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Information Sources and Needs
in the Obesity and Diabetes
Twitter Discourse
Yelena Mejova
Qatar Computing Research Institute
@yelenamejova
https://arxiv.org/abs/1804.02850
Digital Health 2018
Lyon, France – April 26, 2018
http://www.pewinternet.org/2010/12/13/cancer-2-0/
http://www.pewinternet.org/2011/05/12/the-social-life-of-health-information-2011/
http://www.pewinternet.org/2013/01/15/health-online-2013/
http://www.pewinternet.org/2018/03/21/the-science-people-see-on-social-media/
http://www.pewinternet.org/2017/07/11/online-harassment-2017/
https://www.theverge.com/2015/6/10/8761763/reddit-harassment-ban-fat-people-hate-subreddit
151,000
subscribers!
lifestyle diseases
obesity & diabetes
http://www.who.int/mediacentre/factsheets/fs310/en/
Available
information
Information
needs
• Twitter Streaming API
• Query: obese, obesity, diabetes, diabetic
• July 19, 2017 – December 31, 2017
• Obesity: 1,055,196 tweets (505,897 users)
• Diabetes: 2,88,764 tweets (996,486 users)
• US: 36.5% obese, 9.4% diabetic
Available
information
who provides information?
• “expanded url” -> domain name
• Iteratively coding 100 domains from each
verified health:
about health
&
associated with governmental or
academic institution
unverified health:
about health
&
has no about page describing
credentials
health aggregators:
about health
&
has about page, but it is not
associated with a health organization
verified health
www.ncbi.nlm.nih.gov www.jdrf.org stateofobesity.org
unverified health
medsminders.com peekerhealth.com diabetesmovie.net
health aggregator
www.medpagetoday.com www.medicalnewstoday.com www.diabetes.co.uk
• Out of the health-related domains, 23% met
criteria for “verified” (in both), while 41%
(obesity) and 50% (diabetes) were unverified
• In terms of comparative volume, unverified
domains had 2.47 (obesity) / 2.72 (diabetes)
times more content than verified
how popular is their content?
• retweets* by real users*
• verified domains are less likely to produce viral
content, mean RT rate (diff at p<0.01):
– Obesity: 1.9 verified vs 3.4 other health content
– Diabetes: 2.8 verified vs 3.8 other health content
• unverified:
– Obesity: 7.1
– Diabetes: 9.6
– (not enough data
points for stat. sig)
who is central?
• similarity: co-posting by user
light blue: social media, blue: news, green: verified health & aggregators,
red: unverified health
what do they talk about?
• Obesity
– Verified: prevalence statistics (37%), childhood obesity
(17.5%), therapies (12.5%), pharmaceuticals (5%)
– Unverified: weight loss and dieting (27%), prevalence
statistics (22%), dangerous chemicals (19%), sleep apnea
(14%)
• Diabetes:
– Verified: awareness (30%), diet (11%), pharmaceuticals
(11%), therapies (8%)
– Unverified: weight loss and dieting (25%), click this link
(12%), diet cure (8%), basic info (8%), self-promotion (7%),
super-food (7%), self-diagnosis (7%)
Information
needs
what do people say to each other?
• excluding information sharing (no urls)
• use CrowdFlower to label 1000 sample of each
fat
shaming
personal
info
what personal info is revealed?
what questions are asked?
• psychology of obesity (depression, loneliness)
• social acceptance
• effect on relationships
• regulation
Regarding Obesity as Disease: Evolving
Policies and Their Implications
Endocrinol Metab Clin North Am. 2016, 45(3)
what does Twitter tell us about
information available and
information needs of its users
around obesity and diabetes?
Available
information
• mainstream news provides
window into scientific
knowledge
• especially for diabetes,
unverified health sources
are popular
• social media (also largely
unverified) is popular
• content of verified sources
is not as shared
• verified domains favor
statistics, unverified on
dieting and other
treatments
Information
needs
• fat shaming is prevalent,
especially in context of
obesity
• questions whether
obesity is a disease
• psychology, loneliness,
behavioral modification
• effectiveness of latest
treatments and weight
loss regiments
• governmental policies
and societal acceptance
thank you
Yelena Mejova
@yelenamejova

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Information Sources and Needs in the Obesity and Diabetes Twitter Discourse

Editor's Notes

  1. In a 2017 study of 30 most subscribed to Facebook pages, some of the most prolific posts came from health-oriented accounts
  2. we de ne a source as “unverified health” if it (1) publishes health-related information, but (2) has no about page describing its credentials
  3. we de ne a source as “unverified health” if it (1) publishes health-related information, but (2) has no about page describing its credentials
  4. we de ne a source as “unverified health” if it (1) publishes health-related information, but (2) has no about page describing its credentials
  5. we de ne a source as “unverified health” if it (1) publishes health-related information, but (2) has no about page describing its credentials
  6. HCBI: National Center for Biotechnology Information JDRF: global organization funding type 1 diabetes (T1D) research State of obesity: collaborative project of the Trust for America's Health and the Robert Wood Johnson Foundation and is supported by a grant from the Foundation.
  7. Open coding of sampled tweets, 10 per domain