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EdgeTalks, March 3 2017, Chat

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EdgeTalks, March 3 2017, Chat box from online session

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EdgeTalks, March 3 2017, Chat

  1. 1. from Louis Warner to All Participants: WebEx Assistance: http://theedge.nhsiq.nhs.uk/school/webex-assistance/ from Pip to All Participants: Hello everyone - greetings from Cambridge where it's grey and rainy - but it's still Friday! from Mel Smith to All Participants: Morning! Mostly grey here in Coventry but I quite like grey - usually paired with yellow though :) from Paul Woodley to All Participants: Morning all from a very soggy Coventry! from Mel Smith to All Participants: A fellow Coventrain - Yay! Hi Paul. Hoping the #covmindthegap flock are joining in too - Naomi, Melissa are you there?! from Mel Smith to All Participants: Hello! from Mel Smith to All Participants: Oh it is! from Pip to All Participants: Hi Mel - good to see you here! from Paul Woodley to All Attendees: Hi Mel, good to see Coventry represented again! from Pip to All Participants: Also #DNAofCare from Heulwen to All Participants: Morning all! Greetings from Chester. Looking forward to this session! from Helen Lee to All Participants: Morning everyone from Lancashire - really looking forward to the talk :) from Naomi to All Participants: Morning from Coventry! Melissa and Mel also in the same city :) from Mel Smith to All Participants: Love the fact that my sister is tuning in too- Morning Sis (Melissa) from @SallyPezaro to All Participants: Morning all :) from Mel Smith to All Participants: Morning Karen and Pip! from melissa to All Participants: morning sis! from Mel Smith to All Participants: Morning All! from melissa to All Participants: morning all! from Mel Smith to All Participants: Hi Damon from Mel Smith to All Participants:
  2. 2. It is definitely time to rewrite them - so important - it's all about relationships from Mel Smith to All Participants: but know this can be difficult.. from Naomi to All Participants: Oh my goodness i am loving these quotes!! from Mel Smith to All Participants: Brene Brown has a way with words! from Naomi to All Participants: I am planning to help some adult social workers develop their own stories - anyone got any tips/thoughts? from Helen Lee to All Participants: the power of stories to connect us - fantastic from Louis Warner to All Participants: Video link for Impermanence slide: http://patientvoices.org.uk/flv/1028pv384.htm from Naomi to All Participants: 60 miles!!! from Heulwen to All Participants: So important to hear that you draw out a way for people to PRESENT their own stories, rather than to RE-PRESENT their stories.... so important. from Mel Smith to All Participants: ...amazing from Pip to All Participants: Thank you @Heulwen - we think so too! from Mel Smith to All Participants: ...this is incredibly powerful from Mel Smith to All Participants: ...creating a level playing field from Mel Smith to All Participants: Naomi, Melissa - we have to do this! from Naomi to All Participants: ooh yes such good learning from Naomi to All Participants: do what exactly Mel? from Paul Woodley to All Attendees: If you cannot hear the video please switch on your computer speakers from Mel Smith to All Participants: digitalise from Naomi to All Participants: ahh from Naomi to All Participants: yes that'd be good from melissa to All Participants: This is what I wanted to do with the stories... with a dash of doodling! from Heulwen to All Participants:
  3. 3. Compassion to self and others is the recurring theme...after our staff engagement day yesterday in my NHS Trust! from Mel Smith to All Participants: WOW from melissa to All Participants: Beautiful from Helen Lee to All Participants: compassion for ourselves and each other - a really powerful story. Thank you Natasha for sharing this from Kate Pound to Paul Woodley: Wow this is so powerful from Mel Smith to All Participants: open and non-hierarchical - key components from Kate Pound to All Participants: Wow this is so powerful from Heulwen to All Participants: I am interested in the mindful compassion in the workplace. Are there are models of this that can be shared? from Naomi to All Participants: how can we take part in a digitised workshop? from Pip to All Participants: Naomi, do get in touch with me - pip@pilgrimprojects.co.uk from Naomi to All Participants: :-) from Heulwen to All Participants: YES! I agree - the more we model vulnerability, the easier it is for others to feel that it isn't weak. Can be hard in process driven NHS at the moment.... from Naomi to All Participants: I find going for a walk and talk to start a story can work well... from Naomi to All Participants: just anything you're not emotionally ready to tell, i would say from Naomi to All Participants: i think perhaps I tried talking about my friends death too soon... from Heulwen to All Participants: Any tips on how we help the 'senior' levels in the NHS and provider Trusts recognise that stories (patients and staff) have equal (if not more) value to highlighting impact and outcome - rather than always prioritising process and waiting list targets in commissioning? Big question I know..... from Heulwen to All Participants: Naomi.....sorry to hear this... hope you are OK? from Naomi to All Participants: i think if you can have some freedom to test out gathering stories to then use them for positive change, then senior managers might engage from Naomi to All Participants:
  4. 4. aw thanks Heulwen. I'm fine, it was just over a year ago now. I was trying to encourage more people to cycle so felt it was relevant because my friend died in a cycling accident, and I know it will only be safer if more people get on their bikes from Mel Smith to All Participants: we have had some success with this in Coventry - and now have a story to tell about this ... from Louis Warner to All Participants: Video link for Touch slide: http://patientvoices.org.uk/flv/1006pv384.htm from Heulwen to All Participants: Naomi - It's so important to grieve openly - but safely isn't it. I suppose this where compassion is so important again.... from Naomi to All Participants: yeh definitely from Pip to All Participants: @Heulwen - it is a big question. I think that we can just keep trying. The more people are prepared to make themselves vulnerable, the more likely we are to succeed! from Mel Smith to All Participants: ...this is incredibly powerful - allowing us to engage with the real person behind the job title from Heulwen to All Participants: I have a lump in my throat... Thank you Damon from melissa to All Participants: Thank you for sharing your story Damon from Helen Lee to All Participants: what a powerful story - thank you Damon from Naomi to All Participants: thanks so much Damon from Heulwen to All Participants: Pip - I agree. I think we have to hope that the tipping point is not far off...but it can be a lonely road... from Helen Lee to All Participants: your story demonstrates beautifully that we are all people from melissa to All Participants: The best appointments I have had are where professionals have shared an understanding of my anxiety. Unfortunately I haven’t had any personal stories told to me...yet! from Heulwen to All Participants: I am planning my Twitter flurry AFTER this! It's too enthralling....!! from Mel Smith to All Participants: Damon - can you give us an eg about how this has helped from Paul Woodley to All Attendees: Vulnerability as a strength, needs courage to access from Naomi to All Participants: mm Melissa it would be interesting to see how you might tease this out of them...
  5. 5. from @SallyPezaro to All Participants: I find these stories so authentic - Authenticity in how we experience our work is great to role model from Mel Smith to All Participants: I agree! from Mel Smith to All Participants: The tracking would be where we'd find the most value! from Naomi to All Participants: yes, authenticity we were told was the best part about our social movement training :-) from melissa to All Participants: Agreed that medical students need to hear professional & patient stories... are there any ways patients can get involved with this? from Heulwen to All Participants: I agree - Stories are always the things that stay with people and are re-told - not necessarily data.... These stories should be part of yearly mandatory training to encourage re-connection. We know compassion fatigue is prevalent - and this would help people to remember our purpose again.... from Mel Smith to All Participants: I guess what I'm thinking is ... how are we building the capacity for this from Pip to All Participants: Melissa, we have lots and lots of patient stories.... from Mel Smith to All Participants: Thanks Damon from Heulwen to All Participants: Thanks again Damon from melissa to All Participants: yes I follow you on twitter, love what you are doing... I was wondering how stories can get into training modules, universities, etc? from Mel Smith to All Participants: Sorry not tweeting but I'm deep in concentration! from @SallyPezaro to All Participants: Hey Rachael *waves* :) - The midwives following my Facebook page (The academic midwife) loved your story when I shared it - Inspirational midwife :) from Pip to All Participants: @ Melissa, Lots of Patient Voices stories do appear in University modules.... there are well over 1 million hits each year on the website and many of those go into schools of medicine and healthcare.... from @SallyPezaro to All Participants: Sounds like there is a lot of research to be done on how far reaching these stories are...who they effect, how.. and why... from Pip to All Participants: Yes, @Sally! from @SallyPezaro to All Participants:
  6. 6. I have also added these stories to my lecturers from Louis Warner to All Participants: Video link for stay slide: http://patientvoices.org.uk/flv/1019pv384.htm from Heulwen to All Participants: Thanks Rachel - interesting to hear about your work from melissa to All Participants: that is good to hear that stories are being shared so widely! from Naomi to All Participants: this imagery is really powerful from @domcushnan to All Participants: oh this is has hit me hard from Mel Smith to All Participants: appreciate the silence towards the end - a welcome chance for reflection from Naomi to All Participants: lovely from @SallyPezaro to All Participants: So powerful Rachel from Helen Lee to All Participants: Thank you Rachel for sharing your very emotional story - so powerful from Heulwen to All Participants: No words... We rarely share the legacy that things leave and that permeate in every experience we have... thank you... from Naomi to All Participants: i guess with lots of these - what's the call to action? from melissa to All Participants: yes this is so important to make time and space to find out more about the people you work with from Mel Smith to All Participants: Thank you Rachel ... from Naomi to All Participants: ooh would love to hear more about this 'evidence'! from Tony Sumner to All Participants: THe Patient Voices website gets about 1.2million hits per year, about a third from within NHS, another third fro within universities - many stories are staff stories, so the stories they have shared are connecting to other staff, and future staff, going out as what I call 'activist memes' from Heulwen to All Participants: Trying to raise my hand...not sure I'm pressing the right button! Another big question...... We are trying to do this from the 'edge'....but I am interested in how NHSE. NHSI and the Pt Experience workstreams are doing CENTRALLY to help change the mindset and the value these bring? from Naomi to All Participants: yes please Kate! from Pip to All Participants:
  7. 7. Heulwen we'll unmute you in a minute! from Mel Smith to All Participants: yes please! from melissa to All Participants: I did volunteer with Warwick Uni and trainee doctors came out to interview me about my journey to diagnosis. It was an amazing liberating experience that I would like to do again! They told me they got so much from this way of doing things and as it was a rare diagnosis when they reported back to their class there was a lot of discussion provoked. Lovely to hear you have had universities contact you from @SallyPezaro to All Participants: This movement is growing :) from Mel Smith to All Participants: yes it is Sally! from melissa to All Participants: love 'activist memes' from Naomi to All Participants: definitely Damon from Naomi to All Participants: so powerful from @SallyPezaro to All Participants: Is there a way we can all connect and stay in touch? - Hoping we are all linked on Twitter from Naomi to All Participants: that would be lovely sally. I'm @healthynemo from melissa to All Participants: @talk2mels is my twitter handle from Mel Smith to All Participants: @GrapevineYP from @domcushnan to All Participants: @domcushnan from Heulwen to All Participants: I'm @HLSheldrick from Paul Woodley to All Attendees: We can put our twitter handles in chat and will be shared after the session on the webpage from @SallyPezaro to All Participants: gr8 from Paul Woodley to All Attendees: @paulwoodley4 from Naomi to All Participants: can someone tweet a photo with us all tagged in? from Tony Sumner to All Participants: @PatientVoicesUK from Mel Smith to All Participants:
  8. 8. Totally agree Kate from Helen Lee to All Participants: @helenlee321_lee from Mel Smith to All Participants: Thanks so much everyone - feel right at home here from Helen Lee to All Participants: A fantastic session - thank you everyone. Lots of ideas to take forward. Will be in touch for advice and support :) from melissa to All Participants: Loved this session! from Janet to All Participants: Thank you everyone. Do stay in touch and let us know about your experience on this WebEx: janet.wildman@nhs.net from Pip to All Participants: If you are happy to connect on Twitter, please do put your Twitter handle in the chat box - @pilgrimpip from melissa to All Participants: is there a website for #expofcare? from Amanda Johnson to All Participants: Missed the first half of the session so will catch up with that from the recording. However thank you so much for a thought provoking webex� have a great weekend everyone! from Tony Sumner to All Participants: also many, many other staff stories on www.patientvoices.org.uk !! from @domcushnan to All Participants: brilliant guys from Heulwen to All Participants: Thanks you so much for this session! This network is (as someone said) a great way to share and spread the movement.... I remain optimistic about the power of human connection! Great stuff. Thank you everyone! H from @SallyPezaro to All Participants: Thanks everyone! from melissa to All Participants: thank you! from @domcushnan to All Participants: got a list on twitter for this session https://twitter.com/DomCushnan/lists/dna-of-care- edge-talk?lang=en from Pip to All Participants: Thanks to all of you too! from Kate Pound to All Participants: thanks all for joining today

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