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CORBEL ELSI Services webinar slides

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The CORBEL webinar series continues with a presentation by Michaela Mayrhofer from BBMRI-ERIC on "The BBMRI ELSI Services across the Nodes & BMS RIs".
The BBMRI-ERIC ELSI Services supports facilitating compliance with regulatory requirements and best practice standards. The service started working for the biobanking community and subsequently extend to the BMS community and includes
The ELSI Knowledge Base is an open-access resource platform, containing practical knowledge and information on relevant ELSI topics.
The Ethics Check is a support service for researchers who are applying for H2020 research projects or similar. We assist with the compulsory Ethics Self-Assessment section during the application phase.
The ELSI Policy Monitoring follows relevant policy and regulatory developments at European level. We organise coordinated responses to relevant public consultations, as well as other interventions.
CORBEL (http://www.corbel-project.eu) is an initiative of eleven new biological and medical research infrastructures (BMS RIs), which together will create a platform for harmonised user access to biological and medical technologies, biological samples and data services required by cutting-edge biomedical research. CORBEL will boost the efficiency, productivity and impact of European biomedical research. The CORBEL webinar series aims to address challenges and share best practice between biological and medical research infrastructures. The series is aimed at technical operators of RIs and is aligned with the CORBEL competency framework.
This webinar took place on 21st April 2020 and is part of the CORBEL webinar series. A recording of the webinar is available through the CORBEL website:
https://www.corbel-project.eu/webinars/bbmri-elsi-services-across-the-nodes-and-bms-ris.html

For previous and upcoming CORBEL webinars see:
http://www.corbel-project.eu/webinars

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CORBEL ELSI Services webinar slides

  1. 1. The BBMRI ELSI Services across the Nodes & BMS RIs Presenter: MichaelaTh. Mayrhofer (BBMRI-ERIC) Host:Vera Matser (EMBL-EBI) 1 CORBEL Webinar Series
  2. 2. 2 This webinar is being recorded
  3. 3. AUDIENCE Q&A SESSION 3 Please write your questions in the questions window of the GoToWebinar application
  4. 4. BACKGROUND 4 Since 2015, thirteen ESFRI Research Infrastructures from the field of BioMedical Science (BMS RI) joined their scientific capabilities and services to transform the understanding of biological mechanisms and accelerate its translation into medical care. • biobanking & biomolecular resources • curated databases • marine model organisms • systems biology • translational research • functional genomics • screening & medicinal chemistry • microorganisms • clinical trials • structural biology • biological/medical imaging• plant phenotyping • highly pathogenic microorganisms
  5. 5. CORBEL MISSION 5 Modern biological and biomedical research involves complex projects and a variety of different technologies. Some of the most important discoveries are made at the interface between different disciplines. CORBEL will harmonise access and services for complex research projects involving more than one RI that offer: • biological and medical technologies • biological samples and • data services
  6. 6. TODAY’S PRESENTER 6 MichaelaTh. Mayrhofer is a political scientist and historian by training. She was educated inVienna, Louvain-la-Neuve, Essex and Paris. In 2010, she has earned her PhD from both the Ecole des Hautes Etudes en Sciences Sociales and the University ofVienna, which was shortlisted by the Austrian Society for Political Science for 'best thesis 2010'. Prior to her involvement in BBMRI-ERIC, she was investigator in several national and international research projects focusing on the politics of biotechnology and the life sciences, especially the governance of biobanks. Her academic career led to various positions at the Centre de Recherche Médecine, Sciences, Santé et Société, the University ofVienna, the Institute of Science,Technology and Society Studies at Alpen-Adria-Universität Klagenfurt/Vienna/Graz, theTechnical University ofVienna and the Medical University of Graz.Today, she is Head of ELSI Services and Research and interim Co-DirectorGeneral of BBMRI-ERIC.
  7. 7. 23/04/2020Mayrhofer 7 BBMRI-ERICis a European research infrastructure for biobanking. We bring together all the main players from the biobanking field – researchers, biobankers, industry, and patients – to boost biomedical research.To that end, we offer quality management services, support with ethical, legal and societal issues, and a number of online tools and software solutions. Ultimately, our goal is to make new treatments possible. https://www.bbmri-eric.eu The life science RIs work together in several initiatives. https://lifescience-ri.eu/home.html This presentation focuses on BBMRI-ERICS’ ELSI SERVICES & RESEARCH UNIT, which supports the biobanking and life science RI communities by facilitating compliance with regulatory requirements and best practice standards on ethical, legal and societal questions by conducting research in order to provide services and trainings. https://www.bbmri-eric.eu/services/elsi
  8. 8. ELSI SERVICES & RESEARCHUNIT 8 •INSER •T SPEAKER SLIDES HERE 23/04/2020Mayrhofer
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  15. 15. 23/04/2020Mayrhofer 15 • In contrast to the ELSI Helpdesk, which provides customized support, the ELSI Knowledge Base is available to the user on a self-serve basis. • The conceptualization of the ELSI Knowledge Base builds on assessments of several ethical, legal, and societal guidance tools that favour a single sustainable knowledge base for closing the knowledge gap by providing practical hands-on guidance for researchers. • Ultimately, the ELSI Knowledge Base aims at promoting practical know-how and skills for conducting responsible research. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6308279/pdf/bio.2018.0018.pdf
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  20. 20. 23/04/2020Mayrhofer 20 • Connects to existing services & helpdesks • Identifies knowledge/information gaps • Ensure user friendlyness • Guarantees accuracy & sustainability
  21. 21. Questions? The BBMRI ELSI Services across the Nodes & BMS RIs Presenter: MichaelaTh. Mayrhofer (BBMRI-ERIC) 34 Please write your questions in the questions window of the GoToWebinar application

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