Vbko starr fund

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Vbko starr fund

  1. 1. Niemann-Pick Type C<br />What is it?<br />
  2. 2. The name Niemann-Pick originated from two German pediatricians <br />
  3. 3. Albert Niemann was the doctor who first identified Type A in 1914<br />
  4. 4. and LudwickPick identified Type B in 1927<br />
  5. 5. Niemann-Pick disease is somewhat like Alzheimer’s Disease<br />It is sometimes referred to as The Childhood Alzheimer's<br />
  6. 6. People with Niemann-Pick Type C are unable to metabolize cholesterol in lysosomes<br />
  7. 7. Because of this, extreme amounts of cholesterol collect<br />Within the spleen, liver and brain<br />
  8. 8. Niemann- Pick Type C usually affects school age children<br />Although the disease can strike at any time from early infancy to adulthood<br />
  9. 9. Symptoms include:<br />an enlarged spleen and/or liver, jaundice, and difficulty with upward and downward eye movements<br />
  10. 10. Other symptoms may include:<br />clumsiness, difficulty with walking, difficulty with controlling limb movements and slurred or irregular speech<br />
  11. 11. Learning difficulties, inability to swallow and other neurological abnormalities:<br />
  12. 12. Life expectancy for this disease is variable depending on the severity of the symptoms.<br />
  13. 13. In spite of this, life expectancy after diagnosis is only 6 - 10 years.<br />
  14. 14. Niemann-Pick Type C is believed to be an important link in<br />the battles against heart disease, Alzheimer's, stroke and seizure disorders<br />
  15. 15. Children rarely live to see their 15th birthday.<br />
  16. 16. Play with us in the Virginia Beach 2011 Kickball Open<br />and help support Autumn and the Starr Fund<br />

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