I am part of those stats But I am a person who happens to have a condition called ATAXIA !
'Ataxia' means ‘lack of order’.
People with ataxia have problems with
and speech communication is something that is very important to us all
My Mission is to bring back the Order to the “Lack of Order”
Using the Internet has made this possible – giving ME “the patient” a voice
Patient Crossing Borders to Customer maybe seen as “Going over to the Dark side”
Crossing Borders I see it as “seeing the Light” And opening Avenues to exciting oppertunities
Anyone know these stats
6000 – 8000 Rarediseases
That’s 6% of population 3.5 million in UK and 350 million in the World will be affected by a raredisease I am one of those stats Thats ALOT of patients or “potential customers” -
“Your most unhappy customers are your greatest source of learning.” – Bill Gates
A true quote that applies to ALL organisations – BIG and small.
8 A TRUE Fact The
Is the Expert
In their own Condition
A fantastic source of REAL Life health information, this knowledge can be used by all Health related organisations.
Atacsia a Fi - Ataxia and Me Has been established by Patients for Patients
It was put in place by numerous requests within the Health community.
Atacsia a Fi - Ataxia and Me Based in Wales - Will be Utilising the power of the internet connecting to the World Sharing good practice and information
Interacting via Social Media As well as face to face communication
Unique > in encompassing Ataxia, associated rare conditions and movement disorders
Atacsia a Fi – Ataxia and Me Unique in being keen to promote Co-production, Collaboration. Plus Innovative ideas
Future developments include Raising Awareness A Positive Logo An Eye catching and proactive Branding Plus a Website that is uplifting while sharing information Database of pateints that will be valueable the health industry Plus alot more ....
Thank You / Diolch
Venture Capital World Summit 2015 Alan Thomas
Atacsia a Fi - Ataxia and Me #VCWS15 1
Atacsia a Fi - Ataxia and Me #VCWS15 2
‘lack of order’
Atacsia a Fi - Ataxia and Me #VCWS15 3
‘lack of order’
My Mission is to bring back the Order to the
“Lack of Order”