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NEWLY DIAGNOSED SERVICES:  <br /><ul><li>  WORKSHOP SERIES
PEER NAVIGATORS</li></li></ul><li>Background information about people newly diagnosed with HIV (ND/HIV) <br />2<br />
Models in diabetes and cancer based health care have been exploring supportive education bridges to...<br /><ul><li>  fill...
  delay disease progression and
  improve access to treatment and community based programs.  </li></ul>BCPWA has two new models designed to address simila...
2 Overall Project Goals<br />Educate people ND/HIV about the value of care and treatment.<br />Prevent disease progression...
Project Vision<br />Promote HIV as a manageable chronic illness by...<br /><ul><li>Accurate
   Demystify
   Hopeful
Realistic</li></ul>providing the right information,<br /><ul><li>  Non-clinical, accessible    </li></ul>   language<br />...
Newly diagnosed with HIV
   Information naïve and “triggered” to learn
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Peer Navigation Program for people newly diagnosed with HIV

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Glen Bradford, BC PWA, presented at the 2010 Gay Men's Health Summit.

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Peer Navigation Program for people newly diagnosed with HIV

  1. 1. NEWLY DIAGNOSED SERVICES: <br /><ul><li> WORKSHOP SERIES
  2. 2. PEER NAVIGATORS</li></li></ul><li>Background information about people newly diagnosed with HIV (ND/HIV) <br />2<br />
  3. 3. Models in diabetes and cancer based health care have been exploring supportive education bridges to...<br /><ul><li> fill the gap after getting a new diagnoses,
  4. 4. delay disease progression and
  5. 5. improve access to treatment and community based programs. </li></ul>BCPWA has two new models designed to address similar goals for people newly diagnosed with HIV.<br />Year 1: Workshop Series for Gay Men <br /> Newly Diagnosed with HIV<br />Year 2: Workshop Series for People<br /> Newly Diagnosed with HIV<br />Year 3: Development of Peer Navigators<br />3<br />
  6. 6. 2 Overall Project Goals<br />Educate people ND/HIV about the value of care and treatment.<br />Prevent disease progression and transmission.<br /><ul><li> Stopping or reversing disease </li></ul> progression saves lives.<br /><ul><li>Engage people when they </li></ul> are highly infectious, <br /> depressed and at risk for <br /> transmitting the virus.<br />Key influences:<br /><ul><li> Antiretrovirals are perceived as being </li></ul>asbad as HIV itself.<br /><ul><li> The healthcare system can be confusing </li></ul> and disempowering.<br /><ul><li> HIV Organizations can seem </li></ul>inaccessible.<br /><ul><li> Doctors lack the time to educate patients </li></ul> with basic HIV knowledge.<br />4<br />
  7. 7. Project Vision<br />Promote HIV as a manageable chronic illness by...<br /><ul><li>Accurate
  8. 8. Demystify
  9. 9. Hopeful
  10. 10. Realistic</li></ul>providing the right information,<br /><ul><li> Non-clinical, accessible </li></ul> language<br /><ul><li> Relevant to the new cohort
  11. 11. Newly diagnosed with HIV
  12. 12. Information naïve and “triggered” to learn
  13. 13. Don’t know they are HIV+</li></ul>for a targeted group of people,<br /><ul><li>Safer sex talk during a crisis point is ineffective and </li></ul> insensitive. (partner notification and safer sex)<br /><ul><li> Where you are on the disease continuum </li></ul> when newly diagnosed is important.<br />at the right time.<br />5<br />
  14. 14. Structure<br />Peer Navigators<br />Workshop Series<br /><ul><li> A series of three - one to one </li></ul>discussions designed to educate and <br /> empower. <br /><ul><li>People ND/HIV direct their </li></ul> own care and support needs. <br /><ul><li> Navigator assess needs and guides</li></ul>the process under which they gain <br />knowledge and skills about their <br />health.<br /><ul><li> A two day series of workshops </li></ul> designed to educate and empower. <br /><ul><li> More structured, less self directed.
  15. 15. Share and ask questions with others </li></ul> who are ND/HIV.<br /><ul><li>Decreases shame based isolation.
  16. 16. Both provide a safe and confidential space.</li></ul>6<br />
  17. 17. Curriculum content is the same in both programs.<br /> <br /><ul><li>the new realities of living with HIV as an chronic illness – dispelling </li></ul> myths and misconceptions,<br /><ul><li>the basics of HIV disease – disease progression, transmission, sex and risk </li></ul> assessment,<br /><ul><li>treatment information – when to start treatment, medication options and how </li></ul> to manage side effects, <br /><ul><li>safer sex and other STIs – harm reduction ideas,
  18. 18. disclosure – strategies for meeting both the legal obligations and the </li></ul> personal challenges of sharing one’s HIV status with others,<br /><ul><li>navigating the complexities of self care strategies,
  19. 19. Doctors - finding appropriate HIV care in your community, </li></ul> understanding your blood work, and the importance of a “relationship” <br /> with your Doctor. <br />7<br />
  20. 20. Benefits of Newly Diagnosed Services<br /><ul><li> “Supportive education bridges” combine support and education initiatives.</li></ul>(Elements of peer counselling, treatment information, personalized wellness planning)<br /><ul><li>Building trust with a knowledgeable peer creates a trusting entry point and </li></ul> easier access into treatment and complementary programs <br /> and services within our agency and throughout HIV and non-HIV <br />communities.<br />8<br />
  21. 21. <ul><li>Participant feedback indicated they feel more connected to a topic by a </li></ul>peer rather than by a “professional”. <br /><ul><li> Using inclusive language instead of jargon or medical terminology can </li></ul> make the topic more approachable and easier to understand.<br /><ul><li> Increases referrals between community partners - IDC, Social Workers, </li></ul> other ASOs, Public Health Nurses and Doctors.<br /><ul><li>Increasingly, an immediate response is preferred over asking people to </li></ul> wait until we have enough participants for a workshop.<br />9<br />
  22. 22. Lessons learned from Workshop<br />Workshops in Vancouver:<br /><ul><li>Lag time between first contact and day one workshop is too long.
  23. 23. Committing to two full days is more intimidating than parcelling out </li></ul> information in portions.<br />Workshops outside Vancouver: <br /><ul><li>Geographic isolation makeslogistics such as transportation, hotel and </li></ul> child care expenses more difficult to get people together over a <br /> weekend workshop.<br /><ul><li> HIV stigma in smaller communities is pervasive. Isolation does not </li></ul> mean anonymous. Potential participants are hyper sensitive to <br /> “group” events that out them as HIV+.<br /><ul><li> People active in their addiction or with severe mental health </li></ul> issues do not do well in a workshop environment.<br />10<br />
  24. 24. Lessons learned from Peer Navigators <br /><ul><li>Participants are lacking the benefits of sharing their story with more </li></ul>people in a similar situation.<br /><ul><li> Participant and peer navigator need to get to a “relatable and trusting” </li></ul> interaction with each other quickly, in order for “real” conversation to <br /> happen. <br /><ul><li>Paid staff in smaller communities use a one-to-one model using </li></ul> elements of a navigator skill set but may not be knowledgeable on <br /> newly diagnosed issues. Providing front line workers with current newly <br /> diagnosed information would be more helpful and economically <br /> responsible.<br />11<br />
  25. 25. Being HIV+ isn’t the only stigma, seeking help can be a stigma aw well.<br />In Summary<br /><ul><li>Early HIV detection is important to prevent disease progression </li></ul> and HIV transmission.<br /><ul><li> HIV+ people that spiraloff the grid at point of diagnosis increase </li></ul>the likelihood of HIV transmission, disease progression and <br /> health care costs.<br /><ul><li> Educate that HIV as a manageable chronic illness for the third cohort </li></ul> while continuing to meet the care needs of previous cohorts. <br /><ul><li> HIV+ people are more likely to make healthy choices for themselves </li></ul> and others when given HIV information that is time sensitive, relatable, <br />and relevant.<br /><ul><li> Community based newly diagnosed programming compliments formal </li></ul> health care systems.<br />12<br />

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