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LUMINARY LABS @JENVANDERMEER @LUMINARYLABS
DESIGNING FOR DIGNITY
IN HEALTH TECH
Jen van der Meer
STRATA RX - SEPTEMBER 2013
2
Jen van der Meer
@JENVANDERMEER
3
Jen van der Meer
@JENVANDERMEER
DOES THE TRIPLE AIM SEEM
UNATTAINABLE
Improve
population health
Improve the
patient experience
@JENVANDERMEER
Reduce the p...
Leslie Patricelli
Meaningful use.
Accountable care.
Can we set the bar higher?
The names of the following incumbent
EMR/EHR providers and th...
HIGHER
HIGHER
HIGHER
THE COST OF TECHNOLOGY
Thomas Murphy, MD 2001
So here come the startups.
The internet kids.
To the rescue.
Full disclosure: I am one of those kids.
@JENVANDERMEER
To change the world.
And we actually think this way –as if we could
hold the world in our hands. More ego-maniacal
than su...
But we are not without fault.
@JENVANDERMEER
We tend
to design
for the
motivated,
and the
healthy.
We get too excited about startup
traction, not excited enough about
evidence-based outcome
Paul Graham’s Startup Curve
We have a huge learning curve to
figure out how to disrupt the cost curve
Data: OECD Health Data 2005 and 2006. Commounwea...
Cost +
Compliance
Incumbents vs. New Entrants
Lifestyle
LET’S SET A
HIGHER BAR
@JENVANDERMEER
@JENVANDERMEER
For each solution born onto the
health tech scene, we ask:
Are patient’s lives enhanced by the addition of ...
DATA DESIGN
PRINCIPLES
THAT SET A HIGHER BAR FOR
HEALTH AND HUMAN DIGNITY
@JENVANDERMEER
8 PRINCIPLES: DESIGNING DATA FOR DIGNITY
Ethical Sharing
Sacred Habits Deeper MotivationData Calming
Eye Contact Double Lo...
DESIGN FOR UTILITY,
IN CONTEXT
@JENVANDERMEER
mHealth apps are only beginning to show
the benefits of contextual awareness
Ambient intelligence will become more
anticipatory, adaptive, and transparent
Technology that knows to behave
differently in context to where you are
Simulating a better future mental state
Ambient Commons, Malcolm McCullough
“Preontological awareness is faster”
DESIGN FOR
DATA CALMING
@JENVANDERMEER
The problem of alarm desensitization
The problem of data noise
The problem of the quantified parent –
how to become calm and engaged parent
The payoff when visualization delivers
wisdom, not just noise
DESIGN FOR SACRED
HABITS
@JENVANDERMEER
The smart phone…
The perfect BF Skinner box?
“You want minty refreshing taste now, you
benefit from tooth health later.” – Dan Ariely
Right thing, wrong reason: quantified dog
could lead to self-understanding
DESIGN FOR DEEPER
HUMAN MOTIVATIONS
@JENVANDERMEER
Insert gratuitous Fogg Behavioral Model
chart here
A Behavior Model for Persuasive Design. BJ Fogg. Stanford University 20...
mHealth apps often fail the motivation
test, never reaching the unhealthy
Deeper motivators: “It feels good to
volunteer simple answer to real questions
people have”
Will altruistic motivators be the most
powerful? “Contribute to Science”
DESIGN FOR
ETHICAL SHARING
@JENVANDERMEER
You have the right to not be sensed
From: Seven Principles for Big Data and Resilience Projects. 9/23/2013
By Kate Crawfor...
Even if the value of that data delivers a
larger public good
Startups will not necessarily learn the
difference between Informed consent and
permission marketing
The true north: be transparent about data
sharing
DESIGN FOR
EYE CONTACT
@JENVANDERMEER
Facilitate human contact: does this chart
review increase or decrease their
understanding?
Does this device increase engagement,
understanding, and trust? Or distract?
Aim higher. Diminish the use of screens:
wear and forget sensors
DESIGN FOR DOUBLE
LOOP LEARNING
@JENVANDERMEER
Single loop learning
Consequences
Feedback
Decision
Actions
Single loop results, where is the “why”
Double loop learning
Consequences
Feedback
Decision
Actions
Mental Models
Of Real World
Decision
Rules, Strategies
Time until death @amikahmad NYU ITP
Standing at work today
DESIGN FOR
THE HERD
@JENVANDERMEER
Social proof = Positive peer pressure
60
Caregivers are not just a target segment,
They are an interaction paradigm
VA Caregiver pilot distributing 1000
iPads to caregivers of veterans
My herd watches out for me
To save everything, click here:
HealthDataChallenges.com
@JENVANDERMEER | @LuminaryLabs | @HDChallenges
My herd come join us:
Designing Data for Dignity StrataRx
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Designing Data for Dignity StrataRx

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Is it enough to design for a great patient experience, improved health outcomes, and overall cost reductions in health care? While incentives may soon change, the idea of data-driven solutions to improve health care is not a new one. Yet why have technological solutions so frequently fail on all three of the triple aims? We need to be able to ask deeper questions, and experiment with more humanistic approaches.

Looking at specific interaction examples from incumbents and startups in health tech, I will contrast the current approaches for data-driven solution development, and how they fall short at the moment of interaction. Incumbents deploy top down approaches that comply with regulation, and meet the needs of payers and providers, but famously fail to deliver engaging patient and practitioner experiences. New entrants want to disrupt the entire system, but often struggle to understand deep unmet patient needs, and how to demonstrate evidence-based outcomes.

For each solution born onto the health tech scene, can we ask: Are patient’s lives enhanced by the addition of data? Do doctors become more wise? Do nurses feel more empowered? Do spouses know how to effectively intervene? Do adult children of aging parents get more time in their overly stretched days? And do these collective interactions actually result in improved population health?

This talk will outline an approach to design for a higher aim and enhance the lives of everyone who seeks care from the health care system.

Published in: Health & Medicine, Technology
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Designing Data for Dignity StrataRx

  1. 1. LUMINARY LABS @JENVANDERMEER @LUMINARYLABS DESIGNING FOR DIGNITY IN HEALTH TECH Jen van der Meer STRATA RX - SEPTEMBER 2013
  2. 2. 2 Jen van der Meer @JENVANDERMEER
  3. 3. 3 Jen van der Meer @JENVANDERMEER
  4. 4. DOES THE TRIPLE AIM SEEM UNATTAINABLE Improve population health Improve the patient experience @JENVANDERMEER Reduce the per capita cost of health care
  5. 5. Leslie Patricelli
  6. 6. Meaningful use. Accountable care. Can we set the bar higher? The names of the following incumbent EMR/EHR providers and the names of patents and doctors are redacted to protect privacy and mediocrity.
  7. 7. HIGHER
  8. 8. HIGHER
  9. 9. HIGHER
  10. 10. THE COST OF TECHNOLOGY Thomas Murphy, MD 2001
  11. 11. So here come the startups. The internet kids. To the rescue. Full disclosure: I am one of those kids. @JENVANDERMEER
  12. 12. To change the world. And we actually think this way –as if we could hold the world in our hands. More ego-maniacal than surgeons, we are. We come, inspired. And improve human lives.
  13. 13. But we are not without fault. @JENVANDERMEER
  14. 14. We tend to design for the motivated, and the healthy.
  15. 15. We get too excited about startup traction, not excited enough about evidence-based outcome Paul Graham’s Startup Curve
  16. 16. We have a huge learning curve to figure out how to disrupt the cost curve Data: OECD Health Data 2005 and 2006. Commounwealth Fund National Scorecard on US Health Performance 2006.
  17. 17. Cost + Compliance Incumbents vs. New Entrants Lifestyle
  18. 18. LET’S SET A HIGHER BAR @JENVANDERMEER
  19. 19. @JENVANDERMEER For each solution born onto the health tech scene, we ask: Are patient’s lives enhanced by the addition of data? Do doctors become more wise? Do nurses feel more empowered? Do spouses know how to effectively intervene? Do adult children of aging parents get more time in their overly stretched days? And do these collective interactions actually result in improved population health?
  20. 20. DATA DESIGN PRINCIPLES THAT SET A HIGHER BAR FOR HEALTH AND HUMAN DIGNITY @JENVANDERMEER
  21. 21. 8 PRINCIPLES: DESIGNING DATA FOR DIGNITY Ethical Sharing Sacred Habits Deeper MotivationData Calming Eye Contact Double Loops The Herd Utility in Context Design for… @JENVANDERMEER @LUMINARYLABS
  22. 22. DESIGN FOR UTILITY, IN CONTEXT @JENVANDERMEER
  23. 23. mHealth apps are only beginning to show the benefits of contextual awareness
  24. 24. Ambient intelligence will become more anticipatory, adaptive, and transparent
  25. 25. Technology that knows to behave differently in context to where you are
  26. 26. Simulating a better future mental state
  27. 27. Ambient Commons, Malcolm McCullough “Preontological awareness is faster”
  28. 28. DESIGN FOR DATA CALMING @JENVANDERMEER
  29. 29. The problem of alarm desensitization
  30. 30. The problem of data noise
  31. 31. The problem of the quantified parent – how to become calm and engaged parent
  32. 32. The payoff when visualization delivers wisdom, not just noise
  33. 33. DESIGN FOR SACRED HABITS @JENVANDERMEER
  34. 34. The smart phone… The perfect BF Skinner box?
  35. 35. “You want minty refreshing taste now, you benefit from tooth health later.” – Dan Ariely
  36. 36. Right thing, wrong reason: quantified dog could lead to self-understanding
  37. 37. DESIGN FOR DEEPER HUMAN MOTIVATIONS @JENVANDERMEER
  38. 38. Insert gratuitous Fogg Behavioral Model chart here A Behavior Model for Persuasive Design. BJ Fogg. Stanford University 2009.
  39. 39. mHealth apps often fail the motivation test, never reaching the unhealthy
  40. 40. Deeper motivators: “It feels good to volunteer simple answer to real questions people have”
  41. 41. Will altruistic motivators be the most powerful? “Contribute to Science”
  42. 42. DESIGN FOR ETHICAL SHARING @JENVANDERMEER
  43. 43. You have the right to not be sensed From: Seven Principles for Big Data and Resilience Projects. 9/23/2013 By Kate Crawford, Patrick Meier, Claudia Perlich, Amy Luers, Gustavo Faleiros and Jer Thorp 2013 PopTech & Rockefeller Foundation Bellagio Fellows.
  44. 44. Even if the value of that data delivers a larger public good
  45. 45. Startups will not necessarily learn the difference between Informed consent and permission marketing
  46. 46. The true north: be transparent about data sharing
  47. 47. DESIGN FOR EYE CONTACT @JENVANDERMEER
  48. 48. Facilitate human contact: does this chart review increase or decrease their understanding?
  49. 49. Does this device increase engagement, understanding, and trust? Or distract?
  50. 50. Aim higher. Diminish the use of screens: wear and forget sensors
  51. 51. DESIGN FOR DOUBLE LOOP LEARNING @JENVANDERMEER
  52. 52. Single loop learning Consequences Feedback Decision Actions
  53. 53. Single loop results, where is the “why”
  54. 54. Double loop learning Consequences Feedback Decision Actions Mental Models Of Real World Decision Rules, Strategies
  55. 55. Time until death @amikahmad NYU ITP
  56. 56. Standing at work today
  57. 57. DESIGN FOR THE HERD @JENVANDERMEER
  58. 58. Social proof = Positive peer pressure
  59. 59. 60
  60. 60. Caregivers are not just a target segment, They are an interaction paradigm
  61. 61. VA Caregiver pilot distributing 1000 iPads to caregivers of veterans
  62. 62. My herd watches out for me
  63. 63. To save everything, click here: HealthDataChallenges.com @JENVANDERMEER | @LuminaryLabs | @HDChallenges
  64. 64. My herd come join us:

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