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Self Tracking Medicine 2.0 Presentation, 9/18/11


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Self Tracking Medicine 2.0 Presentation, 9/18/11

  1. 1. <ul><li>Anne Wright BodyTrack Project </li></ul><ul><li>Carnegie Mellon University </li></ul><ul><li>Pittsburgh, PA </li></ul>Implementing Self-Tracking in the Wild Paul Abramson, M.D. My Doctor Medical Group UCSF Clinical Faculty San Francisco, CA @paulabramsonMD @annerwright
  2. 2. ? Backstory
  3. 3. Medicine 2.0 Self Tracking Panel
  4. 4. ( + ) x 20 = ? How can we harness this opportunity?
  5. 5. <ul><li>Quant Friendly Doctor : Dr. Paul Abramson </li></ul><ul><li>Quant Coach : Anne Wright </li></ul><ul><li>Self-Trackers: Allan, Anna, Bari, Dale, Eric, Greg, Kathleen, Paul, Marcy, and Quinn </li></ul>Self Tracking Project
  6. 6. <ul><li>be more active </li></ul>Motivations to self track Want to explore how to: debug interactions with sleep partner spend less time stressed Want to understand impact of: exercise/diet on sleep experience more equanimity sleep quality on energy/alertness improve glycemic control food “Paleoness” on hunger/energy/mood unknown factors  sleep paralysis, gut pain, headaches, etc. better engage with their work
  7. 7. <ul><li>Current medical paradigm does not address certain issues well </li></ul><ul><li>Top-down standardized advice about lifestyle change is not always the best tool for the job </li></ul><ul><li>Finding effective strategies may be highly specific to the individual </li></ul><ul><li>Engaging in an exploratory/investigative process can be empowering </li></ul>Why self tracking?
  8. 8. <ul><li>Anna wants to be more active </li></ul>Example: BodyMedia data shows that Anna is more active -- sometimes
  9. 9. <ul><li>Anna was more active (and happy!) </li></ul><ul><li>when she was taking care of Zoe </li></ul>Self tracking insight Anna needs a puppy!
  10. 10. <ul><li>Goal is sustainable activity increase </li></ul><ul><li>Puppy would likely be sustainable </li></ul><ul><li>Final conference prep – not so much… </li></ul>Sustainability
  11. 11. Towards a new model Self tracking Ecosystem
  12. 12. <ul><li>Works with self tracker to: </li></ul>Quant Coach <ul><li>Refine their understanding of what they want to work on </li></ul><ul><li>Learn how to apply and configure available tools and techniques </li></ul><ul><li>Develop more precise and personally resonant terminology </li></ul><ul><li>Learn to use data for feedback to reflect on how they’re doing when </li></ul>Helps optimize time spent with Quant Friendly Doctor
  13. 13. Quant Friendly Doctor <ul><li>Reality check – safety, sanity, and efficacy of plan </li></ul><ul><li>Designing personal experiments </li></ul><ul><li>Obtaining and interpreting data needing a doctor’s order </li></ul><ul><li>Guiding self-tracking project to align with health goals </li></ul>Providing medical support and context for self-tracking Works with self tracker collaboratively:
  14. 14. <ul><li>A new culture of “N of 1” experiments </li></ul><ul><li>A collaborative aesthetic </li></ul><ul><li>Methods to deploy technology to patients </li></ul><ul><li>Data aggregation tools (BodyTrack) </li></ul><ul><li>Visualization tools integrated into practice </li></ul><ul><li>Ways to help coach and doctor be actively engaged </li></ul>Tools for Quant-Medicine most of the pieces exist, but need integration
  15. 15. Diffuse/environmentally triggered conditions Greg Anne Thomas Bari
  16. 16. Marcy at Burning Man Drive to Playa Packing Drive Home Set up camp
  17. 17. Sleep quality transformation Marcy’s typical sleep pattern: Night after ritual at Temple of Transition:
  18. 18. Quinn’s writing quest <ul><li>“ How can I better engage with my writing?” </li></ul><ul><li>“ What factors relate to my ability to engage?” </li></ul><ul><li>Candidates: </li></ul><ul><ul><li>Sleep quantity/quality </li></ul></ul><ul><ul><li>“ Role focus” vs. intrusive thoughts </li></ul></ul><ul><ul><li>Activity levels: low activity as success condition? </li></ul></ul>
  19. 19. “ Return from Distraction” High quality writing time
  20. 20. Take Home Lessons Data is not the goal It is a tool to help us to improve the stories we tell ourselves about ourselves and write a better user’s manual
  21. 21. Take Home Lessons
  22. 22. Take Home Lessons
  23. 23. Take Home Lessons We expect people to be able to undertake very complex endeavors But we don’t expect them to do it in isolation: it’s socially and culturally supported; self tracking should be too
  24. 24. <ul><li>Anne Wright BodyTrack Project </li></ul><ul><li>Carnegie Mellon University </li></ul><ul><li>Pittsburgh, PA </li></ul>Paul Abramson, M.D. My Doctor Medical Group UCSF Clinical Faculty San Francisco, CA @paulabramsonMD [email_address] @annerwright [email_address]