Traumatic Brain Injury & Social Media


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Traumatic Brain Injury & Social Media

  1. 1. Rehab ContinuumThru Social
  2. 2. I Am• I Am Not a Medical Professional.• I am a Mother who is a caregiver of a Traumatic Brain Injury Survivor.• I am a person who lives with TBI every day, just like many of you.• I am Someone who has a story to share and I hope that after this presentation, you will have learned from my experience, and the experience of my Son, my husband and my family• I am Bernadette Coleman, CEO of Advice Interactive Group, a Internet Marketing Company & Co Founder of TryMunity and I am here today to tell you why Social Media Matters!
  3. 3. Disclaimer• Some of the slides you are about to see are very graphic. The story I am going to share with you today is a story of how social media helped with the care and rehab of My Son. Without these images it’s just a story. With these images it is a True Story of hope, hard work and recovery.• So let me begin…
  4. 4. Meet Mike Black
  5. 5. May 21st 2011 Our World Changed
  6. 6. Time Will Tell
  7. 7. Share His Recovery Progress
  8. 8. People Connecting World Wide Connected with us from Norway!
  9. 9. Prayers Flowed In At one point we had prayer groups of over 200 Prisons, Churche s and their members praying for Mike.
  10. 10. Hard at Rehab
  11. 11. Long road to recovery
  12. 12. Learned to speak again
  13. 13. Learn to Stand & Walk Again
  14. 14. Cheap Labor
  15. 15. Skype Saves The Day
  16. 16. Skype
  17. 17. Social Media & RecoveryWe started using Social Media from thebeginning:• To update on Mikes progress• Communication• To talk to other Survivors• To search for TBI information• To document his recovery• To search for resources/help
  18. 18. Back To Orlando
  19. 19. Trauma Team
  20. 20. Hi Bernadette!How exciting! As a provider, my only thoughts are that TBI is not reallypublicized in media. We need more of an awareness regarding this frequentlyoccurring and devastating injury. Brain injury awareness month is nevermentioned. Yet we hear about breast cancer in October, heart disease inFebruary, etc.I am so glad to hear Mike is doing well. I would love to see him when he ishere in Orlando! I think about all of you every day!Also, I have been wanting to thank you for my nomination for Nurse of theYear. It was such a surprise and honor to be recognized. Thank you and Tomfor taking the time and submitting all those kind words.Good luck at your talk! Keep me posted and tell Mike I look forward to seeinghim soon!Suzanne
  21. 21. Heroes
  22. 22. First Responders
  23. 23. Exchanged Gifts
  24. 24. What Goes Around…
  25. 25. TextingTexting & Driving is a No-NoBUTTexting after TBI?YES!
  26. 26. First Attempts At Social Media
  27. 27. • Show him facebook to remind him where he was
  28. 28. TryMunity is Here!!!
  29. 29. TryMunity Video• Play Video
  30. 30. TryMunityIs this thenewFacebook?
  31. 31. Common comments on TryMunity Hundreds of people who live with TBI have joined the site
  32. 32. Live Stream The Launch of Trymunity at Pate Rehab Launch Party
  33. 33. How Does TBI affect a Survivor?What happened to Mike:• Social activity is limited• World is limited to family & service providers• Reduced social support• Loss of meaningful friendships• Problems making new social connections• Loss of career• Loss of mobility and accessibility• Loss of independence
  34. 34. What happens?For Many TBI Survivors:• World Shrinks• High Risk for Anxiety• Causes Depression• Lack of Motivation• Increase Financial Stress & Burden
  35. 35. Mike’s New Social ConnectionsWhat Does Social Media Do?• Maintain & improves social support• Establish personal connections• Adds to current social network• Decreases social isolation• Improves community reintegration• Increases opportunities
  36. 36. What are the benefits?• A new practice of social interaction• Source of information and knowledge• Accessible at anytime of day• Not dependent on community programs• Do not have to reveal disability• Increases opportunities for income
  37. 37. What are the Problems He Faced?• Cyberspace is not universally accessible• Physical, cognitive and technological barriers• Problem is not lack of desire to use the internet, but lack of knowledge and access & training• Motor deficits using keyboard and mouse• Cognitive/language impairment• Challenging social interactions• Fatigue
  38. 38. What are the risks?• Privacy: loss of personal/financial data• Online predators (Girlfriend?)• Exposure to unknown people• Inappropriate social contact• Personal Difficulties• Understanding privacy settings• Logging in/out• Sharing personal information
  39. 39. Inappropriate Social ContactParticipants need to reflect and consider:We had to keep reminding him of the rules. – How well do I know this person? – Do I want to share this with this person? – Do I remember that if I post on their wall, the information is shown to all of my friends and their friends? – Be careful what you say – Be careful what you do
  40. 40. What are The Solutions?If Only…• Internet training for individuals with TBI:• Accessibility to the technology through places like the library• Coverage of tools by insurance• State programs
  41. 41. FacebookA Whole New World..• Facebook Social networking website 500 million users More than 70 languages• Interact with others,• share content with others,• play games
  42. 42. Special Thanks
  43. 43. In summaryReconfirmed that persons with TBI havespecific barriers and challenges to usingonline social networks.• Essential starting points needed• basic computing skills• computer/internet access• basic social skills• education and support for the family by agencies to increase understanding of the Internet & Computers
  44. 44. But Wait! I’m Not Done!
  45. 45. Lets Take A TestGo To:http://www.freemobilepolls.comEnter Your Name1454
  46. 46. What is Advocacy?Advocacy is the art of persuasion –• Advocacy is about trying to influence outcomes — (including public-policy and resource allocation) that directly affect people’s lives.
  47. 47. What is Social Media?• “Social media are online communications in which individuals shift fluidly and flexibly between the role of audience and author.• To do this, they use social software that enables anyone (no technical skills needed) to post, comment on, share content and to form communities around shared interests.”
  48. 48. Advocacy and Social Media• “Social media are online communications in which individuals shift fluidly and flexibly between the role of audience and author.• To do this, they use social software that enables anyone (no technical skills needed) to post, comment on, share content and to form communities around shared interests.”
  49. 49. Enough Technical Stuff…
  50. 50. Transform Your Advocacy!
  51. 51. How Can We Use Social Media?
  52. 52. What About Everyone Else?
  53. 53. Who Conducts Research Online? Of Users Conduct Research Online
  54. 54. Who Searches On Google?
  55. 55. Are We Out Of Control?
  56. 56. What Are We Doing?
  57. 57. What Are We Talking About? Of adults have posted comments or reviews online about the things they care about.
  58. 58. How Do We Spend Our Time?
  59. 59. We Are Talking To Each Other
  60. 60. What Are We Reading?
  61. 61. Why Am I Telling You This?
  62. 62. Building The Movement
  63. 63. Why Is It Important To Your cause?
  64. 64. I Know We Are All Busy But…
  65. 65. Create A Facebook Page
  66. 66. Like A Facebook Page
  67. 67. Tweet:Use A Hashtag: #trymunity
  68. 68. What’s a Hashtag?A Twitter hashtag is simply a keyword phrase, spelled outwithout spaces, with a pound sign (#) in front of it.For example, #BrainInjury and #TBI are both hashtags.What does a hashtag do?A Twitter hashtag ties the conversations of different users intoone stream, which you can find by searching the hastag inTwitter Search
  69. 69. Create A Blog
  70. 70. Post Videos On You Tube
  71. 71. Connect On Google Brand Pages
  72. 72. Post An Event On Vimeo
  73. 73. Still Don’t Get Social Media?
  74. 74. What Can You Do?• If you are interested in promoting TBI awareness through social media…• CALL Bernadette Coleman• 469-269-0411•• Tell everyone, Survivors, Family members and you! JOIN