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Jg Ak Vid Wkshp Vsa Pt2

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VSA 2009 Video Taping Visitors Workshop
Josh Gutwill and Adam Klinger
Part 2: Human Subjects and IRB considerations

Published in: Education
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Jg Ak Vid Wkshp Vsa Pt2

  1. 1. Treating Visitors Ethically <ul><li>Government system for ~40 years </li></ul><ul><li>Applied to research, not evaluation </li></ul><ul><li>Now line is blurring </li></ul><ul><ul><li>Evaluators using new methods (audio/video) </li></ul></ul><ul><ul><li>More comparative studies -> more generalizable </li></ul></ul><ul><li>Learn about the system, when it applies, and how to use it effectively </li></ul>
  2. 2. Ethical Concerns <ul><li>Why worry about studies with humans? </li></ul><ul><li>Recent medical and psychological research </li></ul><ul><ul><li>Tuskegee experiment (1932-1972) </li></ul></ul><ul><ul><li>Milgram Experiment (1961) </li></ul></ul>
  3. 3. Tuskegee Experiment http://www.infoplease.com/ipa/A0762136.html http://en.wikipedia.org/wiki/Tuskegee_experiment
  4. 4. Milgram Obedience Study (1961)
  5. 5. Belmont Commission (1974-9)
  6. 6. Belmont Commission (1974-9) <ul><li>Three basic principles for HS research </li></ul><ul><ul><li>Respect for Persons </li></ul></ul><ul><ul><ul><li>Protect autonomy (reduce coercion; extra protection for people w/ diminished autonomy) </li></ul></ul></ul><ul><ul><ul><li>Treat with respect & courtesy </li></ul></ul></ul><ul><ul><ul><li>Informed consent </li></ul></ul></ul>
  7. 7. Belmont Commission (1974-9) <ul><li>Three basic principles for HS research </li></ul><ul><ul><li>Respect for Persons </li></ul></ul><ul><ul><ul><li>Protect autonomy (reduce coercion; extra protection for people w/ diminished autonomy) </li></ul></ul></ul><ul><ul><ul><li>Treat with respect & courtesy </li></ul></ul></ul><ul><ul><ul><li>Informed consent </li></ul></ul></ul><ul><ul><li>Beneficence </li></ul></ul><ul><ul><ul><li>Maximize benefits and minimize risks </li></ul></ul></ul>
  8. 8. Belmont Commission (1974-9) <ul><li>Three basic principles for HS research </li></ul><ul><ul><li>Respect for Persons </li></ul></ul><ul><ul><ul><li>Protect autonomy (reduce coercion; extra protection for people w/ diminished autonomy) </li></ul></ul></ul><ul><ul><ul><li>Treat with respect & courtesy </li></ul></ul></ul><ul><ul><ul><li>Informed consent </li></ul></ul></ul><ul><ul><li>Beneficence </li></ul></ul><ul><ul><ul><li>Maximize benefits and minimize risks </li></ul></ul></ul><ul><ul><li>Justice </li></ul></ul><ul><ul><ul><li>Fairness in distribution of benefits and costs </li></ul></ul></ul>
  9. 9. Applying principles <ul><li>Respect (informed consent, autonomy, protection) </li></ul><ul><li>Beneficence (risk/benefits) </li></ul><ul><li>Justice (fair distribution of benefits & costs) </li></ul>
  10. 10. Applying principles <ul><li>Respect (informed consent, autonomy, protection) </li></ul><ul><li>Beneficence (risk/benefits) </li></ul><ul><li>Justice (fair distribution of benefits & costs) </li></ul><ul><li>Where did Tuskegee and Milgram go awry? </li></ul>
  11. 11. Applying principles <ul><li>Respect (informed consent, autonomy, protection) </li></ul><ul><li>Beneficence (risk/benefits) </li></ul><ul><li>Justice (fair distribution of benefits & costs) </li></ul><ul><li>Where did Tuskegee and Milgram go awry? </li></ul><ul><li>What might be the risks in informal environments? </li></ul>
  12. 12. How can we protect visitors when videotaping?
  13. 13. Videotaping visitors Simple implied consent
  14. 14. Videotaping visitors Standard implied consent
  15. 15. Videotaping visitors <ul><li>Explicit consent with signed forms </li></ul><ul><ul><li>Crowley & Callanan Method </li></ul></ul><ul><ul><li>Explo’s method for large exhibit areas </li></ul></ul><ul><ul><li>Explo’s lab method </li></ul></ul>
  16. 17. System for protecting subjects Institutional Review Board (IRB) Gov’t guidelines Museum Researcher
  17. 18. How do we deal with this? <ul><li>Learn the guidelines </li></ul><ul><ul><li>Protecting human subjects </li></ul></ul><ul><ul><ul><li>Apply Belmont principles </li></ul></ul></ul><ul><ul><li>Defining research </li></ul></ul><ul><ul><li>Defining “exempt” research </li></ul></ul><ul><li>Write research/evaluation protocols </li></ul><ul><li>Work w/ Institutional Review Board (IRB) </li></ul><ul><li>Budget for IRB costs </li></ul>
  18. 19. Definition of “Research” <ul><li>Systematic investigation designed to contribute to generalizable knowledge, and </li></ul><ul><li>Obtaining identifiable private information about living individuals, or </li></ul><ul><li>Involves intervention or interaction with individuals </li></ul>
  19. 20. What is “exempt”? <ul><li>Research in established educational settings </li></ul><ul><ul><li>Comparing diff curricula, or teaching techniques </li></ul></ul><ul><li>Tests, surveys or obsv of public behavior: </li></ul><ul><ul><li>no identifiable information is obtained </li></ul></ul><ul><ul><li>it doesn’t involve prisoners or children* </li></ul></ul><ul><ul><li>there is no risk of harm to the subject’s reputation </li></ul></ul><ul><li>Data exists or identity is unknown to Rschr </li></ul><ul><li>Other types of studies </li></ul><ul><ul><li>Certain Research projects by government </li></ul></ul><ul><ul><li>Taste and food quality tests </li></ul></ul>
  20. 21. 3 Working Groups Name Group Alice Stevenson 1 Amy Henson 3 Amy Niedbalski any Anna Lindgren-Streicher 2 Beth Johnson 3 Betsy Adamson 2 Brent Williams 3 Name Group David Callahan 1 Eileen Sheu 2 Jane Schaefer 1 Julie Fritsch 3 Laetitia Habimana 1 Scott Ewing 2
  21. 22. Resources for learning more
  22. 23. Resources
  23. 25. Resources

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