Day 2 1300 - investigaytors


Published on

Published in: Health & Medicine, Technology
  • Be the first to comment

  • Be the first to like this

No Downloads
Total views
On SlideShare
From Embeds
Number of Embeds
Embeds 0
No embeds

No notes for slide

Day 2 1300 - investigaytors

  1. 1.
  2. 2. Under the Lens The Investigaytors Journey Who did Sex Now? Gender (non) conformity Generational Differences Relationships Body Image Drugs and Sex Social support
  3. 3. Our Journey Into Qualitative Research
  4. 4. Focus Group
  5. 5. Photovoice: Being a young gay guy in Vancouver
  6. 6. On-Going training Theoretical Approaches: Social Determinants of Health Intersectionality Minority Stress Life Course
  7. 7. Research Methodologies Photovoice Observation Interview Focus group Art-based
  8. 8. Research Gender and sexual identities Structural issues Gay Spaces Coming out Diverse experiences relationships
  9. 9. Community programs
  10. 10. priorities Build Coalitions and Solidarity Engage Activism Promote Diversity by Addressing Stigma Build Support for Healthy Relationships Bridge the Knowledge Gap
  11. 11. comments “ Great discussion, appreciated and valued the diversity of experiences and perspectives among the participants. ”
  12. 12. comments “ More decolonization, accessibility, discussion of racism in gay men's community and body image hype and masculinity as ideal ”
  13. 13. comments “ ”
  14. 14. comments “ ” We need to keep doing this.
  15. 15. Body mapping photovoice Qualitative Research interviews Focus groups
  16. 16. Photovoice
  17. 17. The method 1. A question 2. A photo 3. An answer
  18. 18. What did you do for Pride? What are this Pride's messages? What is it like to be part of the festivities? What does Pride mean to you? How does this Pride compare to your first? What does Pride avoid or ignore?
  19. 19. technology and social media have been more and more present during pride festivities seeing the look of wonder on this young man’s face at what was occurring around him it was such a foreign, yet exciting concept for me While I see it as a time to celebrate diversity, I see that it's become too polished and corporate. a metaphor for most queer people’s struggle to find acceptance within the community having pride in each other and celebrating our friendships
  20. 20. Theme: Pride as political
  21. 21. “I was too busy caught up in the politics of Pride; shaking hands, sending e-mails, and posing for photos...”
  22. 22. “At it’s core, I believe Pride still functions as an outlet for the LGBTQ community to come together and take a political stance against prejudice and discrimination while promoting equal rights.”
  23. 23. “Pride isn't a parade for me really, not at its core anyway. The parade is only an homage to marches and protests. For me pride is an act of subversion, or at least it ought to be.”
  24. 24. Theme: Pride as personal
  25. 25. “Like many gay men, I have personally dealt with these feelings of shame regarding my sexual orientation, so to have this experience of celebration was very positive.”
  26. 26. “We first met 13 years ago in a grade 8 wrestling match and the adventures and friendship that we’ve shared over that time are what I think my pride is all about. It’s about a very personal narrative. It’s about life. It’s about people.”
  27. 27. “This last picture represents what pride means to me the most: spending time with people you love. This is an image of me and my best friend who over the years was unable to spend pride with me due to him working. This was our first pride together and because he was able to celebrate with me I would dare to say he made my pride experience the best yet.”
  28. 28. What did we learn? It’s complex It’s reflective It’s unique
  29. 29. Body Mapping by Joshun Dulai
  30. 30. Outline An Introduction to Body Mapping Why We Chose To Do It The Process What Shapes Our Lives The Investigaytor Experience Conclusion
  31. 31. Introduction What is a Body Map? - A life size a visual and artistic representation of one’s physical body and it’s relation to his or her life and it is used as a way of storytelling one’s personal experiences What are it’s origins? - Originally used as a therapeutic technique for HIV+ women and women living with AIDS to share their personal stories of being positive and living with AIDS How we’ve adapted it for the Investigaytor program - Typically done alone in the presence of a researcher but we decided to create our maps in front of one another in the same room at the same time
  32. 32. Why We Chose To Do It 1. An alternative qualitative research method 2. A lesson in reflexivity 3. Understanding intersectionality – Intersectionality considers the simultaneous interactions between social differences and identity as well as the different forms of systemic oppression that reflects relationships of power. Intersectionality, with its attention to the multifactorial causes, has been demonstrated to advance health and social issues and to propose radically different solutions for advancing health equity. Its potential for advancing gay men’s health is also increasingly recognized.
  33. 33. The Process: Body Position
  34. 34. The Process: Making Your Map
  35. 35. The Process: The Personal Slogan
  36. 36. What Shapes Our Lives: Our Identities
  37. 37. What Shapes Our Lives: Relationships
  38. 38. What Shapes Our Lives: Sex and Men
  39. 39. What Shapes Our Lives: Our Bodies
  40. 40. What Shapes Our Lives: Moods and Emotions
  41. 41. What Shapes Our Lives: Our View of the World and Its View of Us
  42. 42. What Shapes Our Lives: Our Interests
  43. 43. What Shapes Our Lives: Difficult Experiences
  44. 44. The Investigaytor Experience The artistic process Process versus presentation Self-censorship
  45. 45. Conclusion
  46. 46. interviews at would you tell them? What do you think y ? Who participated in your study? What wo What would you talk about? What would y m? What do you think you'll find? Who part our study? What would you say? What wou about? What would you tell them? What do k you'll find? Who participated in your stud at would you say? What would you talk abo at do you think you'll find? Who participate
  47. 47. Outline Interview • • • Methods Questions Analysis Research Priorities • • • Biomedical vs. Social Holistic Approaches Understudied Populations
  48. 48. Outline Metholodogy • Who is studied? Recruitment Life-course Theoretical Lens • Syndemics • Social Determinants of Health • Intersectionality
  49. 49. methods We wanted to gain expertise in qualitative interviews in preparation for Sex Now 2014 from research leaders to see what priorities are identified Participants chosen for their involvement with the gay/queer community in BC 14 individuals in total were interviewed Approximately 1 hour in length interviews Participants engagement with the queer community were varied  community organizations, public health care providers, researchers, communityleaders
  50. 50. Questions Set list of questions for each interviewee “ You've just received an enormous award for your work in gay men's health and it allows you to research any topic in gay men's health with unlimited funding and without any limitations. What would you study or what study would you commission? “ ” You have won an international award for your project, the Nobel Prize of gay men's health! ”
  51. 51. Analysis • Listening and transcribing portions of every interview • Created emerging and priori codes based on research questions • Coded our data and we identified patterns and themes within our data • Working as a group to review data over several meetings • The experience was fun, interesting and enlightening!
  52. 52. Theme: Research Priorities
  53. 53. Biomedical versus social Narrow focus doesn't strengthen health in other areas, treats symptoms instead of promoting health Moving out of behavioral-based perceptions of health, and looking at syndemic, co-factors, and intersectionality Biomedical isn't the only solution • Bringing in community to help with knowledge translation increases effectiveness and uptake of interventions • Creates a sense of ownership over health Currently focus too much on biomedical over short term
  54. 54. Biomedical versus social “ If we’re not looking through a community lens, we’re actually, ah, then giving over the cultural components of illness and health over to a biomedical model, which takes it out of the hands of the community and puts it into scientists’ hands who don’t necessarily have the comprehension of what it means to be certainly not a trans person, for instance, or even a gay man’s ”
  55. 55. Holistic approaches HIV is still an important area for research in gay men’s health Many areas in HIV could use more research and knowledge such as research into innovative interventions “ And we need to be looking at a much more holistic concept of what Queer and trans health can be
  56. 56. Holistic approaches Beyond Illness and Toward Health Ways to improve the overall health and well-being of gay men Resilience, social support, and community More research on the health care system and health communication Beyond Disease More attention needed to the causes of the disease – Structural Issues – Discrimination
  57. 57. Understudied populations “ “ “ Invisible and marginalized populations: indigenous, transgender, and senior populations Being indigenous I find that is not really represented in the research ” Queer transmen experience a lot of invisibility and are under-represented in research ” The population is aging and gay people are a part of that population
  58. 58. Understudied populations Structural barriers: People with disabilities, people who are deaf, indigenous people “ Impacts of colonization in residential schools—our elders feel that homosexuality and the Queer community is a sin ... imposed belief upon our communities ” Experiences of audism amongst the deaf queer Community in Vancouver Stereotypes and stigma around disability
  59. 59. Theme: methodology
  60. 60. methodology While the majority of gay men’s health research in BC relies on cross-sectional surveys, informants suggested an array of other research methodologies including: • Interviews/Focus groups/Discussions • Evaluations • Ethnography • Art-Based Methodologies • Longitudinal cohorts • Mixed-methods
  61. 61. methodology • The majority of informants mentioned that Community-Based Research is the best practice for researching the health and lives of gay men. • More so, some informants argued for research that is driven by social justice, such as social change and transformative research. • Informants highlighted the importance of considering potential ethics issues specific to the study of gay men (i.e. inclusion of participants, results that are stigmatizing, etc.)
  62. 62. Who is being studied? Some informants highlighted some of the issues inherent with categories such as “gay” and “MSM”. Specifically, informants were concerned that by using either categories it would exclude some sexual minority men. “ “ … Nobody self-identifies as an MSM so how is that applicable? ” Huge population of MSM that don’t identify as gay, how do we reconcile that?
  63. 63. Who is being studied? Some informants recognized the large diversity of experiences within our community – some highlighted that some experiences are less likely to be represented in research. “ The term gay men, or gay men’s health, or MSM implies there is a singleness, rather than a constellation of ways of living and being a guy
  64. 64. Theme: recruitment
  65. 65. recruitment There were some concerns from some participants that not all gay men are being captured by the current research initiatives - most research focus on white, cisgender, Vancouver residents and able body men. “ It would be great to have studies that aren't all white ” Participants suggested the following strategies for recruitment: • Champions and people with social ties • Offering Honorariums • Recruitment at large event, such Pride • Recruit beyond sexualized environment (i.e. Community groups) • Online Marketing (i.e. Social networking sites like facebook, gay blogs) • Snow-ball sampling • Make it fun!
  66. 66. Theme: Life-course
  67. 67. Life-Course Approach that looks at long-term effects on health from biological, behavioural, social, and psychological events during different life stages, and how these effects may operate independently, cumulatively, and interactively (Kwon & Borrell)
  68. 68. Life-Course “ “ “ People who are affected most in adolescent and early life, we are not catching them in retroactive studies because they may have left the gay community or worst, died ” Because we are looking at the fundamentals about how men learn, think, and process, setting up that foundation in the early part of their life greatly affects them at different stages in their life ” Look at generational processes, such as when someone comes out, and when and where they enter the healthcare model
  69. 69. Cohorts “ “ “ Great divide generationally between gay men ” Older gay men have experienced very different health phenomena from younger gay men ” Older men felt isolated and needed physical spaces to feel comfortable, younger gay men want to be part of heterogeneous spaces, older gay men want to be part of homogeneous spaces
  70. 70. Intergenerational “ “ interested in the historical changes that brought gay men together under mechanisms of oppression and disease ” ” intergenerational community development intergenerational effects of residential schools and colonization, including alcohol and substance use, at the intersections of Queerness and indigeniety
  71. 71. Theme: Theoretical lens
  72. 72. Syndemics “ concentration and deleterious interaction between two or more diseases or other health conditions in a population “ ” - Singer We’re constantly looking back at the HIV epidemic, everything tied to gay men’s health research is tied to HIV “ ” It’s oversimplified to look at one health outcome, HIV, and decide if that makes someone healthier
  73. 73. Syndemics “ Gay men have unique needs: e.g. they are at higher risk of suicide, depression, substance abuse, homeless and feeling alienated “ “ I really believe we should focus ‘as well as,’ not instead of ” ” A lot of the root causes of the HIV epidemic are actually the causes of some of the other major health problems ”
  74. 74. Social Conditions “ interaction of diseases or other healthrelated problems commonly occurs because of adverse social conditions - Singer ” social, economic, physical, or environmental factors, or determinants, that influence our health
  75. 75. Social Determinants “ “ “ Barriers to Healthcare Impact of knowledge on people’s behaviour and health promotion and how people understand this knowledge So, the effectiveness and efficiency of knowledge transmission methods. ” ” ” Would like to know how immigrants with EAL understand health information not available in their primary language This refers to culturally appropriate health case services. Believes that the gay men’s community is siloed off from the mental health community and that more bridges need to be built This speaks to syndemics, but also to structural issues of our health care model.
  76. 76. Social Determinants Lack of Social Support Social isolation is a problem in the community. “ Gay men seek spaces and community to validate ourselves, now we are doing this online ” This quote highlights the increasing role of of technology, and that we should take it into serious consideration. “ Research has not been specific of the levels of sexual and intimacy-based engagements that gay men experience or in many cases don’t experience
  77. 77. Social Determinants Stigmatization and Discrimination “ Younger gay men have experienced health phenomena such as homophobia and heterosexism and this impacts their health Trans issues under-prioritized in Queer communities ” Inclusion and accessibility (deaf, mobility, foodrelated concerns)
  78. 78. Social Determinants Stigmatization and Discrimination “ Why are there barriers for people who use wheelchairs? ” Stereotypes and stigma around disability Shame has a negative impact on all aspects of yourhealth (physical, social, mental, sexual) by leading to poor decision making because it affects the way you think about yourself and other things
  79. 79. Intersectionality syndemics occur “especially as a consequence of social inequity and the unjust exercise of power” (Singer) “health inequities are never the result of singular, distinct explanatory factors, but the outcome of intersections of different social locations, power relations, and experiences” (Hankivsky) o the intersections between race and ethnicity, gender, class, sexuality, ability … o racism, sexism, transphobia, homophobia, ableism …
  80. 80. Intersectionality “ Being Indigenous, I find that I’m not really represented in [gay] research. And then, viceversa, in Indigenous research, I don’t see a lot of gay men represented ” Public health services are not accessible or are very limited for Queer-Indigenous people at public health facilities aimed at serving Indigenous communities
  81. 81. Intersectionality “ Why is there a need for a gay Sikh man to surround himself with other gay Sikh men? Because when we go to mainstream [gay] groups, we feel alienated “ ” The Queer community it's becoming more and more accessible … [but] there’s no funding for ASL interpreters to talk about HIV workshops ”
  82. 82. summary “ The term gay men, or gay men’s health, or MSM implies there is a singleness, rather than a constellation of ways of living and being a guy “ ” No one category of social identity is necessarily more important than any other ” - Hankivsky
  83. 83. • Interviews: Summary we’re continuing to work through the interviews • so little that we know on gay men’s health • • so many unexplored research areas • research the many underrepresented and understudied populations within the gay and Queer community • knowledge on how to attend to highpriority issues • translate this research into practice for future studies, particularly in our upcoming Sex Now Survey overwhelming interest to research the social conditions of health and illness
  84. 84. Focus groups
  85. 85. Main Research Questions How do young gay men see themselves? What challenges or resiliencies do they have? What are their favourite parts of the gay and/or queer communities?
  86. 86. Participants • We conducted 4 focus group with 22 participants • 19 Caucasian, 2 Asian and 1 South Asian • Age 18 to 29 (mean 24) • 11 students, 14 work full time • 19 Vancouver; 3 suburbs • 12 came out before the age of 18
  87. 87. Questionnaire • Intersectional approach • Emphasis on self-reflection • Topics – Aliens – Personal experiences and identities – Relationship to gay and/or queer community – Contrasting experience of straight peers – Geographical emphasis
  88. 88. How do young gay men see themselves?
  89. 89. How do young gay men see themselves? “ “ I have sex with men ” I don’t think it should be about anything else than who you’re attracted to “ ” I didn’t want being gay to be my ‘thing’ Being gay isn’t the most important thing about them ”
  90. 90. How do young gay men see themselves? May not just be a about who they’re attracted to Informs their relationships, culture, and behaviour Acknowledge that if they were straight, they’d be different
  91. 91. How do young gay men see themselves? Self-Aware Altruistic Empathetic Ambitious - Vulnerable Label adverse Grateful
  92. 92. Favourite things about being gay
  93. 93. Favourite Things About Being Gay What did we ask them? The freedom and opportunity to do things your own way “ There’s this fairytale worldview about how your life should be, but as with any person who doesn’t conform to the norm, you question all the givens in life and that opens up your mind a lot. The world is a bigger place in our heads because we don’t subscribe to these social norms. We get to pave our own way and make our own decisions. That’s my favourite part.
  94. 94. Favourite Things About Being Gay The rallying point on those aspects of similarity and our shared experiences “ I like that even though we all haven’t gone through the same experiences, we all have that one thing in common and as you meet someone, you can empathize with them...I like that we’re all connected in that way and that we’ve created a community around that
  95. 95. Favourite Things About Being Gay The opportunity to be ambassadors and role models “ “ I feel like I have opened minds more so than I have closed them, and that’s a great thing about being gay. ” You can be an ambassador to more than just the gay community. Because you go through these unique experiences, you are more compassionate, not just towards the gay community.
  96. 96. Favourite Things About Being Gay Inclusiveness and acceptance within our community “ If there are policies you could say the gay community adopts, they are the ones that are the most encompassing as possible and I think that acknowledges there is so much diversity in being a gay man, and yet it’s still inclusive. ”
  97. 97. Favourite Things About Being Gay The opportunity to challenge sex and gender “roles and norms” “ I can act as feminine or masculine as I want and no one will judge me. I can essentially do or say whatever I want and not have to feel like anyone’s looking at me in a negative way and that’s kind of awesome. ” Our support of one another and our resourcefulness “ Our resourcefulness, that ‘Gay Mafia’ we talked about. We support each other and we have those resources available to us.
  98. 98. Favourite Things About Being Gay The celebratory nature of our community “ Pride, it’s our own special holiday. There are record numbers of people every year who show up to support us. It’s very empowering. ”
  99. 99. Favourite Things About Being Gay Positivity within our community “ ” The sex.
  100. 100. Challenges and Resilience
  101. 101. Challenges and Resilience What did we ask them? Some participants suggest life’s challenges are not unique to young gay men “ It’s as challenging to be a gay person as it is to be a straight person...we just have different challenges. “ ” There are also things straight people can’t have that we have.
  102. 102. Challenges and Resilience Challenges were viewed as being context dependent “ The advantages and disadvantages outweigh each other in a geographically dependent way. It really depends on where your communities are. ”
  103. 103. Challenges and Resilience For some participants, the challenges they faced came more easily to mind “ Keeping up appearances and staying that ambassador is a lot of work. “ “ ” ” My Dad told me...being in the workplace will be harder. It feels like you’re being told, sorry the culture is full right now. We’re not accepting anybody else.
  104. 104. Challenges and Resilience For some participants, the challenges they faced came more easily to mind “ What I find with Vancouver, one of the things I really, really lack and struggle with not having is that sense of guidance and community from my elders. “ ” ” There is the risk of being gay bashed.
  105. 105. Challenges and Resilience Some suggested our challenges are our friends and families challenges “ “ ” It’s an emotional burden on my family. It doesn’t matter if you come home with a boy, a girl, a dog, a duck, a skateboard, or a broom. Do what you love and makes you happy, we well always love you. ”
  106. 106. Challenges and Resilience How young gay men view different challenges we face regarding living within a heteronormative society “ Dating and in any interaction, I feel like I can’t just go up to a guy in a coffee shop and ask for a phone number. ”
  107. 107. Challenges and Resilience How participants described learning to deal with challenges “ “ “ I think the hardest part was coming out to’s an internalized shame. I learnt to deal with that internalized shame and question why I have that internalized shame. ” ” ” It’s about finding strength from within. By getting involved with gay men’s health and the gay community. I wrote poems and shit.
  108. 108. Challenges and Resilience In acknowledging some of our unique challenges, participants often used ‘but’ statements “ Some of the challenges are good things. There’s stigma, but there’s also open mindedness. “ I think that it’s a disadvantage that we have to use apps and technology in order to communicate and get a hold of the community, that’s us just being resourceful again. ”
  109. 109. Challenges and Resilience Resilience was a key component of many discussions regarding challenges “ It has allowed me to see things in a more creative light and I think that... it’s given me an opportunity to be a more active participant in my life, in being my own advocate. ”
  110. 110. Slogans For Vancouver’s Gay Community!
  111. 111. Slogans For Vancouver’s Gay Community! What did we ask them? Difficult for participants to include the many different facets of Vancouver’s gay community “ It’s hard because there are a lot of elements that you’ve got to include and then there’s things that you should highlight. ” Overall, the participants felt a need for the slogans to be as inclusive as possible “ I think that here the majority of things that happen around the gay community include allies, and that would be something that I would highlight. That it’s an allies place too.
  112. 112. Slogans For Vancouver’s Gay Community! Slogan’s reflected mixed emotions, both positive and negative “ “ “ “ DON’T COME HERE! ” ” ” Come here for the mountains, not for the boys. IT’S RAINING MEN! Vancouver gays, from the place that brought you Yoga pants. Participants had a wonderful sense of humour ”
  113. 113. Preliminary Conclusions and Future Objectives • Preliminary data suggests there is no one archetype in which to describe a young gay man • Participants came from all walks of life and had wonderful stories to share • Participant feedback highlighted how positive the research experience was • Likewise for the investigators, we felt humbled and honoured to be present • Future objectives include an in depth data analysis and the possibility of conducting further sessions
  114. 114. acknowledgements Shooting Stars Foundation Public Health Agency of Canada BC Gaming The Investigaytors Mentors Participants
  115. 115. Questions?