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Edge Talk: Nobody’s patient chat
fromKathrynPererato All Participants:
Hi everyone!Reallylookingforwardtothissessiontoday.
from@domcushnantwittermonitortoAll Participants:
Yeah me too.So veryimportantthatas a societywe getMaternity rightat everylevel,medicallyand
emotionally.
fromPaul WoodleytoAll Participants:
on manylevels
fromPaul WoodleytoAll Participants:
I can onlyhear youa bit,your connectionterrible!Doyouwantto dial in?
fromGill PhillipstoAll Participants:
Exciting!We have justhad a little runthroughourslidesandare goodto go! #MatExp #WhoseShose
#NobodysPatient#Edgetalks
from@domcushnantwittermonitortoAll Participants:
Brilliantlookingforwardtohearingyourreflections.
from@domcushnan twittermonitortoAll Participants:
The case studiesinthe reportthat Leighsharedwithme are encouraging
fromJanetto All Participants:
Hi all!Goodmorning.
from@domcushnantwittermonitortoAll Participants:
Good morning.Iam in Walsall today
fromCatherine MacLennanto All Participants:
Morningall I'm in Birmingham
fromPaul WoodleytoAll Participants:
Morningall from Coventry
from@domcushnantwittermonitortoAll Participants:
:)
fromGill PhillipstoAll Participants:
2 minutestogo.Not quite enoughtime towatchFlo'sfab'round up' filmof #MatExp
#NobodyPatient:https://animoto.com/play/TVQpiZqWHBl5GEagz14RHg#EdgeTalks
https://animoto.com/play/TVQpiZqWHBl5GEagz14RHg
fromJanetto All Participants:
So muchis written aboutpoorexperiences - thisisgreatto hearwhat isworking.
from@domcushnantwittermonitortoAll Participants:
thankyou forbeingso vulnerable andsharing
fromJanetto All Participants:
Creatingthe conditionsforchange canbe fun - we can all learnfromthis.
fromKathrynPererato All Participants:
Reallyclear,compellingexplanationof thiswork.
fromTony Longbone toAll Panelists:
morningall,sorryI'm late
fromJanetto All Participants:
Great that youcouldjoinus Tony!
fromVictoriaMorgan to All Participants:
Hi,I'm Victoria,I provide qualityimprovementtrainingtomaternityservices. Sorryforjoiningabit
late.
fromTony Longbone toAll Participants:
morningVictoria,thanksforjoiningus ☺
fromKate DaviestoAll Participants:
UnfortunatelyIhave torun to a meetingat10, but justwantedtosay it's beenaprivilege tohear
Leighand Catherine share theirexperiencesandgreattohear aboutsuch a fantasticproject.
fromDeirdre Munro to All Participants:
Hi my name isDeirdre Munro,global village midwife - passionate andbiggestfanof matexp
fromDeirdre Munro to All Participants:
Gill LeighandCatherine youare amazingI wantto thank youso much forall you so,it meansso
much
fromDeirdre Munro to All Participants:
do
fromVictoriaMorgan to All Participants:
Anyone listeningtoLeighandCatherine todaycansee that listeningtoparentswhohave
experiencedbereavementisessentialif we are toimprove qualityinmaternityservices. Leighand
Catherine alsodemonstratethattheycancollaborate constructivelywithhealthcare staff. So
pleasedNobody'sPatienthasdemonstratedthis. We needthe NHSmaternitysurveyand
investigationprocesstocatchup! Victoria:-)
from@domcushnantwittermonitortoAll Participants:
thanksVictoria.Whatdo yousee as the barrierfor the investigationprocessfornotlistening?
fromKathrynPererato All Participants:
It strikesme thatthisis alsoa 'flow'issue - and that mightbe anotherwayof translatingthe
campaignsintothe system
fromKathrynPererato All Participants:
i.e.Gapsin provisionof care are alsogapsin understandingof care pathways
fromVictoriaMorgan to All Participants:
ThanksDom. I thinkfearis an issue - thatparentsmightnot be constructive orit istoo emotional
for them. Staff alsoneedthe tools(toengage parentswell) andtomanage theiremotionsaswell as
leadershipnationallytoencourage themtodothis(the NHSmaternityservicessurvey,F&Ftest
exclude bereavedparentssadly).
fromKathrynPererato All Participants:
Q: What is (should?) these campaignsbe doingtocollectthe quantitativedataongaps inprovision?
fromKathrynPererato All Participants:
PerhapscollaboratingwithaTrustimprovementteamtodo a small-scale PDSA cycle asaway of
gatheringdataon provisiongaps.
fromVictoriaMorgan to All Participants:
Hi Kathryn,improvementscience iscertainlyagoodwayof objectivelyselectingandareato change
and planningatestof change. Involvingparentsinthiswouldbe key. Victoria
fromVictoriaMorgan to All Participants:
The material isreallyamazing - havingcrowdsourcedmaterialsmake itreal. I alsolove thatthey
recognise the perspectivesof parents,staff andcommissioners.
fromVictoriaMorgan to All Participants:
So true Gill,the differentviewsare sucha powerful elementof the work.
fromJanetto All Participants:
We can learnfromsmall intense groupengagementtogetto the heart of issues.
fromVictoriaMorgan to All Participants:
"Gettingprofessionals,fromdifferentspecialities,inthe roomandgetthemtalkingabouthow to
improve care - oftenquite simple things - wasincrediblypowerful." Love this!
fromCatherine MacLennanto All Participants:
Thank youDeirdre
fromKathrynPererato All Participants:
Beautiful slides.
fromTony Longbone toAll Participants:
powerful sessionthatall HCPscan learnfrom
fromTony Longbone toAll Participants:
tellingmystoryonlyonce,suchan importantfactorin myspecialtyandsomethingwe needtogetto
gripswith
fromCatherine MacLennanto All Participants:
so true Tony,can be traumaticrelivingexperiencestime andtime againwithdifferentHCP'sgotto
be a betterwayto dothis
fromTony Longbone toAll Participants:
agreedCatherine
fromKathrynPererato All Participants:
Reallypowerful,thankyouforsharingyourknowledgeandexperiences
fromGill PhillipstoAll Participants:
"Powerful sessionthatall HCPscanlearnfrom" - thank youTony. Yes, ourkeymessagesgoway
beyondmaternityservices - te themesare similaratall Whose Shoesworkshops.We are all people -
we all want to have a voice,choice,goodinformation,compassionandtofeel supportedwithour
individualneedsandaspirations.
fromVictoriaMorgan to All Participants:
Hi Catherine/Tony - Ilovedthe Nobody'sPatientcase studyfromKingstonewheretheyhave afree
textbox on the maternitybookingformsomumscan putdownwhat theywantHCPs to know
fromTony Longbone toAll Participants:
so important,we have asimilartool whichcan findoutso muchbut isn'tbeingusedtoit's full
potential.IthinkMH serviceshave alotto learnaboutknowingthe person.
fromGill PhillipstoAll Participants:
Yes the Nobody'sPatient case studyfromKingstonwheretheyhave afree textbox hasmade a big
impact- starts conversationsfromaverydifferentplace,takingintoaccountwhatmattersto
individuals
fromVictoriaMorgan to All Participants:
ThanksTony & Gill
fromVictoriaMorgan to All Participants:
Veryimportantpoint - needfora supportnetworkaroundparentswhoare sharingverydifficult
timesof theirlives.
fromJanetto All Participants:
Policymakerswhouse hardto reach and seldomheardare notlisteningtothese importantstories
and social movementapproachestochanginghealthandcare.
fromVictoriaMorgan to All Participants:
So agree,Janet
fromKathrynPererato All Participants:
Thanksfor thissession.
fromJanetto All Panelists:
Thank youfor sucha powerful sessionandyourcall toaction.
fromTony Longbone toAll Participants:
thanksall great session,yourdoingbrilliantwork
fromVictoriaMorgan to All Participants:
Thank youfor organisinganamazingsession - particularlyCatherineandLeighfor sharingyour
stories.
fromJo HemmingtoAll Participants:
Thank youfor sharingyourstoriesandfor a great session
from@domcushnantwittermonitortoAll Participants:
thankyou verymuchas alwaysforyourpassionandwork
fromDeirdre Munro to All Participants:
thankyou everyone - fabulousedge talk
fromDeirdre Munro to All Participants:
veryemotional session

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Edgetalks April 2017: Nobody's Patient: Improving Care and Experience in Maternity Services chat

  • 1. Edge Talk: Nobody’s patient chat fromKathrynPererato All Participants: Hi everyone!Reallylookingforwardtothissessiontoday. from@domcushnantwittermonitortoAll Participants: Yeah me too.So veryimportantthatas a societywe getMaternity rightat everylevel,medicallyand emotionally. fromPaul WoodleytoAll Participants: on manylevels fromPaul WoodleytoAll Participants: I can onlyhear youa bit,your connectionterrible!Doyouwantto dial in? fromGill PhillipstoAll Participants: Exciting!We have justhad a little runthroughourslidesandare goodto go! #MatExp #WhoseShose #NobodysPatient#Edgetalks from@domcushnantwittermonitortoAll Participants: Brilliantlookingforwardtohearingyourreflections. from@domcushnan twittermonitortoAll Participants: The case studiesinthe reportthat Leighsharedwithme are encouraging fromJanetto All Participants: Hi all!Goodmorning. from@domcushnantwittermonitortoAll Participants: Good morning.Iam in Walsall today fromCatherine MacLennanto All Participants: Morningall I'm in Birmingham fromPaul WoodleytoAll Participants: Morningall from Coventry from@domcushnantwittermonitortoAll Participants: :) fromGill PhillipstoAll Participants:
  • 2. 2 minutestogo.Not quite enoughtime towatchFlo'sfab'round up' filmof #MatExp #NobodyPatient:https://animoto.com/play/TVQpiZqWHBl5GEagz14RHg#EdgeTalks https://animoto.com/play/TVQpiZqWHBl5GEagz14RHg fromJanetto All Participants: So muchis written aboutpoorexperiences - thisisgreatto hearwhat isworking. from@domcushnantwittermonitortoAll Participants: thankyou forbeingso vulnerable andsharing fromJanetto All Participants: Creatingthe conditionsforchange canbe fun - we can all learnfromthis. fromKathrynPererato All Participants: Reallyclear,compellingexplanationof thiswork. fromTony Longbone toAll Panelists: morningall,sorryI'm late fromJanetto All Participants: Great that youcouldjoinus Tony! fromVictoriaMorgan to All Participants: Hi,I'm Victoria,I provide qualityimprovementtrainingtomaternityservices. Sorryforjoiningabit late. fromTony Longbone toAll Participants: morningVictoria,thanksforjoiningus ☺ fromKate DaviestoAll Participants: UnfortunatelyIhave torun to a meetingat10, but justwantedtosay it's beenaprivilege tohear Leighand Catherine share theirexperiencesandgreattohear aboutsuch a fantasticproject. fromDeirdre Munro to All Participants: Hi my name isDeirdre Munro,global village midwife - passionate andbiggestfanof matexp fromDeirdre Munro to All Participants: Gill LeighandCatherine youare amazingI wantto thank youso much forall you so,it meansso much fromDeirdre Munro to All Participants:
  • 3. do fromVictoriaMorgan to All Participants: Anyone listeningtoLeighandCatherine todaycansee that listeningtoparentswhohave experiencedbereavementisessentialif we are toimprove qualityinmaternityservices. Leighand Catherine alsodemonstratethattheycancollaborate constructivelywithhealthcare staff. So pleasedNobody'sPatienthasdemonstratedthis. We needthe NHSmaternitysurveyand investigationprocesstocatchup! Victoria:-) from@domcushnantwittermonitortoAll Participants: thanksVictoria.Whatdo yousee as the barrierfor the investigationprocessfornotlistening? fromKathrynPererato All Participants: It strikesme thatthisis alsoa 'flow'issue - and that mightbe anotherwayof translatingthe campaignsintothe system fromKathrynPererato All Participants: i.e.Gapsin provisionof care are alsogapsin understandingof care pathways fromVictoriaMorgan to All Participants: ThanksDom. I thinkfearis an issue - thatparentsmightnot be constructive orit istoo emotional for them. Staff alsoneedthe tools(toengage parentswell) andtomanage theiremotionsaswell as leadershipnationallytoencourage themtodothis(the NHSmaternityservicessurvey,F&Ftest exclude bereavedparentssadly). fromKathrynPererato All Participants: Q: What is (should?) these campaignsbe doingtocollectthe quantitativedataongaps inprovision? fromKathrynPererato All Participants: PerhapscollaboratingwithaTrustimprovementteamtodo a small-scale PDSA cycle asaway of gatheringdataon provisiongaps. fromVictoriaMorgan to All Participants: Hi Kathryn,improvementscience iscertainlyagoodwayof objectivelyselectingandareato change and planningatestof change. Involvingparentsinthiswouldbe key. Victoria fromVictoriaMorgan to All Participants: The material isreallyamazing - havingcrowdsourcedmaterialsmake itreal. I alsolove thatthey recognise the perspectivesof parents,staff andcommissioners. fromVictoriaMorgan to All Participants: So true Gill,the differentviewsare sucha powerful elementof the work.
  • 4. fromJanetto All Participants: We can learnfromsmall intense groupengagementtogetto the heart of issues. fromVictoriaMorgan to All Participants: "Gettingprofessionals,fromdifferentspecialities,inthe roomandgetthemtalkingabouthow to improve care - oftenquite simple things - wasincrediblypowerful." Love this! fromCatherine MacLennanto All Participants: Thank youDeirdre fromKathrynPererato All Participants: Beautiful slides. fromTony Longbone toAll Participants: powerful sessionthatall HCPscan learnfrom fromTony Longbone toAll Participants: tellingmystoryonlyonce,suchan importantfactorin myspecialtyandsomethingwe needtogetto gripswith fromCatherine MacLennanto All Participants: so true Tony,can be traumaticrelivingexperiencestime andtime againwithdifferentHCP'sgotto be a betterwayto dothis fromTony Longbone toAll Participants: agreedCatherine fromKathrynPererato All Participants: Reallypowerful,thankyouforsharingyourknowledgeandexperiences fromGill PhillipstoAll Participants: "Powerful sessionthatall HCPscanlearnfrom" - thank youTony. Yes, ourkeymessagesgoway beyondmaternityservices - te themesare similaratall Whose Shoesworkshops.We are all people - we all want to have a voice,choice,goodinformation,compassionandtofeel supportedwithour individualneedsandaspirations. fromVictoriaMorgan to All Participants: Hi Catherine/Tony - Ilovedthe Nobody'sPatientcase studyfromKingstonewheretheyhave afree textbox on the maternitybookingformsomumscan putdownwhat theywantHCPs to know fromTony Longbone toAll Participants:
  • 5. so important,we have asimilartool whichcan findoutso muchbut isn'tbeingusedtoit's full potential.IthinkMH serviceshave alotto learnaboutknowingthe person. fromGill PhillipstoAll Participants: Yes the Nobody'sPatient case studyfromKingstonwheretheyhave afree textbox hasmade a big impact- starts conversationsfromaverydifferentplace,takingintoaccountwhatmattersto individuals fromVictoriaMorgan to All Participants: ThanksTony & Gill fromVictoriaMorgan to All Participants: Veryimportantpoint - needfora supportnetworkaroundparentswhoare sharingverydifficult timesof theirlives. fromJanetto All Participants: Policymakerswhouse hardto reach and seldomheardare notlisteningtothese importantstories and social movementapproachestochanginghealthandcare. fromVictoriaMorgan to All Participants: So agree,Janet fromKathrynPererato All Participants: Thanksfor thissession. fromJanetto All Panelists: Thank youfor sucha powerful sessionandyourcall toaction. fromTony Longbone toAll Participants: thanksall great session,yourdoingbrilliantwork fromVictoriaMorgan to All Participants: Thank youfor organisinganamazingsession - particularlyCatherineandLeighfor sharingyour stories. fromJo HemmingtoAll Participants: Thank youfor sharingyourstoriesandfor a great session from@domcushnantwittermonitortoAll Participants: thankyou verymuchas alwaysforyourpassionandwork fromDeirdre Munro to All Participants:
  • 6. thankyou everyone - fabulousedge talk fromDeirdre Munro to All Participants: veryemotional session