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LIBERATING OUR DATA 
Reducing the Burden of T1D through 
Access to Data and Interoperability 
Diabetes Mind D-Data ExChang...
Type 1 Diabetes 
is a highly burdensome disease
Reduction 
in Burden 
now Time
Time 
Cure 
Reduction 
in Burden 
now
Time 
Cure 
Closed Loop 
Reduction 
in Burden 
now
Time 
Cure 
Closed Loop 
Reduction 
in Burden 
Things we can 
do NOW 
now
Time 
Cure 
Closed Loop 
Things we can 
do NOW 
now 
#WeAreNotWaiting 
Reduction 
in Burden
So what can we do NOW? 
Access to Data 
Interoperability: 
Data 
Devices 
Increase choice. 
Reduce the burden.
A thought experiment: Digital Cameras 
Access View 
Canon 
Olympus 
Kodak 
JPEG
A thought experiment: Digital Cameras 
Access View?! 
Canon 
Olympus 
Kodak 
Canon 
Olympus 
Kodak
A thought experiment: Digital Cameras 
Access View 
Your 
choice 
Your 
choice
How do you 
access the data? 
How do you 
view the data?
Access View 
Your 
choice 
Your 
choice
c X
No access to data means 
YOU HAVE NO CHOICE.
Participants who upload their data 
more than once per week: 
Pump: 3% 
BGM: 2% 
CGM: 6% 
Participants who NEVER upload da...
No access to data means 
YOU HAVE NO CHOICE. 
No choice INCREASES the burden 
of managing type 1 diabetes.
T1D is my disease. 
And that is my data.
T1D is my disease. 
And that is my data. 
And I should get to choose: 
• What tools I want to use to 
see my data. 
• Who ...
So what can you do NOW? 
Release data access 
protocols for 
EXISTING devices. 
Expose RESTful APIs 
for cloud services. 
...
Access + Interoperability = Ecosystem
A Diabetes Application Ecosystem 
T1D + Fitness Data Apps that make dosing 
easier 
Research Apps 
and Interfaces 
Apps fo...
A Diabetes Application Ecosystem 
App App 
App App 
App 
App App 
App 
App 
App 
App 
App 
App 
App 
App App
Does the patient own their own health data? 
Can patients donate and/or repurpose their data? 
Does your cloud service hav...
Device Makers: 
Abbott 
Animas 
Asante 
Bayer 
Dexcom 
Insulet 
Lifescan 
Medtronic 
Roche 
Tandem 
Cloud Service Provider...
Does the patient own their own 
health data? 
Can patients donate and/or 
repurpose their data? 
8 of 10 device makers: Ye...
Old: 
“Any data submitted through [the service] shall 
be the property of [the service], and you hereby 
waive all right, ...
Does your cloud service provide machine 
accessible APIs? 
(e.g. REST APIs and Oauth) 
2 providers: 
CSV download only. 
3...
Does your device have available, 
documented protocols? 
6 of 10 device makers: Yes!
A Diabetes Application Ecosystem 
App App 
App App 
App 
App App 
App 
App 
App 
App 
App 
App 
App 
App App
Not a choice: 
Auto-immune 
attack on 
pancreas 
Burden of 
managing T1D 
A choice: 
Access to data. 
Interoperability 
of...
"Liberating Our Diabetes Data" - Howard Look of Tidepool at the Fall 2014 DiabetesMine D-Data ExChange
"Liberating Our Diabetes Data" - Howard Look of Tidepool at the Fall 2014 DiabetesMine D-Data ExChange
"Liberating Our Diabetes Data" - Howard Look of Tidepool at the Fall 2014 DiabetesMine D-Data ExChange
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"Liberating Our Diabetes Data" - Howard Look of Tidepool at the Fall 2014 DiabetesMine D-Data ExChange

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Tidepool CEO Howard Look gives and update on diabetes data & device interoperability and #WeAreNotWaiting at the Fall 2014 DiabetesMine D-Data ExChange (University Club of Palo Alto, 11/20/14).

Two new partners with Tidepool were announced: Tandem Diabetes, and Abbott Diabetes Care

Published in: Technology
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"Liberating Our Diabetes Data" - Howard Look of Tidepool at the Fall 2014 DiabetesMine D-Data ExChange

  1. 1. LIBERATING OUR DATA Reducing the Burden of T1D through Access to Data and Interoperability Diabetes Mind D-Data ExChange November 20, 2014 Howard Look, CEO
  2. 2. Type 1 Diabetes is a highly burdensome disease
  3. 3. Reduction in Burden now Time
  4. 4. Time Cure Reduction in Burden now
  5. 5. Time Cure Closed Loop Reduction in Burden now
  6. 6. Time Cure Closed Loop Reduction in Burden Things we can do NOW now
  7. 7. Time Cure Closed Loop Things we can do NOW now #WeAreNotWaiting Reduction in Burden
  8. 8. So what can we do NOW? Access to Data Interoperability: Data Devices Increase choice. Reduce the burden.
  9. 9. A thought experiment: Digital Cameras Access View Canon Olympus Kodak JPEG
  10. 10. A thought experiment: Digital Cameras Access View?! Canon Olympus Kodak Canon Olympus Kodak
  11. 11. A thought experiment: Digital Cameras Access View Your choice Your choice
  12. 12. How do you access the data? How do you view the data?
  13. 13. Access View Your choice Your choice
  14. 14. c X
  15. 15. No access to data means YOU HAVE NO CHOICE.
  16. 16. Participants who upload their data more than once per week: Pump: 3% BGM: 2% CGM: 6% Participants who NEVER upload data: Pump: 60% BGM: 76% CGM: 52% Source: T1D Exchange
  17. 17. No access to data means YOU HAVE NO CHOICE. No choice INCREASES the burden of managing type 1 diabetes.
  18. 18. T1D is my disease. And that is my data.
  19. 19. T1D is my disease. And that is my data. And I should get to choose: • What tools I want to use to see my data. • Who else gets to see my data. • What other devices I want to use to manage my T1D.
  20. 20. So what can you do NOW? Release data access protocols for EXISTING devices. Expose RESTful APIs for cloud services. Adopt standards like IEEE 11073. Access to Data Interoperability: Data Devices
  21. 21. Access + Interoperability = Ecosystem
  22. 22. A Diabetes Application Ecosystem T1D + Fitness Data Apps that make dosing easier Research Apps and Interfaces Apps for Clinical Decision Support Apps for Remote Monitoring Apps for Pregnant Moms with T1D Apps for Teens Apps for Kids
  23. 23. A Diabetes Application Ecosystem App App App App App App App App App App App App App App App App
  24. 24. Does the patient own their own health data? Can patients donate and/or repurpose their data? Does your cloud service have machine accessible (RESTful) APIs? Does your device have available, documented protocols? Do you support standards like IEEE 11073? Are your data format/protocols complete and unambiguous?
  25. 25. Device Makers: Abbott Animas Asante Bayer Dexcom Insulet Lifescan Medtronic Roche Tandem Cloud Service Providers: Dexcom Diasend Glooko Livongo Medtronic Telcare Tandem Tidepool
  26. 26. Does the patient own their own health data? Can patients donate and/or repurpose their data? 8 of 10 device makers: Yes! 8 of 8 diabetes cloud service providers: Yes!
  27. 27. Old: “Any data submitted through [the service] shall be the property of [the service], and you hereby waive all right, title and interest to the submitted data.” New: “As the submitter of Submitted Data you always have the right to, free of charge, access information regarding your Personal Data.”
  28. 28. Does your cloud service provide machine accessible APIs? (e.g. REST APIs and Oauth) 2 providers: CSV download only. 3 providers: APIs under development, not yet released. 1 provider: REST API + Oauth in use!
  29. 29. Does your device have available, documented protocols? 6 of 10 device makers: Yes!
  30. 30. A Diabetes Application Ecosystem App App App App App App App App App App App App App App App App
  31. 31. Not a choice: Auto-immune attack on pancreas Burden of managing T1D A choice: Access to data. Interoperability of devices. REDUCE the burden of managing T1D

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