Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.

Data & Technological Citizenship - During the COVID-19 Pandemic

Project description presented at the OLIP Health and Wellbeing Sector Table Meeting, Ottawa

Work referenced:
@Rede4BlackLives Protocol https://rede4blacklives.com/the-protocol/
Agency and Citizenship in a Technological Society http://www.sfu.ca/~andrewf/copen5-1.pdf
Canadian Geospatial Data Infrastructure Framework Data http://ftp.geogratis.gc.ca/pub/nrcan_rncan/publications/ess_sst/288/288855/cgdi_ip_09_e.pdf
CanCOVID Speaker Series: Integrating age, sex, gender, race and other factors into COVID research https://www.youtube.com/watch?v=HbZ3IAWTJAg&pbjreload=10
Critical Race Theory, Race Equity, and Public Health: Toward Antiracism Praxis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2837428/
Data Feminism https://mitpress.mit.edu/books/data-feminism
Data Standards for the Identification and Monitoring of Systemic Racism https://www.ontario.ca/document/data-standards-identification-and-monitoring-systemic-racism
Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8/
First Nations Information Governance OCAP Principles https://fnigc.ca/
GO-FAIR Starter Kit https://www.go-fair.org/resources/rdm-starter-kit/
HHI The Signal Code: A Human Rights Approach to Information During Crisis https://hhi.harvard.edu/publications/signal-code-human-rights-approach-information-during-crisis
Nested Models for Critical Studies of Race & Racism: Creating Measures of Supraindividual Racism https://www.youtube.com/watch?v=04OZ3BFPpVg&feature=youtu.be
OECD Principles and Guidelines for Access to Research Data from Public Funding https://www.oecd.org/science/inno/open-science.htm
Open Government Canada https://open.canada.ca/en/about-open-government
Research Data Alliance (RDA) The final version of the RDA COVID-19 Recommendations and Guidelines for Data Sharing, published 30 June 2020 https://www.rd-alliance.org/group/rda-covid19-rda-covid19-omics-rda-covid19-epidemiology-rda-covid19-clinical-rda-covid19-1
Roadmap to Open Science https://www.ic.gc.ca/eic/site/063.nsf/eng/h_97992.html
Toward a Critical Data Studies http://mural.maynoothuniversity.ie/5683/1/KitchinLauriault_CriticalDataStudies_ProgrammableCity_WorkingPaper2_SSRN-id2474112.pdf
WHO ICD International Classification of Functioning, Disability and Health (ICF) https://www.who.int/classifications/icf/en/

  • Login to see the comments

Data & Technological Citizenship - During the COVID-19 Pandemic

  1. 1. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Tracey P. Lauriault Associate Professor, Critical Media and Big Data, School of Journalism and Communication, Carleton University Tracey.Lauriault@Carleton.ca @TraceyLauriault https://orcid.org/0000-0003-1847-2738 Data & Technological Citizenship During the COVID-19 Pandemic 03/07/2020 | Zoom | OLIP Health and Wellbeing Sector Table Meeting, Ottawa Tracey P. Lauriault Associate Professor, Critical Media and Big Data, School of Journalism and Communication, Carleton University Tracey.Lauriault@Carleton.ca @TraceyLauriault https://orcid.org/0000-0003-1847-2738
  2. 2. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data 2 Funded by Carleton University COVID-19 Rapid Research Response Grant https://carleton.ca/coris/cu-covid-19-rapid-research-response-grants-2/ Research Results http://datalibre.ca/ PRINCIPAL INVESTIGATOR Tracey Lauriault Critical Media and Big Data, School of Journalism and Communication, Carleton University https://orcid.org/0000-0003-1847-2738 RESEARCH ASSISTANT, DESIGN, & COORDINATION Kit Chokly Graduate Student, School of Journalism and Communication, Carleton University kitchokly.com Research Team RESEARCH ASSISTANT Amanda Hunter Graduate Student, School of Journalism and Communication, Carleton University https://www.linkedin.com/in/amanda-hunter- b0382372/ RESEARCH ASSISTANT, ACCESSIBILITY Aidan Battley Undergraduate student in Communications and Media Studies, at Carleton University linkedin.com/in/aidan-battley-3b1274132/ RESEARCH ASSOCIATE Sam Shields Self-Employed, Graduate of Political Science & Communications and Media Studies Programs https://www.linkedin.com/in/samueltshields/ RESEARCH ASSISTANT, COMMUNICATION Meelo Fairfax-Angod Undergraduate Student in Faculty of Communications and Media Studies at Carleton University https://www.linkedin.com/in/meelofairfaxangod/
  3. 3. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Contents 3 1. Introduction 2. Objectives 3. Rationale 4. Theoretical Framework • Critical Data Studies • Data & Technological Citizenship • Rights Based Approach to Data during a Crisis 5. Current Topic Areas • Comparative analysis of official COVID- 19 demographic data reporting & • Intersectionality & COVID-19 Data & telling data stories visually • Design & telling visual data stories • Disability Data & COVID-19 • Open Science, Open Government and Open Data • Framework & foundational Datasets 6. Refences
  4. 4. DOI 10.1000/xyz123 Objectives •The project’s objectives are to: 1. Compare official COVID-19 public health data reports to identify gaps and best practices 2. Identify and support the building of framework datasets to standardize reporting 3. Analyze data standards and protocols to support data management, interoperability and cross-jurisdictional reporting 4. Publish case-studies, resources, archives of official reporting, and a glossary 5. Rapidly conduct expert analysis, peer review, knowledge mobilization and provide evidence-based recommendations to improve how data are reported 4
  5. 5. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Rationale • Official COVID-19 public health data are inconsistently reported, impeding comparability, and the ability to assess impact and target actions. • Data to inform the inequities experienced by Indigenous & racialized groups are inadequate as are data about people with disabilities, gender beyond the binary and some classes of labour • Lack of framework and foundational datasets upon which analysis can be made – data infrastructure • There is a lack of standards & protocols in reporting impeding interoperability • Need to rapidly report observations and critical data research to advance and frame public policy about the response 5
  6. 6. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Theoretical Framework • The project is theoretically informed by 1. Critical Data Studies • Data have social and material shaping qualities and they are never politically neutral • Data are inseparable from the people and institutions who create & own them nor from the practices, techniques, and infrastructures of their life-cycle • Data are viewed as a social and technological assemblage 2. Data & Technological Citizenship • Data & their technologies are political, and actors beyond government ought to actively be part of the deliberations of how data are created, managed and used 3. Rights-based approach to the management of data & technologies • A pandemic is a crisis, but this does not mean that rights ought to be waved in the name of efficiency, expediency and technological solutionism 6
  7. 7. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Current topic areas • Intersectional Empiricism 1. Indigenous Rights & Traditional Knowledge approaches to data 2. Critical race theory & data 3. Critical gender & feminist theory & data 4. Critical disability studies – social model of disability & data • Openness • Open science • Open government • Open data • Design & Communication 7
  8. 8. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data What kind of demographic data are reported? • Comparative analysis of the data reported on Official Federal, Provincial and Territorial Websites (Shields & Lauriault) • What kind of demographic data are reported in official COVID19 reports? • Age • sex variables • labour classifications • Indigenous, Black and Racialized People • Disability • http://datalibre.ca/2020/04/17/covid-19-demographic-reporting/ 8
  9. 9. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Intersectionality & COVID-19 • Developing an intersectional approach to assess official COVID- 19 data reporting (Chokly & Lauriault) • What does an intersectional graphic vocabulary look like? • How to visually communicate intersectionality to tell data stories? • What is the visual narrative expressed in official COVID-19 dashboards • What does an intersectional data life- cycle look like? • Stay tuned for the first blog post! 9
  10. 10. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Disability & COVID-19 • What does a social model of disability of COVID-19 data reporting look like? (Battley & Lauriault) • What are standardized classifications? • Are official sites accessible? • What datasets are missing? Datasets on accessible accommodation and long term dwellings? • How are people with disabilities classified in CERB? ODSP? Taxation? 10
  11. 11. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Open Science, Open Government & Open Data • What type of open principles should apply to COVID-19 Data and reporting? (Hunter & Lauriault) • Open by Default? • How do the principles of FAIR + RDA + OEDC + Open Science + OCAP apply to COVID-19 Data? • What principles should be applied to COVID-19 data & what is missing? • What does the COVID-19 data lifecycle look like? • How does official report fare according to these? 11
  12. 12. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Framework Data • Framework data (Lauriault) • are a “set of continuous and fully integrated geospatial [or topical] data that provide context and reference information for the country. Framework data are expected to be widely used and generally applicable, either underpinning or enabling geospatial applications” P.7. 12
  13. 13. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data References • @Rede4BlackLives Protocol https://rede4blacklives.com/the-protocol/ • Agency and Citizenship in a Technological Society http://www.sfu.ca/~andrewf/copen5-1.pdf • Canadian Geospatial Data Infrastructure Framework Data http://ftp.geogratis.gc.ca/pub/nrcan_rncan/publications/ess_sst/288/288855/cgdi_ip_09_e.pdf • CanCOVID Speaker Series: Integrating age, sex, gender, race and other factors into COVID research https://www.youtube.com/watch?v=HbZ3IAWTJAg&pbjreload=10 • Critical Race Theory, Race Equity, and Public Health: Toward Antiracism Praxis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2837428/ • Data Feminism https://mitpress.mit.edu/books/data-feminism • Data Standards for the Identification and Monitoring of Systemic Racism https://www.ontario.ca/document/data-standards-identification-and-monitoring- systemic-racism • Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8/ • First Nations Information Governance OCAP Principles https://fnigc.ca/ • GO-FAIR Starter Kit https://www.go-fair.org/resources/rdm-starter-kit/ • HHI The Signal Code: A Human Rights Approach to Information During Crisis https://hhi.harvard.edu/publications/signal-code-human-rights-approach- information-during-crisis • Nested Models for Critical Studies of Race & Racism: Creating Measures of Supraindividual Racism https://www.youtube.com/watch?v=04OZ3BFPpVg&feature=youtu.be • OECD Principles and Guidelines for Access to Research Data from Public Funding https://www.oecd.org/science/inno/open-science.htm • Open Government Canada https://open.canada.ca/en/about-open-government • Research Data Alliance (RDA) The final version of the RDA COVID-19 Recommendations and Guidelines for Data Sharing, published 30 June 2020 https://www.rd- alliance.org/group/rda-covid19-rda-covid19-omics-rda-covid19-epidemiology-rda-covid19-clinical-rda-covid19-1 • Roadmap to Open Science https://www.ic.gc.ca/eic/site/063.nsf/eng/h_97992.html • Toward a Critical Data Studies http://mural.maynoothuniversity.ie/5683/1/KitchinLauriault_CriticalDataStudies_ProgrammableCity_WorkingPaper2_SSRN- id2474112.pdf • WHO ICD International Classification of Functioning, Disability and Health (ICF) https://www.who.int/classifications/icf/en/ 13
  14. 14. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Current Outputs • July 7, OLIP Health and Wellbeing Sector Table Meeting Slides http://datalibre.ca/2020/07/03/olip-health-and-wellbeing/ • June 1, Tracing COVID-19 Data: Project Description: http://datalibre.ca/2020/06/01/tracing-covid-19-data-data-and-technological-citizenship- during-the-covid-19-pandemic/ • May 30, Applications de traçage de contacts: entre doute et inquiétude https://www.lesoleil.com/opinions/point-de-vue/applications-de-tracage-de-contacts- entre-doute-et-inquietude-ec471da8755aa3efa84afd5da47b025e • Apr. 17, COVID-19 Demographic Reporting http://datalibre.ca/2020/04/17/covid-19- demographic-reporting/ • Apr. 7, Framework Data by Health Region? http://datalibre.ca/2020/04/07/where-is-the- national-map-of-covid-19-data-by-public-health-units-in-canada/ • Mar. 31, Data Humanitarianism during a Pandemic http://datalibre.ca/2020/03/31/data- humanitarianism-during-a-pandemic/ • Mar. 25, COVID-19 Cell Phone Tracking Data – A Health Surveillance Privacy Paradox? http://datalibre.ca/2020/03/25/covid-19-cell-phone-tracking-data-a-health- surveillance-privacy-paradox/ 14

×