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Social Media Citizenship: Please leave your cell phone on! How People with Disabilities and their Supporters Can Get Involved and Why It Matters

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Social Media Citizenship: Please leave your cell phone on! How People with Disabilities and their Supporters Can Get Involved and Why It Matters

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I have done this presentation with Jules Andre-Brown and on my own in several places now. People have asked if we'd do this workshops for their organization - please contact us and let's talk! aaron@spectrumsociety.org

I have done this presentation with Jules Andre-Brown and on my own in several places now. People have asked if we'd do this workshops for their organization - please contact us and let's talk! aaron@spectrumsociety.org

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Social Media Citizenship: Please leave your cell phone on! How People with Disabilities and their Supporters Can Get Involved and Why It Matters

  1. 1. Aaron Johannes @imagineacircle #imagineacircle #101friendsBC Early drafts of this presentation were done by Jules Andre Brown and myself.
  2. 2. https://www.diigo.com/list/imagineaci rcle/SMSG101
  3. 3. www.polleverywhere.com
  4. 4. Learning Objectives We will discuss why social media matters to people with disabilities and those who support them, by looking at several kinds of social media and how individuals can interact to deliver messages about themselves, the groups they are part of and the causes they care about. • We will identify various kinds of social media and the strengths and capacities of each, and how multi-platform tools like Hootsuite can help us get our message out. • We will discuss internet safety and create a basic media plan. – For us as individuals – For us as part of organizations / a social justice movement
  5. 5. • What is social media? • Why is this important? • What’s your favourite social media?
  6. 6. compare
  7. 7. Social Media Icons - how would you use each platform?
  8. 8. 2.8 million viewers
  9. 9. the letter quickly went viral - more than 10,000 "likes" on Facebook - 6,000-plus Twitter shares - nearly 1,000 comments on the Special Olympics blog (now nearly 8000). - "Such a wonderful, courageous and heartfelt letter.” - "Bravo for standing up to all of the bullies that linger out there, waiting to pounce on those they perceive as different. You are a true hero."
  10. 10. "Thank you. You helped me make 3.2 million new friends. And I wish that you would be one more."
  11. 11. “How can we invite community in?”
  12. 12. http://www.businessillustrator.com/infographic/the-digital- workplace-manifesto-illustrated-if-employee-engagement-is- your-goal-you-should-read-this/
  13. 13. “it’s going to be very cool”
  14. 14. What is your favourite Social Media platform?
  15. 15. What is your favourite Social Media platform?
  16. 16. Social Media Teams argue their cases with pipe cleaners! Thanks, Winnipeg folks, for permission to take and use this photo!
  17. 17. Pinterest
  18. 18. Our first workshop parking lot(s) had 5 pages of questions!
  19. 19. Bernadette had a good question: how can people who don’t read or write communicate online?
  20. 20. And it’s a constantly growing groundswell, constantly informing us…
  21. 21. Things are moving really fast…
  22. 22. From Dorie Clark, Huffington Post Share this story --
  23. 23. http://www.huffingtonpost.com/dorie- clark/social-media-social- change_b_1416333.html Here are some specific actions you can take. Facebook With 800 million users, if you're remotely interested in this topic, you probably already have a Facebook page. Now you can use it to help the causes you care about. • • Start by "liking" the fan page of causes you care about. This will keep you informed about their activities and will also show up on your wall, perhaps encouraging your friends to check them out, as well. • • Next, when your cause posts something of interest -- time to take action on legislation, for instance -- you can re-post it on your own wall by hitting the "share" button. • • Now "like" the fan page of your legislators, and begin commenting and interacting. (Not surprisingly, they especially like it when you praise them.) You want them to know who you are, so they'll take you more seriously when it comes time to take action. • • Deploy your "tagging" function. When you tag someone on Facebook, they will (usually) be notified -- and elected officials watch like a hawk. Mention them to build your relationship, and mention your cause to keep your friends informed.
  24. 24. What does it mean for charities?
  25. 25. http://www.mdgadvertising.com/blog/2012-it- was-a-very-good-year-for-social-giving/
  26. 26. •Based on sharing. •Free & Instant. •Connected to your network. •Really easy. •Opinions Blogs, Twitters, Facebook Social Media is operates differently from Websites.... Online Magazines. • Target demographics. • Deepen or Archive productions. • Requires a team to produce. • Deep Contribution.
  27. 27. 30
  28. 28. What’s a #hashtag? 31
  29. 29. Why Is This Important?
  30. 30. What’s a #hashtag? • In small groups: • Decide on a message you want to send out to the world • Create a hashtag you all agree to use • Where will you use it? • How? – Pacing – Plaforms 33
  31. 31. #decidingonahashtag
  32. 32. 35 Social Media easily lets a diverse group of people contribute
  33. 33. It also means that everyone can have an opinion about what you do…
  34. 34. 38 It’s an exciting and easy way to share experiences and learn from one another.
  35. 35. www.tweetlevels.com
  36. 36. What are they talking about?
  37. 37. What do actual people with disabilities (self advocates) want to talk about? • jobs • Supports • Equality • Relationships • community
  38. 38. What do people with disabilities want to talk about? #disability + #jobs #Supports #Equality #Relationships #community
  39. 39. “disability rights”
  40. 40. “disability employment”
  41. 41. The “R” word
  42. 42. “people first self advocacy”
  43. 43. “Great leaders are restless for change, impatient for progress and deeply dissatisfied with the status quo. The possibility of a better future burns them and propels them. Great leaders see the future so vividly they have no choice but to do everything in their power to make this future real.” Marcus Buckingham
  44. 44. Break! http://www.fullcupthirstyspirit.com/
  45. 45. Email tip: “unsubscribe” search
  46. 46. How will I remember to blog, tweet and um… that other stuff. Start-up Pages on Chrome Browser
  47. 47. As I read on my kindle app, anything I highlight goes to: https://kindle.amazon.com/
  48. 48. http://www.timeanddate.com/countd own/create
  49. 49. So how do you make a plan?
  50. 50. First you got to know who are your peeps
  51. 51. 56
  52. 52. What message are you sending? @agencyleader sharing this great article at www.shorturl.com about how we can all work together better as equals
  53. 53. How do you stay in touch with the people around you?
  54. 54. Late night FB conversation with Jules and Aaron
  55. 55. Different kinds of Social Media for different purposes
  56. 56. Our social media plan
  57. 57. www.101friends.ca blog / newsletter / links
  58. 58. www.101friends.ca blog / newsletter / links Publications and mission  - Books for sale: social enterprise - We control this conversation
  59. 59. www.101friends.ca blog / newsletter / links Publications and mission  - Books for sale: social enterprise - We control this conversation Our messages: -People with disabilities are great citizens -There is hope -Research and information is available -Reflection is good -People can make friends, get jobs, have fun
  60. 60. www.101friends.ca blog / newsletter / links Publications and mission  - Books for sale: social enterprise - We control this conversation Our messages: -They can and do write books -They can and do lead -Staff need support too -There are great agencies out there -Agencies can change -We hope for partnership
  61. 61. People share our stories...
  62. 62. Over 4 years we more than doubled our readers
  63. 63. The next year we had about 1200 more readers
  64. 64. Over time that’s thousands of people
  65. 65. Engaged in a conversation about person centered thinking
  66. 66. We reached more than 100 countries - in some of these people need good news
  67. 67. And we get to be connected with people all over the world
  68. 68. Facebook
  69. 69. During a week in May 2012 1,800 people on blog 1,200 on facebook
  70. 70. Response to Posts
  71. 71. Pages to Watch
  72. 72. Caveats: it’s not really a popularity contest • Do you have a budget for social media? – NO • Do you have someone with dedicated time to spend on this? – NO it’s off the side of our desks by interested people. • Have you hired a firm to take on your social media? – NO • Are you trying to communicate with everyone everywhere about everything? (Who are your peeps?) – NO we only want to talk about individualised approaches with people who want to talk about that.
  73. 73. Where did the hits come from?
  74. 74. Slide share
  75. 75. Total Hopeful Messages • Blog • Enewsletter (Mail Chimp) • Facebook • Twitter • Slideshare • www.spectrumpress.ca
  76. 76. LinkedIn Influence Map
  77. 77. http://inmaps.linkedinlabs.com/
  78. 78. So what if I wanted to get a new job?
  79. 79. LinkedIn References
  80. 80. LinkedIn Groups
  81. 81. We get to share stories too
  82. 82. Noah
  83. 83. 94 And we get to learn more about reputation, identity, and trust.
  84. 84. What gifts do people with disabilities bring to online communities?
  85. 85. What challenges might they face?
  86. 86. Making a plan… That includes everyone – new users, early adopters, seniors, young people, folks we support… What would be some things to think about?
  87. 87. “Conversations That Matter” Keenan Weller
  88. 88. Twitter: making an account
  89. 89. www.startwithhi.ca twitter feed
  90. 90. Twitter Wall: PosAbilities Employment
  91. 91. Instagram
  92. 92. Instagram #graphics
  93. 93. Online Education and Staff Training
  94. 94. Specific and affordable training through webinars
  95. 95. Hootsuite: multiple platforms to distribute single posts
  96. 96. Staying Safe For organizations For individuals
  97. 97. Safety Plan for Org • Track mentions of your organization on hootsuite or google search. • Be clear about what’s okay and not okay to post – what’s the messaging you want? • Have clearly different personal and professional accounts (or never say anything mean).
  98. 98. What they expected; what they got… (but, 4,000 new followers…)
  99. 99. Expect Tricks!
  100. 100. Safety Plans for People • Think about the safeguards that being online brings • Spend some time with fun resources like the quizz at www.icanbesafeonline.c om
  101. 101. Be okay with asking questions – no one can know everything about the “new” internet • You get an email from your “bank” or even a message from your cousin on Facebook... • Your bank says you must log in – the site it links to looks the same but isn’t. It collects your password and account information. • Your cousin on Facebook needs $1000 right away and wants you to send cash… people are being taken advantage of daily. Always ask a friend, family member or the bank teller about things like this.
  102. 102. Make a plan…
  103. 103. Questions? Aaron @imagineacircle aaron@spectrumsociety.org www.101friends.ca www.imagineacircle.com Jules @julesandrebrown Jules@spectrumsociety.org Or www.spectrumsociety.org @ssclspectrum @101friendsBC
  104. 104. Thanks!

Editor's Notes

  • Social Media Citizenship
    “Please leave your cell phone on!”
    Connected and Included: why it matters
    Aaron Johannes
    www.imagineacircle.com
    www.101friends.ca
  • Our answer was to take her photo with an app called “instagram,” upload it, share it with the audience. Instagram is kind of like a photo-twitter. People use it to share photos. What might your answer to this question be?
  • This is an example of a great article you might want to share
  • This is how you might share it
  • It lets those people take action. Communicating, clarifying, connecting are all ways to take action… from those actions can come a landslide of action
  • www.tweetlevels.com is an online site where you can see who is tweeting about what topics… this is important because we get to see how visible the folks we care about are. We have come to a place where it’s not at all odd to meet someone with a disability in public, or in a workplace, but are we having the same experience online? On the busiest day here more than 8000 people are tweeting something about “disability”
  • We can look at the word cloud to see what kinds of things they are saying…. The bigger the words, the more people are talking about it
  • At the bottom of the tweetlevels site we can see where the most popular conversations are happening – here, we see that most of the conversations are about disability benefits – they are reactive conversations. What people with disabilties tell us they want to talk about in our workshops are jobs, supports that work for them, equality, relationships and community… we can identify any of these by turning them into hashtags
  • Like this
  • Hardly anyone is talking about disability rights
  • Or employment
  • But about 6000 people a day are using the “R” word in tweets
  • And no one is talking about people first self advocacy. We can change this.
  • The Social Media part of your plan needs to be congruent with everything else you’re doing. This is a really quick, down and dirty mind map that looks at how social media might be used within the organization, with community partners, with the folks we support and to engage staff. It’s just a few ideas to get started, out of which more conversations can come.
  • The first part of planning is “who are your peeps?” who do you want to communicate with, and what do you want to communicate?
  • Ask the audience: answers, the agencyleader is pretty cool for usings social media, they want us to work better together as equals – I didn’t know that! – they are staying on top of things in the world of research – they are interested in communication – they are approachable
  • Planning the conference by chatting on facebook, while our friends and colleagues pop in an our and are ready sources of inspiration and ideas
  • For people at every level of an organization, advocacy group or circle of friends there are different ways to use social media
  • Our project blog is one of the ways that we use social media….
  • It gives people some concrete information about our products, our mission, our understanding of how people with disabilities might be supported, and it’s a conversation that we control and up out into the world -
  • We send out several messages
  • Our messages assume that these things are true, and we offer resources to support these ideas
  • Whenever we post something on our blog, others who agree with it or find it interesting re-post our blog articles…
  • We went from an average of not quite 20 readers to now more than 40 over a few years. These are all people who want to participate in conversations about empowerment, social justice, relationships, empowering networks of support, partnerships, innovation, etc..
  • As of this writing more than 40,000 people have chosen to participate in this conversation. At least some of them are people who are not from our field, but “regular” community members – the kind of people we often wonder how to engage!
  • In Santiago Chile they have no services for people beyond charitable supports – Roberta sends us updates for our blog and when we write about things she wants to share, she translates them for folks there
  • Facebook gives you some good ways to show how your messages are going out and how the number of messages you send is expanded on as people share them
  • So our social media plan has the blog, which a program called mail chimp collects every month and sends out to subscribers (people can also subscribe just to the blog); the blog goes out to facebook, which goes to twitter, and presentations we do go up on slideshare, while our social enterprise site collects people from all of the above and sends them back again…
  • It has never been more important – or easier – to be connected. This is a “map” of aaron’s connections on linkedin.
  • Say I decided I wanted a new job…
  • All these people, and all their friends, would see my resume and these great references… and if I clicked a few buttons my resume would get sent out to people in my field using different key words that had to do with what I might want to do for a job, and it would go even further….
  • Linkedin is also a great place to get and share information
  • We are not just the receivers of information, but we can create it. www.noahsdad.com has quickly become a great site that is inspiring and full of good information. An interested aspect of it on facebook is the number of parents sharing photos of their (gorgeous) kids with disabiliites in ways they might not previously have been able to.
  • It’s quickly becoming a great resource for parents and people with down syndrome and those who care about them
  • On the other hand, “no more teacher/bullies” is a response to recent news events that advocates for fair and humane treatment of children with disabilities
  • One of the best examples of social media leadership in Canada is Keenan Weller. Your whole social media strategy might well be taking a WWKD approach, connecting with him, and doing everything he does! Or trying to keep up…
  • Making a twitter account is a really easy first step
  • Community Living B.C. has been a real leader in creating an online presence in B.C. for folks with disabilities
  • More good examples. Totally positive message; an invitation to participate; focused on what’s shared rather than differences / disabilities…
  • Incorporating instagram is a wonderful third step
  • Social media can be a great staff training tool. At it’s simplest, it’s using twitter and facebook to keep staff informed and up to date. At it’s more complicated it’s the creation of and involvement in online training and education.
  • People want to talk about safety, and we can make these talks fun and interesting. One of the best sites for online citizens with disabilities is I Can Be Safe Online, created and hosted by CLBC.

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