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Your voice, your story, your life: You matter


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This presentation was delivered as part of the inaugural meeting of the NIHR Manchester Clinical Research Facility Young Person’s Advisory Group, to provide young people with some context about how young people have become involved in research, and the important role that they play in shaping research, care and treatment for the future.

Published in: Healthcare
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Your voice, your story, your life: You matter

  1. 1. Your VOICE, Your story, your life: You Matter Simon Stones @SimonRStones
  2. 2. 2,730,000People living in Greater Manchester New Economy Greater Manchester Key Facts (2016)
  4. 4. YOUR RHEUM A Manchester-based group with a national reach, enabling young people to influence paediatric and adolescent rheumatology research. A group for 11 to 24 year olds across the UK with diagnosed rheumatic conditions to advise, input and shape current adolescent and young adult rheumatology research.
  5. 5. GENERATIONR Five groups of young people across the UK (Bristol, Birmingham, Liverpool, London and Nottingham) working with researchers on a variety of different projects. “We contribute to future research…” “We make new friends and build confidence” “We extend our knowledge and skills” “We have a voice and make a difference…”
  6. 6. The NIHR-funded TRECA study has developed multimedia information (MMI) resources with text, animations, videos and diagrams to inform children, adolescents and parents about clinical trials.
  7. 7. “No matter what people tell you, words and ideas can change the world.”