1. Susanna-Assunta Sansone, PhD
Associate Professor, Engineering Science
Associate Director, Group Leader, Oxford e-Research Centre
University of Oxford, UK
ORCiD: 0000-0001-5306-5690 | Twitter: @SusannaASansone
Data policies and data sharing to support
COVID-19 research: the role of FAIRsharing
datareadiness.eng.ox.ac.uk
The Global Health Network webinar,
COVID-19 focused platforms and registries for sharing participant-level clinical-epidemiological, OMICs, and imaging data, 14 July 2021
Slides: https://www.slideshare.net/SusannaSansone

2. DOI: 10.1038/sdata.2016.18
Globally unique
and persistent
identifiers
Community defined
descriptive
metadata
Community
defined
terminologies
Detailed
provenance
Terms of
access
Terms of
use
FAIR data: the role of repositories and standards
URL: oecd.org/coronavirus/policy-responses/why-open-science-is-critical-to-combatting-covid-19-cd6ab2f9

3. A global resource for repositories, standards and policies
Key elements of the FAIR ecosystem
COMMUNITY STANDARDS
DATA POLICIES
by funders, journals
and other organizations
REPOSITORIES
including databases
and knowledgebases
Identifiers
Terminologies Guidelines
Formats

4. Promoting the value of repositories, standards, policies
Guides consumers to discover, select and use
these resources with confidence
Helps producers to make their resources more
visible, more widely adopted and cited
Fosters a culture change where the use of
these resources for FAIRer data is
pervasive and seamless
Total of
over 3500
resources
repositories
standards
policies

5. URL: fairsharing.org/collection/TDRCOVID19Participantleveldatasharingplatformsregistries
A dedicated
FAIRsharing
collection
URL: coronavirus.tghn.org/research-resources/data-sharing-covid-19
Credit to:
Delphine Dauga
FAIRsharing
Data Curator Manager

6. URL: fairsharing.org/collection/TDRCOVID19Participantleveldatasharingplatformsregistries
A dedicated
FAIRsharing
collection

7. Repositories in the Collection and
relationships among them, if any

8. Repositories in the Collection and
relationships among them, if any
Repositories in the Collection +
their relationships with repositories
outside the Collection

9. Repositories in the Collection and
relationships among them, if any
Repositories in the Collection +
their relationships with repositories
outside the Collection
ENA
DOI: 10.25504/FAIRsharing.dj8nt8

10. Repositories in the Collection and
relationships among them, if any
Repositories in the Collection +
relationships with the standards
they implement
Repositories in the Collection +
their relationships with repositories
outside the Collection

11. Repositories in the Collection and
relationships among them, if any
Repositories in the Collection +
relationships with the standards
they implement
Repositories in the Collection +
their relationships with repositories
outside the Collection
EGA
DOI: 10.25504/FAIRsharing.mya1ff
CRF
URL: fairsharing.org/bsg-s001458

12. Repositories in the Collection and
relationships among them, if any
Repositories in the Collection +
the policies that recommend them
Repositories in the Collection +
relationships with the standards
they implement
Springer Nature data policies
URL: fairsharing.org/policies/?q=Springer+Nature
Repositories in the Collection +
their relationships with repositories
outside the Collection

13. Importance of clearer and stronger data policies
FAIRsharing-driven
Data Working Group:
1. Strengthen the DAS statements
To ensure access and reusability of the
data (datasets, software, code and other
digital resources) underlying C19 articles
2. Harmonize the data guidelines
To ensure policies become clearer on how
C19 data should be made available via the
appropriate repositories
URL: oaspa.org/data-deposition-required-for-all-c19-rapid-review-publishers

14. Stakeholder Advisors
● Emma Ganley, Director of Strategic Initiatives, Protocols.io
● Michael Ball, Biotechnology and Biological Sciences Research Council (BBSRC)
● Theo Bloom, British Medical Journal (BMJ)
● Nick Everitt and Matthew Cannon, Taylor and Francis
● Wei-Mun Chan, eLife
● Geraldine Clement-Stoneham, Head of Knowledge Management and Scholarly
Communication, Medical Research Council (MRC)
● Helena Cousijn, DataCite
● Scott Edmunds, GigaScience, Oxford University Press
● Dominic Fripp, JISC, UK
● Simon Hodson, CODATA
● Iain Hrynaszkiewicz, PLoS
● Mike Huerta, Coordinator of Data & and Open Science Initiative, Associate Director
for Programme Development at the NIH National Library of Medicine
● Amye Kenall, VP of Publishing and Product, Research Square
● Adam Leary, Oxford University Press
● Thomas Lemberger, EMBO Press
● Luiz Olavo Bonino, GO-FAIR
● Kiera McNiece, Cambridge University Press
● Dagmar Meyer, European Research Council (ERC), Executive Agency
● Marina Soares E Silva, Ilaria Carnevale and Sarah Callaghan, Elsevier
● Imma Subirats, Information Management Officer, FAO of the United Nations
● Molly Cranston and Guillaume Wright, F1000Research
● Kathryn Sharples, Wiley
● Catriona MacCallum, Hindawi
Operational Team
● Allyson Lister, Content and Community Lead
● Milo Thurston, Technical Lead
● Ramon Granell, Data Enrichment & Quality Manager
● Delphine Dauga, Data Curator Manager
● Hossein Mirian, Web Developer
● Dominique Batista, Research Software Engineer
● Massimiliano Izzo, Research Software Engineer
● Philippe Rocca-Serra, Co-Founder
● Susanna-Assunta Sansone, PI and Founder
Executive Advisors
● Varsha Khodiyar, Springer Nature
● David Carr, The Wellcome Trust, Wellcome Open Research
● Chris Graf, Wiley
● Marta Teperek, Data Stewardship Coordinator, TUDelft
● Robert Hanisch, Director, NIST Office of Data & Informatics
● Peter McQuilton, GSK
Adopters and user community: fairsharing.org/communities