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Data & Technological Citizenship - During the COVID-19 Pandemic

  1. Tracey P. Lauriault Associate Professor, Critical Media and Big Data, School of Journalism and Communication, Carleton University @TraceyLauriault Data & Technological Citizenship During the COVID-19 Pandemic 03/07/2020 | Zoom | OLIP Health and Wellbeing Sector Table Meeting, Ottawa Tracey P. Lauriault Associate Professor, Critical Media and Big Data, School of Journalism and Communication, Carleton University @TraceyLauriault
  2. 2 Funded by Carleton University COVID-19 Rapid Research Response Grant Research Results PRINCIPAL INVESTIGATOR Tracey Lauriault Critical Media and Big Data, School of Journalism and Communication, Carleton University RESEARCH ASSISTANT, DESIGN, & COORDINATION Kit Chokly Graduate Student, School of Journalism and Communication, Carleton University Research Team RESEARCH ASSISTANT Amanda Hunter Graduate Student, School of Journalism and Communication, Carleton University b0382372/ RESEARCH ASSISTANT, ACCESSIBILITY Aidan Battley Undergraduate student in Communications and Media Studies, at Carleton University RESEARCH ASSOCIATE Sam Shields Self-Employed, Graduate of Political Science & Communications and Media Studies Programs RESEARCH ASSISTANT, COMMUNICATION Meelo Fairfax-Angod Undergraduate Student in Faculty of Communications and Media Studies at Carleton University
  3. Contents 3 1. Introduction 2. Objectives 3. Rationale 4. Theoretical Framework • Critical Data Studies • Data & Technological Citizenship • Rights Based Approach to Data during a Crisis 5. Current Topic Areas • Comparative analysis of official COVID- 19 demographic data reporting & • Intersectionality & COVID-19 Data & telling data stories visually • Design & telling visual data stories • Disability Data & COVID-19 • Open Science, Open Government and Open Data • Framework & foundational Datasets 6. Refences
  4. DOI 10.1000/xyz123 Objectives •The project’s objectives are to: 1. Compare official COVID-19 public health data reports to identify gaps and best practices 2. Identify and support the building of framework datasets to standardize reporting 3. Analyze data standards and protocols to support data management, interoperability and cross-jurisdictional reporting 4. Publish case-studies, resources, archives of official reporting, and a glossary 5. Rapidly conduct expert analysis, peer review, knowledge mobilization and provide evidence-based recommendations to improve how data are reported 4
  5. Rationale • Official COVID-19 public health data are inconsistently reported, impeding comparability, and the ability to assess impact and target actions. • Data to inform the inequities experienced by Indigenous & racialized groups are inadequate as are data about people with disabilities, gender beyond the binary and some classes of labour • Lack of framework and foundational datasets upon which analysis can be made – data infrastructure • There is a lack of standards & protocols in reporting impeding interoperability • Need to rapidly report observations and critical data research to advance and frame public policy about the response 5
  6. Theoretical Framework • The project is theoretically informed by 1. Critical Data Studies • Data have social and material shaping qualities and they are never politically neutral • Data are inseparable from the people and institutions who create & own them nor from the practices, techniques, and infrastructures of their life-cycle • Data are viewed as a social and technological assemblage 2. Data & Technological Citizenship • Data & their technologies are political, and actors beyond government ought to actively be part of the deliberations of how data are created, managed and used 3. Rights-based approach to the management of data & technologies • A pandemic is a crisis, but this does not mean that rights ought to be waved in the name of efficiency, expediency and technological solutionism 6
  7. Current topic areas • Intersectional Empiricism 1. Indigenous Rights & Traditional Knowledge approaches to data 2. Critical race theory & data 3. Critical gender & feminist theory & data 4. Critical disability studies – social model of disability & data • Openness • Open science • Open government • Open data • Design & Communication 7
  8. What kind of demographic data are reported? • Comparative analysis of the data reported on Official Federal, Provincial and Territorial Websites (Shields & Lauriault) • What kind of demographic data are reported in official COVID19 reports? • Age • sex variables • labour classifications • Indigenous, Black and Racialized People • Disability • 8
  9. Intersectionality & COVID-19 • Developing an intersectional approach to assess official COVID- 19 data reporting (Chokly & Lauriault) • What does an intersectional graphic vocabulary look like? • How to visually communicate intersectionality to tell data stories? • What is the visual narrative expressed in official COVID-19 dashboards • What does an intersectional data life- cycle look like? • Stay tuned for the first blog post! 9
  10. Disability & COVID-19 • What does a social model of disability of COVID-19 data reporting look like? (Battley & Lauriault) • What are standardized classifications? • Are official sites accessible? • What datasets are missing? Datasets on accessible accommodation and long term dwellings? • How are people with disabilities classified in CERB? ODSP? Taxation? 10
  11. Open Science, Open Government & Open Data • What type of open principles should apply to COVID-19 Data and reporting? (Hunter & Lauriault) • Open by Default? • How do the principles of FAIR + RDA + OEDC + Open Science + OCAP apply to COVID-19 Data? • What principles should be applied to COVID-19 data & what is missing? • What does the COVID-19 data lifecycle look like? • How does official report fare according to these? 11
  12. Framework Data • Framework data (Lauriault) • are a “set of continuous and fully integrated geospatial [or topical] data that provide context and reference information for the country. Framework data are expected to be widely used and generally applicable, either underpinning or enabling geospatial applications” P.7. 12
  13. References • @Rede4BlackLives Protocol • Agency and Citizenship in a Technological Society • Canadian Geospatial Data Infrastructure Framework Data • CanCOVID Speaker Series: Integrating age, sex, gender, race and other factors into COVID research • Critical Race Theory, Race Equity, and Public Health: Toward Antiracism Praxis • Data Feminism • Data Standards for the Identification and Monitoring of Systemic Racism systemic-racism • Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics • First Nations Information Governance OCAP Principles • GO-FAIR Starter Kit • HHI The Signal Code: A Human Rights Approach to Information During Crisis information-during-crisis • Nested Models for Critical Studies of Race & Racism: Creating Measures of Supraindividual Racism • OECD Principles and Guidelines for Access to Research Data from Public Funding • Open Government Canada • Research Data Alliance (RDA) The final version of the RDA COVID-19 Recommendations and Guidelines for Data Sharing, published 30 June 2020 https://www.rd- • Roadmap to Open Science • Toward a Critical Data Studies id2474112.pdf • WHO ICD International Classification of Functioning, Disability and Health (ICF) 13
  14. Current Outputs • July 7, OLIP Health and Wellbeing Sector Table Meeting Slides • June 1, Tracing COVID-19 Data: Project Description: during-the-covid-19-pandemic/ • May 30, Applications de traçage de contacts: entre doute et inquiétude entre-doute-et-inquietude-ec471da8755aa3efa84afd5da47b025e • Apr. 17, COVID-19 Demographic Reporting demographic-reporting/ • Apr. 7, Framework Data by Health Region? national-map-of-covid-19-data-by-public-health-units-in-canada/ • Mar. 31, Data Humanitarianism during a Pandemic humanitarianism-during-a-pandemic/ • Mar. 25, COVID-19 Cell Phone Tracking Data – A Health Surveillance Privacy Paradox? surveillance-privacy-paradox/ 14