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DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)

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Presentation by Lisa Federer (UCLA) on 16 July 2013 as part of the IMLS-sponsored DMPTool Webinar Series.
Description: This webinar will discuss the special needs of health sciences researchers and help you learn how to talk to researchers in the health and medical fields about their data management needs. We will cover NIH Data Sharing Policy and how to write a data management plan that meets NIH’s requirements. After viewing this webinar, participants will understand: who is required to submit a plan; specific information that should be included in a plan; how to use the DMPTool to write an NIH-specific DMP; and where to find additional resources for help.

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DMPTool Webinar 6: Health Sciences and the DMPTool (presented by Lisa Federer)

  1. 1. Logistics for Webinar You Must Call In ForAudio: 866-740-1260 access code 9870179# Participants muted Ask questions in chat any time 20 minutes for Q&A Recording & slides, schedule of webinars: blog.dmptool.org/webinar-series DMPToolWebinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS 16 July 2013
  2. 2. Health Sciences and the DMPTool #dmptwebinar FromFlickr–Username:phalinn Lisa Federer | @lisafederer University of California-LosAngeles, Louise M. Darling Biomedical Library DMPToolWebinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS 16 July 2013
  3. 3. 28 May Introduction to the DMPTool 4 June Learning about data management: Resources, tools, materials 18 June Customizing the DMPTool for your institution 25 June Environmental Scan:Who's important at your campus 9 July Promoting institutional services; EZID Outreach Made Simple! 16 July Health Sciences & DMPTool - Lisa Federer, UCLA 23 July Digital humanities and the DMPTool - Miriam Posner, UCLA 13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue How to give the data management sales pitch to various audiences Other tools and resources that work with/complement the DMPTool Beyond funder requirements: more extensive DMPs Case studies 1 – How librarians have successfully used the tool Case studies 2 – How librarians have successfully used the tool Outreach Kit Introduction Certification program introduction blog.dmptool.org/webinar-series
  4. 4. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  5. 5. Webinar Goals • Introduce requirements relevant to health sciences researchers • Provide an overview of info to include in plans • Demonstrate how to use the DMPTool to support NIH • Point to resources for further help From Flickr– Username: AG Gilmore
  6. 6. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  7. 7. NIH Sharing Policies • NIH Data Sharing Policy • NIH Grants Policy Statement (2.3.11.2.3 Access to Research Data) • For full list of NIH policies, see http://grants.nih.gov/gr ants/sharing.htm
  8. 8. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  9. 9. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  10. 10. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  11. 11. Data Sharing Policy - Applicability • applicants seeking >$500,000 in annual direct costs • applications submitted after October 1, 2003 • final research data for research purposes • all types of research data (clinical/basic science), especially unique data From Flickr– Username: bengrey
  12. 12. Components of the NIH Application • Data Sharing Plan (or explanation of why data sharing is not possible) • Budget/Budget Justification • Background and Significance Section • Human Subjects Section From Flickr– Username: Raphael Moser
  13. 13. Components of the NIH Application • Data Sharing Plan (or explanation of why data sharing is not possible) • Budget/Budget Justification • Background and Significance Section • Human Subjects Section From Flickr– Username: Raphael Moser
  14. 14. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  15. 15. NIH Guidance
  16. 16. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  17. 17. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  18. 18. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  19. 19. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  20. 20. Data Sharing Plan • schedule for sharing • data formats • documentation and/or analytic tools provided with datasets • data-sharing agreement • mode of data sharing From Wikimedia Commons – German Federal Archives
  21. 21. Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
  22. 22. Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
  23. 23. Schedule for Sharing • “timely fashion” • release no later than acceptance for publication of main findings • for epidemiological or longitudinal studies, release data in “waves” as available From Flickr– Username: Kate Tomlinson
  24. 24. Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
  25. 25. Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
  26. 26. Data Formats • proprietary vs. open formats • consider formats required by archives • rationale for why this format was selected
  27. 27. Data Documentation metadata schemas FromFlickr–Username:Sarah0s codebook ImagefromCDC FromFlickr–Username:deltaMike analytic tools
  28. 28. Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
  29. 29. Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
  30. 30. Data-sharingAgreements • outline requirements for ensuring privacy and confidentiality • stipulate provisions for how shared data may be used • may include penalties for violating agreement From Wikimedia– Username: Lucas
  31. 31. Modes for Data SharingFromFlickr–Username:ichibod FromWikimedia–Username:Dake under the auspices of the PI in a data archive FromFlickr–Username:NovartisAG in a data enclave FromFlickr–Username:loop_oh
  32. 32. Budget and Budget Justification • include request for funds for sharing/archiving • PIs may need assistance on estimating costs for data preparation and archiving From Flickr– Username: 401(K) 2013
  33. 33. Budget and Budget Justification • include request for funds for sharing/archiving • PIs may need assistance on estimating costs for data preparation and archiving From Flickr– Username: 401(K) 2013
  34. 34. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  35. 35. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  36. 36. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  37. 37. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  38. 38. Privacy of Human Subjects • strip identifiers from data • indirect identifiers and “deductive disclosure” • restricted data enclaves • data-sharing agreements From Wikimedia Commons– National Cancer Institute
  39. 39. Withholding Proprietary Data • Small Business Innovation Research (SBIR) grantees = up to 4 years • Private sector co- funding = 30-60 days From Flickr– Username: m thierry
  40. 40. Withholding Proprietary Data • Small Business Innovation Research (SBIR) grantees = up to 4 years • Private sector co- funding = 30-60 days From Flickr– Username: m thierry
  41. 41. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  42. 42. Creating a plan with the DMPTool
  43. 43. Road Map Goals of thisWebinar NIH policy overview What to include in a plan Special considerations DMPTool and NIH Plans Resources & more info From Flickr– Username: Bastian
  44. 44. Resources • NIH Data Sharing Overview: http://grants.nih.gov/grants/policy/data_sharing/ • NIH Data Sharing Policy and Implementation Guidance: http://grants.nih.gov/grants/policy/data_sharing/data_shari ng_guidance.htm • Full list of NIH sharing policies by Institute: http://www.nlm.nih.gov/NIHbmic/nih_data_sharing_policies .html • Example data sharing agreements from NCI: https://wiki.nci.nih.gov/display/DSIC/Data+Sharing+Agreem ents • Sample plan from NIH (Word doc): http://grants.nih.gov/grants/sharing_example_data_sharing _plan.doc
  45. 45. blog.dmptool.org/ webinar-series From Flickr by Jeff Keacher Next week: Digital Humanities & the DMPTool Presenter: Miriam Posner, UCLA Tuesday 23 July @ 10am PT
  46. 46. blog.dmptool.org/webinar-series/
  47. 47. 28 May Introduction to the DMPTool 4 June Learning about data management: Resources, tools, materials 18 June Customizing the DMPTool for your institution 25 June Environmental Scan:Who's important at your campus 9 July Promoting institutional services; EZID Outreach Made Simple! 16 July Health Sciences & DMPTool - Lisa Federer, UCLA 23 July Digital humanities and the DMPTool - Miriam Posner, UCLA 13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue How to give the data management sales pitch to various audiences Other tools and resources that work with/complement the DMPTool Beyond funder requirements: more extensive DMPs Case studies 1 – How librarians have successfully used the tool Case studies 2 – How librarians have successfully used the tool Outreach Kit Introduction Certification program introduction blog.dmptool.org/webinar-series
  48. 48. Email Twitter Website lmfederer@library.ucla.edu @lisafederer http://www.lisafederer.net Questions?

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