Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.
Dementia-friendly technology charter Workshop 
Ali Rogan DFT Chair of task and finish group for Alzheimer’s Society, Exter...
Outline 
•Introductions and Context 
•Hearing from people with dementia - video 
•The DFT charter – ambitions, learning, n...
Prime Minister’s Challenge 
3
Sub Sector Task & Finish Groups 
4 
Civil Society 
Arts 
Technology 
Financial Services 
Sport & Leisure 
Transport 
Rural...
Video 
5 
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=2699
General thoughts on technology? 
6 
Seemed a good idea, but you would need to get used to it 
Everyone is different, some ...
What difficulties do you think could be made easier by technology? 
Peace of mind and reassurance 
Alarms and sensors for ...
Dementia Friendly Communities – Technology task and finish group 
•Enable every person with dementia to have the opportuni...
Dementia-friendly Technology Charter contributors 
•Alzheimer’s Society service user review panels 
•ADASS West Midlands T...
Dementia-friendly technology charter 
10 
www.alzheimers.org.uk/ technologycharter
11
Types of technology 
Safety 
Enabling people with dementia to live as fully as possible without putting themselves and oth...
Components of a good quality technology service 
13 
Service Blueprint 
Standards 
Timely referral 
Timely assess- ment 
E...
DFT charter - First year ambitions 
Charter published and communicated 
Work towards having all CCGs*, local authority and...
What does signing up to the charter mean for my organisation? 
Recommendations for commissioners, providers and suppliers ...
Supporting People with Dementia 
Call Monitoring Centre Perspective 
Rhianwen Jones 
North Wales Regional Telecare 
Strate...
North Wales Regional Call Monitoring Service 
Bilingual Welsh/English 
24/7 
22,500+ connections (52% aged over 80yrs) ...
Current Services 
•Social Alarms 
•Telecare 
•GPS tracking 
•Telehealth 
•Telephone Check Calls 
•Lone Working 
•Carer Car...
Social 
Managing Risk 
Environmental 
& Security 
Social 
Medical 
Nutrition 
Cognition 
Mobility 
Fire 
Flood 
Gas 
Intru...
Effective Communication Required 
for appropriate response 
Rapid 
Response 
Team 
Lifting 
service 
24 Hour 
--Nurse 
24 ...
3 Key Elements for Success 
1.Prescription of the correct equipment 
2.Compliance 
3.Response
•Dementia - a term used to describe various different brain disorders 
•Symptoms include loss of memory, confusion, proble...
Common Types of Dementia 
•Alzheimer’s Disease: Progressive - 62% of cases. Ambloid plaques cause damage to neurone & brai...
Common Types of Dementia 
•Dementia with Lewy Bodies: 15% of cases. Protein deposits called Lewy Bodies cause damage to ne...
Stages of Dementia 
Slipping: gradually becoming aware of minor lapses in memory. 
Suspecting: “normalising” of events b...
How do we know? 
What type of dementia do they have? 
What stage of dementia are they – early stages or progressed? 
Ho...
Systems in place 
Referral pathways which collect detailed information 
On screen information for a positive response 
...
How can we improve? 
Element 
Prescription of the correct equipment 
Compliance 
Response 
Issues 
What’s available? H...
Galw Gofal Contact Details 
Rhianwen Jones 
North Wales Regional Telecare Strategic Manager 
Tel: 01492 577781 or 07557 48...
A perspective from SE Wales 
David Williams
Effective care and support does mean working together – across health and social care – plus housing sector and care prov...
There is a new challenge is emerging in the form of an increasing number of people with early onset of Alzheimer’s. They ...
Cwmgelli – Blackwood, in Caerphilly. 
‘A simple and safe environment is what people with dementia want, they want to mak...
Mr C, aged 75 suffers from the early onset of Alzheimer’s and has been trialling the a mobile device for a month. He like...
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3 years. She appeared settled and had a good rapp...
37
Discussion 
•How best to achieve the aims of the charter 
•What else do we need to do 
38
Q&A Thank you 
Ali Rogan alison.rogan@tunstall.com | @AliRogan 
Rhianwen Jones rhianwen.jones@conwy.gov.uk 
David Williams...
Alzheimer’s Society Dementia-friendly technology workshop #Teleconf2014
Upcoming SlideShare
Loading in …5
×

Alzheimer’s Society Dementia-friendly technology workshop #Teleconf2014

3,530 views

Published on

Alzheimer’s Society Dementia-friendly technology (DFT) workshop at the Telecare Services Association's International Telecare and Telehealth Conference, Celtic Manor Resort, South Wales

http://www.telecare.org.uk/conference

The workshop discussed how the Dementia-friendly technology charter came about and the feedback received as well as what signing up to the charter means for organisations.

Find out more at alzheimers.org.uk/technologycharter

Published in: Healthcare
  • Be the first to comment

  • Be the first to like this

Alzheimer’s Society Dementia-friendly technology workshop #Teleconf2014

  1. 1. Dementia-friendly technology charter Workshop Ali Rogan DFT Chair of task and finish group for Alzheimer’s Society, External Affairs Director, Tunstall Healthcare Rhianwen Jones North Wales Regional Telecare Strategic Manager, Galw Gofal, Colwyn Bay David Williams Telecare Project Manager, Sewic (South East Wales Improvement Consortium) 18 November 2014 12.00-13.00
  2. 2. Outline •Introductions and Context •Hearing from people with dementia - video •The DFT charter – ambitions, learning, next steps •Dementia friendly technology in –North Wales –South Wales •How to best achieve the charters’ aims 2
  3. 3. Prime Minister’s Challenge 3
  4. 4. Sub Sector Task & Finish Groups 4 Civil Society Arts Technology Financial Services Sport & Leisure Transport Rural Communities Retail Employment Maintaining Personal Wellbeing
  5. 5. Video 5 http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=2699
  6. 6. General thoughts on technology? 6 Seemed a good idea, but you would need to get used to it Everyone is different, some people see them as intrusive, others view them as another way to stay as independent They need to be user friendly Can offer families peace of mind It should be introduced earlier in order for people with dementia to be able to be involved in the decision making and to have the opportunity to familiarise themselves with the technology Direct feedback from the Alzheimer’s Society Service User Review Panels
  7. 7. What difficulties do you think could be made easier by technology? Peace of mind and reassurance Alarms and sensors for independence Feels a bit like ‘Big Brother’ is watching you Medication dispensers This would be really useful – I always find it difficult to remember whether I’ve taken my tablet Safer Walking Technologies It would be like being watched, someone keeping an eye on you It might be nice as it would be like someone walking alongside you, able to lend a hand if you got lost Direct feedback from the Alzheimer’s Society Service User Review Panels It’s like having someone to come and stand by you
  8. 8. Dementia Friendly Communities – Technology task and finish group •Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs •To outline and encourage high level principals and best practice for those organisations providing services to people with dementia 8 Aims of the Dementia-friendly technology charter •First meeting 15.11.13 •Brought together over 33 organisations •and many more individuals •Charter launched to media 17.6.14 •Physical launch Alzheimer’s Show 4.7.14 Journey
  9. 9. Dementia-friendly Technology Charter contributors •Alzheimer’s Society service user review panels •ADASS West Midlands Telehealthcare Network •Advanced Digital Institute •Alzheimer's Society •Association of Directors of Adult Social Services •Bournemouth University, Dementia Studies Unit •British Assistive Technology Association •BT •Bury Council •Children's Charities' Coalition •City University London •Design Council •Doncaster Dementia Strategic Partnership •Halton Borough Council •Hertfordshire County Council •Just Checking •Local Government Association •London Borough of Croydon, AZTEC Centre •London Fire Brigade •Mid Cheshire Hospitals NHS Foundation Trust •National Museums Liverpool •NHS England •NIHR Dementia and Neurodegenerative Diseases Research Network (DeNDRoN) •One Voice for Accessible ICT Coalition •Public Health England •Registered Nursing Home Association •Sanctuary Supported Living •South London and Maudsley NHS Foundation Trust •Stockport Council •Telecare Services Association •trueCall Nuisance phone call blocking •Tunstall Healthcare •University Hospitals Birmingham NHS Foundation Trust •Westminster Rehabilitation Services Central London Community Healthcare NHS Trust
  10. 10. Dementia-friendly technology charter 10 www.alzheimers.org.uk/ technologycharter
  11. 11. 11
  12. 12. Types of technology Safety Enabling people with dementia to live as fully as possible without putting themselves and others at risk Health Supporting people to manage, assess and treat co- morbidities and improve health outcomes Enhancing Devices or apps to improve the quality of life for people with dementia 12
  13. 13. Components of a good quality technology service 13 Service Blueprint Standards Timely referral Timely assess- ment Ethics and Consent Service set up Monitoring Response Re- evaluation
  14. 14. DFT charter - First year ambitions Charter published and communicated Work towards having all CCGs*, local authority and housing commissioners signed up All service and technology providers signed up 14 *CCGs = Clinical Commissioning Groups
  15. 15. What does signing up to the charter mean for my organisation? Recommendations for commissioners, providers and suppliers 15 •The statutory right to a social care assessment should always include a consideration for dementia-friendly technology Assessment •A single, simple to use, updated web resource for dementia friendly technology should be developed Up to date national resource •Accessible and easy to find information that lists where technology is available in their local areas. This info should reference and include a link to this charter Local resources •Technology providers should take into account the specific needs of people with dementia when developing care services that use technology User friendly technology
  16. 16. Supporting People with Dementia Call Monitoring Centre Perspective Rhianwen Jones North Wales Regional Telecare Strategic Manager
  17. 17. North Wales Regional Call Monitoring Service Bilingual Welsh/English 24/7 22,500+ connections (52% aged over 80yrs) Receive over 54k calls per month Enable people to live in their own homes Maximise independence and potential Supporting people in a safe environment with dignity
  18. 18. Current Services •Social Alarms •Telecare •GPS tracking •Telehealth •Telephone Check Calls •Lone Working •Carer Cards •Out of Hours services e.g. Housing, Social Services EDT •Disaster Recovery & Business Continuity
  19. 19. Social Managing Risk Environmental & Security Social Medical Nutrition Cognition Mobility Fire Flood Gas Intruders Cardiac arrest Medication Asthma attack
  20. 20. Effective Communication Required for appropriate response Rapid Response Team Lifting service 24 Hour --Nurse 24 hr. Home Care Relatives & friends Mobile Warden Duty Social Worker Community Alarm Centre Out-of-hours GP Fire service Ambulance Police Emergency plumber 24 hour Gas fitter
  21. 21. 3 Key Elements for Success 1.Prescription of the correct equipment 2.Compliance 3.Response
  22. 22. •Dementia - a term used to describe various different brain disorders •Symptoms include loss of memory, confusion, problems with speech and understanding •Over 100 different types of dementia •Prevalence rates in UK is 1:5 people aged over 80 + have dementia Challenges of Dementia
  23. 23. Common Types of Dementia •Alzheimer’s Disease: Progressive - 62% of cases. Ambloid plaques cause damage to neurone & brain tissue. Ability to remember, reason, understand & communicate gradually decreases. •Vascular Disease – 3 types. Arteriosclerotic: reduction of oxygen to the brain. Vascular: sudden onset dementia following a stroke. Multi-infarct: a gradual onset usually following a series of mini strokes. •Korsakoffs Syndrome. Condition related to alcohol abuse and thiamine(vitamin B1) deficiency. Disorder resulting in a memory defect in which new information fails to be learnt.
  24. 24. Common Types of Dementia •Dementia with Lewy Bodies: 15% of cases. Protein deposits called Lewy Bodies cause damage to nerve cells. Symptoms similar to Parkinson’s – stiffness, slowness of movement, tremors etc. No visual features e.g. hallucinations. •Picks Disease – Damage to the frontal or temporal lobes of the brain causing dementia. These parts of the brain are responsible for behaviour, judgement, planning, emotional response and language. People may behave in an unacceptable manner, have little concentration and follow repetitive compulsive routines
  25. 25. Stages of Dementia Slipping: gradually becoming aware of minor lapses in memory. Suspecting: “normalising” of events becomes less successful. Covering up: a conscious deliberate effect is made to hide difficulties. Revealing: being confronted with patterns of loss that cannot be ignored. Confirmation: open acknowledgement of the problem - diagnosis Maximising: use of adaptive techniques to compensate for losses. Disorganisation: cognitive difficulties and associated behaviour an increasingly dominant feature Decline: further loss of cognitive and physical ability
  26. 26. How do we know? What type of dementia do they have? What stage of dementia are they – early stages or progressed? How is their cognition and communication abilities? What is their normal routine? What are their usual anxieties? Do they wonder out? What risks to they face? Are they having a good or a bad day?
  27. 27. Systems in place Referral pathways which collect detailed information On screen information for a positive response Incident reporting – escalation of information for needs assessment and review Staff training awareness & developing experience Formal response service to support carers in most areas Records of information – shared Identifying trends in behavioural patterns Learning from incidents and policy review Statistical analysis and predictions for service planning Consultation for service & business planning Networking and regional forums
  28. 28. How can we improve? Element Prescription of the correct equipment Compliance Response Issues What’s available? How do we maintain knowledge? How do we ensure Positive Risk Taking and trust in Telecare? How should dementia be factored into business models? Training? How do we ensure in-depth understanding of dementia and how it affects every individual? How can we ensure robust initial & regular update of information? How can we ensure training for service users & carers? How do we focus on carers? Who responds? What relationship do we have with emergency services & health? How can we share information effectively? Support for carers? Appropriate training?
  29. 29. Galw Gofal Contact Details Rhianwen Jones North Wales Regional Telecare Strategic Manager Tel: 01492 577781 or 07557 480320 E-mail: rhianwen.jones@conwy.gov.uk Extracts from: SCiP presentation 2014 provided by Dr Kevin Doughty. dr.k.doughty@btinternet.com Mob: 07810797971 Supporting the Dementia Journey by Carolyn Goble Head of Learning Development, Person Shaped Support, Liverpool Carolyn.goble@pss.org.uk T: 0151 702 5528 Mob: 07595 863 202
  30. 30. A perspective from SE Wales David Williams
  31. 31. Effective care and support does mean working together – across health and social care – plus housing sector and care providers Role of SEWIC to facilitate and support links – Assistive Technology and Accommodation with Care Reference Groups Workshop events – linking care and accommodation providers - encouraging the development of partnership working. Mapping out potential schemes for re-development and planned new developments Regional linkage to suppliers – trial of new equipment, feedback and operational views – Age Connect day services example Social Care and Wellbeing Act 2014 – greater emphasis on prevention, early intervention, information/advice/assistance, new models of care
  32. 32. There is a new challenge is emerging in the form of an increasing number of people with early onset of Alzheimer’s. They remain physically able and want to continue to live their lives as they always have done – going out and about, doing the shopping, visiting friends and family, and going on holidays. But their condition can limit them to their home and immediate area. Traditional telecare, which is dependent on a fixed telephone line, only compounds this by offering help but only in the confines of a user’s home. This not only limits people’s horizons but means they often need a carer when leaving their homes despite being active. Engagement with carers is vitally important – to support the caring role and to understand each individual situation. Medication support and reminders are a useful tool – ICF project in Aneurin Bevan Health Board
  33. 33. Cwmgelli – Blackwood, in Caerphilly. ‘A simple and safe environment is what people with dementia want, they want to make it their home and put their stamp on it.’ – Member of Review Panel. 22 bed scheme for younger people with dementia (under 65’s) with family suite and external pavilion building for activities. Seren Group are working closely with ABHB and Alzheimer's Society. Currently on site and due to complete Jan/Feb 2015. Telecare overlay developed through linkage to Merthyr demonstration facility (Kier Hardie Health Park) and linkage with Carers group
  34. 34. Mr C, aged 75 suffers from the early onset of Alzheimer’s and has been trialling the a mobile device for a month. He likes to maintain his independence and takes enjoyment from going into town for a coffee and a shop. Unfortunately due to his condition he would sometimes get lost, leading to distress and worry for Mrs C, his carer and family. By using a mobile device Mr C is now able to go in to town independently. If he becomes distressed he can easily contact his carer or family within the touch of a button. His family members and carer’s are also able to contact him through the handset. The service has greatly improved his confidence to go in to town allowing him the freedom and independence he requires, and giving his family and carers reassurance.
  35. 35. Mrs B had dementia and had lived in an EMH unit in Residential Home for 3 years. She appeared settled and had a good rapport with the staff. Staff had noticed that during the night Mrs B was attempting to climb onto the white sink basin in her room believing it to be a toilet; this was putting her at huge risk of falling and loss of dignity. Mrs B`s Social Worker carried out a Mental Capacity test in order to identify if Mrs B had the mental capacity to make an informed decision about the provision of Telecare equipment. This test identified that Mrs B did not have the mental capacity to make an informed decision about the provision of Telecare equipment so a Best Interest decision was made to provide the least restrictive option of Telecare provision in order to keep her safe. An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B attempted to get out of bed. This enabled staff to assist Mrs B to her toilet, provide her with reassurance and settle her back to bed safely.
  36. 36. 37
  37. 37. Discussion •How best to achieve the aims of the charter •What else do we need to do 38
  38. 38. Q&A Thank you Ali Rogan alison.rogan@tunstall.com | @AliRogan Rhianwen Jones rhianwen.jones@conwy.gov.uk David Williams david.hartwellwilliams@torfaen.gov.uk

×