Tireetechwave Slides - 15032013


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Slides of the 'Show & Tell' by the Access ASD team at the 5th Tiree Techwave (TTW)

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Tireetechwave Slides - 15032013

  1. 1. Will, Tim, Sam, Mariewww.catalystproject.org.uk Lancaster University
  2. 2. #catalystas
  3. 3. Asa Calow Rod Dillon Jen SouthernRebeccaEllis Will Simm M.A. Ferrario Sharon Calverley “A collaboration of people from different backgrounds, some mad people but no bad people.”
  4. 4. #Sprint 2
  5. 5. What & Who Access ASD is a research sprint in the Catalyst project that will devise digital tools to help adults in the community with autism.• Care commissioning managers {APB, LCC}• NAS• Psychology, SCC, Sociology
  6. 6. What We Have Brought To Tiree1. Sam: Life Story2. Tim: ToM3. Jen: Ripping Sound4. Will: Tools5. Marie: Data, a ‘Plan’ &.... ideas for prototypes
  7. 7. SamLife story
  8. 8. My life before diagnosis• Struggled with life  Everyday life overwhelming, social rejection, alienation• Until a diagnosis I did not understand myself  Concept I was different  Tried various explanations  All felt limited and incomplete• Schizoid personality disorder suggested  Just did not seem correct  Lead me to be sceptical about classification  Vacillated about if I had psychological problems
  9. 9. Receiving a diagnosis• Autism suggested at age 23  Checking it on google, just clicked  Accounted for everything Id misunderstood  Further understanding of own problems• Diagnosis benefited my life  Learned many behaviours did not help my situation  Allowed me to access support  Focus on strengths whilst realising limitations
  10. 10. Concepts of autism not helping• Is autism a disability  Reject diagnosis as dont conceive self as disabled  If autism is not a diagnosis why need help?• Holding a specific stereotype of autism  Refuse diagnosis if different to stereotype  Think does not fit stereotype so help will not work• Need to communicate autism better if we want people to engage with technology  Interviewing autistic people to get better picture
  11. 11. Autistic spectrum ASD Spectrum (2D linear space ) Aspergers low High• Autism and Aspergers syndrome same or different?  How does this affect my identity as an autistic person
  12. 12. Problems with the spectrum
  13. 13. Triad of impairments People with ASD havedifficulties in three mainareas within their lives; thisis referred to as the triad ofimpairments (Lorna Wingand Judith Gould)
  14. 14. A Mismatch? Triad of impairment (3D Vector Space) ASD Spectrum (2D linear space ) Imagination Aspergers low High• Debate over which best for science  Triad of impairments an improvement but not suitable for many autistic people
  15. 15. The Aloof, the passive, the Odd
  16. 16. Personas of autismPresent autism in a mannermore acceptableFind persona suitable forindividual, avoiding assumingautistic different to individualEmphasising both strengths andweaknesses of specific individual,reducing difficulties caused bynotions of disabilities
  17. 17. MAF 06/03/2013Tim on ToM
  18. 18. Theory of Mindprimatology:can a chimp attribute mentalstates to other apes… includinghumans?mind readingmentalizingpredicting behaviour
  19. 19. Sally – Anne testToMWhere is the marble?mental state - false belief inAnnedeception by Sallywho knows what?
  20. 20. Intentionality Detector (ID) – understanding agency; causefor an action, goals that it is directed toThe Eye-Direction Detector (EDD) – noticing eyes, noticingwhere they are looking, responding to eyes looking at me.Shared-attention Mechanism (SAM) – ability to sharenoticing something, e.g. pointing and eyes, to link twopersons and object of interest.Theory of Mind Mechanism (ToMM) – this is the ability toattribute thoughts to other people, to see them as having anattitude, a reason or a motivation.
  21. 21. Testing ToM in autism spectrum items 5,6,9 & 10
  22. 22. “ If you tear paper in the right kind of way andreally pay attention, again theres a symphony,theres a music. Theres each fibre of paperproduces a tiny little sound. You get severalsequences of these fibres and theres avariation there. Now the way to do it is to becompletely absorbed in the sound, so yourwhole world is absorbed in the sound of thepaper tearing. (tears)”
  23. 23. MAF 06/03/2013Will
  24. 24. Sensory• Miracle Modus• iPod
  25. 25. Navigation / Prep: Way Finder
  26. 26. Organisation / routine / scheduling• Usual Calendar / to do “apps”• Targeted apps – “ ASD Planner”Brain in the Hand• Scheduling• Anxiety tracking - response to unscheduled events• Peer / network support
  27. 27. MAF 06/03/2013MAF {Marie}
  28. 28. 1. Training I&II 2. Design Brief 3. Tiree 4. Prototype Selection 5. Final Prototype 6. HL Report A. Understand & ObservePrepare B. Visioning & Visualising Design C. Iterative Prototyping (Evaluate & Refine) Build D. User Study Easter Evaluate Protee Jan Feb Mar Apr May June July
  29. 29. Social Media Data (Online forum)- ‘Big’ Data
  30. 30. ...from the same source ‘Deep Data’ ...Joining the conversationTop three difficulties caused by autism: Most difficult Socially Sensory...Problem # Problem #Social 21 Problem # Eye contact 9Sensory 14 Sound 11 Small Talk 8 Lighting 7Anxiety 5 Asking questions in conversation 5Being Organised 5 Certain clothing 6 Knowing the diff between joining & forcing your 5 Difficulty detecting pressure 2Dealing with changes 4 way inMultitasking 3 Smell 2 Humour 4 Flicker of an analog TV 1Too logical 2Low self esteem 2 Talking to opposite sex 4 Filtering out visual information 1Isolation 2 Jokingly insulting people 4 Need to stim 1Getting Diagnosis as a female 2 Going into a monologue 3 Food 1Expressing emotion 2 Giving advice to friend 3 Temperature of food 1Overwhelming interests 2 Being assertive 3 Handwashing OCD style 1Understanding emotions 2 Being confident 3 Sensitive to tempreatue 1Understanding body language 1 HD TVs too blurry 1 Awkwardness making you seize up 3Weak memory 1 Stimming in public 2Maintaining job 1 Specifics on sound Knowing how to finish a conversation 3 Sudden noise 2Bad diet 1 Being too honest in conversations 2Depression 1 Focusing on sound when trying to sleep 1 Staring conversations 2 Filtering out sound 1Accepting other’s views 1 Being too logical 1Not using social speech 1 Loud noise 1 Unsure how much information to give 1 Continual noise for more than a few 1Concern over wasting time 1 Introducing yourself to people 1 minutesGroup conversations 1Knowing social status 1 Focusing too much on other people’s facial 1Ineffectiveness 1 expressionsBad sleep patterns 1 Dealing with silences 1Dependent upon specific people 1 Remembering names 1socially Interacting with people passed in corridor 1
  31. 31. @the Tuesday On the Ground Social ClubWhat About BrainInHand (...)? But it is expensive £1,000 per personThese people do not need much help but when they need it, they need it badlyI am not good at technology ... for me evenanswering the phone is a big achievement Ihad to go to the shop to buy bread and I hadto stop, I was in complete panic
  32. 32. MAF 06/03/2013...Ideas .....
  33. 33. MAF 05/03/2013Benefit s of Working in Tiree:no reliable Internet connection so we need to thinkabout what happens in real-real emergency situations
  34. 34. From Spectrum To Types...Data collection via Digital ‘Multi-Sensory’ Assessment tool (e.g. playloud sound, what is the reaction?).Output: description by features,what your are good, not that goodat & link up with local relevant‘peer’ resources
  35. 35. And your Type is.. It seems that you are ... the friendly one! What you may like/ are good at: XXXXXX What you may not do that well/Dislike: XXXXX Famous people like you ... People Like you in Your Area (connect with a local ‘champion’) Groups with your same interests in the Area