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Janet Cowlard


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Janet Cowlard

  1. 1. Medicine and Me: Arthritis Effective self-management: working in partnership
  2. 2. What is self-management? <ul><li>It is a process which enables a person living with a long-term health condition to achieve and maintain optimum well being </li></ul><ul><li>A patient working in partnership with their healthcare professionals is responsible for individual day to day management of their condition and its impact on their life </li></ul><ul><li>Part of this process involves addressing health beliefs and attitudes </li></ul>Effective self-management: working in partnership
  3. 3. Benefits of self-management <ul><li>Better control over symptoms* </li></ul><ul><li>Reduction of pain, anxiety and depression levels* </li></ul><ul><li>Improvement in quality of life with greater independence* </li></ul><ul><li>52% reduction in days off work* </li></ul><ul><li>(Dept of Health Self Care Support </li></ul><ul><li>Evidence Pack 2007) </li></ul>Effective self-management: working in partnership
  4. 4. Partnership – a definition A joint effort ! Effective self-management: working in partnership
  5. 5. Creating partnerships <ul><li>Being diagnosed undermines confidence </li></ul><ul><li>Participants soon realise that they are not alone in feeling the way they do </li></ul><ul><li>A support partnership is developed in a variety of ways – </li></ul><ul><li>participant with trainer </li></ul><ul><li>trainer with participant </li></ul><ul><li>participant with fellow participant </li></ul><ul><li>participant with Arthritis Care </li></ul><ul><li>the group members may continue to meet </li></ul>Effective self-management: working in partnership
  6. 6. Being more informed <ul><li>An opportunity to promote Arthritis Care’s services – </li></ul><ul><li>website, helpline and booklets </li></ul><ul><li>Courses are delivered in local communities and provide local resources and information </li></ul><ul><li>Signposting to other support organisations </li></ul><ul><li>Knowing more about their condition allays fears </li></ul><ul><li>Carers and family members may attend alongside </li></ul><ul><li>Leads to a better partnership with their health professionals, complimenting but not replacing the care they receive </li></ul>Effective self-management: working in partnership
  7. 7. Better communication <ul><li>Learning to communicate more assertively with family, friends and health professionals </li></ul><ul><li>Eases tensions and develops a better partnership </li></ul><ul><li>Practising better communication skills should help during appointments with health professionals </li></ul><ul><li>A more honest / equal partnership develops </li></ul><ul><li>Leads to empowerment </li></ul>Effective self-management: working in partnership
  8. 8. Empowerment – how is this achieved? <ul><li>Role modelling: </li></ul><ul><li>All trainers experience living daily with long-term pain </li></ul><ul><li>An empathy develops between trainers & the participants </li></ul><ul><li>Participants cannot say - “How do they know what it is like…?” </li></ul><ul><li>Throughout the course, trainers model and take part in all demonstrations e.g. exercise, goal setting </li></ul><ul><li>Trainers show by example that self-management techniques do help improve quality of life </li></ul>Effective self-management: working in partnership
  9. 9. Self-management - how it works <ul><li>The group learn coping skills & tips from one another </li></ul><ul><li>Men & women of mixed ages help the group dynamic </li></ul><ul><li>After attending, participants use the self-mangement techniques learnt to help to ease the symptoms of their long-term condition </li></ul><ul><li>Participants may ‘put something back’ to their local communities – volunteering, committees, health and disability forums </li></ul>Effective self-management: working in partnership
  10. 10. Increasing self-efficacy <ul><li>Trainers are proof that these self-management skills give you a better quality of life </li></ul><ul><li>Trainers and participants report back on their weekly progress and receive encouragement from the group </li></ul><ul><li>More confidence leads to healthy relationships and a better partnership with family and friends and the health care team </li></ul>Effective self-management: working in partnership
  11. 11. Partnerships with the general public <ul><li>A positive role model to family and friends etc </li></ul><ul><li>Educating work colleagues </li></ul><ul><li>Informing the media – ‘not a victim’ – empathy NOT sympathy </li></ul><ul><li>Using positive language and terms </li></ul><ul><li>Delivering Arthritis Awareness training to health and social services professionals </li></ul><ul><li>Many benefits from these partnerships </li></ul>Effective self-management: working in partnership
  12. 12. Working in partnership <ul><li>Partnership working developed with Derriford – Challenging Pain 3-year research project </li></ul><ul><li>Colaboration with producing a training manual – sharing materials and project details </li></ul><ul><li>Partnering project delivery and research analysis </li></ul><ul><li>Benefits for Arthritis Care, Derriford staff and for patients on the Pain Clinic’s waiting list </li></ul>Effective self-management: working in partnership
  13. 13. Working in partnership - research <ul><li>‘ Challenging Pain in the Community’ project, Devon 2008 </li></ul>Effective self-management: working in partnership
  14. 14. Comments - ‘Challenging Pain in the Community’ <ul><li>Consultant: Derriford Pain Management Programme </li></ul><ul><li>“ I didn't see all of the patients that attended subsequently in </li></ul><ul><li>the pain clinic, but some of those I did were positive about it”. </li></ul><ul><li>Health Professional: (Observer) </li></ul><ul><li>“ I think the participants got an overview of what chronic </li></ul><ul><li>pain management is. The 10 participants who came for </li></ul><ul><li>the first session also attended the second. I think this </li></ul><ul><li>can be taken as a good sign” </li></ul><ul><li>GP: (Referred patients to the Programme) </li></ul><ul><li>“ My patients who have attended the workshops have </li></ul><ul><li>been impressed, and have found them very helpful” </li></ul>Effective self-management: working in partnership
  15. 15. To achieve effective self-management <ul><li>Working in partnership is essential – </li></ul>Training team Arthritis Care colleagues Health professionals Funders Other voluntary organisations PCT’s & SHA’s People with arthritis , their families & carers Effective self-management: working in partnership
  16. 16. Arthritis Care <ul><li>Thank you for listening </li></ul><ul><li>For more information on self-management training </li></ul><ul><li>visit: </li></ul><ul><li> </li></ul>Effective self-management: working in partnership