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Social Technologies Power to Impact Collaborative Health

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Social Technologies Power to Impact Collaborative Health

  1. 1. SOCIAL TECHNOLOGIES POWER IN IN COLLABORATIVE HEALTH POLICY AND PRACTICE A COLLABORATIVE SEMINAR Gonzalo Bacigalupe, EdD, MPH Ikerbasque Research Professor gonzalo.bacigalupe@deusto.es bacigalupe.wordpress.c om Collaborative Family Healthcare Association 12th Annual Conference October 21-23, 2010 Louisville, Kentucky U.S.A. Session # C4a Oct. 22, 2010 - 3:30-5:00
  2. 2. Faculty Disclosure I have not had any relevant financial relationships during the past 12 months.
  3. 3. Need/Practice Gap & Supporting Resources What is the scientific basis for this talk?  Systematic review of research and clinical literature  Peer review article by author: basis to justify need  An iterative analysis of e-Health sites  Expert review via open invitation to and participation by #CHSM #CHSMEU  Participation of collaborative health
  4. 4. Objectives  Define the scope of collaborative health activities shaped by the use of social technologies;  Create a categorical classification of emergent communication, social media, & social technologies to evaluate their impact;  Discuss results of a systematic analysis of the literature on social networking technologies and its impact on patients, healthcare providers, and policy makers;  Evaluate critically the challenges & ways of approaching a task that questions professional and
  5. 5. Expected Outcome  Acknowledge potential of social technologies ability to strengthen collaborative health practices.  Discuss criteria and categories of e-health tools in light of collaborative health care assumptions and goals.  Triangulate ongoing systematic qualitative research analysis via participation in checking for accuracy in development of model linking collaborative health and social
  6. 6. Social media / Social technologies  Highly accessible tools (ICTs) that allow you to connect with others via a diverse set of digital devices.  Tools allow not only to observe what others have produced but also to engage in the production of media.
  7. 7. Applications  Blogs: Frequent updates, invites dialogue, identity defined by blogger  Microblogs: Brief blog entries (i.e., 140 characters)  Podcasts: Audio/video downloadable to many digital devices  Wikis: Website designed for collaboration  Social Networks: Virtual communities; main purpose is social interaction  Web-Conferencing: Audio/video synchronic interaction
  8. 8. The conversation
  9. 9. Information www.flickr.com/photos/bacigalupe/385042878/sizes/o/
  10. 10. The Information Revolution
  11. 11. e-Health Scope  E-Record: Unified clinical history  Electronic prescription  Telemedicine  E-Monitoring  Targeted Info  Bottom up Innovation  Interdisciplinary Sharing  Networks core  Transparent/collaborative clinical trials  e-Patient  …
  12. 12. Why?
  13. 13. Why?
  14. 14. Why?
  15. 15. Methodology  Sarasohn- Kahn’s (2009) report on how online and mobile tools help both doctors and patients manage chronic illnesses was a starting point for generating a draft list of e- Health tools.  Extensive search via Pubmed, Google Scholar, Google, and Twitter. Referenced works from retrieved articles were also used.  During data collection period, inclusion criteria refined to include variables that may inform power to foster collaboration: interoperability, viability, sustainability, scalability, number of hits.  Assessed if there were reports about the tools on LexisNexis (media), Pubmed (healthcare), Google Scholar (social sciences), and Google (business, market, general public)  For websites that required user accounts for access, we
  16. 16. Criteria for Inclusion  eHealth Core:  Is it main goal and focus healthcare?  Is it directed to patients and/or health care providers?  Is it recommended/approved by #hcsm experts?  Technical Access:  Does the site work?  Is it not under construction?  Is it platform neutral?  Has it have any activity in the last month?  Should we consider other criteria?
  17. 17. Tools: Collaborative Potential  Very Low: No interaction between creators and users  Low: Users able to comment on content but creators do not necessarily interact with audience  Moderate: Users able to interact without moderation  High: Intends that users interact with each other  Very High: Allows multiple stakeholders
  18. 18. Categories  Static Webpage (Web 1.0)  Information Exchange  Clinical Networks  e-Patient / e-Doc Networks  e-Patient Networks  Health Research Networks  eHealth Mobile Applications  Interactive Media  Primary Care e-Practices
  19. 19. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://scienceroll.com by Bertalan Mesko
  20. 20. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://runningahospital.blogspot.com by Paul Levy
  21. 21. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://thecarrot.com
  22. 22. Information Exchange  Users able to add/edit WWW content and able to interact with one another http://e-patients.net
  23. 23. Information Exchange  Users able to add/edit WWW content and able to interact with one another www.imedix.com
  24. 24. Information Exchange  Users able to add/edit WWW content and able to interact with one another www.jopm.org
  25. 25. Clinical Networks  Health care providers can meet/inte ract with one another www.doctrs.com
  26. 26. Clinical Networks  Health care providers can meet/inter act with one another www.simposier.com
  27. 27. Clinical Networks  Health care providers meet/inter act/consul t with one another www.iconsinmed.or g
  28. 28. e-Patient / e-Doctor Networks  Online health social network in which patients connect with other patients and receive consultation from health care providers www.dailystrength.com
  29. 29. e-Patient / e-Doctor Networks  Online health social network in which patients connect with other patients and receive consultation from health care providers http://ehealthforum.com
  30. 30. e-Patient / e-Doctor Networks  Online health social network in which patients can connect with other patients and receive consultation from health care providers www.medhelp.org
  31. 31. E-Patient Networks  Patients or loved ones, often with same health condition s, can meet or interact with one another www.patientslikeme.c om
  32. 32. E-Patient Networks  Patients or loved ones, often with same health condition s, can meet or interact with one anotherwww.disaboom.com
  33. 33. E-Patient Networks  Patients or loved ones, often with same health conditions, can meet or interact with one another www.experienceproject.c om
  34. 34. E-Patient Networks  Consumer s, often with same health conditions or loved ones with same health conditions, can meet or interact with one another www.FacetoFacehealth.com
  35. 35. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topicswww.vivoweb.org
  36. 36. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics www.scientistsolutions. com
  37. 37. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics www.biomedexperts.co m
  38. 38. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.intel.com healthguide www.healthhonors.com www.zumelife.com 29% of adults use their mobile phones to search for #health or #medical info
  39. 39. eHealth Mobile Apps  Cell phone applications or other mobile devices geared towards health management and/or prevention http://www.intel.com/about/companyinfo/healthcare/products/index.ht
  40. 40. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.healthhonors.com
  41. 41. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.zumelife.com
  42. 42. Interactive Media  Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions
  43. 43. Interactive Media  Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions better http://av.vimeo.com/29223/421/1913254.mp4?token=1287633684_f8a9acd4201067bf8d30e2d076121af7
  44. 44. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices http://consumersonline.hmsa
  45. 45. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices http://hellohealth.com
  46. 46. HelloHealth Promotional
  47. 47. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.tplusmedical.com
  48. 48. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.Inrangesystems.com
  49. 49. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.healthvault.co m
  50. 50. Collaborative Variables Criteria?  Communication direction  Audience  Author  Ownership? Profit/or not  Purpose  Source (clinical, personal, EBM)  Type of tool  Interoperability  Sustainability  Scalability  Access (cultural attention)
  51. 51. Future Research Steps  Survey of sites  Scoring  Scale development  Measuring actual impact
  52. 52. Rethinking the paradigm(s)  How could it change your practice?  What seems difficult to imagine?  What solutions emerge?  What challenges are ahead?
  53. 53. Alternative Discourses Critique Possibilities Isolation Feelings of support Overwhelming Informed Wrong information Apomediation + Info Available Lack of support Finding support Digital divide Digital availability Lack of confidentiality Transparency It’s only virtual It’s real Boundaries broken Learning opportunities Collaborative opportunities Translational research Clinical trials Tailoring intervention (long tail) Interdisciplinary exchange …

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