http://www.dailymotion.com/video/x16uvqa_make-a-wish-turns-san-francisco-into-gotham-city_travelSohumbled & happy to see u all here… Unite under one theme – improve life with diabetes
Unite under one theme – improve life with diabetes To spark interactions and discussions …… that lead to faster, better development, and design, and improved access for faster adoption of diabetes technology innovations…… that will improve life with diabetes
As you know, this is part of our Innovation Project – which we call “a patient-led initiative to improve tools & care.” Our idea is to turn the notion of “patient engagement” around so that PATIENTS become the catalysts for change, engaging healthcare, industry, and other decision-makers to hear our voices and take appropriate action. For some quick background, our Project began with the DiabetesMine Design Challenge, a first-of-its-kind open crowdsourcing competition for new tools to improve life with diabetes.The contest was supported by IDEO and the CHCF, and ran for 4 years. We had hundreds of submissions from around the country and around the world, engaged many top-name universities…And we’re very proud to report that this helped to shine a national and international spotlight on the need for more patient input into the devices & solutions that are supposed to keep us healthy.
A number of amazing concepts came out of that contest… everything from engaging phone apps to mobility aids to futuristic artificial pancreas designs.Some of these concepts have been integrated into mainstream industry products – like more Apple’esque design & wireless communications – while other prototypes are actually making their own strides, like Jerry the Bear, a teaching toy for children with diabetes, that has now successfully come to market since being a Design Challenge winner in 2009.
Some of these may look familiar to you, and in fact, the creator of this modular AP system called Pancreum is with us here today. After helping to pioneer crowdsourcing in medical innovation with a contest like this, we felt that the “next big thing” for DiabetesMine to take on would be to bring stakeholders together in a forum where they could begin to interact in new ways. Thus was the birth of the DiabetesMine Innovation Summit event…
As many of you know, in year one (2011) we focused on the design culture – the fact that tools MUST be life-friendly in order to help patients, and Patients needed a bigger role in conceptualizing their own tools. So our first year was very much a workshop atmosphere led by Health & Wellness experts from IDEO.
Then last year, we took on the notion that even the best designed technology can’t succeed in isolation. We focused on how we can foster more of a “systems approach” in diabetes – where collaboration becomes a given. At the core of that, of course, is the whole issue of making diabetes data INTEROPERABLE, so that it can be shared and used freely and meaningfully by patients and their providers.We were fortunate to host FDA for the first time at this forum, and get to hear their take on the holdups and how various stakeholders can work better together to make their job easier.
And here we are now, at a pivotal moment in healthcare history…In which we’re ALL facing major changes that we may not fully understand.
So at this moment, in year 3 of the Innovation Summit, we’ve turned our attention to what we view as the obvious next big challenge: How to DELIVER on the promise of diabetes technology?And by that we mean: I’m sure everyone in this room agrees that we HAVE very advanced technology now, and that these tech tools have enormous potential to help patients achieve better outcomes. But how exactly is that going to be realized?… How can we assure valuable ‘return on investment’ for ALL parties involved in both giving and receiving diabetes care?Especially patients? What are they REALLY getting out of using all these tools?This is not a trivial challenge!
The hurdles seem pretty clear:First, many of the devices STILL aren’t as life-friendly as they should be, which is a huge barrier to use. And we STILL have a system in which various entities are working for themselves, in “silos” as we say. Some progress has been made, but I wish that we’d achieved a true landscape of collaboration…Then the fact remains that many patients are not educated & don’t the have resources they needHigh costs & healthcare coverage limitations are barriers And let’s face it, the reality is a misalignment of economic interests in our system
What we’ve got is awkward dynamics – Patients out there trying to take care of themselvesThen the pharma companies and device manufacturers trying to sell products And the Payers – trying to pay as little as possible, because heck, that’s their business modelLet me say clearly that: Nobody needs to be ashamed of making money off diabetes. If there weren’t a “market” then nobody would bother making a better pump, faster insulin, an accurate CGM, or any of the tools that we so desperately need… Today’s dialogue is to explore our common ground …
OUR PURPOSE IS TO FIND MORE COMMON GROUND within the confinements of the box we all live in…We see today’s Summit in that space in the overlap of all of our interests in diabetes care.
So, our focus is very squarely on these topics: We have some very advanced technologies already on the market – and many on the verge. How can build on the advantages they are already bringing to patients? And how can all this technology further add real value to life with diabetes?What is the real Return on Investment for patients, and how do we measure that impact? We need to recognize that ROI goes beyond A1C numbers… and we also need to think about how ALL the players can increase ROI without anyone coming out the loser in this equation.We want to pinpoint the barriers not only to creating technology that adds value, but to getting it out into the hands of patients so they can use it to its fullest potential – what are the biggest barriers, and how can begin to topple them?And last not least, it always comes back to the Patient Voice. How can we ensure that patients will be part of all these processes to help define the tools & care for their own medical condition?
Patient Voices need to be at the center of these conversations. In fact, our mission at DiabetesMine is to experiment with new ways to find and articulate those patient voices.So for the last two years, we’ve worked to sort of “crowdsource patient needs” with our Patient Voices Contest – asking folks to submit videos (or this year any multimedia material) expressing what they think are the MOST PRESSING UNMET NEEDS among patients. The 3 questions we asked them to address this year were:What improved health outcomes in diabetes matter most to you and why? Describe how you want diabetes technology to fit into your daily life? What are your biggest concerns about the changes in healthcare reimbursement for diabetes and why?We’re going to hear a compilation of their voices in video format this morning, but first I’d like to take a moment to introduce the 10 winners to you…
Now I’d like to briefly introduce our 10 winners for 2013…(Read Bios on each) Thank you VERY MUCH for your passion about these topics and for being here with us today…
(Read Bios on each) Thank you VERY MUCH for your passion about these topics and for being here with us today…
This is all made possible by our supporters this year – beginning with our gold sponsor & major supporter Tandem Diabetes Care, currently taking the D-world by storm with their Appeles’que t:slim pump.We know they’ve been listening to patients’ cries for more aesthetic design… THANK YOU…
Thanks also to our co-silver sponsors, JnJ Animas & Lifescan… ADD xxxx
And to all our bronze sponsors: Abbott Diabetes Care, Dexcom, Insulet (OmniPod), Sanofi, Target, Valeritas, and the CA Healthcare Foundation. Just a note to get you pumped to make it through the whole day here, thanks to TANDEM and the rest of our sponsors, we have some very attractive gym bags we’ll be giving out at the end of the day … inside is a USB stick with conference mats.And in keeping with our “improved health outcomes” theme, inside you’ll also find a free Misfit Shine – world’s coolest new fitness tracker – compliments of Target. We really appreciate their enthusiasm to embrace innovation in diabetes care. OmniPod also has a little surprise for everyone at the end of the day.
I want to thank our steering committee Henry Anhalt of SanofiKelly Close of Close ConcernsAnsleyD’Albo of Bennet Dunlap, staunch patient advocateJennifer HahamianRuth Markowitz of BDAnna McCollister-SlippGary ScheinerDavid Weingard
With that let’s kick off… here to figure out what’s next ….
Patient Voices Video
FDA Update: Where Are We Now?
Courtney Lias, FDA Division of Chemistry & Toxicology Devices
Exciting Progress in Diabetes Data Solutions
Howard Look, Tidepool Project
10:10 An Advocates’ Eye View
Anna McCollister-Slipp, Galileo Analytics
10:20 The Impact of Healthcare Reform on Diabetes Care
Patty Telgener, Emerson Consultants
11:00 Coffee Break
11:20 Payer Perspectives: Insurers Speak Out
DiabetesMine Patient Survey Results
Kyle McClain & Christel Aprigliano
Payer Panel: Addressing Diabetes Tools & Innovations
Moderator – Tad Simons, Pyxera
Snack & Networking Break
Interactive Session: D-Solutions Brainstorm
Facilitator – Nina Serpiello
Moving Forward on the Innovation Cost-Reduction Equation
Joe Smith, West Health
Wine, Cheese & Making Connections!