Getting it right for people with Learning Disabilities


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Getting it right for people with Learning Disabilities

  1. 1. Getting it Right for People with Learning Disabilities Genevieve Smyth College of Occupational Therapists 6 th November 2008
  2. 2. Introduction <ul><li>Background </li></ul><ul><li>Current project work </li></ul><ul><li>Future work </li></ul><ul><li>Challenging Behaviour update </li></ul>
  3. 3. Background investigations <ul><li>Mencap’s Treat me right report and campaign (2004) Health inequalities in the UK </li></ul><ul><li>Mencap (2007) Death by Indifference. Mencap, London. </li></ul><ul><li>Six case studies all resulting in avoidable death </li></ul><ul><li>National disgrace, institutionalised discrimination </li></ul><ul><li>A wake up call for the NHS </li></ul><ul><li>Health Ombudsman independent enquiry </li></ul>
  4. 4. Background investigations <ul><li>Disability Rights Commission (2006) Equal Treatment: Closing the Gap . Disability rights commission, London. </li></ul><ul><li>Health inequalities for people with learning disabilities and/or mental health problems in the UK </li></ul><ul><li>People with learning disabilities die younger </li></ul><ul><li>Higher rates of obesity and respiratory disease </li></ul><ul><li>Fewer health screenings </li></ul><ul><li>Diagnostic overshadowing </li></ul><ul><li>Information not collated </li></ul>
  5. 5. Background investigations <ul><li>Delivering the Bamford Vision (2008) The response of the Northern Ireland Executive to the Bamford review of mental health and learning disability – improving accessibility to healthcare and setting targets </li></ul><ul><li>People with learning disabilities in Scotland –Health Need Assessment Report (2004) NHS Health Scotland –health inequalities and sets standards </li></ul><ul><li>Statement on Policy and Practice for adults with a learning disability (2007) Welsh Assembly Government, All Wales People First- health inequalities, improvement in services </li></ul>
  6. 6. Background investigations <ul><li>Human Rights (2008) A life like any other? Human rights of adults with learning disabilities. www.publications.parliament. uk </li></ul><ul><li>Recent failures in healthcare – abuse, neglect, ill Joint House of Lords and Commons Committee on treatment </li></ul><ul><li>Still necessary to emphasise that adults with learning disabilities have the same human rights as everyone else </li></ul>
  7. 7. Background <ul><li>Sir Jonathan Micheal (2008) Healthcare for all –report of the independent enquiry into access to healthcare for people with learning disabilities. Aldridge Press, London. </li></ul><ul><li>Ten recommendations: </li></ul><ul><li>Mandatory training </li></ul><ul><li>Data collection </li></ul><ul><li>Family and carer involvement </li></ul><ul><li>Needs assessment </li></ul>
  8. 8. Background <ul><li>To raise awareness in healthcare of premature, avoidable death </li></ul><ul><li>Standards for reasonable adjustments </li></ul><ul><li>Inspectors and regulators </li></ul><ul><li>Enhanced primary care services </li></ul><ul><li>NHS should listen to views </li></ul><ul><li>NHS should be able to show reasonable adjustments </li></ul><ul><li>Phil Hope –Minister of State 27 th October 2008 “ Our forthcoming strategy on learning disabilities will respond in full to these recommendations”. </li></ul>
  9. 9. AHP Bulletin October 2008 <ul><li>www.dh. gov . uk / ahpbulletin </li></ul><ul><li>Vital role for AHPs in improving access to healthcare for people with learning disabilities </li></ul><ul><li>“ This is a great opportunity for AHPs to use their wide range of skills to help transform healthcare for people with learning disabilities” </li></ul><ul><li>“ I’m fed up with enquiry after enquiry making no difference whatsoever” </li></ul>
  10. 10. Start of Getting it Right <ul><li>15 th November 2007, Jim Blair – President of the Royal Society of Medicine’s Intellectual Disabilities Forum, Senior Lecturer in Learning Disabilities, Kingston University. </li></ul><ul><li>Launch of a cross-agency, cross-college working group to tackle disturbing inadequacies in NHS treatment </li></ul><ul><li>Addressing the issues of accountability, training and responsibility </li></ul>
  11. 11. Getting it Right <ul><li>Meetings once a month </li></ul><ul><li>Product to improve generic healthcare staff’s ability to work with people with learning disabilities </li></ul><ul><li>Endorsed leaflet in paper and electronic format </li></ul><ul><li>Insert into OTN </li></ul><ul><li>Each professional group responsible for dissemination </li></ul>
  12. 12. Group members <ul><li>Mencap </li></ul><ul><li>The College of Occupational Therapists </li></ul><ul><li>Royal Society of Medicine </li></ul><ul><li>Royal College of General Practitioners </li></ul><ul><li>Royal College of Nursing </li></ul><ul><li>The Commission for Carers </li></ul><ul><li>Nursing and Midwifery Council </li></ul><ul><li>Royal College of Speech and Language Therapists </li></ul><ul><li>Royal College of Psychiatrists </li></ul>
  13. 13. Who we are <ul><li>Getting it right is a group of organisations working to wards better healthcare, well being and quality of life for people with a learning disability. </li></ul><ul><li>People with a learning disability experience poorer health and healthcare than the general population. </li></ul><ul><li>We aim to provide healthcare professionals with information on best practice and where to go for information and support so all people with a learning disability get the best health treatment possible. </li></ul>
  14. 14. See the person –not the disability <ul><li>Find time to </li></ul><ul><li>Listen to the person </li></ul><ul><li>Listen to the family </li></ul><ul><li>Find the best way to communicate </li></ul><ul><li>Pay attention to facial expressions </li></ul><ul><li>Notice gestures and body language </li></ul><ul><li>Try pointing to pictures </li></ul><ul><li>Try signing </li></ul><ul><li>Keep info simple and brief </li></ul><ul><li>Avoid using jargon </li></ul>
  15. 15. Don’t make assumptions about the person’s quality of life <ul><li>People with a learning disability feel pain too </li></ul><ul><li>People with a learning disability get ill too </li></ul><ul><li>Don’t confuse a learning disability with illness </li></ul><ul><li>Be suspicious about serious illness- act quickly! </li></ul><ul><li>Get to know some of the health conditions that are more common for people with a learning disability </li></ul>
  16. 16. The Law and you <ul><li>You must make reasonable adjustments to ensure that each person has the same opportunity for health whether they have a learning disability or not. </li></ul><ul><li>Disability Discrimination Act 2005 </li></ul>
  17. 17. The Law and you <ul><li>You must be able to establish the person’s capacity and make decisions that are in their best interest if they cannot decide for themselves. </li></ul><ul><li>Mental Capacity Act 2005 </li></ul>
  18. 18. The Law and you <ul><li>Everyone has a right to expect and receive appropriate healthcare. </li></ul><ul><li>Human Rights Act 1998 </li></ul>
  19. 19. Where to find help and more information <ul><li>Call your local learning disability team </li></ul><ul><li>Go to www. mencap .org. uk </li></ul><ul><li>Or www. intellectualdisability .info </li></ul><ul><li>Or www. easyhealth .org. uk </li></ul>
  20. 20. Dissemination <ul><li>OTN </li></ul><ul><li>Specialist Sections </li></ul><ul><li>Higher Education Institutes </li></ul><ul><li>COT Conference Brighton 2009 June 23 rd -26 th </li></ul><ul><li>You! </li></ul>
  21. 21. Challenging Behaviour update <ul><li>Royal College of Psychiatrists, British Psychological Society, Royal College of Speech and Language Therapists (2007) Challenging Behaviour; a unified approach. www. rcpsych .ac. uk </li></ul><ul><li>Challenging Behaviour National Strategy Group – the Challenging Behaviour Foundation </li></ul><ul><li>Collate all the strands of work currently being undertaken in the field of LD and challenging behaviour </li></ul><ul><li>Identify gaps in provision and where to target work for the greatest impact </li></ul>
  22. 22. Conclusion <ul><li>Getting it Right from inception to dissemination </li></ul><ul><li>Challenging Behaviour update </li></ul><ul><li>[email_address] uk </li></ul><ul><li>0207 450 5220 </li></ul>