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Inspire Rare Disease Health Communities at a Glance


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People affected by rare diseases come to Inspire's health communities for peer-to-peer information and support. The number of discussions and the types and depths of connections are what make the communities invaluable to tens of thousands of patients and caregivers worldwide.

Published in: Health & Medicine

Inspire Rare Disease Health Communities at a Glance

  1. 1. RARE DISEASE HEALTH COMMUNITIES 80,000+ THREE YEARS AGO 27,000 MEMBERS WHO ARE IN AT LEAST ONE OF INSPIRE'S 20+ RARE DISEASE COMMUNITIES as of Dec. 2013 ONE YEAR AGO 56,000 THREE-YEAR GROWTH RATE 203% “I have received an incredible amount of information from so many people.” –Parent of child with von Hippel-Lindau (VHL) disease Posts in 2013 by Rare Disease Community Members (Selected communities, through Dec. 2013) 80,000 POSTS EHLERS-DANLOS NATIONAL FOUNDATION COMMUNITY 24,000 POSTS GENETIC ALLIANCE COMMUNITY 61,000 POSTS FOUNDATION FOR SARCOIDOSIS RESEARCH COMMUNITY 31,000 POSTS NEUROFIBROMATOSIS NETWORK COMMUNITY 46,000 POSTS SCLERODERMA FOUNDATION COMMUNITY 6,000 POSTS TUBEROUS SCLEROSIS ALLIANCE COMMUNITY “Most of us will never meet in person, but here is a place where we all understand the diagnosis, the concerns, and what it's like to live with this.” –Woman with Neurofibromatosis Type 1 Inspire is the patient engagement company. We build and manage peer-to-peer online health support communities for over 425,000 patients and caregivers, and help industry connect to members for the purpose of clinical research, marketing research, and promotion. Find out more at, or by contacting us at