Renewed Hope through Clinical Trials - Dr. Elly Cohen: 7th Annual Breast Health Summit

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Renewed Hope through Clinical Trials - Dr. Elly Cohen: 7th Annual Breast Health Summit

  1. 1. BreastCancerTrials.org: Personalized Matching to Clinical TrialsElly J. Cohen, Ph.D.Educate, Advocate, NavigateBreast Health Summit-Breast Health Collaborative of TexasOctober 21, 2011
  2. 2. Every advance in breast cancer carehas been the result of a clinical trial However, less than 3% of eligible adult cancer patients participate in trials New York Times, August 2009
  3. 3. Joan Joanne Schreiner Tyler• Wanted to consider trials as an option for care• Physicians didn’t refer them to trials• Turned to the Internet, BUT found it: • Overwhelming • Not personalized • Not always current
  4. 4. Patient-centered resource for information and access toclinical trials, dedicated to breast cancer ◦ Personalized, non-profit matching service ◦ Easy-to-read trial information ◦ 2005: Pilot ◦ 2008: Nationwide service
  5. 5. BreastCancerTrials.org Demo
  6. 6. Weekly email to users, if newly listed trial matches their profile ~2200 subscribers Return visits account for 30% of traffic
  7. 7. Matching QuickViews Navigation BreastCancerTrials.orgEncourage all patients to consider clinical trials as a routine option for care
  8. 8. Thank you! Visit us at:www.BreastCancerTrials.org
  9. 9. Many Ways to Participate• Surveys• Registries• Donating blood/saliva

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