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The Center for Translational andPolicy Research on PersonalizedMedicineTo improve patient outcomes, new technologies mustm...
We Can’t Address Issues Alone
Health Plans       Patient          and Payers       AdvocatesPharmacy                            Academic Benefit        ...
TRANSPERS UsesToolbox of SocialScience Approaches& Methods…
…To UnderstandHealth PolicyIssues…
…In the Brave New World of   New Technologies &  Personalized Medicine
Personalized Medicine isHere Now – and is the Wave      of the Future              But a Deluge              of Information
Number of Diseases for                Which Genetic Tests are                Available Rapidly2600250024002300220021002000...
Cost of Whole GenomeSequencing is Falling
Now the Big Challenge:     Having It All
New TRANSPERS Study Benefit-Risk Tradeoffs for Whole      Genome Sequencing• How do patients and providers value  informat...
For More Informationhttp://transpers.ucsf.eduTRANSPERSinfo@ucsf.eduPhillipsK@pharmacy.ucsf.edu
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Panacea or Pandora's Box? The $1,000 Genome is Here - Now What Do We Do?

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Powerpoint Presentation by:
Kathryn A. Phillips, PhD
Professor of Health Economics and Health Services Research

Published in: Health & Medicine
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Panacea or Pandora's Box? The $1,000 Genome is Here - Now What Do We Do?

  1. 1. The Center for Translational andPolicy Research on PersonalizedMedicineTo improve patient outcomes, new technologies mustmove through the Translational Continuum…. Adoption Basic Clinical Policy Research Adoption Outcomes Research Research …and we must answer these questions…. How do we trade-off between What evidence do Who has access to decisionmakers preferences, costs, How can we interventions? need? and benefits? consider diversity? How to translate knowledge to real world?
  2. 2. We Can’t Address Issues Alone
  3. 3. Health Plans Patient and Payers AdvocatesPharmacy Academic Benefit GroupsManagers TRANSPERS is Integrated Across StakeholdersIndustry & Government Venture Groups Capital Labs Professional Organizations
  4. 4. TRANSPERS UsesToolbox of SocialScience Approaches& Methods…
  5. 5. …To UnderstandHealth PolicyIssues…
  6. 6. …In the Brave New World of New Technologies & Personalized Medicine
  7. 7. Personalized Medicine isHere Now – and is the Wave of the Future But a Deluge of Information
  8. 8. Number of Diseases for Which Genetic Tests are Available Rapidly2600250024002300220021002000 Increasing1900180017001600150014001300120011001000 900 800 700 600 500 400 300 200 100 0 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 www.GeneTests.org. Univ of WA
  9. 9. Cost of Whole GenomeSequencing is Falling
  10. 10. Now the Big Challenge: Having It All
  11. 11. New TRANSPERS Study Benefit-Risk Tradeoffs for Whole Genome Sequencing• How do patients and providers value information provided?• Will sequencing will be covered by payers?• Will value outweigh costs? – PI: Kathryn A. Phillips UCSF, 2013-2017, $2.4M – With Harvard Medical School
  12. 12. For More Informationhttp://transpers.ucsf.eduTRANSPERSinfo@ucsf.eduPhillipsK@pharmacy.ucsf.edu

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