Quantified Self - Self Tracking and the Future of Health Apps

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A presentation by Cathal Gurrin, Frank Hopfgartner and John Walsh on the potential and dangers of personal sensing.

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Quantified Self - Self Tracking and the Future of Health Apps

  1. 1. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) The Quantified Self Self Tracking and the Future of Health Apps http://bit.ly/1sNpvaC CathalGurrin (Dublin CityUniversity) - @cathal Frank Hopfgartner (UniversityofGlasgow) - @okapiBM25 John Walsh (Smart Insights Lab) - @johnmwalsh_com
  2. 2. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Agenda • Setting the scene (30 minutes) • Passive Self Tracking, a Look Forward- Cathal Gurrin • Digital Health 2020 – Frank Hopfgartner • Security, Privacy & Data Governance – John Walsh • Panel Debate– The Potentialof Self Tracking (30 minutes)
  3. 3. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Passive Self Tracking, a look forward Dr Cathal Gurrin (@cathal) Dublin City University, Ireland
  4. 4. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Dr Cathal Gurrin (@cathal) Senior Lecturer at Dublin City University Principal Investigator at the Insight Centre for Data Analytics Lifelogger – Researcher - Educator
  5. 5. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Now, we can capture our whole lives in data
  6. 6. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  7. 7. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  8. 8. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Quantified-Self tracking… numbers & data
  9. 9. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Taking it to the next step… lifelogging
  10. 10. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  11. 11. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  12. 12. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) All of life experience captured and stored…
  13. 13. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) All of life experience captured and stored…
  14. 14. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) All of life experience captured and stored…
  15. 15. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) All of life experience captured and stored…
  16. 16. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Here is my Lifelog….
  17. 17. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) 0 500 1000 1500 2000 2500 3000 3500 2005 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015 External Sources Information Activities Biometrics Digital Sensors (Video) Digital Sensors (Audio) Digital Sensors (Image) Growing Exponentially
  18. 18. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  19. 19. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  20. 20. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  21. 21. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  22. 22. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  23. 23. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  24. 24. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Our data-rich and data-driven futureis an inevitability… we will live longer, healthier and more enriched lives becausewe havethe personal data about ourselves
  25. 25. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Lifelogging will create a whole new set of
opportunities & challenges for
industry and society… but This is private data Issues around privacy expectations are not understood Data security is vital to get right Who can access the data (now and post-life)?
  26. 26. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Digital Health 2020 Dr Frank Hopfgartner (@okapiBM25) University of Glasgow, Scotland, UK
  27. 27. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) A few words about me Research on Information Access Systems, Quantified Self, Lifelogging Lecturer (Assistant Professor) in Information Studies (Glasgow) PhD in Information Retrieval (University of Glasgow) Past: Various positions in Berlin (TUB), Dublin (DCU), Berkeley (ICSI), and London (QMUL)
  28. 28. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) What is The Quantified Self? The Quantified Self is about incorporating self-tracking technologies to monitor our activities.
  29. 29. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) What’s in it for you? It’s all about understanding yourself and your lifestylevia stats and numbers.
  30. 30. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) What’s in it for others? It’s all about understanding the customer and their lifestylevia stats and numbers. Health Insurancecompanies areinterested NHS are interested and providing devices
  31. 31. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Why does it work? Data supports us to reflect on our activities and behaviors.
  32. 32. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Why is it getting popular? Wearables, cheap sensors and mobile applications are getting affordableand easy to use.
  33. 33. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Recording my activities Image: mobarger@flickr(Creative Commons)
  34. 34. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Recording how I feel http://measuredme.com/
  35. 35. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Recording what I eat Aizawa, Kiyoharu, Maruyama, Yutu, Li, He, and Morikawa, Chamin. “Food Balance Estimation by Using Personal Dietrary Tendencies in a Multimedia Food Log." IEEE Transactions on Multimedia, 15(8):2176-2185, 2013. Semantic Gap http://foodlog.jp/ http://mealsnap.com/
  36. 36. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Join the QS Movement
  37. 37. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Security, Privacy & Data Governance John Walsh (@johnmwalsh_com) Smart Insights Lab, Belgium
  38. 38. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) So, Welcome to a brand new world Surgery Remote surgery Emergency care Ambulances equipped with IoT devices for quicker diagnosis Firefighting Quicker and informative response to fires based on live data feeds Law enforcement Create awareness and monitor abuse of power Retailing Target shoppers with specific services & promotions Entertainment Tailored services to customers (Disney MagicBand) Elections Use of Google Glass - Implantables - Ingestables - Biohacking Next generation:
  39. 39. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) My Data Travel Social Health Finance News Opinion You are more than the sum of your Data Entertainment Business Hobbies
  40. 40. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Quantified Self data is revealing Traditional personal information Quantified Self Data Who? Name Address Birth Date Gender What? When? Where? Why? How much? Feeling? GPS BPM Sleep pattern Mood Exercise Contacts in/out Experiences Weight Sugar levels Sex stats Place of Birth
  41. 41. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) The Risks • Unaware of what information you are producing & is being consumed • Unaware of the effects of the « smart data » connect • Identity Theft • Profiling • Locating a User and cyber stalking • Responsibility • Corporate use and abuse of data • Undervalueing our own Data • Become immune • …
  42. 42. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Key areas of Concern The Quantified Self Governance PrivacySecurity Rules, Processes & Behaviours
  43. 43. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) What to do? RejectDenial Go with the flow Educate Educate Legislate Regulate
  44. 44. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) General Data Protection Regulation (GDPR) • Replacing the outdated 95/46/EC • Formally approved in May 2016 and directly applicable • Coming into force May 2018
  45. 45. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) GDPR – Key elements • Accountability • Privacy by Design • Consent • Expanded territorial reach • Sanctions • Data Breech Notification • Data Protection Officers • Data Processors • One Stop Shop • Enhanced Data Subject Rights The Quantified Self Gover- nance PrivacySecurity
  46. 46. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Where are we willing to go … • Privacy vs. Convenience Ø So what is our Privacy worth to us? Customer centricity Loss of Privacy Inspired by Chris Dancy
  47. 47. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Points of attention • Can we learn from our mistakes? • Focus on « End of the Food Chain » analytics without installing a « privacy and security » by design in place early on • Legal Compliance is the Floor, not the Ceiling. How can we think ethically? • Build Trust: Data + Transparency = Trust
  48. 48. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Looking onwards and Upwards • TakeCharge • Time to reflect and renegociatethe bargins with OUR data • Be proactive with new technology • Think of our future infrastructures & the values it should embody • Balance the value of our data to society vs personal nature • Privacy comprimise vs. Convenience • Awareness of extending surveillanceand its impact on society • Stay Alert
  49. 49. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)
  50. 50. C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016) Thank You CathalGurrin (Dublin CityUniversity) - @cathal Frank Hopfgartner (UniversityofGlasgow) - @okapiBM25 John Walsh (Smart Insights Lab) - @johnmwalsh_com

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