I have done this presentation with Jules Andre-Brown and on my own in several places now. People have asked if we'd do this workshops for their organization - please contact us and let's talk! email@example.com
Social Media Citizenship “Please leave your cell phone on!” Connected and Included: why it matters Aaron Johannes www.imagineacircle.com www.101friends.ca
Our answer was to take her photo with an app called “instagram,” upload it, share it with the audience. Instagram is kind of like a photo-twitter. People use it to share photos. What might your answer to this question be?
This is an example of a great article you might want to share
This is how you might share it
It lets those people take action. Communicating, clarifying, connecting are all ways to take action… from those actions can come a landslide of action
www.tweetlevels.com is an online site where you can see who is tweeting about what topics… this is important because we get to see how visible the folks we care about are. We have come to a place where it’s not at all odd to meet someone with a disability in public, or in a workplace, but are we having the same experience online? On the busiest day here more than 8000 people are tweeting something about “disability”
We can look at the word cloud to see what kinds of things they are saying…. The bigger the words, the more people are talking about it
At the bottom of the tweetlevels site we can see where the most popular conversations are happening – here, we see that most of the conversations are about disability benefits – they are reactive conversations. What people with disabilties tell us they want to talk about in our workshops are jobs, supports that work for them, equality, relationships and community… we can identify any of these by turning them into hashtags
Hardly anyone is talking about disability rights
But about 6000 people a day are using the “R” word in tweets
And no one is talking about people first self advocacy. We can change this.
The Social Media part of your plan needs to be congruent with everything else you’re doing. This is a really quick, down and dirty mind map that looks at how social media might be used within the organization, with community partners, with the folks we support and to engage staff. It’s just a few ideas to get started, out of which more conversations can come.
The first part of planning is “who are your peeps?” who do you want to communicate with, and what do you want to communicate?
Ask the audience: answers, the agencyleader is pretty cool for usings social media, they want us to work better together as equals – I didn’t know that! – they are staying on top of things in the world of research – they are interested in communication – they are approachable
Planning the conference by chatting on facebook, while our friends and colleagues pop in an our and are ready sources of inspiration and ideas
For people at every level of an organization, advocacy group or circle of friends there are different ways to use social media
Our project blog is one of the ways that we use social media….
It gives people some concrete information about our products, our mission, our understanding of how people with disabilities might be supported, and it’s a conversation that we control and up out into the world -
We send out several messages
Our messages assume that these things are true, and we offer resources to support these ideas
Whenever we post something on our blog, others who agree with it or find it interesting re-post our blog articles…
We went from an average of not quite 20 readers to now more than 40 over a few years. These are all people who want to participate in conversations about empowerment, social justice, relationships, empowering networks of support, partnerships, innovation, etc..
As of this writing more than 40,000 people have chosen to participate in this conversation. At least some of them are people who are not from our field, but “regular” community members – the kind of people we often wonder how to engage!
In Santiago Chile they have no services for people beyond charitable supports – Roberta sends us updates for our blog and when we write about things she wants to share, she translates them for folks there
Facebook gives you some good ways to show how your messages are going out and how the number of messages you send is expanded on as people share them
So our social media plan has the blog, which a program called mail chimp collects every month and sends out to subscribers (people can also subscribe just to the blog); the blog goes out to facebook, which goes to twitter, and presentations we do go up on slideshare, while our social enterprise site collects people from all of the above and sends them back again…
It has never been more important – or easier – to be connected. This is a “map” of aaron’s connections on linkedin.
Say I decided I wanted a new job…
All these people, and all their friends, would see my resume and these great references… and if I clicked a few buttons my resume would get sent out to people in my field using different key words that had to do with what I might want to do for a job, and it would go even further….
Linkedin is also a great place to get and share information
We are not just the receivers of information, but we can create it. www.noahsdad.com has quickly become a great site that is inspiring and full of good information. An interested aspect of it on facebook is the number of parents sharing photos of their (gorgeous) kids with disabiliites in ways they might not previously have been able to.
It’s quickly becoming a great resource for parents and people with down syndrome and those who care about them
On the other hand, “no more teacher/bullies” is a response to recent news events that advocates for fair and humane treatment of children with disabilities
One of the best examples of social media leadership in Canada is Keenan Weller. Your whole social media strategy might well be taking a WWKD approach, connecting with him, and doing everything he does! Or trying to keep up…
Making a twitter account is a really easy first step
Community Living B.C. has been a real leader in creating an online presence in B.C. for folks with disabilities
More good examples. Totally positive message; an invitation to participate; focused on what’s shared rather than differences / disabilities…
Incorporating instagram is a wonderful third step
Social media can be a great staff training tool. At it’s simplest, it’s using twitter and facebook to keep staff informed and up to date. At it’s more complicated it’s the creation of and involvement in online training and education.
People want to talk about safety, and we can make these talks fun and interesting. One of the best sites for online citizens with disabilities is I Can Be Safe Online, created and hosted by CLBC.
Social Media Citizenship: Please leave your cell phone on! How People with Disabilities and their Supporters Can Get Involved and Why It Matters
Early drafts of this presentation were done by Jules Andre Brown and myself.
We will discuss why social media matters to people with
disabilities and those who support them, by looking at several
kinds of social media and how individuals can interact to
deliver messages about themselves, the groups they are part
of and the causes they care about.
• We will identify various kinds of social media and the
strengths and capacities of each, and how multi-platform
tools like Hootsuite can help us get our message out.
• We will discuss internet safety and create a basic media
– For us as individuals
– For us as part of organizations / a social justice movement
• What is social media?
• Why is this important?
• What’s your favourite
the letter quickly went viral
- more than 10,000 "likes" on
- 6,000-plus Twitter shares
- nearly 1,000 comments on the
Special Olympics blog (now
- "Such a wonderful,
courageous and heartfelt
- "Bravo for standing up to all of
the bullies that linger out
there, waiting to pounce on
those they perceive as
different. You are a true hero."
"Thank you. You helped me make 3.2 million new
friends. And I wish that you would be one more."
From Dorie Clark, Huffington Post
Here are some specific actions you can take.
Facebook With 800 million users, if you're remotely interested in this topic, you probably
already have a Facebook page. Now you can use it to help the causes you care about.
• • Start by "liking" the fan page of causes you care about. This will keep you informed about
their activities and will also show up on your wall, perhaps encouraging your friends to check
them out, as well.
• • Next, when your cause posts something of interest -- time to take action on legislation, for
instance -- you can re-post it on your own wall by hitting the "share" button.
• • Now "like" the fan page of your legislators, and begin commenting and interacting. (Not
surprisingly, they especially like it when you praise them.) You want them to know who you
are, so they'll take you more seriously when it comes time to take action.
• • Deploy your "tagging" function. When you tag someone on Facebook, they will (usually) be
notified -- and elected officials watch like a hawk. Mention them to build your relationship,
and mention your cause to keep your friends informed.
•Based on sharing.
•Free & Instant.
•Connected to your
Blogs, Twitters, Facebook
Social Media is operates differently
• Target demographics.
• Deepen or Archive
• Requires a team to
• Deep Contribution.
“Great leaders are restless for change,
impatient for progress and
deeply dissatisfied with the status quo.
The possibility of a better future
burns them and propels them.
Great leaders see the future so vividly
they have no choice but to do
everything in their power to make this
blog / newsletter / links
- Books for
- We control this
blog / newsletter / links
- Books for
- We control this
-People with disabilities are
-There is hope
-Research and information
-Reflection is good
-People can make friends,
get jobs, have fun
blog / newsletter / links
- Books for
- We control this
-They can and do write
-They can and do lead
-Staff need support too
-There are great agencies
-Agencies can change
-We hope for partnership
it’s not really a popularity contest
• Do you have a budget for social media?
• Do you have someone with dedicated time to spend on
– NO it’s off the side of our desks by interested people.
• Have you hired a firm to take on your social media?
• Are you trying to communicate with everyone
everywhere about everything? (Who are your peeps?)
– NO we only want to talk about individualised approaches
with people who want to talk about that.
Specific and affordable training
Hootsuite: multiple platforms
to distribute single posts
For organizations For individuals
Safety Plan for Org
• Track mentions of your
organization on hootsuite
or google search.
• Be clear about what’s
okay and not okay to post
– what’s the messaging
• Have clearly different
personal and professional
accounts (or never say
What they expected; what they got…
(but, 4,000 new followers…)
Safety Plans for People
• Think about the
safeguards that being
• Spend some time with
fun resources like the
Be okay with asking questions –
no one can know everything about the “new” internet
• You get an email from your
“bank” or even a message from
your cousin on Facebook...
• Your bank says you must log in –
the site it links to looks the same
but isn’t. It collects your
password and account
• Your cousin on Facebook needs
$1000 right away and wants you
to send cash… people are being
taken advantage of daily. Always
ask a friend, family member or
the bank teller about things like