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fromMark Outhwaite toAll Participants:
Morningall
fromJo HemmingtoAll Participants:
Good morningall
fromMark Outhwaite toA...
Interestedtofindouthowwe mighttake advantatge of thisto improve connectivityacrossthe
Northof Scotlandandouterislands
from...
fromMark Outhwaite toAll Participants:
Alsion- the ineffable JohnPophamhadthe followingquote aboutthat'Everytime youaska
f...
fromTim Mustill toAll Participants:
yep
fromCarolynChalmerstoAll Participants:
Yes
fromMark Outhwaite toAll Participants:
...
will there be clusterswithinclustersegtumourtype withinanoncologycommunity?The figure in
the slide implieslimitedoverlap.
...
Basilisk'sGlare syndrome
fromMark Outhwaite toAll Participants:
Justlookingatit freezesit
fromJon Bryant toAll Participant...
As forme mine isa verylongtermcondition.Iwasdiagnosedin1998. I ledto lossof careerhome
and yes,identity.SoItotallygetthe i...
fromMark Outhwaite toAll Participants:
swimming
fromÁine Carroll toAll Participants:
As a clinician,i thinkwe needtobe bra...
in these communitiesfrompositional authoritytoexperientalcredibilityisanimportantmind-set
for effective engagementforclini...
Is itjust healthprofessionalsthatneedthatspace?Anyprofessionalswithfitnesstopractice would
be interested?
from@domcushnant...
fromRussell GundrytoAll Participants:
Thanks, that wouldbe great
fromPaul WoodleytoAll Participants:
The slideswill be mad...
That looksreallyinteresting
fromSarah Chalmers-Page toAll Participants:
...healthbank,Idon'tknowaboutgoogle deepmind!
from...
thishas beena greatsession.Thankyou.Ihave to go now but I lookforwardto pickingupthe slides
and resources,anddevelopingmyt...
i thinkwe all agree onthat - usingvideobroadcastinglikeskype/hangoutsisgreatforremovingthat
barrieraroundtone of voice
fro...
fromJon Bryant toAll Participants:
The face to face is where the on-line seedcanbe planted,?
fromJane Douthwaite toAll Par...
@domcushnanThnx - good pointaboutlurkers
fromSarah Chalmers-Page toAll Participants:
Alison,I'mreallygladtohearabout the p...
ah couldkeepchattingforhour
fromJon Bryant toAll Participants:
Thankswas thoughtprovoking:)
fromTim Mustill toAll Particip...
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Edge Talk chat box from 3 June Exploring online health communities, with Paul Hodgkin and Ben Metz

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Edge Talk chat box from 3 June Exploring online health communities, with Paul Hodgkin and Ben Metz

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Edge Talk chat box from 3 June Exploring online health communities, with Paul Hodgkin and Ben Metz

  1. 1. fromMark Outhwaite toAll Participants: Morningall fromJo HemmingtoAll Participants: Good morningall fromMark Outhwaite toAll Participants: JoiningfromWiltshire fromMark Outhwaite toAll Participants: You avoidedmysurname!lol fromGareth to All Participants: Morning,Gareth fromLeeds fromGareth to All Participants: Good thanks,lookingforwardtothe talk! fromGareth to All Participants: Dont be sillyKate,itsthe Northright;) fromBen Metz to All Participants: Hi all,douse th echat box to letus knowyourinterestsinthe subjectandwhatspecificallyyouwant to discusstoday fromGareth to All Participants: Lol,yea we hadour fewdaysa fewweeksago:) fromCarolynChalmerstoAll Participants: VerymistyanddreichtinOrkney. I feel sorryforthe folkwhohave justarrivedonthe bigcruise linerinKirkwall bay fromFionaO'Neill toAll Participants: I am interestedinthe platformsthatcan connectpeople -whatworks? fromMark Outhwaite toAll Participants: My interesttodayisinthe analysisof social networksandonline communitiesandhow these insightscanbe usedto make evenbetteruse of these networks(whilstminimisingthe riskof 'freezingthembylookingatthem - the Basilisk'sGlare effect) fromCarolynChalmerstoAll Participants:
  2. 2. Interestedtofindouthowwe mighttake advantatge of thisto improve connectivityacrossthe Northof Scotlandandouterislands fromSarah Chalmers-Page toAll Participants: I'm newto the whole area,anddroppinginout of interest. I'mworkingonan STP andthinkthat technologyhashuge potential tosupportpatientinvolvementbothintheirowncare and infuture service development,buttodayI'mprobablyaimingtolurkand learn. fromBen Metz to All Participants: OK - thanks - useful stuff - wil tryand coverthese inthe conversation fromCarolynChalmerstoAll Participants: I like 'Lurkand Learn'Sarah fromSarah Chalmers-Page toAll Participants: There'sprobablya managementbookinthere somewhere! fromÁine Carroll toAll Participants: I'm responsible for5integratedcare programmesinIrelandandam verykeentosee how we can fullysupportpatient/citizenengagementinthe developmentof the programmes,self management supportetc.Going to listenandlearn! fromJanetto All Participants: Please tweetusinghashtag#EdgeTalksandthe handle @School4Radicals@theEdgeNHS fromJanetto All Participants: Checkout the workwe have done on platformsasa way of engaging: http://theedge.nhsiq.nhs.uk/wp-content/uploads/2016/04/Platforms-for-Social-Change-Final- report.pdf onthe NHSEdge. fromJanetto All Participants: ThanksPaul.All goingwell! fromJanetto All Participants: Couldwe share any on-line platformsthatwe know are effective forsharingpatientstories? fromBen Metz to All Participants: www.patientopinion.org.ukisthe platformthatPaul founded fromAlisonCamerontoAll Participants: Can't waitnexttime Iam expectedtogive consultancyorspeakasa patientatan expensive health care eventfornothingtointoruduce themtothe money,valuesandtrusttrilemma!....
  3. 3. fromMark Outhwaite toAll Participants: Alsion- the ineffable JohnPophamhadthe followingquote aboutthat'Everytime youaska freelancertodosomethingforfree aunicornbreaksitsleg& spearsa kitteninthe eye withitshorn as it falls' fromMark Outhwaite toAll Participants: AlisonImean!Spelling! fromAlisonCamerontoAll Participants: That is evenbetter!Iwill quote thatone forsure. fromSarah Chalmers-Page toAll Participants: Mark andAlison,Ido love that. I remembertalkingaboutpatientinvolvementata conference in 2010 and people stillbeingastonishedthattheyshouldinvolve the publicatall ("buttheyaren't trained!"),letalone paythem. fromKate PoundtoAll Participants: can you mute himplease? fromSarah Chalmers-Page toAll Participants: I wishI'd hadthe unicornline! fromMark Outhwaite toAll Participants: Ohh- I like that fromAlisonCamerontoAll Participants: Spearingcliniciansinthe eye isafirstforEdge Talks. fromMark Outhwaite toAll Participants: Dunbar's Number- the equivalentof '42' hohumm fromMark Outhwaite toAll Participants: An example of averyinterestingcommunityliterallyhackinghealthcare is http://www.nightscout.info fromTim Mustill toAll Participants: Is there a avearge %or ratio of active to watchingparticipantsforthese typesof cummunity? fromEsther FlanagantoAll Participants: How doyou measure meaningful onlinecommunityengagement?
  4. 4. fromTim Mustill toAll Participants: yep fromCarolynChalmerstoAll Participants: Yes fromMark Outhwaite toAll Participants: Yes - can hear fromSarah Chalmers-Page toAll Participants: yes fromMichele toAll Participants: yes,i can hearyou fromCarolynChalmerstoAll Participants: Notnow though fromMark Outhwaite toAll Participants: No notnowJanet fromEsther FlanagantoAll Participants: no fromBev Matthewsto All Participants: whatare the keycriteriafor successful self-sustainable online communities fromAlisonCamerontoAll Participants: Thisstuff aroundmanagingidentityisreallyinteresting.Iwasall aboutchallengingprofessionalsto leave theirjobtitle atthe doorbut realisedItoostruggledtoemerge fromthe "patientbox" fromMark Outhwaite toAll Participants: Janetyouare muted fromMark Outhwaite toAll Participants: yesnow fromJon Bryant toAll Participants: Hi Paul and Kate fromTim Mustill toAll Participants:
  5. 5. will there be clusterswithinclustersegtumourtype withinanoncologycommunity?The figure in the slide implieslimitedoverlap. fromMark Outhwaite toAll Participants: It isreallyinterestingwhenyoustarttoactuallygraphicallymapthese networks fromMark Outhwaite toAll Participants: Benand paul - youare on mute fromBen Metz to All Participants: sorry guys - we have no audio - soundslike underwaterdoctorwho fromMark Outhwaite toAll Participants: Ben/Paul couldcome invialandline ormobilephone fromMark Outhwaite toAll Participants: Detailsunderaudiomenuitem fromJanetto All Participants: it can be reallydifficulttoaligntrust,valuesandmoney - how can we do itin a verycompetitive environment? fromEsther Flanaganto All Participants: We have founditdifficultforNHSstaff toaccess online communitiesdue tolackof time butalso IT restrictions!Isitbettertouse existingplatformsortry to developnewones? fromJanetto All Participants: Baby dragons - love it?Usercentric designinonline communities - zerocostsappealstome fromTim Mustill toAll Participants: Can we pickup anythingfromsiteslike this...http://www.fabnhsstuff.net/ fromCarolynChalmerstoAll Participants: Our Vol sectorpartnershave helpedus(NHS) tosetup a Facebookpage forChronicPain fromMark Outhwaite toAll Participants: Dragons,unicornsand kittens - excellentsummaryof manyonline communities! fromJanetto All Participants: Please askyourquestionsinthe chatroom andI will tryto get Benand Paul to addressthem. fromMark Outhwaite toAll Participants:
  6. 6. Basilisk'sGlare syndrome fromMark Outhwaite toAll Participants: Justlookingatit freezesit fromJon Bryant toAll Participants: Thinkusingexistingplatformsbringsalevelof trustwithitthat startinggroundup doesn't fromMark Outhwaite toAll Participants: Alsouse existingplatformslike Facebookasitisalreadyfamiliar - alsprememberthatfor patients/carerstheirconditionisapart of theirlife not'apart fromtheirlife' fromMark Outhwaite toAll Participants: For cliniciansdiabetiesissomethingIdoat work.For patientdiabetiesispartof whoI am at workor at play fromJanetto All Participants: Estheris there a questionyouwanttoask? fromSarah Chalmers-Page toAll Participants: Mark, do you meanthatin termsof identity(e.g.whenIwaspregnantIidentifiedasapregnant woman,butwhenI have a migraine Idon't fullyidentifyasa migraine sufferer,so it'scondition dependent),orjustinthe softersense thatit'sa central part of life,notanepisode? fromJon Bryant toAll Participants: I like the opensource mentality/model fromSarah Chalmers-Page toAll Participants: I'm justthinkingthe extenttowhichtailoringtoidentitywoulddependonthe condition fromDerekC Stewartto All Participants: How dowe reallylearnfromthose whoare doingthisandshare that learning? fromMark Outhwaite toAll Participants: The softersense - itsall the overlappingcirclesthatare beingdescribed fromTim Mustill toAll Participants: Checkout ImogenCheese forclassicexampleof aninspiredindividual http://www.melanomapatientconference.co.uk/ fromAlisonCamerontoAll Participants:
  7. 7. As forme mine isa verylongtermcondition.Iwasdiagnosedin1998. I ledto lossof careerhome and yes,identity.SoItotallygetthe identitything.Mydiagnosesbecame mylabelsasthe thingsby whichI had previouslydefinedmyself were removed.Thisis mightydiffernttojustgoinginto have a boil lanced. fromCarolynChalmerstoAll Participants: I thinksome clinical colleaguesmightbe frightenedaboutexposingthemselveswiththiskindof interaction fromMark Outhwaite toAll Participants: What I am sayingI suppose thatthese communitiesnaturallyoverlapintoareasof widerlifewhlsta purelyNHSresponse tendstofocusonthe clinical andthose issuesimmediatelyadjacent fromMark Outhwaite toAll Participants: So more natural to findlike mindedpeople onFacebook - diabeticswhoalsoenjoyparachuting fromJanetto All Participants: I thinkthiswouldreallyappeal tocliniciansgiventhattheyoftendonthave the time forface to face engagement fromJanetto All Participants: One question isthe overlapbetweenidentityandconditionforon-line communities... fromSarah Chalmers-Page toAll Participants: ThanksMark, that makessense fromCarolynChalmerstoAll Participants: Applysome improvementmethodology? fromDerekC Stewartto All Participants: The NHS will enduplike KingCanute - youcannotstop thistide andas you saytheyhave to catch up. fromEsther FlanagantoAll Participants: How can we engage NHSmanagersto geton board withthe use of online communities? fromMark Outhwaite toAll Participants: You have to learnto swiminthe sea - not buildyourownswinningpool fromEsther FlanagantoAll Participants: I thinkthere isan elementof fear
  8. 8. fromMark Outhwaite toAll Participants: swimming fromÁine Carroll toAll Participants: As a clinician,i thinkwe needtobe brave andengage.Ihave learnta huge amount withmylimited online engagementandI'ma real scaredycat to keepwiththe animal theme! fromJon Bryant toAll Participants: Control stops thingstakingtheirnatural state,soperhapshonestbrokermoderatorsare a wayof goingwiththe flowof a forkingcommunity fromMark Outhwaite toAll Participants: The NHS (andindeedpatients) needtodoa lotmore to supportcliniciansandmanagers experiment and learninthisspace fromPaul WoodleytoAll Participants: findingawayto tap intopatientengagementcouldhelpgetaccesstothe increasedaccessto technologythatwasdiscussedearlier fromSarah Chalmers-Page toAll Participants: Certainlyearlierinmycareerwhenwe were firstdiscussingonline engagementthere wasalotof fearof whatpeople wouldsay,wouldtheybe critical,wouldtheybreachsomeone else's confidentiality("whenIsawMrs Smithat the doctorsshe said..."). Ihad hopedthatwasfadingbut I'm assumingnot? fromMark Outhwaite toAll Participants: Enormousdissonance betweenNHSmanagementandclinical experience of collaborative technologysupportingtheirrole internallyandwhatisemergingoutside the NHSamongstthese communitiesandprivate sector from@domcushnanto All Participants: @mark - yep fromEsther FlanagantoAll Participants: Fundamentallycliniciansare stilltrainedtocreate boundariesbetweenthemandpatients.Online communitieschallenge this. fromMark Outhwaite toAll Participants: Watch out for the Digital Zorroprojectcomingsoonwhichisdesignedtoaddresshow tosupport and create more Digital Insurgents fromMark Outhwaite toAll Participants:
  9. 9. in these communitiesfrompositional authoritytoexperientalcredibilityisanimportantmind-set for effective engagementforclinicians fromMichele toAll Participants: WouldBigWhite Wall fall intothe middle ground? fromJanetto All Participants: Changingourmindsettojourneynotjustproduct- reallyimportantinservice design. fromSarah Chalmers-Page toAll Participants: I thinkthere'salsoa reluctance toexpose personal life. If adoctor joinsanopencommunity,I'mnot sure theyknowhowto stop people seeingpersonal profilesandsites,whichmightinclude griping abouthow tiredtheyare,picturesof themonholidayorat a party,theirthoughtson the strike and so on. AndI thinkthere isa bitof fearaboutbeingtooopenand authenticincase you make a mistake andthensomeone seesapicture of youwitha glassof champagne froma couple of nights later. I've met social workerswhowere semi-forbiddenfromevenbeingonFacebook,letalone joiningcommunitiesrelatedtothe people theywere helping - Idon'tthinkdoctors andnurseshave everopenlybeenthatheavilycontrolledbutIcan see an emotional needtokeeponlineidentitiesas a sort of safe space. Doesanyone have anythoughtson how we couldsupporthealthprofessionals to feel thattheycouldsafelyengage withoutriskingtheirownonline safe space toventandrelax? fromSarah Chalmers-Page toAll Participants: Sorry,that turnedintoa bit of an epictangent.. fromDerekC Stewartto All Participants: The middle isaboutmutality - where we canlearnfromeach other(Patienttopatient;Patientand professions;InformationandStory) Thisleadstobettershareddecisionmaking from@domcushnanto All Participants: Veryinterestingcomment@Sarah fromEsther FlanagantoAll Participants: Good questionSarah! fromEsther FlanagantoAll Participants: I wouldlike toknowthe answerformyself! from@domcushnanto All Participants: @sarah - i thinkpeople have differentpersonasondifferentsocial platforms? fromkaren toAll Participants:
  10. 10. Is itjust healthprofessionalsthatneedthatspace?Anyprofessionalswithfitnesstopractice would be interested? from@domcushnanto All Participants: hmmwouldlike toknowmore aboutthe financing fromRussell GundrytoAll Participants: Is the presentationavailable online?Ican't openthe clickon the 'read more'linkswhenIclickon them! fromJon Bryant toAll Participants: by crowdsourcinginvestorsthe tail can'twag the dog? fromSarah Chalmers-Page toAll Participants: Karen,yes,Ithinkso. And@domcushnanI thinkthe problemwouldbe if youwere usinganexisting platform(whichIthinkisgreat). If a diabetesnurse joinedadiabetesgrouponFacebookthey'dbe usingherpersonal profile,unlesstheyknew how tosetupa "diabetesteamatSt Elsewhere"type page,and eventhatwouldlinktothemas a person. Sothey'dneedsupportto setprivacysettings so that,say, theirpolitical activismorthoughtsontheirhaircutwere still possibletohide fromthe diabetesgroup,if theyfeltunsafesharingthat. from@domcushnanto All Participants: @russell itshouldbe yes from@domcushnanto All Participants: @sarah yesi thinkthere isconversationaroundonline privacy?Idonthave abig answersorry fromkaren toAll Participants: So manysimilaritiestocurrentdiscussionsaroundpeersupport(offline).Thankyou:-) from@domcushnanto All Participants: where cani learnmore about Meta Capital :) fromTim Mustill toAll Participants: Is there a reference froEnatanglementtheory? fromMichele toAll Participants: thankyou Paul and Benreallyveryinterestingandinspiringwork. fromBen Metz to All Participants: do sendthe slidesaround - paul wwas goingto do a slideshare
  11. 11. fromRussell GundrytoAll Participants: Thanks, that wouldbe great fromPaul WoodleytoAll Participants: The slideswill be made availableandwill be sharedonthe Edge Talkspage after the event fromhelenbevantoAll Participants: Thishas beena fantasticsession.We needtotweetthe linkwidely andgetlotsof people watching this fromMichele toAll Participants: Balick'sbookis a greatresource fromJane Douthwaite toAll Participants: ThankyouPaul andBen,veryinterestingsession fromBen Metz to All Participants: aaron balick - the psychodynamicsof social networks fromBen Metz to All Participants: https://www.amazon.co.uk/Psychodynamics-Social-Networking-Instantaneous-Psychoanalysis- ebook/dp/B00FF739I8/ref=sr_1_1?ie=UTF8&qid=1464946599&sr=8-1&keywords=balick fromÁine Carroll toAll Participants: Blockchainasa wayto share data? Fascinating! fromDerekC Stewartto All Participants: Thank youso verymuchfor thisenlightenedandinformativeonline discussion. fromRussell GundrytoAll Participants: There'sa big questionabouthowthe tippingpointiscreatedinsocial healthcare.The massively successful techinnovatorstendtohave beendrivenbysimplicityandsingularvisionof an individual...Inhealthcare we have atendencytoclutterdesignbybeingall thingstoall people. from@domcushnanto All Participants: https://www.healthbank.coop/amazingwork from@domcushnanto All Participants: i wouldlove toknowyourthoughtsonGoogle DeepmindandIBMWatson on healthcare fromSarah Chalmers-Page toAll Participants:
  12. 12. That looksreallyinteresting fromSarah Chalmers-Page toAll Participants: ...healthbank,Idon'tknowaboutgoogle deepmind! fromkaren toAll Participants: Watson at AlderHey - wouldreallylike toknow parentsandchildren'sviewsonit fromÁine Carroll toAll Participants: Thishas beenanexcellentsession.Ihave muchto thinkaboutbutyou have givenme ideaswhere to start. Nowwheresthatinspiredindividualandhonestbroker...??! fromkaren toAll Participants: So muchof whathas beensaideasily appliestooffline peergroups/patientgroups - Is iteasierto do all thisonline oroffline? fromAlisonCamerontoAll Participants: Follow@mjseresforgreatinsightfromapatiententrpreneur. fromDerekC Stewartto All Participants: Worth lookingatmanyof the rarer cancer groupsin Europe. from@domcushnanto All Participants: @kareni thinkonline allowspeople todothingsatanytime anywhere fromJon Bryant toAll Participants: Opensource thinkingcouldcreate aninterface betweensocialmediaplatformslike anAPI fromSarah Chalmers-Page toAll Participants: ThanksAlison fromÁine Carroll toAll Participants: @karengood question!Dowe knowwhichisbetter? fromkaren toAll Participants: @domcushnandoesthatmake it a biggerthreatto systems?Andthereforepotentiallyeasierto start withoffline groups? fromMichele toAll Participants:
  13. 13. thishas beena greatsession.Thankyou.Ihave to go now but I lookforwardto pickingupthe slides and resources,anddevelopingmythinkingabout participationinall the onlinecommunitiesthatI belongto. from@domcushnanto All Participants: as technologistIamconflictedasI thinksome conversationsandsupportcanbe done viadigital but thensome issuesIwantto speakto someone inareal environment. fromÁine Carroll toAll Participants: @domcushnanIthinkthat's right.Differentoptionsfordifferentthings.Isuppose itscreatingthe conditionsforhavingthatchoice? fromkaren toAll Participants: @domcushnan I'dbe interestedtoknow whatcan't be done online:evenlocally,onlineeasierfor anytime support. from@domcushnanto All Participants: holdingsomeoneshandandtellingthemitwill be okayisdifferentthansendingaforumor whatsappmessage fromkaren toAll Participants: @Alison- thanksforthe linkto@mjseres - love histwitterbioas'Epatientinresidence' - let'shave more of them:-) fromJane Douthwaite toAll Participants: @domcushnanagree.Some thingsare betterdiscussedinreal environmentratherthandigitally. fromSarah Chalmers-Page toAll Participants: Karen,I wonderif some of the McMillanstyle,compasionandpersonal contactstuff,whichhasa massive impactonpeople,wouldstruggle online. Iam *very* keenformuchmore digital communityworkbutI can see it's a hard one forthat sort of contact and lonelinessreduction. We can do compassiononline butwe can'tdotea fromSarah Chalmers-Page toAll Participants: That and I've seensome nastyflame warsover"tone of voice"whichishard online! fromkaren toAll Participants: @domcushnanholidngsomeone'shandcan onlybe done at a fixedtime - bookedappointmentetc- whatsappisbrilliantformiddleof the nightvirtual hugsandhandholding from@domcushnanto All Participants:
  14. 14. i thinkwe all agree onthat - usingvideobroadcastinglikeskype/hangoutsisgreatforremovingthat barrieraroundtone of voice fromAlisonCamerontoAll Participants: I thinkpeople likeMichael are sofar removedfromthe traditional view of "patientrep"orwhatever it iswe tendto getlabelledas.Wascalled"ourlayrep" the otherday byan organisationwithwhom I workas a paidconsultantinpatientandpublicengagement....face/palm. fromJane Douthwaite toAll Participants: eg.for me lookingatdevelopinglisteningservice,supportgroupforlocal birthtrauma witha midwiferyunit.Thisneedstobe apersonal compassionate contact fromkaren toAll Participants: @Sarah I've had loadsof virtual teawithpeople (Iagree there'sa differenceBTW- justtryingto thinkthroughdifference) fromSarah Chalmers-Page toAll Participants: Karen,I agree on the 3am thingcompletely. Ithinkthere'sarole for that, *and* insome casesfor appointments. fromSarah Chalmers-Page toAll Participants: (whatsappisprobablythe onlyreasonIkeptbreastfeeding,onapersonal note!) from@domcushnanto All Participants: @Jane you shouldchatto https://twitter.com/ESasaruNHSasI have beenhavingchatsaroundthis from@domcushnanto All Participants: local supportgroupson a regularbasisand signpostingthemtoonline communications fromMark Outhwaite toAll Panelists: In manycasesTrust IG restrictionspreventaccesstomanytoolsand communities fromkaren toAll Participants: @jane I'm hearingof loadsof FB groups forperinatal mental health - new mumscan'tget outto groups fromJane Douthwaite toAll Participants: @domcushnanIhave beenfora while.She'sgreat,and@ghostwrittermumm fromSarah Chalmers-Page toAll Participants: ooh,Alison,howannoying.
  15. 15. fromJon Bryant toAll Participants: The face to face is where the on-line seedcanbe planted,? fromJane Douthwaite toAll Participants: we have beenlookingata 24 hr telephone service asanalternative forface toface from@domcushnanto All Participants: @jonyeahit helpswiththe trustpart too fromMark Outhwaite toAll Panelists: Many groupsnow mixingasynchronouschat,synchronousforumsandvideochat(Skype groups, Airwave andHangoutsetc) fromMark Outhwaite toAll Panelists: togetherwith'socials' fromkaren toAll Participants: If NHS can't supportsmall local groups,how will itthenmake the leaptosupportinglargeronline groups? from@domcushnanto All Participants: on demandsupportissomethingthatI stronglyfeel people wantandthatswhydigital allowsthat fromMark Outhwaite toAll Panelists: Doesthe NHS have to 'support'groups? Perhapsitshouldsupportitsownstaff to engage inexisting and emergent groupswithconfidence fromAlisonCamerontoAll Participants: Hi sarah.Yes it showssuchlimitedconceptof whatishappeningoutthere where "patients"are actingas educators,entrepreneurs,researchers,advocatesetcetcetc.There isevena Patient Directorsharingstrategicleadership.Timestheyare achangin. from@domcushnanto All Participants: and dependingonthe groupI mightnot interactbutI will lurkandgetmy answersbyotherpeoples commentsandanwer fromMark Outhwaite toAll Panelists: Andget some of these communitiesto supportNHSstaff make the transitionintousingthis technologymore effectively fromkaren toAll Participants:
  16. 16. @domcushnanThnx - good pointaboutlurkers fromSarah Chalmers-Page toAll Participants: Alison,I'mreallygladtohearabout the patientdirector. Ithinkpatientsandmembersof the public are a massive engine forchange andcommonsense,andit'sgreatto stepbeyondasingle lay memberorrare forumintomuch more creative approaches. fromSarah Chalmers-Page toAll Participants: I think I've justfoundyouon twitter. fromJon Bryant toAll Participants: Notsure froman individualsperspective thattheywillwanttoto go to the bigsystem, the intimacy iskeyto feelingsafe,needstoworklike ahoneycombemaybe? fromMark Outhwaite toAll Panelists: follow@davidgilbert43forthe patientdirector fromCarolynChalmerstoAll Participants: Thank you fromÁine Carroll toAll Participants: Thanksto all! fromSarah Chalmers-Page toAll Participants: thankyou verymuch! fromMark Outhwaite toAll Panelists: Well done andthanksall from@domcushnanto All Participants: @Jon yesyouare rightgoodway of lookingat it fromGareth to All Participants: Thanksverymuch guys fromPaul WoodleytoAll Participants: Thank you fromkaren toAll Participants: Thank you - lotsto thinkabout - lookingforwardtoseeingslides from@domcushnanto All Participants:
  17. 17. ah couldkeepchattingforhour fromJon Bryant toAll Participants: Thankswas thoughtprovoking:) fromTim Mustill toAll Participants: TVM! END OF CHAT

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