**Becker - PCORI - The Need for Educated Consumers

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Lawrence Becker,
PCORI (Patient-Centered Outcomes Research Institute) Board of Governers, and Director, Strategic Partnerships and Alliances, Xerox Corporation

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**Becker - PCORI - The Need for Educated Consumers

  1. 1. Patient-Centered Outcomes Research Institute<br />Lawrence Becker<br />Director of Strategic Partnerships and Alliances <br />Xerox Corporation<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  2. 2. PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />PCORI’s Mission<br />The Patient-Centered Outcomes Research Institute(PCORI) helps people make informed health caredecisions – and improves health care delivery andoutcomes – by producing and promoting high integrity,evidence-based information that comesfrom research guided by patients, caregivers and thebroader health care community.<br />
  3. 3. The Need for PCORI<br />. . .<br />. . . . . . .<br />. . . . <br />. . . . .<br />. . . . .<br />. . . . .<br />. . . . .<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  4. 4. The Promise of PCORI<br />Aligning methods anddata with patient needs<br />Providing patients and providers<br />information for better decisions<br />Understanding the choices patients face<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  5. 5. What Can Patient-Centered Outcomes Research Answer for Patients?<br />Four questions are at the heart of PCORI’s working definition of “patient-centered outcomes research”<br />“Given my personal characteristics, conditions and preferences, what should I expect will happen to me?” <br />“What are my options and what are the benefits and harms of those options?” <br />“What can I do to improve the outcomes that are most important to me?” <br />“How can the health care system improve my chancesof achieving the outcomes I prefer?”<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  6. 6. Who is PCORI? <br /><ul><li>Patient representatives
  7. 7. Caregivers
  8. 8. Physicians, nurses and providers
  9. 9. Health services researchers
  10. 10. State and federal health officials
  11. 11. Pharmaceutical, device, and diagnostic manufacturers
  12. 12. Private payers </li></ul>PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  13. 13. PCORI’s Core Duties<br />Establish national research priorities <br />Establish and carry out a research project agenda<br />Develop and update methodological standards <br />Provide a peer-review process for primary research<br />Disseminate research findings<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  14. 14. PCORI Timeline<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />Sep. 2010-Jan. 2011<br />Jan.-Jun. 2011<br /> Jul. 2011- Jun. 2012<br />Jul. 2012- <br />
  15. 15. PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  16. 16. PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  17. 17. PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  18. 18. PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  19. 19. Patient and Stakeholder Engagement<br />Direct engagement around public Board meetings<br /><ul><li>Discussion forums and small-group meetings</li></ul>Informational presentations<br /><ul><li>PCORI representatives have presented at 20 meetings since March</li></ul>Opportunities for public input<br /><ul><li>Going beyond statutory requirements to solicit feedback throughout</li></ul>Expanding website<br /><ul><li>Redesigned site scheduled to launch in September</li></ul>PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  20. 20. Current Opportunities for Public Input<br />Working Definition of “Patient-Centered Outcomes Research” <br /><ul><li>45-day input period through Sept. 2</li></ul>Initial Topics for “Tier 1” Pilot Projects<br /><ul><li>30-day input period through Aug. 31</li></ul>These solicitations for input go beyond PCORI’s statutory requirements<br />Demonstrates PCORI’s commitment to patient and stakeholder involvement throughout our work<br />Rare for researchers and the public to get the chance to preview and influence what a call for applications may contain<br />This transparency and access will be typical of PCORI<br />Webform, email and mail feedback options provided through http://pcori.org/provideinput.html<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  21. 21. Tier 1 Pilot Projects<br />Request for applications (RFA) in late September 2011<br />Eight (8) initial topics identified for the pilot projects, focusing on developing, testing or evaluating approaches that: <br /><ul><li>inform the national priorities
  22. 22. bring together different stakeholders in all stages of a research process
  23. 23. translate research into practice
  24. 24. identify gaps in evidence that most affect vulnerable populations
  25. 25. identify predictors of patient outcomes
  26. 26. elucidate behaviors, lifestyles, and choices within patient control that may influence their outcomes
  27. 27. study patient-clinician interaction
  28. 28. assess strategies that respect patient autonomy and promote informed decision-making, incorporating the best healthcareknowledge into the application of care</li></ul>PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />
  29. 29. Connect with PCORI<br />Website: pcori.org<br />Email: info@pcori.org<br />Provide feedback<br />Submit inquiries<br />Join PCORI’s mailing list<br />Live webcast provided for all Board meetings.<br />PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE<br />

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