#MatExp – ‘#MindNBody’
London 4th Annual
31st Jan 2018
#MatExp - A grassroots movement aimed at improving maternity
experience for families and the staff who care for them.
Graphics by New Possibilities.
Crowd sourced feedback
Whose Shoes® board game as a tool for dialogue
Workshops sparking multi professional
collaboration, action and co production
• Health Care Professional
‘ I will remind people at every
opportunity that there is a person at
the end of everything we do’
• Service User
‘It made me feel as if I wasn’t alone’
• HELLP syndrome at 24 weeks’ pregnant (rare, life-
threatening pregnancy complication – can cause multiple
organ failure unless baby is born).
• My son Hugo weighed just 420 grams (about the same
size as a tin of baked beans)
• Hugo lived for 35 days.
• He was too small, and premature. His treatment was
• Diagnosed with PTSD, took two years to get support.
• Campaigning for improved support for bereaved parents
• Raising awareness of pregnancy complications, and
issues affecting neonatal families.
Birth and Perinatal Mental Health
Instead of you against my chest,
they took you away, I tried my best
The lights above hurt my eyes,
no one could hear my inner cries.
Their last words fill my ears,
quick, or else we lose her here.
Was I alive, I couldn’t tell
Was this an angel to bid my farewell.
In HDU strange smells, and sounds,
doctors coming, going doing their rounds.
Many days without you near,
filling me with doubt and fear.
Then your tiny face, a touch of your hand,
in a plastic box, this is not what I planned.
On the ward instead of love and care,
cruel words, compassion was no where.
Physical scars slowly healed,
but emotionally I had no shield.
PTSD became my chalice,
filling my days and nights with Malice.
Perinatal mental health truly matters,
a difficult birth can leave mothers dreams in
Emma Jane @EmmaJaneSas @unfoldURwings
Improving Maternity services and
Perinatal Mental Health
• Prevention – Support during
• Specialist PNMH
• Emotional Support
• Information on Medication for
Pregnancy and Breastfeeding
• Birth Trauma/Tokophobia
• Awareness for staff the impact
care has on Perinatal Mental
The porter who gave my shoulder a squeeze
when I was being taken for a scan
The consultant who rang every morning and
night despite having seen me at least 3 times
during the day and coming in on his weekend
off to see how I was
The GP's who have just been there and fought
for me when I couldn't do it for myself
The psychologist who went above and beyond
to sit with me in my pain and sadness
The pathologist who arranged for us to bring
our baby home and told my husband he knew
the pain as he had been there too and it was ok
for him not to be strong all the time
Catherine MacLennan @thepinksnblues
The doctor - who guided me through every
aspect of my care and gently told me there
was nothing that could be done for my
baby. Who when he returned on shift came
into my room and simply said "I am so sorry"
The paramedic - who gently took our baby
from my hands and said he would make sure
our baby was looked after but he needed to
look after me right then
The A&E nurse who asked us if we would like
to see our baby and hold her
The healthcare assistant who painstakingly
tried to remove all traces of dried blood from
me whilst allowing me my dignity
The student midwife who sat with me in the
hours I still had hope and when that hope
The midwife who brought our son to us
showing the utmost respect for him and us
Catherine @thepinksnblues #FastLoss
Women who lose a baby in the second trimester
• Join the #MatExp community
• Over 40 Whose Shoes workshops and
#MatExp actions have run up & down the
Spreading the learning…
• New second edition
of toolkit & Two sets
of Best Practice case
studies can be
• Videos, webinars,
steller stories and
Safe and Personalised care
• Safe and Personalised care now
mainstay of National Maternity
• We continue to emphasise the
importance of listening to
families and promoting effective
co production to improve care.
• New project
holistic care of
• Get involved!
For more information
Emma Jane: @EmmaJaneSas