Barbara Sharp, Involving people with dementia in qualitative research, British Society of Gerontology 2013

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  • The Structure of the Promoting Excellence Framework
    4 STAGES IN THE DEMENTIA JOURNEY
    The journey is unique
    Person centred planning will vary across the journey
  • Barbara Sharp, Involving people with dementia in qualitative research, British Society of Gerontology 2013

    1. 1. British Society of Gerontology 13 Sept 2013 12.15 – 13.15 Involving people with dementia in qualitative research Barbara Sharp
    2. 2. Introduction Barbara Sharp • Alzheimer Scotland Practice Development Manager • Alzheimer Scotland Research Fellow Alzheimer Scotland Centre for Policy and Practice • PhD research student
    3. 3. Research study • Subjective experience of stress in people with dementia • Interpretative phenomenological analysis • Purposive sample • Focus groups – people with dementia and interviews with small number of spouses
    4. 4. Involving people with dementia in qualitative research • Why involve people with dementia in research? • Considerations, challenges and rewards • Achieving meaningful participation of people with dementia in research • The practitioner - researcher
    5. 5. Why involve people with dementia in research? • People with dementia have the right, the will and may benefit • Challenge our thinking and enhance our understanding of the lived experience of dementia • Inform care practice and interventions • Improve the quality and meaningful nature of research
    6. 6. The dementia journey
    7. 7. Considerations and challenges • Access and accessibility • Ethical approval and considerations • Person centred approach - specific to person, decision, time and situation • Consent – beyond capacity • Time and process • Risks – harm and benefit
    8. 8. Achieving meaningful participation • What is being asked of me? • What will the nature and consequences of my contribution be? • Who will be involved? • Can I change my mind? • What will happen if I get upset? • What will happen to what I say?
    9. 9. My name is Barbara Sharp and I am conducting research on how stress affects people with dementia
    10. 10. The practitioner - researcher • Practitioner skills make meaningful engagement more likely • ‘Insider’ knowledge – what matters • Interpretation informed by experience • Confidence, validity and trust
    11. 11. Contact details Barbara Sharp Alzheimer Scotland (Wed-Fri) bsharp@alzscot.org Alzheimer Scotland Centre for Policy and Practice (Mon-Tues) Barbara.Sharp@uws.ac.uk Mob: 07584 673967

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