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DiabetesMine Patient Voices Survey
A Patient-Led Initiative
to Improve Tools & Care
Nov. 15, 2013
Patient Voices Respondents:
by Diabetes Type
N=796
Type 1
Type 2 (No insulin)
Type 2 (Taking insulin)
Caregiver of a child...
Learnings Summary
1. Outcome Priorities are not aligned (i.e. not
patient-driven)
2. Cost/ Insurance Access is a huge barr...
Priorities Not Aligned

©2013 DiabetesMine Patient Voices Survey
What Quality of Life Improvements
Are Most Important?
Fewer glucose highs/lows
Feel in control of my own care
N=654

Less ...
I Want…
“More consistency, fewer blood glucose
spikes and lows”
“A complication-free lifespan”
“Better quality of life”

©...
Outcome Measures
That Insurers Should Focus On
Improvements in A1C
Frequency/severity of complications

N=487

Improvement...
Access is a Barrier

©2013 DiabetesMine Patient Voices Survey
Influence of Insurance
on Diabetes Technology Choices
N=705

Extremely/very influential
Somewhat/Slightly
Influential
Not ...
Biggest Frustrations
with Current Diabetes Tools
Too expensive
N=649

Too much hassle
Unappealing/uncomfortable

Agree
Com...
Biggest Drawbacks of a CGM
N=630
Out of pocket costs too
high
Time investment
Annoying alarms
Uncomfortable to wear
Need e...
“I’d like to get more accurate
devices, at better prices”

©2013 DiabetesMine Patient Voices Survey
Unworkable Tools

©2013 DiabetesMine Patient Voices Survey
Frequency of Downloading Data
from Monitoring Devices
300
250
200

N=657

150
From my finger stick
meter

100
50

From my ...
Use of Diabetes Logging Software
or Mobile Apps
N=639

Often (once a month or
more)
Sometimes (every few
months)
Rarely (a...
Use of Smartphone Apps for
Diabetes Care
N=589
200
150
100
50

N=589

0
Diet/food
Exercise
app
tracking
app

Glucose
loggi...
“I hate it that…
interfaces aren’t user-friendly”

©2013 DiabetesMine Patient Voices Survey
“… results aren’t accurate enough to
rely on.”

©2013 DiabetesMine Patient Voices Survey
“… neither software nor hardware
work together – and are not integrated
with Mac and iOs.”

©2013 DiabetesMine Patient Voi...
“Vendors should quit with the
proprietary shenanigans and make
technology that will actually help
patients and give them a...
Changes Needed to Make Diabetes Logging
Data Valuable to Patients
If program spotted trends
If program could suggest a pla...
What Patients Want

©2013 DiabetesMine Patient Voices Survey
What Would Most Motivate You to Put
Extra Effort Into D-Management?
Positive feedback
Incentive program

N=609
Having a di...
“I’d like to receive positive feedback
for my efforts to control glucose levels
regardless of the results.”

©2013 Diabete...
“I’d like to have a system that holds
patients accountable, while
assisting me to make treatment
adjustments in a timely m...
“I want to free up brain cells, with
less D-math — and tools designed
to not look like a scary medical
device, which would...
“To get there I need
affordable, comfortable, discrete, a
nd accurate devices that minimize
hassle.”

©2013 DiabetesMine P...
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DiabetesMine Patient Survey Results - 2013 Summit Overview

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Leading into the 2013 DiabetesMine Innovation Summit, we conducted an independent study on diabetes patients’ sentiments on technology tools and issues affecting their “success” in their own care.

These are the high-level results presented at the event on Nov. 15, 2013, at Stanford Medical School.

Published in: Health & Medicine
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DiabetesMine Patient Survey Results - 2013 Summit Overview

  1. 1. DiabetesMine Patient Voices Survey A Patient-Led Initiative to Improve Tools & Care Nov. 15, 2013
  2. 2. Patient Voices Respondents: by Diabetes Type N=796 Type 1 Type 2 (No insulin) Type 2 (Taking insulin) Caregiver of a child with diabetes Other ©2013 DiabetesMine Patient Voices Survey
  3. 3. Learnings Summary 1. Outcome Priorities are not aligned (i.e. not patient-driven) 2. Cost/ Insurance Access is a huge barrier 3. Adherence/ Compliance is significantly impacted by design factors ©2013 DiabetesMine Patient Voices Survey
  4. 4. Priorities Not Aligned ©2013 DiabetesMine Patient Voices Survey
  5. 5. What Quality of Life Improvements Are Most Important? Fewer glucose highs/lows Feel in control of my own care N=654 Less daily hassle Improvement in mental state Very Important Extremely Important Fewer finger pricks Fewer shots Feel less alone 0 ©2013 DiabetesMine Patient Voices Survey 500 1000
  6. 6. I Want… “More consistency, fewer blood glucose spikes and lows” “A complication-free lifespan” “Better quality of life” ©2013 DiabetesMine Patient Voices Survey
  7. 7. Outcome Measures That Insurers Should Focus On Improvements in A1C Frequency/severity of complications N=487 Improvements in daily glucose results Fewer hospital visits Very Useful Useful Mental health assesments Medication records Other quality of life measures 0 50 100 150 200 250 300 350 400 ©2013 DiabetesMine Patient Voices Survey
  8. 8. Access is a Barrier ©2013 DiabetesMine Patient Voices Survey
  9. 9. Influence of Insurance on Diabetes Technology Choices N=705 Extremely/very influential Somewhat/Slightly Influential Not at all influential ©2013 DiabetesMine Patient Voices Survey
  10. 10. Biggest Frustrations with Current Diabetes Tools Too expensive N=649 Too much hassle Unappealing/uncomfortable Agree Complicate my life Strongly Agree Doesn't improve control Too hard to use 0 100 ©2013 DiabetesMine Patient Voices Survey 200 300 400 500
  11. 11. Biggest Drawbacks of a CGM N=630 Out of pocket costs too high Time investment Annoying alarms Uncomfortable to wear Need easier way to analyze ©2013 DiabetesMine Patient Voices Survey
  12. 12. “I’d like to get more accurate devices, at better prices” ©2013 DiabetesMine Patient Voices Survey
  13. 13. Unworkable Tools ©2013 DiabetesMine Patient Voices Survey
  14. 14. Frequency of Downloading Data from Monitoring Devices 300 250 200 N=657 150 From my finger stick meter 100 50 From my CGM 0 Never Less Once a 2-3 than month Weekly times a once a month month ©2013 DiabetesMine Patient Voices Survey
  15. 15. Use of Diabetes Logging Software or Mobile Apps N=639 Often (once a month or more) Sometimes (every few months) Rarely (a few times per year) Only before a doctor's appointment Never ©2013 DiabetesMine Patient Voices Survey
  16. 16. Use of Smartphone Apps for Diabetes Care N=589 200 150 100 50 N=589 0 Diet/food Exercise app tracking app Glucose logging apps ©2013 DiabetesMine Patient Voices Survey Other
  17. 17. “I hate it that… interfaces aren’t user-friendly” ©2013 DiabetesMine Patient Voices Survey
  18. 18. “… results aren’t accurate enough to rely on.” ©2013 DiabetesMine Patient Voices Survey
  19. 19. “… neither software nor hardware work together – and are not integrated with Mac and iOs.” ©2013 DiabetesMine Patient Voices Survey
  20. 20. “Vendors should quit with the proprietary shenanigans and make technology that will actually help patients and give them access to their own medical information!” ©2013 DiabetesMine Patient Voices Survey
  21. 21. Changes Needed to Make Diabetes Logging Data Valuable to Patients If program spotted trends If program could suggest a plan of action N=551 If all data was in one place Agree Strongly Agree Better ability to view/share data Guaranteed doctor/CDE would review and discuss 0 100 200 ©2013 DiabetesMine Patient Voices Survey 300 400 500
  22. 22. What Patients Want ©2013 DiabetesMine Patient Voices Survey
  23. 23. What Would Most Motivate You to Put Extra Effort Into D-Management? Positive feedback Incentive program N=609 Having a diabetes mentor Likely Very Likely Working in a group/team "Gamification" 0 100 ©2013 DiabetesMine Patient Voices Survey 200 300 400
  24. 24. “I’d like to receive positive feedback for my efforts to control glucose levels regardless of the results.” ©2013 DiabetesMine Patient Voices Survey
  25. 25. “I’d like to have a system that holds patients accountable, while assisting me to make treatment adjustments in a timely manner.” ©2013 DiabetesMine Patient Voices Survey
  26. 26. “I want to free up brain cells, with less D-math — and tools designed to not look like a scary medical device, which would also help with the emotional/social issues.”
  27. 27. “To get there I need affordable, comfortable, discrete, a nd accurate devices that minimize hassle.” ©2013 DiabetesMine Patient Voices Survey

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