media Engagements Online, Onsite & Collaboration towards courses in eHealth Consultancy as a Service, SME as a Service, Consulting Workshops Optimization by eliminating replication. Striving for a win-win resolution for all binaryHealthCare Bridging the eHealth Divide

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