For pharma companies that are bringing new therapies to market, collaborating with patient advocacy groups is a critical part of educating patients and physicians. Patient advocacy groups are a trusted resource for consumers as they seek out information on new therapies, especially novel therapies. Using an online research survey and deep-dive interviews with selected participants, this research project identifies winning practices in patient advocacy group collaboration and relationship management.
Study Objective – This benchmarking study identifies valuable practices in working with patient advocacy groups and managing relationships. The research also examines ideal structures and skill sets for pharma groups that deal with advocacy groups. In addition, the study shares emerging trends and challenges in patient advocacy. Throughout the study there is an emphasis on dealing with advocacy groups on treatments and conditions that carry a social stigma. Executives and managers who work with pharma groups that interact with advocacy groups can use this study to compare their approaches with those of leading companies insofar as strategies and activities regarding advocacy group interactions.